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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Hi, I'm New.

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Hi, I'm New.

Post  EmCose on Wed Jun 12, 2013 6:50 pm

Hi, I joined this site because I feel extremely alone. I'm 20 years old and was recently diagnosed with vulvodynia, but have been suffering for about two years now. I don't understand why I have this problem and I have also suffered from painful ovarian cysts for about two years now also. I've been with my bf for three years, and we live together and he is the only guy I have slept with. But now, we constantly fight because there's "something wrong with me" and I never want to have sex because of the pain. My best friend even acts like vulvodynia is no big deal and doesn't understand my depression. I created an account here in hopes of someone helping me feel like it gets better, and letting me know what kinds of things have help them.

EmCose

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Re: Hi, I'm New.

Post  Alana3 on Wed Jun 12, 2013 8:49 pm

It gets better Smile I was told  it wouldn't but I'm considered cured now. I had surgery in December and feel better. I just had an exam today and was perfect. Of course it's different for everyone and it took 5 years to get there but hey lol. Now I suffer with chronic yeast and am dealing with thay nonsense. Its awful! But at least thats something anyone can get lol

Alana3

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Re: Hi, I'm New.

Post  Sarah001 on Thu Jun 13, 2013 8:08 am

Hi, my opinion is to find out all the known causes and then work your way through the list starting with the things you can try by yourself at home and working up to more medical options.  The best book I read about this is "When Sex Hurts" which is excellent for helping piece together the cause.  Once you've worked out the cause it's easier to plan a treatment plan.  That book is readily available on Amazon and not expensive and definitely worth reading.
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Sarah001

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Went thru the same thing

Post  Jessica11 on Sun Jun 16, 2013 11:10 pm

Went thru the same thing with my boyfriend of 5 years, still going strong tho, now that Im better. Yes we fought constantly, and it created alot of frustration and anger, but never give up and never stop fighting. As long as he knows your TRYING to find a cure for yourself. I do anti yeast cream for maintenance atleast once a week, and I take probiotics everyday, and make my own kefir.

Jessica11

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Re: Hi, I'm New.

Post  Sabrinalaura on Tue Jun 18, 2013 11:58 am

Hi I am new to this forum I got diagnosed with vulvadynia vestibulitis last week finally after months of agony std tests and seen different doctors all I have been prescribed so far is dermovate and instagel to numb that area. I am with my partner 5 years and in 24 years old I fear sex and this is causing problems please help!

Sabrinalaura

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Re: Hi, I'm New.

Post  Fujibug on Thu Jun 20, 2013 1:18 am

Your issues sound a lot like mine. I have also had it for 2 years. I have done a lot of research recently and found out that I am likely suffering from a major yeast infection that doesn't show up on lab tests. Don't get surgery or take prescription drugs until you explore this possibility. I am learning that a lot of people with vulvodynia have Candida overgrowth by a strain that is not visible on tests and very hard to kill. I hope this helps!! Keep researching and don't stop until you kick this disease in the ass! I know we all can do it Smile

Fujibug

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Re: Hi, I'm New.

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