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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Are you getting wet?

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Are you getting wet?

Post  JemimaSurrender on Sat May 25, 2013 12:09 pm

I was just about to apologise for the upcoming crude content, then remembered who I was talking to, you're all used to it by now!

So, I've had about a year of being able to have sex mostly pain free, although it is starting to come back slightly now and it does hurt during penetration. But what is bothering me the most is not only my completely flat sex drive, but also the fact that for some reason I'm not getting wet!

It makes no difference whether I'm at it myself, or it's my boyfriend... I get turned on, and it's all completely normal, then I touch and there's nothing there, it's literally bone dry. It's horrible. It makes me frustrated, angry and sad and I just want to scream in the middle of it. I know at the time that my boyfriend knows I'm not wet and he's probably thinking he's not turning me on, even though he already knows it's an issue.

I just don't know what to do. I've told my doctor and she gave me Replens, but when I use it all it does it come out of me in gloopy chunks, it's not very nice at all and completely inappropriate when you're at it, gross! She also said that that's the only thing I can try that doesn't involve giving me hormones, which she can't do because that seems to be what caused all the problems in the first place.

Has anyone else had this problem before, and have they tried anything good that worked?

Also, can anyone recommend any good lube, or pinpoint what it is in the ingredients that irritates? I work in a sex shop and have access to a wiiiiide range of different ones, but they all seem to sting me so much, any tips would be great!

Aaaand, if anyone knows of any supplements or any suggestions of how to pick your sex drive back up that would be amazing! I need it back!!

Thank you so much for reading!

JemimaSurrender

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Re: Are you getting wet?

Post  Dandsforever23 on Sat May 25, 2013 6:29 pm

I feel the exact same way. Before my vulvodynia issue I would always get turned on right away and get really wet, but now it seems like I don't produce any natural lube It's so frustrating. I also find that all store brand lube stings and burns, so now I just use my own spit. I wish I could figure this out and get back to normal. I am very fortunate to be able to have pain free sex these days, four years ago I never thought that would be possible.

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Re: Are you getting wet?

Post  tinkerbelle2 on Thu Oct 03, 2013 2:41 pm

Hi Jemima, I see this is an old post but if you're still active on here then you could try Sylk. It works for me and hasn't caused any stinging or irritation
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Re: Are you getting wet?

Post  Takver on Wed Oct 09, 2013 7:50 am

Sylk gave me a nasty flare-up of interstitial cystitis. Astroglide was horrible. Yes water-based isn't bad, and is safe with silicone toys, but most of the time I use Pink silicone, which is fabulous. I do get wet, but I've found that if I slap on lube before he even touches me, things go so much better overall. It gives the pain less chance to get started.

Are you on hormonal contraception? That can cause dryness.
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Takver

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Re: Are you getting wet?

Post  mary jane on Wed Oct 09, 2013 5:49 pm

I used to have this problem. I wouldn't know now as I barely go near the area.
It's because of the Bartholin glands, I honestly think sometimes this illness is caused by those stupid glands malfunctioning.

Their role is to provide natural lubrication in the body.
If you get dryness accompanied by a bit of swelling, then yes, it's definitely the glands.
Although I have no idea how to solve that
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Re: Are you getting wet?

Post  Alana3 on Wed Oct 09, 2013 6:06 pm

Umm it's not always the glands, I was having this problem to and have absolutely no problems with my glands, they're intact and doing well. I was perfectly fine and than I had my vestibulectomy, and than the whole "wet" issue came in, but like 6 months later that was all better. So I don't necessarily think you can pin point. Vaginismus could play a HUGE role in this and if you're put off by sex because it hurts (not saying its in your head) it could also be affected. Everyone is different. Perhaps also checking your hormone levels could help too. If you're hormones are off, you'll possibly have an issue with getting aroused.

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Re: Are you getting wet?

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