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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


suck fest sorry i'm really pmsing!

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suck fest sorry i'm really pmsing!

Post  Alana3 on Thu Jun 13, 2013 6:53 pm

I need a rant about how much it SUCKS to be a woman.  I was just diagnosed with a crazy yeast infection that I have to treat for a YEAR yes a year!  Do you know how bad that sucks?
 
I HATE BEING A WOMAN! We get way more infections than men, have to wear bras, get migraines, have periods and have babies!  Are you kidding me? I HATE BRAS they are uncomfortable and on top of that, my doctor told me that its BAD for you, yet we go like zombies doing what people expect us to do even tho its bad for our health. Seriously, I have cysts, and stopped wearing a bra and my ultrasounds are 40% BETTER! What in the HELL?! And my boobs are perkier too Wink
 
Lets go onto our monthly visitor, the "gift" from hell.  I HATE having a period.  It's disgusting, I can't sleep, I have headaches, cramps, nausea.  And I have to control all of this on birth control pills. Awesome!  Not to mention the diaper wearing I do. 
 
Let's move onto pregnancy.  You get preg you're nauseous for 9 months, you start gaining weight, you eat like a horse, than deliver the damn thing and are solely responsible for it after you're body has been thru a war (God forbid the man actually wake up!) and you bleed for 6 weeks after.  Not to mention breast feeding.
 

  1. I AM SO SICK OF BEING A WOMAN! And worst of all this is for a normal woman with NO PROBLEMS.  Add into the fact of vulvodynia, endometriosis, IC, PFD, vaginismus, etc etc etc. IT SUCKS!  Why can't men suffer?  Why can't they get ANYTHING.  And for that reason why did I have to be born into this suck fest?  I'm tired, pissy and this yeast infection is driving me mad! Sorry, but I had to vent to someone who may understand my predicament ugh

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A year??

Post  Jessica11 on Sat Jun 15, 2013 2:59 am

A year?? Why a year?? Cant they give you the 3 day or 24 hour ovules?? lol!!

That sux tho..damn.lol

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Re: suck fest sorry i'm really pmsing!

Post  Alana3 on Sat Jun 15, 2013 4:52 am

No because it keeps coming back and its extremely painful I finally got relief today after 2 weeks

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Re: suck fest sorry i'm really pmsing!

Post  EviE°Bee on Thu Oct 10, 2013 7:53 am

Im glad you found some relief. It depends greatly on the Dr., if they choose to listen to all your complaints and connect the damn dots. Its obvious that VV sufferers or women with constant pain or complications in their lady parts are a special kind of sensitive. It seems we're sensitive to everything and our bodies are just not working like they are supposed to.

A year of creams on and off or pills?

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Re: suck fest sorry i'm really pmsing!

Post  mary jane on Thu Oct 10, 2013 10:53 pm

I have a friend who gets a yeast infection once every 4 months (only when she has unsafe sex)
she never takes medication and swears by the Anti-candida diet. (basically eliminate sugar from your diet)

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Re: suck fest sorry i'm really pmsing!

Post  Alana3 on Fri Oct 11, 2013 2:57 pm

Yeah not happening... your friend has sex once every 4 months? I've been good recently no complaints

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Re: suck fest sorry i'm really pmsing!

Post  tinkerbelle2 on Fri Oct 11, 2013 7:50 pm

I totally know what you mean Alana. I hate periods too! The nausea combined with unbearable cramps is not fun. Guys do seem to get off a lot lighter than we do, but not always. My boyfriend had a really painful cyst in his epididymis which caused both testes and pelvic area to be super sore and tender. It has come back twice and he has to go on antibiotics for it, sometimes he cries and is just not himself at all. I feel so bad for him and just cuddle him lots. He developed it whilst ive had the wonderful vulvodynia so we have kinda helped each other. Don't know how I'd have coped without him!
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Re: suck fest sorry i'm really pmsing!

Post  Alana3 on Fri Oct 11, 2013 8:38 pm

Yeah I have endometriosis but just switched bc back to yaz what a difference! Yeah my boyfriend also has health issues sooo its nice too haha

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Re: suck fest sorry i'm really pmsing!

Post  mary jane on Fri Oct 11, 2013 8:55 pm

how sweet, Tinkerbelle. So sweet he is understanding and that you are supporting each other.
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Re: suck fest sorry i'm really pmsing!

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