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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

Hi, I'm New.

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Hi, I'm New.

Post  EmCose on Wed Jun 12, 2013 6:50 pm

Hi, I joined this site because I feel extremely alone. I'm 20 years old and was recently diagnosed with vulvodynia, but have been suffering for about two years now. I don't understand why I have this problem and I have also suffered from painful ovarian cysts for about two years now also. I've been with my bf for three years, and we live together and he is the only guy I have slept with. But now, we constantly fight because there's "something wrong with me" and I never want to have sex because of the pain. My best friend even acts like vulvodynia is no big deal and doesn't understand my depression. I created an account here in hopes of someone helping me feel like it gets better, and letting me know what kinds of things have help them.


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Join date : 2013-06-12

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Re: Hi, I'm New.

Post  Alana3 on Wed Jun 12, 2013 8:49 pm

It gets better Smile I was told  it wouldn't but I'm considered cured now. I had surgery in December and feel better. I just had an exam today and was perfect. Of course it's different for everyone and it took 5 years to get there but hey lol. Now I suffer with chronic yeast and am dealing with thay nonsense. Its awful! But at least thats something anyone can get lol


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Re: Hi, I'm New.

Post  Sarah001 on Thu Jun 13, 2013 8:08 am

Hi, my opinion is to find out all the known causes and then work your way through the list starting with the things you can try by yourself at home and working up to more medical options.  The best book I read about this is "When Sex Hurts" which is excellent for helping piece together the cause.  Once you've worked out the cause it's easier to plan a treatment plan.  That book is readily available on Amazon and not expensive and definitely worth reading.

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Location : UK

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Went thru the same thing

Post  Jessica11 on Sun Jun 16, 2013 11:10 pm

Went thru the same thing with my boyfriend of 5 years, still going strong tho, now that Im better. Yes we fought constantly, and it created alot of frustration and anger, but never give up and never stop fighting. As long as he knows your TRYING to find a cure for yourself. I do anti yeast cream for maintenance atleast once a week, and I take probiotics everyday, and make my own kefir.


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Re: Hi, I'm New.

Post  Sabrinalaura on Tue Jun 18, 2013 11:58 am

Hi I am new to this forum I got diagnosed with vulvadynia vestibulitis last week finally after months of agony std tests and seen different doctors all I have been prescribed so far is dermovate and instagel to numb that area. I am with my partner 5 years and in 24 years old I fear sex and this is causing problems please help!


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Re: Hi, I'm New.

Post  Fujibug on Thu Jun 20, 2013 1:18 am

Your issues sound a lot like mine. I have also had it for 2 years. I have done a lot of research recently and found out that I am likely suffering from a major yeast infection that doesn't show up on lab tests. Don't get surgery or take prescription drugs until you explore this possibility. I am learning that a lot of people with vulvodynia have Candida overgrowth by a strain that is not visible on tests and very hard to kill. I hope this helps!! Keep researching and don't stop until you kick this disease in the ass! I know we all can do it Smile


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Re: Hi, I'm New.

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