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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Are you getting wet?

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Are you getting wet?

Post  JemimaSurrender on Sat May 25, 2013 12:09 pm

I was just about to apologise for the upcoming crude content, then remembered who I was talking to, you're all used to it by now!

So, I've had about a year of being able to have sex mostly pain free, although it is starting to come back slightly now and it does hurt during penetration. But what is bothering me the most is not only my completely flat sex drive, but also the fact that for some reason I'm not getting wet!

It makes no difference whether I'm at it myself, or it's my boyfriend... I get turned on, and it's all completely normal, then I touch and there's nothing there, it's literally bone dry. It's horrible. It makes me frustrated, angry and sad and I just want to scream in the middle of it. I know at the time that my boyfriend knows I'm not wet and he's probably thinking he's not turning me on, even though he already knows it's an issue.

I just don't know what to do. I've told my doctor and she gave me Replens, but when I use it all it does it come out of me in gloopy chunks, it's not very nice at all and completely inappropriate when you're at it, gross! She also said that that's the only thing I can try that doesn't involve giving me hormones, which she can't do because that seems to be what caused all the problems in the first place.

Has anyone else had this problem before, and have they tried anything good that worked?

Also, can anyone recommend any good lube, or pinpoint what it is in the ingredients that irritates? I work in a sex shop and have access to a wiiiiide range of different ones, but they all seem to sting me so much, any tips would be great!

Aaaand, if anyone knows of any supplements or any suggestions of how to pick your sex drive back up that would be amazing! I need it back!!

Thank you so much for reading!

JemimaSurrender

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Re: Are you getting wet?

Post  Dandsforever23 on Sat May 25, 2013 6:29 pm

I feel the exact same way. Before my vulvodynia issue I would always get turned on right away and get really wet, but now it seems like I don't produce any natural lube It's so frustrating. I also find that all store brand lube stings and burns, so now I just use my own spit. I wish I could figure this out and get back to normal. I am very fortunate to be able to have pain free sex these days, four years ago I never thought that would be possible.

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Re: Are you getting wet?

Post  tinkerbelle2 on Thu Oct 03, 2013 2:41 pm

Hi Jemima, I see this is an old post but if you're still active on here then you could try Sylk. It works for me and hasn't caused any stinging or irritation
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Re: Are you getting wet?

Post  Takver on Wed Oct 09, 2013 7:50 am

Sylk gave me a nasty flare-up of interstitial cystitis. Astroglide was horrible. Yes water-based isn't bad, and is safe with silicone toys, but most of the time I use Pink silicone, which is fabulous. I do get wet, but I've found that if I slap on lube before he even touches me, things go so much better overall. It gives the pain less chance to get started.

Are you on hormonal contraception? That can cause dryness.
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Re: Are you getting wet?

Post  mary jane on Wed Oct 09, 2013 5:49 pm

I used to have this problem. I wouldn't know now as I barely go near the area.
It's because of the Bartholin glands, I honestly think sometimes this illness is caused by those stupid glands malfunctioning.

Their role is to provide natural lubrication in the body.
If you get dryness accompanied by a bit of swelling, then yes, it's definitely the glands.
Although I have no idea how to solve that
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Re: Are you getting wet?

Post  Alana3 on Wed Oct 09, 2013 6:06 pm

Umm it's not always the glands, I was having this problem to and have absolutely no problems with my glands, they're intact and doing well. I was perfectly fine and than I had my vestibulectomy, and than the whole "wet" issue came in, but like 6 months later that was all better. So I don't necessarily think you can pin point. Vaginismus could play a HUGE role in this and if you're put off by sex because it hurts (not saying its in your head) it could also be affected. Everyone is different. Perhaps also checking your hormone levels could help too. If you're hormones are off, you'll possibly have an issue with getting aroused.

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Re: Are you getting wet?

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