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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


A Glimmer of hope? Inversion table

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A Glimmer of hope? Inversion table

Post  Delilah1 on Tue Jun 11, 2013 8:59 pm

Hello ladies. For some reason I have had some pain free days this month. I really don't know why. The pain/burning was at a level one during ovulation. It crept back up while on my period and days after but those few days were such a relief I had to tell you all! All I have been doing for months is taking a multivitamin, washing the vulva with only water, deep breathing, rinsing with water after urinating, stretching exercises, lying on an inversion table 3 times a day, taking aveeno oatmeal baths and trying to think positive. I keep telling myself I will be pain free one day and this will go away as quickly and suddenly as it came.
I would like to ask if anyone else has tried an inversion table. The first time I used it I knew I was stretching muscles/tendons I had never stretched before. I felt a stretch in the psoas muscles, inside my vagina, lower abdominal muscles and even the labia felt like they were stretching. I don't know what if any of these things have helped. Just thought I would share. I still think mine was caused by a bacteria or virus that damaged the nerves and the muscles tightened up to guard from the pain. I'm no scientist but thats my feeling! Still waiting to see a specialist. I hope you are all having a pain free day! Thanks for listening!

Delilah

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Re: A Glimmer of hope? Inversion table

Post  Sebby (Admin) on Tue Jun 11, 2013 9:05 pm


So glad to hear you have had some pain free days!

I always find period time and just after, the time I am most likely to get a flare up!

Umm...I don't actually know what an inversion table is?

Is it something you can use at home? Embarassed
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Re: A Glimmer of hope? Inversion table

Post  Delilah1 on Tue Jun 11, 2013 9:13 pm

Thank you Sebby! Yes, you can buy an inversion table online. You lie on your back on it with your feet secured and hang upside down. My husband purchased it for his back. I decided to give it a try and was surprised at the stretch I felt in those areas.

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Interesting

Post  jessica1980 on Tue Jun 18, 2013 7:31 pm

Might want to try that myself....thank you for your suggestion

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Re: A Glimmer of hope? Inversion table

Post  Sebby (Admin) on Wed Jun 19, 2013 6:00 pm

Yes thank you, I will deff be looking into that as I also get back problems. I have noticed my lower back has been quite painful the last few days. This is after my flare up a few weeks ago.

I bend down to pick something up or wash my hair and have to get back up slowly like I am in my 90's! I'm only 32!lol

Gonna have a look at pics of this table, hanging upside down sounds a bit scary tho Shocked lol
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Re: A Glimmer of hope? Inversion table

Post  BpCookie on Wed Jun 19, 2013 7:33 pm

Ive always wanted an inversion table for my back pain. I think Im going to buy one now. I know that my pudendal nerves are probably pinched because of the way I have to sit because of my vagina pain. This only cause the nerves to get more pissed off. Also, when your in pain, you tend to tighten your muscles, so this Inversion table may help a lot of us.

Thanks for letting us know. hugs
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Re: A Glimmer of hope? Inversion table

Post  ringostarr26 on Thu Jun 20, 2013 4:22 am

Amazing! I am so glad you are feeling better! It is so great to hear women fighting through this and having good days as opposed to feeling alone and in pain. I wish you many more pain free days!

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Re: A Glimmer of hope? Inversion table

Post  Delilah1 on Fri Jun 21, 2013 3:27 am

Hello ladies!  If you do try the inversion table just take it slow.  I started out just lowering my head slightly.  I could feel the stretch with just that slight recline.  I don't spend a long time in the recline either just long enough to do a few deep breaths and to relax through them.  Thank you for your encouragement and support!  I wish you all pain free days!  Thanks for the laughs BPCookie:D some of your posts have made me laugh out loud!  Thank you Ringo:D  Hanging upside down is really kind of fun Sebby. And it is relaxing for me.  There are warnings for people who have high blood pressure, eye disease and heart disease.  Just check it out before you use it.

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Re: A Glimmer of hope? Inversion table

Post  Sarah001 on Mon Jun 24, 2013 6:38 pm

At the risk of being a party pooper anyone with stability issues should not use an inversion table until they are stable.  That is all! Wink
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