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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Hello, my name is medical mystery

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Hello, my name is medical mystery

Post  coline83 on Sun Sep 19, 2010 1:08 pm

Hello everyone,

my name is Coline and I've been suffering from vulvar pain for 7 years, on and off. I had many diagnosis but for the past 3 years, it seems that doctors ran out of ideas. My current gynecologist made me do blood tests, I had a PAP test and everything looks perfect! There seems to be absolutely no reason that could explain my constant burning and stinging/itching on different areas of my vulva. So my doctor said, and I quote: "I don't know what to do with you". I was treated for yeast at least a hundred times, I was told I had genital warts, which was probably true but couldn't explain the intensity of the symptoms. And now, the warts are gone and the symptoms are still here. Funny enough, they can disappear for a moment when I'm sexually aroused but they come back soon after. If I'm lucky. If I'm not, I just won't be able to have sex. The pain has been present for a year now but before that I had a one-year break. Before the one-year break, it was slightly annoying but ok. Before that, it was one or two weeks per month. And now we're back to that and I can't think of anything (psychological or situational) that could have triggered this. I tried to stop going to the pool once a week, I tried to change my diet, I tried to stop biking, nothing changes.

Several doctors heard my story and admitted they didn't know what I had but refused to look further and just sent me back home. I have an appointment coming at a specialized clinic (VUVO for vulvo-vaginal disease) in Montreal, where I live, in december. In the meantime, I tried acupuncture to release the pain but the treatment actually suppressed all sensation in my vulva, which is even more disturbing than the pain cause now I feel numb and unable to be aroused. I stopped the treatment and just hope it will come back soon.

I read the V book and I found my symptoms to be very similar to what she described as vulvodynia ( gynecological exams really hurt, I can't use tampons, etc...) but as long as I'm not diagnosed, I'll get no treatment.
Does my story sound familiar to anyone? Am i crazy to think it could be vulvodynia? Does anyone know a specialist in or around Montreal?
My apology for this way-too-long post...

To end on a positive note, my fiance is very understanding and involved in my quest for an answer so I have plenty of support from him. Looking at the bright side....

Thanks to you all

Coline I love you


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Re: Hello, my name is medical mystery

Post  Husband on Sun Sep 19, 2010 3:58 pm

Hi Coline,
Sounds like vulvodynia. Can you provoke pain by a slight touch with a cotton swab? If this caused pain and if the doctors have no ideas any more than you have the diseases name.


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Re: Hello, my name is medical mystery

Post  Sarah001 on Sun Sep 19, 2010 5:26 pm

Hi Coline, it certainly sounds like vulvodynia but it would do because that just means "pain in the vulva"! It's quite interesting acupuncture made the area numb, I'd say that points to at least partly a musculoskeletal problem and perhaps over time more acupuncture might help restore normal sensation? I haven't tried it myself but it seems pretty hopeful that it changed the sensation. The other thing that springs to mind is an overabundance of lactobacilli, it's not common but tends to present in a pattern of a couple of weeks a month where there's pain. Not many doctors think to look for too much good bacteria but it can upset the balance just as easily as not enough good bacteria. Have you ever had antibiotics and found the problem improves while you're on them?

Anyway, welcome to the forum.

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Re: Hello, my name is medical mystery

Post  Sebby (Admin) on Mon Sep 20, 2010 7:13 pm

Hi and welcome coline

It does sound like Vulvodynia which as previously said does just mean pain in the vulva!

How did they treat your warts? I have read in the vulvodynia survival guide by Dr Glazer that the treatment for warts have been shown to "irritate the vestibular are futher" ...Trichloroacetic acid (TCA) and lazer surgery. but it is not thought that the HPV virus itself is linked to developing Vulvodynia.

Sebby (Admin)

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Re: Hello, my name is medical mystery

Post  jules on Tue Sep 21, 2010 2:49 am

Hi Coline,

Read our stories....you have very similar symptoms. Also, I suggest you read the support and advice section. We all share different treatment techniques we have used. Many of us are on medication, ie: Amitrip., Lyrica, neurontin, vicodin (for pain) etc. some have tried physical therapy, spinal blocks, acupuncture (like yourself), botox, etc. There are a number of treatments for this nerve pain. you will also want to rule out a skin disorder w/ a biopsy. It sure does sounds like Vulvodynia. I live in Minnesota. So, I don't know of a doctor in Montreal. But, it sounds like you are heading in the right direction. In my opinion, you may benefit by going on meds for the nerve pain and then physical therapy for the pelvic wall muscles. Good luck. We are here for you.


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Re: Hello, my name is medical mystery

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