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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
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» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


A Glimmer of hope? Inversion table

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A Glimmer of hope? Inversion table

Post  Delilah1 on Tue Jun 11, 2013 8:59 pm

Hello ladies. For some reason I have had some pain free days this month. I really don't know why. The pain/burning was at a level one during ovulation. It crept back up while on my period and days after but those few days were such a relief I had to tell you all! All I have been doing for months is taking a multivitamin, washing the vulva with only water, deep breathing, rinsing with water after urinating, stretching exercises, lying on an inversion table 3 times a day, taking aveeno oatmeal baths and trying to think positive. I keep telling myself I will be pain free one day and this will go away as quickly and suddenly as it came.
I would like to ask if anyone else has tried an inversion table. The first time I used it I knew I was stretching muscles/tendons I had never stretched before. I felt a stretch in the psoas muscles, inside my vagina, lower abdominal muscles and even the labia felt like they were stretching. I don't know what if any of these things have helped. Just thought I would share. I still think mine was caused by a bacteria or virus that damaged the nerves and the muscles tightened up to guard from the pain. I'm no scientist but thats my feeling! Still waiting to see a specialist. I hope you are all having a pain free day! Thanks for listening!

Delilah

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Re: A Glimmer of hope? Inversion table

Post  Sebby (Admin) on Tue Jun 11, 2013 9:05 pm


So glad to hear you have had some pain free days!

I always find period time and just after, the time I am most likely to get a flare up!

Umm...I don't actually know what an inversion table is?

Is it something you can use at home? Embarassed
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Re: A Glimmer of hope? Inversion table

Post  Delilah1 on Tue Jun 11, 2013 9:13 pm

Thank you Sebby! Yes, you can buy an inversion table online. You lie on your back on it with your feet secured and hang upside down. My husband purchased it for his back. I decided to give it a try and was surprised at the stretch I felt in those areas.

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Interesting

Post  jessica1980 on Tue Jun 18, 2013 7:31 pm

Might want to try that myself....thank you for your suggestion

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Re: A Glimmer of hope? Inversion table

Post  Sebby (Admin) on Wed Jun 19, 2013 6:00 pm

Yes thank you, I will deff be looking into that as I also get back problems. I have noticed my lower back has been quite painful the last few days. This is after my flare up a few weeks ago.

I bend down to pick something up or wash my hair and have to get back up slowly like I am in my 90's! I'm only 32!lol

Gonna have a look at pics of this table, hanging upside down sounds a bit scary tho Shocked lol
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Re: A Glimmer of hope? Inversion table

Post  BpCookie on Wed Jun 19, 2013 7:33 pm

Ive always wanted an inversion table for my back pain. I think Im going to buy one now. I know that my pudendal nerves are probably pinched because of the way I have to sit because of my vagina pain. This only cause the nerves to get more pissed off. Also, when your in pain, you tend to tighten your muscles, so this Inversion table may help a lot of us.

Thanks for letting us know. hugs
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Re: A Glimmer of hope? Inversion table

Post  ringostarr26 on Thu Jun 20, 2013 4:22 am

Amazing! I am so glad you are feeling better! It is so great to hear women fighting through this and having good days as opposed to feeling alone and in pain. I wish you many more pain free days!

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Re: A Glimmer of hope? Inversion table

Post  Delilah1 on Fri Jun 21, 2013 3:27 am

Hello ladies!  If you do try the inversion table just take it slow.  I started out just lowering my head slightly.  I could feel the stretch with just that slight recline.  I don't spend a long time in the recline either just long enough to do a few deep breaths and to relax through them.  Thank you for your encouragement and support!  I wish you all pain free days!  Thanks for the laughs BPCookie:D some of your posts have made me laugh out loud!  Thank you Ringo:D  Hanging upside down is really kind of fun Sebby. And it is relaxing for me.  There are warnings for people who have high blood pressure, eye disease and heart disease.  Just check it out before you use it.

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Re: A Glimmer of hope? Inversion table

Post  Sarah001 on Mon Jun 24, 2013 6:38 pm

At the risk of being a party pooper anyone with stability issues should not use an inversion table until they are stable.  That is all! Wink
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Re: A Glimmer of hope? Inversion table

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