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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Update about myself.

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Update about myself.

Post  fairymoond84 on Thu Jun 27, 2013 3:03 am

Hi all,
The last time I posted on here was about me thinking that I had acidosis instead of vulvodynia. I did a lot of research and it seemed like acidosis was the cause of why I burned. Well I was very very wrong. And found out the hard way. When I researched about acidosis it suggested to eat foods that were high in the 5 main minerals. One of the main foods was spinach. And to take a supplement with the 5 main minerals. Which those supplements were pretty expensive. Well anyways, I started taking those supplements and starting eating a lot more spinach. BIG BIG mistake. After doing this for a few days I was on fire. First let me point out, I only burn down there. No muscle pain or any other vulvodynia symptoms, just burning. Anyways, I guess I have been trying to diagnose myself in the hopes that I can find my own cure and hoping that I didn't have V. But I do. So after years of being stubborn and trying other cures, I finally started out the low oxalate diet. Once I started reading the list of foods to avoid, everything made so much sense. The spinach, very high on oxalates. After that whole experience with the spinach, I was on fire. As soon as I started following the LOD, the burning lessened. There is no other way around it. If you are like me and you only burn, you have to do the LOD. The food list is very overwhelming. There is so much foods that are high in oxalates. Like milk & dark chocolate, a lot of greens, nuts, berries, wheat, grains etc. You can still eat these foods, but a very very small amount. And of course my favorite foods are on the high list LOL. I also started taking calcium citrate 1,000mg 3 times a day and Magnesium 250mg 1 a day. These have really helped also to where I can still eat some foods high in oxalates. The LOD is on many many articles for V and suggests to do this diet to treat V symptoms. Give this LOD a chance. Start it out slow.

fairymoond84

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Age : 33
Location : FL, United States

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Re: Update about myself.

Post  Sebby (Admin) on Fri Aug 02, 2013 4:00 pm

So good to hear when someone finds something that helps them Smile I get more raw/sore pain so wondering if the lod would work for that?
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Sebby (Admin)
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