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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 3

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


Update about myself.

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Update about myself.

Post  fairymoond84 on Thu Jun 27, 2013 3:03 am

Hi all,
The last time I posted on here was about me thinking that I had acidosis instead of vulvodynia. I did a lot of research and it seemed like acidosis was the cause of why I burned. Well I was very very wrong. And found out the hard way. When I researched about acidosis it suggested to eat foods that were high in the 5 main minerals. One of the main foods was spinach. And to take a supplement with the 5 main minerals. Which those supplements were pretty expensive. Well anyways, I started taking those supplements and starting eating a lot more spinach. BIG BIG mistake. After doing this for a few days I was on fire. First let me point out, I only burn down there. No muscle pain or any other vulvodynia symptoms, just burning. Anyways, I guess I have been trying to diagnose myself in the hopes that I can find my own cure and hoping that I didn't have V. But I do. So after years of being stubborn and trying other cures, I finally started out the low oxalate diet. Once I started reading the list of foods to avoid, everything made so much sense. The spinach, very high on oxalates. After that whole experience with the spinach, I was on fire. As soon as I started following the LOD, the burning lessened. There is no other way around it. If you are like me and you only burn, you have to do the LOD. The food list is very overwhelming. There is so much foods that are high in oxalates. Like milk & dark chocolate, a lot of greens, nuts, berries, wheat, grains etc. You can still eat these foods, but a very very small amount. And of course my favorite foods are on the high list LOL. I also started taking calcium citrate 1,000mg 3 times a day and Magnesium 250mg 1 a day. These have really helped also to where I can still eat some foods high in oxalates. The LOD is on many many articles for V and suggests to do this diet to treat V symptoms. Give this LOD a chance. Start it out slow.

fairymoond84

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Age : 33
Location : FL, United States

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Re: Update about myself.

Post  Sebby (Admin) on Fri Aug 02, 2013 4:00 pm

So good to hear when someone finds something that helps them Smile I get more raw/sore pain so wondering if the lod would work for that?
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Sebby (Admin)
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