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» Vulvodynia is a secret
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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


colp(oscoscopy) WTH?

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colp(oscoscopy) WTH?

Post  BpCookie on Wed Jun 12, 2013 9:53 pm

Hello all you girls sitting on ice packs. Saw my new vagina specialist dude today, he set me up for an apt. to have a colp(oscoscop with laser vaporization of hymenal and caruncle tabs. Thats exactly how they have it written. So he said that he will be burning off a few layers of skin. I guess thats the way they explain it to ppl like me. So Im thinking "DOH! Say what? Your gonna burn my ta ta?". So I tell him "ok, it cant burn any more than it burns already" and if he screws it up and makes it hurt worse, then may as well put me out of my misery, cause I will hunt him down like a Blood Hound. 

So, Im excited but also scared shitless. Has anyone here ever had this done? If so, how did it go and what should I expect?

Thanks and hugs

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Re: colp(oscoscopy) WTH?

Post  Sarah001 on Thu Jun 13, 2013 8:01 am

Hi cookie, I haven't had it done but I would research it to death before you go, I have seen other women online talk about similar things and sometimes not in a good way so I would suggest googling it and trawling through the results and if you find anyone mentioning it ask them about it so you have a clearer picture of what to expect.  Good luck with it though.
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Re: colp(oscoscopy) WTH?

Post  BpCookie on Thu Jun 13, 2013 3:00 pm

Hi Hun, I started Googling it yesterday but ya know how that goes, I get things about Cloposcopy  but not exactly as they have it written on the paper work. So back to the drawing board I guess, to do more research. Thanks
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Re: colp(oscoscopy) WTH?

Post  Alana3 on Thu Jun 13, 2013 3:12 pm

I would be careful googling anything you could drive yourself insane. Remember most people who leave reviews are the ones it didn't work for. That being said when I went to look for my research for my surgery it was all people talking about how bad it was but for me I'm cured. If your doctor thinks that's good for you ask him/her why what their success rates are why do they think you should have this done? And than possibly get a second opinion from another doctor. Google is a source for way too much info. I'm glad I didn't listen to the reviews because (apart from this yeast) I am 100% fine.

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Re: colp(oscoscopy) WTH?

Post  Alana3 on Thu Jun 13, 2013 3:14 pm

Obviously get ideas just be careful you dont overwhelm yourself is all.im saying

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Re: colp(oscoscopy) WTH?

Post  BpCookie on Thu Jun 13, 2013 4:26 pm

Hi Alana hun, I tried Googling just so that I could find out exactly what the surgery entitles but trying to find any info. is ridiculously hard. So, instead, I called the Dr.s office and am waiting for Triage/Nurse to call me back. I will ask her what the name of the surgery is called and where I can find information about it on-line. I asked this Dr. if he had treated women with Lichen before and he said he had. I have pre-op blood work to be done next week and I guess that is when they will go over all the information about the surgery but I want to know right now. :)I also want to know how many of these surgeries he has done in the past. 

What was the name of your surgery again? Sorry, I can't remember.

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Re: colp(oscoscopy) WTH?

Post  Alana3 on Thu Jun 13, 2013 5:02 pm

Mine is way different than yours because it was localized but it was called a vestibulectomy. Obviously look just dont scare yourself to death.. maybe once you figure it out call another speciakist somewhere and see what they think

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Re: colp(oscoscopy) WTH?

Post  BpCookie on Wed Jun 19, 2013 7:21 pm

I found out a bit more about the surgery/procedure. Colposcoscopy is acutaually just the name of the instrument that will be used. The Dr. explained that when Hymen is broke, it ends up having left over tabs. He is going to remove those tabs. The day of the surgery he will ask me what I want him to do and what I dont want him to do. So if he sees something suspicious inside my vagina, he wants to know if he can take care of the problem during the surgery and my answer would be "hell no" As for what I want him to do would be to laser the area where my lichen simplex is located and I would like him to cut some fat off of my ass and stuff it in my breasts. It would be great to wake with my yahoo fixed, a smaller ass and a nice rack. Smile

Hope your all well. Love to you all.

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Re: colp(oscoscopy) WTH?

Post  Alana3 on Wed Jun 19, 2013 7:40 pm

I was just thinking of you glad youre well!

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Re: colp(oscoscopy) WTH?

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