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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Are you getting wet?

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Are you getting wet?

Post  JemimaSurrender on Sat May 25, 2013 12:09 pm

I was just about to apologise for the upcoming crude content, then remembered who I was talking to, you're all used to it by now!

So, I've had about a year of being able to have sex mostly pain free, although it is starting to come back slightly now and it does hurt during penetration. But what is bothering me the most is not only my completely flat sex drive, but also the fact that for some reason I'm not getting wet!

It makes no difference whether I'm at it myself, or it's my boyfriend... I get turned on, and it's all completely normal, then I touch and there's nothing there, it's literally bone dry. It's horrible. It makes me frustrated, angry and sad and I just want to scream in the middle of it. I know at the time that my boyfriend knows I'm not wet and he's probably thinking he's not turning me on, even though he already knows it's an issue.

I just don't know what to do. I've told my doctor and she gave me Replens, but when I use it all it does it come out of me in gloopy chunks, it's not very nice at all and completely inappropriate when you're at it, gross! She also said that that's the only thing I can try that doesn't involve giving me hormones, which she can't do because that seems to be what caused all the problems in the first place.

Has anyone else had this problem before, and have they tried anything good that worked?

Also, can anyone recommend any good lube, or pinpoint what it is in the ingredients that irritates? I work in a sex shop and have access to a wiiiiide range of different ones, but they all seem to sting me so much, any tips would be great!

Aaaand, if anyone knows of any supplements or any suggestions of how to pick your sex drive back up that would be amazing! I need it back!!

Thank you so much for reading!

JemimaSurrender

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Age : 28
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Re: Are you getting wet?

Post  Dandsforever23 on Sat May 25, 2013 6:29 pm

I feel the exact same way. Before my vulvodynia issue I would always get turned on right away and get really wet, but now it seems like I don't produce any natural lube It's so frustrating. I also find that all store brand lube stings and burns, so now I just use my own spit. I wish I could figure this out and get back to normal. I am very fortunate to be able to have pain free sex these days, four years ago I never thought that would be possible.

Dandsforever23

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Re: Are you getting wet?

Post  tinkerbelle2 on Thu Oct 03, 2013 2:41 pm

Hi Jemima, I see this is an old post but if you're still active on here then you could try Sylk. It works for me and hasn't caused any stinging or irritation
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tinkerbelle2

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Re: Are you getting wet?

Post  Takver on Wed Oct 09, 2013 7:50 am

Sylk gave me a nasty flare-up of interstitial cystitis. Astroglide was horrible. Yes water-based isn't bad, and is safe with silicone toys, but most of the time I use Pink silicone, which is fabulous. I do get wet, but I've found that if I slap on lube before he even touches me, things go so much better overall. It gives the pain less chance to get started.

Are you on hormonal contraception? That can cause dryness.
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Takver

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Re: Are you getting wet?

Post  mary jane on Wed Oct 09, 2013 5:49 pm

I used to have this problem. I wouldn't know now as I barely go near the area.
It's because of the Bartholin glands, I honestly think sometimes this illness is caused by those stupid glands malfunctioning.

Their role is to provide natural lubrication in the body.
If you get dryness accompanied by a bit of swelling, then yes, it's definitely the glands.
Although I have no idea how to solve that
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mary jane

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Re: Are you getting wet?

Post  Alana3 on Wed Oct 09, 2013 6:06 pm

Umm it's not always the glands, I was having this problem to and have absolutely no problems with my glands, they're intact and doing well. I was perfectly fine and than I had my vestibulectomy, and than the whole "wet" issue came in, but like 6 months later that was all better. So I don't necessarily think you can pin point. Vaginismus could play a HUGE role in this and if you're put off by sex because it hurts (not saying its in your head) it could also be affected. Everyone is different. Perhaps also checking your hormone levels could help too. If you're hormones are off, you'll possibly have an issue with getting aroused.

Alana3

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Re: Are you getting wet?

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