Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Hi, I'm New.

View previous topic View next topic Go down

Hi, I'm New.

Post  EmCose on Wed Jun 12, 2013 6:50 pm

Hi, I joined this site because I feel extremely alone. I'm 20 years old and was recently diagnosed with vulvodynia, but have been suffering for about two years now. I don't understand why I have this problem and I have also suffered from painful ovarian cysts for about two years now also. I've been with my bf for three years, and we live together and he is the only guy I have slept with. But now, we constantly fight because there's "something wrong with me" and I never want to have sex because of the pain. My best friend even acts like vulvodynia is no big deal and doesn't understand my depression. I created an account here in hopes of someone helping me feel like it gets better, and letting me know what kinds of things have help them.


Posts : 1
Join date : 2013-06-12

View user profile

Back to top Go down

Re: Hi, I'm New.

Post  Alana3 on Wed Jun 12, 2013 8:49 pm

It gets better Smile I was told  it wouldn't but I'm considered cured now. I had surgery in December and feel better. I just had an exam today and was perfect. Of course it's different for everyone and it took 5 years to get there but hey lol. Now I suffer with chronic yeast and am dealing with thay nonsense. Its awful! But at least thats something anyone can get lol


Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Hi, I'm New.

Post  Sarah001 on Thu Jun 13, 2013 8:08 am

Hi, my opinion is to find out all the known causes and then work your way through the list starting with the things you can try by yourself at home and working up to more medical options.  The best book I read about this is "When Sex Hurts" which is excellent for helping piece together the cause.  Once you've worked out the cause it's easier to plan a treatment plan.  That book is readily available on Amazon and not expensive and definitely worth reading.

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Went thru the same thing

Post  Jessica11 on Sun Jun 16, 2013 11:10 pm

Went thru the same thing with my boyfriend of 5 years, still going strong tho, now that Im better. Yes we fought constantly, and it created alot of frustration and anger, but never give up and never stop fighting. As long as he knows your TRYING to find a cure for yourself. I do anti yeast cream for maintenance atleast once a week, and I take probiotics everyday, and make my own kefir.


Posts : 9
Join date : 2013-04-10

View user profile

Back to top Go down

Re: Hi, I'm New.

Post  Sabrinalaura on Tue Jun 18, 2013 11:58 am

Hi I am new to this forum I got diagnosed with vulvadynia vestibulitis last week finally after months of agony std tests and seen different doctors all I have been prescribed so far is dermovate and instagel to numb that area. I am with my partner 5 years and in 24 years old I fear sex and this is causing problems please help!


Posts : 2
Join date : 2013-06-18

View user profile

Back to top Go down

Re: Hi, I'm New.

Post  Fujibug on Thu Jun 20, 2013 1:18 am

Your issues sound a lot like mine. I have also had it for 2 years. I have done a lot of research recently and found out that I am likely suffering from a major yeast infection that doesn't show up on lab tests. Don't get surgery or take prescription drugs until you explore this possibility. I am learning that a lot of people with vulvodynia have Candida overgrowth by a strain that is not visible on tests and very hard to kill. I hope this helps!! Keep researching and don't stop until you kick this disease in the ass! I know we all can do it Smile


Posts : 1
Join date : 2013-06-20

View user profile

Back to top Go down

Re: Hi, I'm New.

Post  Sponsored content

Sponsored content

Back to top Go down

View previous topic View next topic Back to top

Permissions in this forum:
You cannot reply to topics in this forum