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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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suck fest sorry i'm really pmsing!

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suck fest sorry i'm really pmsing!

Post  Alana3 on Thu Jun 13, 2013 6:53 pm

I need a rant about how much it SUCKS to be a woman.  I was just diagnosed with a crazy yeast infection that I have to treat for a YEAR yes a year!  Do you know how bad that sucks?
 
I HATE BEING A WOMAN! We get way more infections than men, have to wear bras, get migraines, have periods and have babies!  Are you kidding me? I HATE BRAS they are uncomfortable and on top of that, my doctor told me that its BAD for you, yet we go like zombies doing what people expect us to do even tho its bad for our health. Seriously, I have cysts, and stopped wearing a bra and my ultrasounds are 40% BETTER! What in the HELL?! And my boobs are perkier too Wink
 
Lets go onto our monthly visitor, the "gift" from hell.  I HATE having a period.  It's disgusting, I can't sleep, I have headaches, cramps, nausea.  And I have to control all of this on birth control pills. Awesome!  Not to mention the diaper wearing I do. 
 
Let's move onto pregnancy.  You get preg you're nauseous for 9 months, you start gaining weight, you eat like a horse, than deliver the damn thing and are solely responsible for it after you're body has been thru a war (God forbid the man actually wake up!) and you bleed for 6 weeks after.  Not to mention breast feeding.
 

  1. I AM SO SICK OF BEING A WOMAN! And worst of all this is for a normal woman with NO PROBLEMS.  Add into the fact of vulvodynia, endometriosis, IC, PFD, vaginismus, etc etc etc. IT SUCKS!  Why can't men suffer?  Why can't they get ANYTHING.  And for that reason why did I have to be born into this suck fest?  I'm tired, pissy and this yeast infection is driving me mad! Sorry, but I had to vent to someone who may understand my predicament ugh

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A year??

Post  Jessica11 on Sat Jun 15, 2013 2:59 am

A year?? Why a year?? Cant they give you the 3 day or 24 hour ovules?? lol!!

That sux tho..damn.lol

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Re: suck fest sorry i'm really pmsing!

Post  Alana3 on Sat Jun 15, 2013 4:52 am

No because it keeps coming back and its extremely painful I finally got relief today after 2 weeks

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Re: suck fest sorry i'm really pmsing!

Post  EviE°Bee on Thu Oct 10, 2013 7:53 am

Im glad you found some relief. It depends greatly on the Dr., if they choose to listen to all your complaints and connect the damn dots. Its obvious that VV sufferers or women with constant pain or complications in their lady parts are a special kind of sensitive. It seems we're sensitive to everything and our bodies are just not working like they are supposed to.

A year of creams on and off or pills?

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Re: suck fest sorry i'm really pmsing!

Post  mary jane on Thu Oct 10, 2013 10:53 pm

I have a friend who gets a yeast infection once every 4 months (only when she has unsafe sex)
she never takes medication and swears by the Anti-candida diet. (basically eliminate sugar from your diet)

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Re: suck fest sorry i'm really pmsing!

Post  Alana3 on Fri Oct 11, 2013 2:57 pm

Yeah not happening... your friend has sex once every 4 months? I've been good recently no complaints

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Re: suck fest sorry i'm really pmsing!

Post  tinkerbelle2 on Fri Oct 11, 2013 7:50 pm

I totally know what you mean Alana. I hate periods too! The nausea combined with unbearable cramps is not fun. Guys do seem to get off a lot lighter than we do, but not always. My boyfriend had a really painful cyst in his epididymis which caused both testes and pelvic area to be super sore and tender. It has come back twice and he has to go on antibiotics for it, sometimes he cries and is just not himself at all. I feel so bad for him and just cuddle him lots. He developed it whilst ive had the wonderful vulvodynia so we have kinda helped each other. Don't know how I'd have coped without him!
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Re: suck fest sorry i'm really pmsing!

Post  Alana3 on Fri Oct 11, 2013 8:38 pm

Yeah I have endometriosis but just switched bc back to yaz what a difference! Yeah my boyfriend also has health issues sooo its nice too haha

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Re: suck fest sorry i'm really pmsing!

Post  mary jane on Fri Oct 11, 2013 8:55 pm

how sweet, Tinkerbelle. So sweet he is understanding and that you are supporting each other.
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Re: suck fest sorry i'm really pmsing!

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