Vulvodynia Support
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    » Hope to all my suffering ladies
    suck fest sorry i'm really pmsing!  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

    » Please tell me this can get better
    suck fest sorry i'm really pmsing!  EmptySat Jul 18, 2020 7:38 pm by sammykramer

    » By no means cured, but doing much better!
    suck fest sorry i'm really pmsing!  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

    » How I cured my Vulvodynia!
    suck fest sorry i'm really pmsing!  EmptySat Dec 07, 2019 11:54 am by Millie

    » 7 months since the diagnosis
    suck fest sorry i'm really pmsing!  EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    suck fest sorry i'm really pmsing!  EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    suck fest sorry i'm really pmsing!  EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    suck fest sorry i'm really pmsing!  EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    suck fest sorry i'm really pmsing!  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    suck fest sorry i'm really pmsing!

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    Post  Alana3 Thu Jun 13, 2013 6:53 pm

    I need a rant about how much it SUCKS to be a woman.  I was just diagnosed with a crazy yeast infection that I have to treat for a YEAR yes a year!  Do you know how bad that sucks?
     
    I HATE BEING A WOMAN! We get way more infections than men, have to wear bras, get migraines, have periods and have babies!  Are you kidding me? I HATE BRAS they are uncomfortable and on top of that, my doctor told me that its BAD for you, yet we go like zombies doing what people expect us to do even tho its bad for our health. Seriously, I have cysts, and stopped wearing a bra and my ultrasounds are 40% BETTER! What in the HELL?! And my boobs are perkier too Wink
     
    Lets go onto our monthly visitor, the "gift" from hell.  I HATE having a period.  It's disgusting, I can't sleep, I have headaches, cramps, nausea.  And I have to control all of this on birth control pills. Awesome!  Not to mention the diaper wearing I do. 
     
    Let's move onto pregnancy.  You get preg you're nauseous for 9 months, you start gaining weight, you eat like a horse, than deliver the damn thing and are solely responsible for it after you're body has been thru a war (God forbid the man actually wake up!) and you bleed for 6 weeks after.  Not to mention breast feeding.
     

    1. I AM SO SICK OF BEING A WOMAN! And worst of all this is for a normal woman with NO PROBLEMS.  Add into the fact of vulvodynia, endometriosis, IC, PFD, vaginismus, etc etc etc. IT SUCKS!  Why can't men suffer?  Why can't they get ANYTHING.  And for that reason why did I have to be born into this suck fest?  I'm tired, pissy and this yeast infection is driving me mad! Sorry, but I had to vent to someone who may understand my predicament ugh

    Alana3

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    suck fest sorry i'm really pmsing!  Empty A year??

    Post  Jessica11 Sat Jun 15, 2013 2:59 am

    A year?? Why a year?? Cant they give you the 3 day or 24 hour ovules?? lol!!

    That sux tho..damn.lol

    Jessica11

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    Join date : 2013-04-10

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    Post  Alana3 Sat Jun 15, 2013 4:52 am

    No because it keeps coming back and its extremely painful I finally got relief today after 2 weeks

    Alana3

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    Post  EviE°Bee Thu Oct 10, 2013 7:53 am

    Im glad you found some relief. It depends greatly on the Dr., if they choose to listen to all your complaints and connect the damn dots. Its obvious that VV sufferers or women with constant pain or complications in their lady parts are a special kind of sensitive. It seems we're sensitive to everything and our bodies are just not working like they are supposed to.

    A year of creams on and off or pills?

    EviE°Bee

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    Post  mary jane Thu Oct 10, 2013 10:53 pm

    I have a friend who gets a yeast infection once every 4 months (only when she has unsafe sex)
    she never takes medication and swears by the Anti-candida diet. (basically eliminate sugar from your diet)

    mary jane
    mary jane

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    Post  Alana3 Fri Oct 11, 2013 2:57 pm

    Yeah not happening... your friend has sex once every 4 months? I've been good recently no complaints

    Alana3

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    Post  tinkerbelle2 Fri Oct 11, 2013 7:50 pm

    I totally know what you mean Alana. I hate periods too! The nausea combined with unbearable cramps is not fun. Guys do seem to get off a lot lighter than we do, but not always. My boyfriend had a really painful cyst in his epididymis which caused both testes and pelvic area to be super sore and tender. It has come back twice and he has to go on antibiotics for it, sometimes he cries and is just not himself at all. I feel so bad for him and just cuddle him lots. He developed it whilst ive had the wonderful vulvodynia so we have kinda helped each other. Don't know how I'd have coped without him!
    tinkerbelle2
    tinkerbelle2

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    Post  Alana3 Fri Oct 11, 2013 8:38 pm

    Yeah I have endometriosis but just switched bc back to yaz what a difference! Yeah my boyfriend also has health issues sooo its nice too haha

    Alana3

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    Post  mary jane Fri Oct 11, 2013 8:55 pm

    how sweet, Tinkerbelle. So sweet he is understanding and that you are supporting each other.
    mary jane
    mary jane

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