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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

My story...

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My story...

Post  cristina1133 on Thu May 23, 2013 12:22 pm

Hi everyone! My name is Cristina I'm italian but i currently live in London.
I stated suffering of vuvlodinya 9 months ago, and everything started without no reason or previous symptoms, just one day it came. I spent the first 4 months seeing doctors and no one was able to give me a right diagnosis and made me take loads of antibiotics saying that they reconised that I was feeling bad and it could have been some kind of sofisticated virus not visible on the analysis but that we had to kill in any case.
While I started these cures I felt worseand worse. When it started I'd just moved to the UK, I will always remember it as the worst moment of my life.. So difficoult to handle. I didn't even know how to ask for a GP, went to the hospital several time but too difficoults to explain how I was feeling.. I mean I know a bit of english (in fact I also saysorry for that, hope you understant).
By the way the previous doctors that I mentioned are italian from my city which is Bari , in the very south of Italy, because finally I decided to be cured by my doctors. What happened I've already told youbefore.
They never convinced me and I've always belived that was not the right way and I started searching on the internet untill I finally discovered the vulvodynia.I have to thank Aida who is also a member of this forum plus she is the creator of the italian forum Volvodiniapuntoinfo.com because I found all the information about it and also a very qualified doctor in Rome who is curing me from last december. I'm taking as medicines Laroxyl which is the antidepressant used most for the vulvodynia but I'm also doing pelvic physioterapy.
Today I feel much better and If I only think how I was feeling bad until a few months ago i would probably kill myself.. It's really hard but we have to belive it will finish one day! it's also difficoult to find comprehension around us, isn't it? I decided to share my story here as well, also if some of you have any suggestion about specialists, cures, supports here in London I would much aprreciate because I'm here alone and once a month I usually go to rome to see my doctor. It's also hard to afford.. I don't know if here in the UK there is any support in terms of money for the vulvodynia, because in Italy we do not have any advantage and the cure are very expensive! I realized preatty soon that you must be rich to cure the vulvodynia! Rolling Eyes that's the end of the history! Thanks to everyone who read my story, thank you girls for your patience, I wish the best of luck for all of us!
take care


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Join date : 2013-05-08
Age : 37
Location : London UK

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Re: My story...

Post  tinkerbelle2 on Sat Oct 19, 2013 4:43 pm

Hey Cristina,

I see this post is old, , hope things have improved.

I know what you mean about not wanting to live with this! It can really ruin things.

What are your symptoms and is your pain provoked or unprovoked?

Belle x

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

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