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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

My story...

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My story...

Post  cristina1133 on Thu May 23, 2013 12:22 pm

Hi everyone! My name is Cristina I'm italian but i currently live in London.
I stated suffering of vuvlodinya 9 months ago, and everything started without no reason or previous symptoms, just one day it came. I spent the first 4 months seeing doctors and no one was able to give me a right diagnosis and made me take loads of antibiotics saying that they reconised that I was feeling bad and it could have been some kind of sofisticated virus not visible on the analysis but that we had to kill in any case.
While I started these cures I felt worseand worse. When it started I'd just moved to the UK, I will always remember it as the worst moment of my life.. So difficoult to handle. I didn't even know how to ask for a GP, went to the hospital several time but too difficoults to explain how I was feeling.. I mean I know a bit of english (in fact I also saysorry for that, hope you understant).
By the way the previous doctors that I mentioned are italian from my city which is Bari , in the very south of Italy, because finally I decided to be cured by my doctors. What happened I've already told youbefore.
They never convinced me and I've always belived that was not the right way and I started searching on the internet untill I finally discovered the vulvodynia.I have to thank Aida who is also a member of this forum plus she is the creator of the italian forum Volvodiniapuntoinfo.com because I found all the information about it and also a very qualified doctor in Rome who is curing me from last december. I'm taking as medicines Laroxyl which is the antidepressant used most for the vulvodynia but I'm also doing pelvic physioterapy.
Today I feel much better and If I only think how I was feeling bad until a few months ago i would probably kill myself.. It's really hard but we have to belive it will finish one day! it's also difficoult to find comprehension around us, isn't it? I decided to share my story here as well, also if some of you have any suggestion about specialists, cures, supports here in London I would much aprreciate because I'm here alone and once a month I usually go to rome to see my doctor. It's also hard to afford.. I don't know if here in the UK there is any support in terms of money for the vulvodynia, because in Italy we do not have any advantage and the cure are very expensive! I realized preatty soon that you must be rich to cure the vulvodynia! Rolling Eyes that's the end of the history! Thanks to everyone who read my story, thank you girls for your patience, I wish the best of luck for all of us!
take care


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Age : 36
Location : London UK

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Re: My story...

Post  tinkerbelle2 on Sat Oct 19, 2013 4:43 pm

Hey Cristina,

I see this post is old, , hope things have improved.

I know what you mean about not wanting to live with this! It can really ruin things.

What are your symptoms and is your pain provoked or unprovoked?

Belle x

Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

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