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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Hi, I'm New.

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Hi, I'm New.

Post  EmCose on Wed Jun 12, 2013 6:50 pm

Hi, I joined this site because I feel extremely alone. I'm 20 years old and was recently diagnosed with vulvodynia, but have been suffering for about two years now. I don't understand why I have this problem and I have also suffered from painful ovarian cysts for about two years now also. I've been with my bf for three years, and we live together and he is the only guy I have slept with. But now, we constantly fight because there's "something wrong with me" and I never want to have sex because of the pain. My best friend even acts like vulvodynia is no big deal and doesn't understand my depression. I created an account here in hopes of someone helping me feel like it gets better, and letting me know what kinds of things have help them.


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Re: Hi, I'm New.

Post  Alana3 on Wed Jun 12, 2013 8:49 pm

It gets better Smile I was told  it wouldn't but I'm considered cured now. I had surgery in December and feel better. I just had an exam today and was perfect. Of course it's different for everyone and it took 5 years to get there but hey lol. Now I suffer with chronic yeast and am dealing with thay nonsense. Its awful! But at least thats something anyone can get lol


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Re: Hi, I'm New.

Post  Sarah001 on Thu Jun 13, 2013 8:08 am

Hi, my opinion is to find out all the known causes and then work your way through the list starting with the things you can try by yourself at home and working up to more medical options.  The best book I read about this is "When Sex Hurts" which is excellent for helping piece together the cause.  Once you've worked out the cause it's easier to plan a treatment plan.  That book is readily available on Amazon and not expensive and definitely worth reading.

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Went thru the same thing

Post  Jessica11 on Sun Jun 16, 2013 11:10 pm

Went thru the same thing with my boyfriend of 5 years, still going strong tho, now that Im better. Yes we fought constantly, and it created alot of frustration and anger, but never give up and never stop fighting. As long as he knows your TRYING to find a cure for yourself. I do anti yeast cream for maintenance atleast once a week, and I take probiotics everyday, and make my own kefir.


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Re: Hi, I'm New.

Post  Sabrinalaura on Tue Jun 18, 2013 11:58 am

Hi I am new to this forum I got diagnosed with vulvadynia vestibulitis last week finally after months of agony std tests and seen different doctors all I have been prescribed so far is dermovate and instagel to numb that area. I am with my partner 5 years and in 24 years old I fear sex and this is causing problems please help!


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Re: Hi, I'm New.

Post  Fujibug on Thu Jun 20, 2013 1:18 am

Your issues sound a lot like mine. I have also had it for 2 years. I have done a lot of research recently and found out that I am likely suffering from a major yeast infection that doesn't show up on lab tests. Don't get surgery or take prescription drugs until you explore this possibility. I am learning that a lot of people with vulvodynia have Candida overgrowth by a strain that is not visible on tests and very hard to kill. I hope this helps!! Keep researching and don't stop until you kick this disease in the ass! I know we all can do it Smile


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Re: Hi, I'm New.

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