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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


suck fest sorry i'm really pmsing!

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suck fest sorry i'm really pmsing!

Post  Alana3 on Thu Jun 13, 2013 6:53 pm

I need a rant about how much it SUCKS to be a woman.  I was just diagnosed with a crazy yeast infection that I have to treat for a YEAR yes a year!  Do you know how bad that sucks?
 
I HATE BEING A WOMAN! We get way more infections than men, have to wear bras, get migraines, have periods and have babies!  Are you kidding me? I HATE BRAS they are uncomfortable and on top of that, my doctor told me that its BAD for you, yet we go like zombies doing what people expect us to do even tho its bad for our health. Seriously, I have cysts, and stopped wearing a bra and my ultrasounds are 40% BETTER! What in the HELL?! And my boobs are perkier too Wink
 
Lets go onto our monthly visitor, the "gift" from hell.  I HATE having a period.  It's disgusting, I can't sleep, I have headaches, cramps, nausea.  And I have to control all of this on birth control pills. Awesome!  Not to mention the diaper wearing I do. 
 
Let's move onto pregnancy.  You get preg you're nauseous for 9 months, you start gaining weight, you eat like a horse, than deliver the damn thing and are solely responsible for it after you're body has been thru a war (God forbid the man actually wake up!) and you bleed for 6 weeks after.  Not to mention breast feeding.
 

  1. I AM SO SICK OF BEING A WOMAN! And worst of all this is for a normal woman with NO PROBLEMS.  Add into the fact of vulvodynia, endometriosis, IC, PFD, vaginismus, etc etc etc. IT SUCKS!  Why can't men suffer?  Why can't they get ANYTHING.  And for that reason why did I have to be born into this suck fest?  I'm tired, pissy and this yeast infection is driving me mad! Sorry, but I had to vent to someone who may understand my predicament ugh

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A year??

Post  Jessica11 on Sat Jun 15, 2013 2:59 am

A year?? Why a year?? Cant they give you the 3 day or 24 hour ovules?? lol!!

That sux tho..damn.lol

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Re: suck fest sorry i'm really pmsing!

Post  Alana3 on Sat Jun 15, 2013 4:52 am

No because it keeps coming back and its extremely painful I finally got relief today after 2 weeks

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Re: suck fest sorry i'm really pmsing!

Post  EviE°Bee on Thu Oct 10, 2013 7:53 am

Im glad you found some relief. It depends greatly on the Dr., if they choose to listen to all your complaints and connect the damn dots. Its obvious that VV sufferers or women with constant pain or complications in their lady parts are a special kind of sensitive. It seems we're sensitive to everything and our bodies are just not working like they are supposed to.

A year of creams on and off or pills?

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Re: suck fest sorry i'm really pmsing!

Post  mary jane on Thu Oct 10, 2013 10:53 pm

I have a friend who gets a yeast infection once every 4 months (only when she has unsafe sex)
she never takes medication and swears by the Anti-candida diet. (basically eliminate sugar from your diet)

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Re: suck fest sorry i'm really pmsing!

Post  Alana3 on Fri Oct 11, 2013 2:57 pm

Yeah not happening... your friend has sex once every 4 months? I've been good recently no complaints

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Re: suck fest sorry i'm really pmsing!

Post  tinkerbelle2 on Fri Oct 11, 2013 7:50 pm

I totally know what you mean Alana. I hate periods too! The nausea combined with unbearable cramps is not fun. Guys do seem to get off a lot lighter than we do, but not always. My boyfriend had a really painful cyst in his epididymis which caused both testes and pelvic area to be super sore and tender. It has come back twice and he has to go on antibiotics for it, sometimes he cries and is just not himself at all. I feel so bad for him and just cuddle him lots. He developed it whilst ive had the wonderful vulvodynia so we have kinda helped each other. Don't know how I'd have coped without him!
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Re: suck fest sorry i'm really pmsing!

Post  Alana3 on Fri Oct 11, 2013 8:38 pm

Yeah I have endometriosis but just switched bc back to yaz what a difference! Yeah my boyfriend also has health issues sooo its nice too haha

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Re: suck fest sorry i'm really pmsing!

Post  mary jane on Fri Oct 11, 2013 8:55 pm

how sweet, Tinkerbelle. So sweet he is understanding and that you are supporting each other.
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Re: suck fest sorry i'm really pmsing!

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