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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


My story...

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My story...

Post  cristina1133 on Thu May 23, 2013 12:22 pm

Hi everyone! My name is Cristina I'm italian but i currently live in London.
I stated suffering of vuvlodinya 9 months ago, and everything started without no reason or previous symptoms, just one day it came. I spent the first 4 months seeing doctors and no one was able to give me a right diagnosis and made me take loads of antibiotics saying that they reconised that I was feeling bad and it could have been some kind of sofisticated virus not visible on the analysis but that we had to kill in any case.
While I started these cures I felt worseand worse. When it started I'd just moved to the UK, I will always remember it as the worst moment of my life.. So difficoult to handle. I didn't even know how to ask for a GP, went to the hospital several time but too difficoults to explain how I was feeling.. I mean I know a bit of english (in fact I also saysorry for that, hope you understant).
By the way the previous doctors that I mentioned are italian from my city which is Bari , in the very south of Italy, because finally I decided to be cured by my doctors. What happened I've already told youbefore.
They never convinced me and I've always belived that was not the right way and I started searching on the internet untill I finally discovered the vulvodynia.I have to thank Aida who is also a member of this forum plus she is the creator of the italian forum Volvodiniapuntoinfo.com because I found all the information about it and also a very qualified doctor in Rome who is curing me from last december. I'm taking as medicines Laroxyl which is the antidepressant used most for the vulvodynia but I'm also doing pelvic physioterapy.
Today I feel much better and If I only think how I was feeling bad until a few months ago i would probably kill myself.. It's really hard but we have to belive it will finish one day! it's also difficoult to find comprehension around us, isn't it? I decided to share my story here as well, also if some of you have any suggestion about specialists, cures, supports here in London I would much aprreciate because I'm here alone and once a month I usually go to rome to see my doctor. It's also hard to afford.. I don't know if here in the UK there is any support in terms of money for the vulvodynia, because in Italy we do not have any advantage and the cure are very expensive! I realized preatty soon that you must be rich to cure the vulvodynia! Rolling Eyes that's the end of the history! Thanks to everyone who read my story, thank you girls for your patience, I wish the best of luck for all of us!
take care
Cristina

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Re: My story...

Post  tinkerbelle2 on Sat Oct 19, 2013 4:43 pm

Hey Cristina,

I see this post is old, , hope things have improved.

I know what you mean about not wanting to live with this! It can really ruin things.

What are your symptoms and is your pain provoked or unprovoked?

Belle x
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tinkerbelle2

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