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Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


My story...

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My story...

Post  cristina1133 on Thu May 23, 2013 12:22 pm

Hi everyone! My name is Cristina I'm italian but i currently live in London.
I stated suffering of vuvlodinya 9 months ago, and everything started without no reason or previous symptoms, just one day it came. I spent the first 4 months seeing doctors and no one was able to give me a right diagnosis and made me take loads of antibiotics saying that they reconised that I was feeling bad and it could have been some kind of sofisticated virus not visible on the analysis but that we had to kill in any case.
While I started these cures I felt worseand worse. When it started I'd just moved to the UK, I will always remember it as the worst moment of my life.. So difficoult to handle. I didn't even know how to ask for a GP, went to the hospital several time but too difficoults to explain how I was feeling.. I mean I know a bit of english (in fact I also saysorry for that, hope you understant).
By the way the previous doctors that I mentioned are italian from my city which is Bari , in the very south of Italy, because finally I decided to be cured by my doctors. What happened I've already told youbefore.
They never convinced me and I've always belived that was not the right way and I started searching on the internet untill I finally discovered the vulvodynia.I have to thank Aida who is also a member of this forum plus she is the creator of the italian forum Volvodiniapuntoinfo.com because I found all the information about it and also a very qualified doctor in Rome who is curing me from last december. I'm taking as medicines Laroxyl which is the antidepressant used most for the vulvodynia but I'm also doing pelvic physioterapy.
Today I feel much better and If I only think how I was feeling bad until a few months ago i would probably kill myself.. It's really hard but we have to belive it will finish one day! it's also difficoult to find comprehension around us, isn't it? I decided to share my story here as well, also if some of you have any suggestion about specialists, cures, supports here in London I would much aprreciate because I'm here alone and once a month I usually go to rome to see my doctor. It's also hard to afford.. I don't know if here in the UK there is any support in terms of money for the vulvodynia, because in Italy we do not have any advantage and the cure are very expensive! I realized preatty soon that you must be rich to cure the vulvodynia! Rolling Eyes that's the end of the history! Thanks to everyone who read my story, thank you girls for your patience, I wish the best of luck for all of us!
take care
Cristina

cristina1133

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Age : 37
Location : London UK

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Re: My story...

Post  tinkerbelle2 on Sat Oct 19, 2013 4:43 pm

Hey Cristina,

I see this post is old, , hope things have improved.

I know what you mean about not wanting to live with this! It can really ruin things.

What are your symptoms and is your pain provoked or unprovoked?

Belle x
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tinkerbelle2

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Join date : 2013-09-28
Age : 26
Location : Brighton, England, UK.

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