Log in

I forgot my password

Latest topics
» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Happy Birthday to me!

View previous topic View next topic Go down

Happy Birthday to me!

Post  Mouse on Wed Sep 22, 2010 7:44 am

Well this week I'm getting another birthday. Besides the numbers getting big and scarey (beats the alternative of course) I'm not getting that loving feeling. My husband has been pestering me for present ideas - his training is complete in that area... I just don't give a crap. I don't want parcels (I may change my mind) I just want the achey bits to stop aching so I don't have to double my dose of amitriptylene pale

It took a couple of weeks to get over the dizziness, headaches and spaced out feeling. I'm still as grouchy as a bear. And now I have to do it all over again.

Whinge over!

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Happy Birthday to me!

Post  jules on Sat Sep 25, 2010 5:35 pm

Sorry you're not celebrating your birthday w/out pain. it sounds like you are down and that is to be expected. the idea of sex and wearing sexy things can actually be pretty stressful. have you considered trying something other than Amitrip.? if you are already on it and double it, i would think you probably would not experience the side effects since your body has already adjusted to the meds you're on. i have increased my meds (neurontin and lyrica a few times w/ no added side effects.) my experience w/ meds has been that you experience the side effects when first going on. i have not tried Amitrip for this disorder. however, i tried it several years ago for headaches. i felt like i was a zombie and in a dream for two weeks. i could barely do my job. i went off of it right away. i never had that problem w/ my current meds. However, if Amitrip has helped somewhat, i'm thinking it will help if you increase it.

has it helped at all? if so, how? just curious. hope you could enjoy your birthday a little. king happy birthday!

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Happy Birthday to me!

Post  Sarah001 on Sat Sep 25, 2010 6:13 pm

I'm now up to 50mg a day of Ami, the first 10mg made me totally woozy for 3-4 weeks but you have to give it a month to see if it will suit you. Going from 10 to 20mg made me woozy again, then 20 to 30mg made me slightly woozy but from 30mg upwards I've been fine. As long as you increase the dose gradually and give it time for side effects to settle in the early days it gets easier to increase it. Unfortunately it isn't working for me as well as I hoped, it removes burning for me but doesn't touch the soreness I get from my inflamed skin so I'll need something else on top of it next appointment I have.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Happy Birthday to me!

Post  Sarah001 on Sat Sep 25, 2010 6:20 pm

Forgot, happy birthday! I didn't celebrate mine at all this year I just felt too shit to care much!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Happy Birthday to me!

Post  Mouse on Sat Sep 25, 2010 10:03 pm

Well I flicked the amitriptylene! Horrid stuff. Out of desperation I went to my GP on Thursday. She said I have the look of someone in chronic pain - good spotting! I now have Gabapentin, I stopped listening when she read out the side effects, they were pretty grim but the first few days have been fine. She also said the twitches I've been experiencing are the bodies response to pain ie being on full alert. Nice to know I thought I was in for something else.

I had a lovely birthday dinner with my friends last night. I still didn't care enough to need parcels from hubby but he's been a wonder through all of this and the illness I had last year, the surgery and every other flaming thing that's come along since. So I consider myself pretty lucky.

Thank you for your responses. It's incredible that ami in such a low dose can be so vile, I wonder how people cope with it as an antidepressent.

Jules, I have generalised unprovoked so I have constant pain which is now settling into a pattern of extreme ugliness at the start of my cycle and in the middle. My resting pain level seems to be decreasing. I was really hopeful this was a good sign but when my period arrived last week I had some of the worst days to date. So who knows??? Sarah, I'm sorry you didn't celebrate your birthday I know what you mean about not caring, after kicking the ami I seem to have come out of a fug and hopefully will find my happy place??????

I managed to find quite by accident a really lovely specialist who doesn't think I'm mad - huge bonus there and I have a great GP who has also seen vulvodynia before. My therapist is keen to get active in helping women find solutions faster. I guess I was pretty lucky with only being treated like a fool and ignored for about 4 months I know it's not that way for everyone. My specialist did her thesis on vulval pain, she's in another city but was well worth the added stress and expense of having to travel to see her. She is so confident these drugs will work I would hate to disappoint her! It was bloody government regulations that said I had to try the ami first - assholes!

Anyway by biggest problem today is dealing with my hangover! affraid Proving you should never mix your drinks! All of that water I mixed with 5 glasses of wine, 2 cosmos, 2 black russians and finished off with a couple of kahluas! You never know what's in the water!

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Happy Birthday to me!

Post  Sarah001 on Sun Sep 26, 2010 11:59 am

I think Gabapentin is what I'm going to be given next, as far as I know it's a very effective medication but alot of people I talk to on another health forum have too bad side effects to carry on with it so it's another that some people can tolerate and others can't. I'm surprised I've got on ok with the Ami, normally I get every side effect going but apart from a dry mouth I'm fine, just a shame it doesn't touch the soreness.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Happy Birthday to me!

Post  Mouse on Sun Sep 26, 2010 7:08 pm

Sarah, the gabapentin is going well so far! I have the dry mouth though, why is that? Early days to gauge any results. I seem to now be experiencing a cyclic pattern so the next ugly bit will be mid cycle. I should be well into the Gabapentin by then.

I know what you mean about reacting to everything, the ami knocked me on my ass. I was so doo lally I couldn't talk for days. I thought it best otherwise I'd still be apologising now.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Happy Birthday to me!

Post  jules on Sun Sep 26, 2010 8:29 pm

I have been on Gabepentin since January 2010. I started off at about 600 and over time increased the dose to 3000 mg. i had NO side effects at all. for me, the medication did not take away the pain until i was at least 1200 mgs. it helped a little, but over time i continually increased it. the most one can take is 3600 mgs. i finally made it to 3000 mgs and after awhile was still in pain (but, much less pain than without). then my doc added lyrica (i've mentioned this on this site before). over time, i decreased the Gabepentin. but, now i am still burning so, i am going back up a little to 2700 mgs. i was never offered Amitrip. for this disorder. In the US we start w/ the meds we and the doc agree on...(thank God for good health insurance..but, we pay for it). the Gabepentin helped me...i'm sure it will help cut the pain for you.





jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Happy Birthday to me!

Post  Mouse on Sun Sep 26, 2010 11:54 pm

I tried to get the good drug first and offered to pay, against regs apparently FFS! We have good health insurance but sometimes I'm still stunned about how much things cost. I didn't get pre-approval when I went to my new improved specialist and nearly fell over when I was given the bill. My flights were also covered by insurance so I was pretty happy about that!

I'm having zero side effects thus far! I think I'm on 900 at the moment. Will keep you posted!

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Happy Birthday to me!

Post  jules on Tue Sep 28, 2010 1:20 am

glad you are not having side effects!!!

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Happy Birthday to me!

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum