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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

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you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


colp(oscoscopy) WTH?

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colp(oscoscopy) WTH?

Post  BpCookie on Wed Jun 12, 2013 9:53 pm

Hello all you girls sitting on ice packs. Saw my new vagina specialist dude today, he set me up for an apt. to have a colp(oscoscop with laser vaporization of hymenal and caruncle tabs. Thats exactly how they have it written. So he said that he will be burning off a few layers of skin. I guess thats the way they explain it to ppl like me. So Im thinking "DOH! Say what? Your gonna burn my ta ta?". So I tell him "ok, it cant burn any more than it burns already" and if he screws it up and makes it hurt worse, then may as well put me out of my misery, cause I will hunt him down like a Blood Hound. 

So, Im excited but also scared shitless. Has anyone here ever had this done? If so, how did it go and what should I expect?

Thanks and hugs

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Re: colp(oscoscopy) WTH?

Post  Sarah001 on Thu Jun 13, 2013 8:01 am

Hi cookie, I haven't had it done but I would research it to death before you go, I have seen other women online talk about similar things and sometimes not in a good way so I would suggest googling it and trawling through the results and if you find anyone mentioning it ask them about it so you have a clearer picture of what to expect.  Good luck with it though.
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Re: colp(oscoscopy) WTH?

Post  BpCookie on Thu Jun 13, 2013 3:00 pm

Hi Hun, I started Googling it yesterday but ya know how that goes, I get things about Cloposcopy  but not exactly as they have it written on the paper work. So back to the drawing board I guess, to do more research. Thanks
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Re: colp(oscoscopy) WTH?

Post  Alana3 on Thu Jun 13, 2013 3:12 pm

I would be careful googling anything you could drive yourself insane. Remember most people who leave reviews are the ones it didn't work for. That being said when I went to look for my research for my surgery it was all people talking about how bad it was but for me I'm cured. If your doctor thinks that's good for you ask him/her why what their success rates are why do they think you should have this done? And than possibly get a second opinion from another doctor. Google is a source for way too much info. I'm glad I didn't listen to the reviews because (apart from this yeast) I am 100% fine.

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Re: colp(oscoscopy) WTH?

Post  Alana3 on Thu Jun 13, 2013 3:14 pm

Obviously get ideas just be careful you dont overwhelm yourself is all.im saying

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Re: colp(oscoscopy) WTH?

Post  BpCookie on Thu Jun 13, 2013 4:26 pm

Hi Alana hun, I tried Googling just so that I could find out exactly what the surgery entitles but trying to find any info. is ridiculously hard. So, instead, I called the Dr.s office and am waiting for Triage/Nurse to call me back. I will ask her what the name of the surgery is called and where I can find information about it on-line. I asked this Dr. if he had treated women with Lichen before and he said he had. I have pre-op blood work to be done next week and I guess that is when they will go over all the information about the surgery but I want to know right now. :)I also want to know how many of these surgeries he has done in the past. 

What was the name of your surgery again? Sorry, I can't remember.

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Re: colp(oscoscopy) WTH?

Post  Alana3 on Thu Jun 13, 2013 5:02 pm

Mine is way different than yours because it was localized but it was called a vestibulectomy. Obviously look just dont scare yourself to death.. maybe once you figure it out call another speciakist somewhere and see what they think

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Re: colp(oscoscopy) WTH?

Post  BpCookie on Wed Jun 19, 2013 7:21 pm

I found out a bit more about the surgery/procedure. Colposcoscopy is acutaually just the name of the instrument that will be used. The Dr. explained that when Hymen is broke, it ends up having left over tabs. He is going to remove those tabs. The day of the surgery he will ask me what I want him to do and what I dont want him to do. So if he sees something suspicious inside my vagina, he wants to know if he can take care of the problem during the surgery and my answer would be "hell no" As for what I want him to do would be to laser the area where my lichen simplex is located and I would like him to cut some fat off of my ass and stuff it in my breasts. It would be great to wake with my yahoo fixed, a smaller ass and a nice rack. Smile

Hope your all well. Love to you all.

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Re: colp(oscoscopy) WTH?

Post  Alana3 on Wed Jun 19, 2013 7:40 pm

I was just thinking of you glad youre well!

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Re: colp(oscoscopy) WTH?

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