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I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Mar 09, 2018 6:17 pm by Tunes25
Hello!
I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.
To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …
I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.
To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …
Comments: 4
I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Mon Mar 12, 2018 4:33 pm by totallycured
Hi,
Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.
Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …
Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.
Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …
Comments: 3
Hi Im from Australia :)
Sat Jan 08, 2011 1:08 am by emma
Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …
Comments: 35
Somebody please help me...
Fri Nov 24, 2017 8:05 am by Andlag
Hey everyone,
since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …
since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …
Comments: 14
Lidocaine with condoms?
Wed Mar 21, 2018 10:44 pm by AEM1
Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks!
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …
Comments: 1
Constant pain, I want to die.
Fri Jun 02, 2017 4:29 am by Meggiemay
I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
Comments: 23
Recently Diagnosed which has motivated my research study
Tue Mar 06, 2018 4:54 pm by ebclose2free
Hi everyone,
My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …
My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …
Comments: 0
MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering
Dear all,
Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist
after having a vestibulectomy with no success, I decided to visit …
Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist
after having a vestibulectomy with no success, I decided to visit …
Comments: 3
New and desperate for advice
Sat Mar 03, 2018 2:37 pm by srbry
Hi everyone,
I'm new here and was told to find a support group because this is all getting a bit much really...
I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …
I'm new here and was told to find a support group because this is all getting a bit much really...
I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …
Comments: 3
Update about myself.
Page 1 of 1 • Share •
Update about myself.
Hi all,
The last time I posted on here was about me thinking that I had acidosis instead of vulvodynia. I did a lot of research and it seemed like acidosis was the cause of why I burned. Well I was very very wrong. And found out the hard way. When I researched about acidosis it suggested to eat foods that were high in the 5 main minerals. One of the main foods was spinach. And to take a supplement with the 5 main minerals. Which those supplements were pretty expensive. Well anyways, I started taking those supplements and starting eating a lot more spinach. BIG BIG mistake. After doing this for a few days I was on fire. First let me point out, I only burn down there. No muscle pain or any other vulvodynia symptoms, just burning. Anyways, I guess I have been trying to diagnose myself in the hopes that I can find my own cure and hoping that I didn't have V. But I do. So after years of being stubborn and trying other cures, I finally started out the low oxalate diet. Once I started reading the list of foods to avoid, everything made so much sense. The spinach, very high on oxalates. After that whole experience with the spinach, I was on fire. As soon as I started following the LOD, the burning lessened. There is no other way around it. If you are like me and you only burn, you have to do the LOD. The food list is very overwhelming. There is so much foods that are high in oxalates. Like milk & dark chocolate, a lot of greens, nuts, berries, wheat, grains etc. You can still eat these foods, but a very very small amount. And of course my favorite foods are on the high list LOL. I also started taking calcium citrate 1,000mg 3 times a day and Magnesium 250mg 1 a day. These have really helped also to where I can still eat some foods high in oxalates. The LOD is on many many articles for V and suggests to do this diet to treat V symptoms. Give this LOD a chance. Start it out slow.
The last time I posted on here was about me thinking that I had acidosis instead of vulvodynia. I did a lot of research and it seemed like acidosis was the cause of why I burned. Well I was very very wrong. And found out the hard way. When I researched about acidosis it suggested to eat foods that were high in the 5 main minerals. One of the main foods was spinach. And to take a supplement with the 5 main minerals. Which those supplements were pretty expensive. Well anyways, I started taking those supplements and starting eating a lot more spinach. BIG BIG mistake. After doing this for a few days I was on fire. First let me point out, I only burn down there. No muscle pain or any other vulvodynia symptoms, just burning. Anyways, I guess I have been trying to diagnose myself in the hopes that I can find my own cure and hoping that I didn't have V. But I do. So after years of being stubborn and trying other cures, I finally started out the low oxalate diet. Once I started reading the list of foods to avoid, everything made so much sense. The spinach, very high on oxalates. After that whole experience with the spinach, I was on fire. As soon as I started following the LOD, the burning lessened. There is no other way around it. If you are like me and you only burn, you have to do the LOD. The food list is very overwhelming. There is so much foods that are high in oxalates. Like milk & dark chocolate, a lot of greens, nuts, berries, wheat, grains etc. You can still eat these foods, but a very very small amount. And of course my favorite foods are on the high list LOL. I also started taking calcium citrate 1,000mg 3 times a day and Magnesium 250mg 1 a day. These have really helped also to where I can still eat some foods high in oxalates. The LOD is on many many articles for V and suggests to do this diet to treat V symptoms. Give this LOD a chance. Start it out slow.
fairymoond84- Posts : 7
Join date : 2013-01-13
Age : 34
Location : FL, United States
Re: Update about myself.
So good to hear when someone finds something that helps them
I get more raw/sore pain so wondering if the lod would work for that?

Sebby (Admin)- Admin
- Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

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