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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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A Glimmer of hope? Inversion table

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A Glimmer of hope? Inversion table

Post  Delilah1 on Tue Jun 11, 2013 8:59 pm

Hello ladies. For some reason I have had some pain free days this month. I really don't know why. The pain/burning was at a level one during ovulation. It crept back up while on my period and days after but those few days were such a relief I had to tell you all! All I have been doing for months is taking a multivitamin, washing the vulva with only water, deep breathing, rinsing with water after urinating, stretching exercises, lying on an inversion table 3 times a day, taking aveeno oatmeal baths and trying to think positive. I keep telling myself I will be pain free one day and this will go away as quickly and suddenly as it came.
I would like to ask if anyone else has tried an inversion table. The first time I used it I knew I was stretching muscles/tendons I had never stretched before. I felt a stretch in the psoas muscles, inside my vagina, lower abdominal muscles and even the labia felt like they were stretching. I don't know what if any of these things have helped. Just thought I would share. I still think mine was caused by a bacteria or virus that damaged the nerves and the muscles tightened up to guard from the pain. I'm no scientist but thats my feeling! Still waiting to see a specialist. I hope you are all having a pain free day! Thanks for listening!

Delilah

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Re: A Glimmer of hope? Inversion table

Post  Sebby (Admin) on Tue Jun 11, 2013 9:05 pm


So glad to hear you have had some pain free days!

I always find period time and just after, the time I am most likely to get a flare up!

Umm...I don't actually know what an inversion table is?

Is it something you can use at home? Embarassed
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Re: A Glimmer of hope? Inversion table

Post  Delilah1 on Tue Jun 11, 2013 9:13 pm

Thank you Sebby! Yes, you can buy an inversion table online. You lie on your back on it with your feet secured and hang upside down. My husband purchased it for his back. I decided to give it a try and was surprised at the stretch I felt in those areas.

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Interesting

Post  jessica1980 on Tue Jun 18, 2013 7:31 pm

Might want to try that myself....thank you for your suggestion

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Re: A Glimmer of hope? Inversion table

Post  Sebby (Admin) on Wed Jun 19, 2013 6:00 pm

Yes thank you, I will deff be looking into that as I also get back problems. I have noticed my lower back has been quite painful the last few days. This is after my flare up a few weeks ago.

I bend down to pick something up or wash my hair and have to get back up slowly like I am in my 90's! I'm only 32!lol

Gonna have a look at pics of this table, hanging upside down sounds a bit scary tho Shocked lol
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Re: A Glimmer of hope? Inversion table

Post  BpCookie on Wed Jun 19, 2013 7:33 pm

Ive always wanted an inversion table for my back pain. I think Im going to buy one now. I know that my pudendal nerves are probably pinched because of the way I have to sit because of my vagina pain. This only cause the nerves to get more pissed off. Also, when your in pain, you tend to tighten your muscles, so this Inversion table may help a lot of us.

Thanks for letting us know. hugs
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Re: A Glimmer of hope? Inversion table

Post  ringostarr26 on Thu Jun 20, 2013 4:22 am

Amazing! I am so glad you are feeling better! It is so great to hear women fighting through this and having good days as opposed to feeling alone and in pain. I wish you many more pain free days!

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Re: A Glimmer of hope? Inversion table

Post  Delilah1 on Fri Jun 21, 2013 3:27 am

Hello ladies!  If you do try the inversion table just take it slow.  I started out just lowering my head slightly.  I could feel the stretch with just that slight recline.  I don't spend a long time in the recline either just long enough to do a few deep breaths and to relax through them.  Thank you for your encouragement and support!  I wish you all pain free days!  Thanks for the laughs BPCookie:D some of your posts have made me laugh out loud!  Thank you Ringo:D  Hanging upside down is really kind of fun Sebby. And it is relaxing for me.  There are warnings for people who have high blood pressure, eye disease and heart disease.  Just check it out before you use it.

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Re: A Glimmer of hope? Inversion table

Post  Sarah001 on Mon Jun 24, 2013 6:38 pm

At the risk of being a party pooper anyone with stability issues should not use an inversion table until they are stable.  That is all! Wink
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Re: A Glimmer of hope? Inversion table

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