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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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How To Have Sex

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How To Have Sex

Post  BpCookie on Thu Jun 20, 2013 7:33 pm

Usually sex means pain. Its like my vagina knows when my husbands annoconda is drawing near. She then puts up a fight and doesn't want to let him in. Well, the other night we tricked her. I got ready for bed as usual, brushed my teeth, took my sleeping pill, turned out the light and got into bed. Mrs. Crabby Britches thought we were gonna go to sleep. My husband silently snuck up on her and pounced. She had no idea what just happened. In triumph my husband yells, "Thats right byatch, who's your daddy!"
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Re: How To Have Sex

Post  Alana3 on Thu Jun 20, 2013 9:06 pm

Probably because the sleeping pill relaxed you ask for valium you can put up there and relax the muscles...congrats tho

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Re: How To Have Sex

Post  Alana3 on Thu Aug 15, 2013 1:18 am

Lmao I just reread this and my bf is sitting next to me I almost snorted-attractive this was the funniest thing ever thank you glut the humor hope everything is better today I know you are having some problems and I hold they resolved some Smile

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Re: How To Have Sex

Post  BpCookie on Thu Aug 15, 2013 7:26 pm

Hello hun, Im glad that I could make you laugh. Sometimes you have to have a good sense of humor just to get through each day.

Im still having terrible pain. My Dr. is gonna do a procedure next week. Dont know what its called. At this point I could care less what he does with my useless vagina. He could stick his hand up there and use it as a puppet, I could care less.

Take care hun

hugs

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Re: How To Have Sex

Post  Alana3 on Thu Aug 15, 2013 7:35 pm

Lmao a puppet lovely thought. What's going on now what did he do and what is he planning on doing?

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Re: How To Have Sex

Post  Sebby (Admin) on Fri Aug 16, 2013 10:10 am

Lol really made me laugh and got some good advice! Gonna so drug myself before sex now!! ;D
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Re: How To Have Sex

Post  Alana3 on Fri Aug 16, 2013 12:45 pm

I had sex this morning for the first time in 2 years it felt awesome I almost cried it hurt a little but omg

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Re: How To Have Sex

Post  Sebby (Admin) on Fri Aug 16, 2013 1:23 pm

Good for you! Smile
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Re: How To Have Sex

Post  Alana3 on Fri Aug 16, 2013 1:35 pm

Thanks was terrified.lol

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Re: How To Have Sex

Post  BpCookie on Mon Aug 19, 2013 8:50 pm

Alana, The surgery that my Dr. did (lasering th himenial tabs and cutting what ever else he wanted to) totally failed. Tomorrow He is going to give me an injection of something (shrug) into my episiotomy scar. Dont think it will work since nothing has worked in 2 and a half years.

Congrats on having sex. Im very happy for you. Its amazing how something like sex could be such a huge thing to us. You should throw a party.

love
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Re: How To Have Sex

Post  BpCookie on Mon Aug 19, 2013 8:53 pm

Sebby, glad I made you laugh. Just becareful what drugs you take because I had sex one night and didnt remember anything. lol

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Re: How To Have Sex

Post  Alana3 on Mon Aug 19, 2013 8:56 pm

Good luck maybe this will work!

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Re: How To Have Sex

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