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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Hi, I'm New.

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Hi, I'm New.

Post  EmCose on Wed Jun 12, 2013 6:50 pm

Hi, I joined this site because I feel extremely alone. I'm 20 years old and was recently diagnosed with vulvodynia, but have been suffering for about two years now. I don't understand why I have this problem and I have also suffered from painful ovarian cysts for about two years now also. I've been with my bf for three years, and we live together and he is the only guy I have slept with. But now, we constantly fight because there's "something wrong with me" and I never want to have sex because of the pain. My best friend even acts like vulvodynia is no big deal and doesn't understand my depression. I created an account here in hopes of someone helping me feel like it gets better, and letting me know what kinds of things have help them.

EmCose

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Re: Hi, I'm New.

Post  Alana3 on Wed Jun 12, 2013 8:49 pm

It gets better Smile I was told  it wouldn't but I'm considered cured now. I had surgery in December and feel better. I just had an exam today and was perfect. Of course it's different for everyone and it took 5 years to get there but hey lol. Now I suffer with chronic yeast and am dealing with thay nonsense. Its awful! But at least thats something anyone can get lol

Alana3

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Re: Hi, I'm New.

Post  Sarah001 on Thu Jun 13, 2013 8:08 am

Hi, my opinion is to find out all the known causes and then work your way through the list starting with the things you can try by yourself at home and working up to more medical options.  The best book I read about this is "When Sex Hurts" which is excellent for helping piece together the cause.  Once you've worked out the cause it's easier to plan a treatment plan.  That book is readily available on Amazon and not expensive and definitely worth reading.
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Sarah001

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Went thru the same thing

Post  Jessica11 on Sun Jun 16, 2013 11:10 pm

Went thru the same thing with my boyfriend of 5 years, still going strong tho, now that Im better. Yes we fought constantly, and it created alot of frustration and anger, but never give up and never stop fighting. As long as he knows your TRYING to find a cure for yourself. I do anti yeast cream for maintenance atleast once a week, and I take probiotics everyday, and make my own kefir.

Jessica11

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Re: Hi, I'm New.

Post  Sabrinalaura on Tue Jun 18, 2013 11:58 am

Hi I am new to this forum I got diagnosed with vulvadynia vestibulitis last week finally after months of agony std tests and seen different doctors all I have been prescribed so far is dermovate and instagel to numb that area. I am with my partner 5 years and in 24 years old I fear sex and this is causing problems please help!

Sabrinalaura

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Re: Hi, I'm New.

Post  Fujibug on Thu Jun 20, 2013 1:18 am

Your issues sound a lot like mine. I have also had it for 2 years. I have done a lot of research recently and found out that I am likely suffering from a major yeast infection that doesn't show up on lab tests. Don't get surgery or take prescription drugs until you explore this possibility. I am learning that a lot of people with vulvodynia have Candida overgrowth by a strain that is not visible on tests and very hard to kill. I hope this helps!! Keep researching and don't stop until you kick this disease in the ass! I know we all can do it Smile

Fujibug

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Re: Hi, I'm New.

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