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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Are you getting wet?

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Are you getting wet?

Post  JemimaSurrender on Sat May 25, 2013 12:09 pm

I was just about to apologise for the upcoming crude content, then remembered who I was talking to, you're all used to it by now!

So, I've had about a year of being able to have sex mostly pain free, although it is starting to come back slightly now and it does hurt during penetration. But what is bothering me the most is not only my completely flat sex drive, but also the fact that for some reason I'm not getting wet!

It makes no difference whether I'm at it myself, or it's my boyfriend... I get turned on, and it's all completely normal, then I touch and there's nothing there, it's literally bone dry. It's horrible. It makes me frustrated, angry and sad and I just want to scream in the middle of it. I know at the time that my boyfriend knows I'm not wet and he's probably thinking he's not turning me on, even though he already knows it's an issue.

I just don't know what to do. I've told my doctor and she gave me Replens, but when I use it all it does it come out of me in gloopy chunks, it's not very nice at all and completely inappropriate when you're at it, gross! She also said that that's the only thing I can try that doesn't involve giving me hormones, which she can't do because that seems to be what caused all the problems in the first place.

Has anyone else had this problem before, and have they tried anything good that worked?

Also, can anyone recommend any good lube, or pinpoint what it is in the ingredients that irritates? I work in a sex shop and have access to a wiiiiide range of different ones, but they all seem to sting me so much, any tips would be great!

Aaaand, if anyone knows of any supplements or any suggestions of how to pick your sex drive back up that would be amazing! I need it back!!

Thank you so much for reading!

JemimaSurrender

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Re: Are you getting wet?

Post  Dandsforever23 on Sat May 25, 2013 6:29 pm

I feel the exact same way. Before my vulvodynia issue I would always get turned on right away and get really wet, but now it seems like I don't produce any natural lube It's so frustrating. I also find that all store brand lube stings and burns, so now I just use my own spit. I wish I could figure this out and get back to normal. I am very fortunate to be able to have pain free sex these days, four years ago I never thought that would be possible.

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Re: Are you getting wet?

Post  tinkerbelle2 on Thu Oct 03, 2013 2:41 pm

Hi Jemima, I see this is an old post but if you're still active on here then you could try Sylk. It works for me and hasn't caused any stinging or irritation
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Re: Are you getting wet?

Post  Takver on Wed Oct 09, 2013 7:50 am

Sylk gave me a nasty flare-up of interstitial cystitis. Astroglide was horrible. Yes water-based isn't bad, and is safe with silicone toys, but most of the time I use Pink silicone, which is fabulous. I do get wet, but I've found that if I slap on lube before he even touches me, things go so much better overall. It gives the pain less chance to get started.

Are you on hormonal contraception? That can cause dryness.
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Re: Are you getting wet?

Post  mary jane on Wed Oct 09, 2013 5:49 pm

I used to have this problem. I wouldn't know now as I barely go near the area.
It's because of the Bartholin glands, I honestly think sometimes this illness is caused by those stupid glands malfunctioning.

Their role is to provide natural lubrication in the body.
If you get dryness accompanied by a bit of swelling, then yes, it's definitely the glands.
Although I have no idea how to solve that
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Re: Are you getting wet?

Post  Alana3 on Wed Oct 09, 2013 6:06 pm

Umm it's not always the glands, I was having this problem to and have absolutely no problems with my glands, they're intact and doing well. I was perfectly fine and than I had my vestibulectomy, and than the whole "wet" issue came in, but like 6 months later that was all better. So I don't necessarily think you can pin point. Vaginismus could play a HUGE role in this and if you're put off by sex because it hurts (not saying its in your head) it could also be affected. Everyone is different. Perhaps also checking your hormone levels could help too. If you're hormones are off, you'll possibly have an issue with getting aroused.

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Re: Are you getting wet?

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