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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Happy Birthday to me!

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Happy Birthday to me!

Post  Mouse on Wed Sep 22, 2010 7:44 am

Well this week I'm getting another birthday. Besides the numbers getting big and scarey (beats the alternative of course) I'm not getting that loving feeling. My husband has been pestering me for present ideas - his training is complete in that area... I just don't give a crap. I don't want parcels (I may change my mind) I just want the achey bits to stop aching so I don't have to double my dose of amitriptylene pale

It took a couple of weeks to get over the dizziness, headaches and spaced out feeling. I'm still as grouchy as a bear. And now I have to do it all over again.

Whinge over!

Mouse

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Re: Happy Birthday to me!

Post  jules on Sat Sep 25, 2010 5:35 pm

Sorry you're not celebrating your birthday w/out pain. it sounds like you are down and that is to be expected. the idea of sex and wearing sexy things can actually be pretty stressful. have you considered trying something other than Amitrip.? if you are already on it and double it, i would think you probably would not experience the side effects since your body has already adjusted to the meds you're on. i have increased my meds (neurontin and lyrica a few times w/ no added side effects.) my experience w/ meds has been that you experience the side effects when first going on. i have not tried Amitrip for this disorder. however, i tried it several years ago for headaches. i felt like i was a zombie and in a dream for two weeks. i could barely do my job. i went off of it right away. i never had that problem w/ my current meds. However, if Amitrip has helped somewhat, i'm thinking it will help if you increase it.

has it helped at all? if so, how? just curious. hope you could enjoy your birthday a little. king happy birthday!

jules

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Re: Happy Birthday to me!

Post  Sarah001 on Sat Sep 25, 2010 6:13 pm

I'm now up to 50mg a day of Ami, the first 10mg made me totally woozy for 3-4 weeks but you have to give it a month to see if it will suit you. Going from 10 to 20mg made me woozy again, then 20 to 30mg made me slightly woozy but from 30mg upwards I've been fine. As long as you increase the dose gradually and give it time for side effects to settle in the early days it gets easier to increase it. Unfortunately it isn't working for me as well as I hoped, it removes burning for me but doesn't touch the soreness I get from my inflamed skin so I'll need something else on top of it next appointment I have.
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Re: Happy Birthday to me!

Post  Sarah001 on Sat Sep 25, 2010 6:20 pm

Forgot, happy birthday! I didn't celebrate mine at all this year I just felt too shit to care much!
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Re: Happy Birthday to me!

Post  Mouse on Sat Sep 25, 2010 10:03 pm

Well I flicked the amitriptylene! Horrid stuff. Out of desperation I went to my GP on Thursday. She said I have the look of someone in chronic pain - good spotting! I now have Gabapentin, I stopped listening when she read out the side effects, they were pretty grim but the first few days have been fine. She also said the twitches I've been experiencing are the bodies response to pain ie being on full alert. Nice to know I thought I was in for something else.

I had a lovely birthday dinner with my friends last night. I still didn't care enough to need parcels from hubby but he's been a wonder through all of this and the illness I had last year, the surgery and every other flaming thing that's come along since. So I consider myself pretty lucky.

Thank you for your responses. It's incredible that ami in such a low dose can be so vile, I wonder how people cope with it as an antidepressent.

Jules, I have generalised unprovoked so I have constant pain which is now settling into a pattern of extreme ugliness at the start of my cycle and in the middle. My resting pain level seems to be decreasing. I was really hopeful this was a good sign but when my period arrived last week I had some of the worst days to date. So who knows??? Sarah, I'm sorry you didn't celebrate your birthday I know what you mean about not caring, after kicking the ami I seem to have come out of a fug and hopefully will find my happy place??????

I managed to find quite by accident a really lovely specialist who doesn't think I'm mad - huge bonus there and I have a great GP who has also seen vulvodynia before. My therapist is keen to get active in helping women find solutions faster. I guess I was pretty lucky with only being treated like a fool and ignored for about 4 months I know it's not that way for everyone. My specialist did her thesis on vulval pain, she's in another city but was well worth the added stress and expense of having to travel to see her. She is so confident these drugs will work I would hate to disappoint her! It was bloody government regulations that said I had to try the ami first - assholes!

Anyway by biggest problem today is dealing with my hangover! affraid Proving you should never mix your drinks! All of that water I mixed with 5 glasses of wine, 2 cosmos, 2 black russians and finished off with a couple of kahluas! You never know what's in the water!

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Re: Happy Birthday to me!

Post  Sarah001 on Sun Sep 26, 2010 11:59 am

I think Gabapentin is what I'm going to be given next, as far as I know it's a very effective medication but alot of people I talk to on another health forum have too bad side effects to carry on with it so it's another that some people can tolerate and others can't. I'm surprised I've got on ok with the Ami, normally I get every side effect going but apart from a dry mouth I'm fine, just a shame it doesn't touch the soreness.
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Re: Happy Birthday to me!

Post  Mouse on Sun Sep 26, 2010 7:08 pm

Sarah, the gabapentin is going well so far! I have the dry mouth though, why is that? Early days to gauge any results. I seem to now be experiencing a cyclic pattern so the next ugly bit will be mid cycle. I should be well into the Gabapentin by then.

I know what you mean about reacting to everything, the ami knocked me on my ass. I was so doo lally I couldn't talk for days. I thought it best otherwise I'd still be apologising now.

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Re: Happy Birthday to me!

Post  jules on Sun Sep 26, 2010 8:29 pm

I have been on Gabepentin since January 2010. I started off at about 600 and over time increased the dose to 3000 mg. i had NO side effects at all. for me, the medication did not take away the pain until i was at least 1200 mgs. it helped a little, but over time i continually increased it. the most one can take is 3600 mgs. i finally made it to 3000 mgs and after awhile was still in pain (but, much less pain than without). then my doc added lyrica (i've mentioned this on this site before). over time, i decreased the Gabepentin. but, now i am still burning so, i am going back up a little to 2700 mgs. i was never offered Amitrip. for this disorder. In the US we start w/ the meds we and the doc agree on...(thank God for good health insurance..but, we pay for it). the Gabepentin helped me...i'm sure it will help cut the pain for you.





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Re: Happy Birthday to me!

Post  Mouse on Sun Sep 26, 2010 11:54 pm

I tried to get the good drug first and offered to pay, against regs apparently FFS! We have good health insurance but sometimes I'm still stunned about how much things cost. I didn't get pre-approval when I went to my new improved specialist and nearly fell over when I was given the bill. My flights were also covered by insurance so I was pretty happy about that!

I'm having zero side effects thus far! I think I'm on 900 at the moment. Will keep you posted!

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Re: Happy Birthday to me!

Post  jules on Tue Sep 28, 2010 1:20 am

glad you are not having side effects!!!

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Re: Happy Birthday to me!

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