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» Change in birth control question
Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


I'm healed

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I'm healed

Post  HopeandFaith on Sun Jun 30, 2013 2:22 am

I'm healed and like so many I'm still confused, grateful but confused. The one thing I can definitely attribute to my healing is my unwillingness to live with vulvodynia.

Its been 3 and a half years of sheer terror. I've been to every place the other women here have (except surgery), begging to live, begging to die, praying for a cure, a miracle, and answer, then praying to die, then not praying at all.

I wish I could give you specific steps to help you heal but I can't really see I got a true miracle, I'm fine but I don't know how it happened. Maybe just time, as I've read from others. Maybe the chiropractor, the accupuncture, the tapping, meditation, yoga, nortrityline, lidocaine gel 5% topical at night, the episiotomy scar massage and stretching of the vulva, the gluten free diet, the B12 and other vitamins. Just writing this is exhausting. Let me tell you what I think I know.

Its started with chronic yeast infections and a dose of monistat 3 day
I was diagnosed with vulvavestibulitis.
Prescribed biofeedback and nortriptyline 5mg, at night, now up to 10mg (i'm scared to stop taking it)
Estrace cream two a day to vulva
I had pain and burning like sitting in acid on both sides of the vulva
Right side pain subsided in three weeks after starting the above.
Left pain subsided notably but did not go away for another year plus
Never had painful sex, in fact sex distracted the pain until it was over then it would be agony
I never had pain at night, once asleep I was pain free - this is a sign that the pain may not be 'real' meaning there is no infection or misaligned back etc, it may be the nerves in the vulva overreacting to earlier chronic infection and sending pain messages to the brain
What I know is that this can really be caused by so many things, there are so many stories of anguish and some of hope.

I used to cry when I woke up because my prayer at nights would be to not wake up. Its been a lonely heartbreaking, relationship eradicating journey through the depths of despair.

If you can, please hold on, please keep trying, through all the disappointment, which just shreds you to pieces - I know, through all the loss and all the fear.

Since I obviously wasn't going to die I became determined to live and to live without pain and I am here someone living without pain.

Love and hope to you all.





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Re: I'm healed

Post  Sarah001 on Sun Jun 30, 2013 11:38 am

I'm really pleased you are painfree again however I want to make sure other women don't get confused by the part about pain at night, the lack of pain at night can still be musculoskeletal as when you lay down it takes the pressure off the muscles that are tight which in turn relieves any nerves affected by them so other ladies reading this please note no pain at night does not rule out misalignment etc. But congratulations and long may it last for you!
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Re: I'm healed

Post  Kathy100 on Tue Jul 02, 2013 2:41 pm

I'll second Sarahs post. I found that through physio that my pelvis is mis-aligned & my left hip / shoulder are twisting forward plus my lower back was compressed which was causing pressure on the nerves and then causing the pain. When I lie down on my back there is no pain as I'm stretched out but on my sides unless I use a pillow between my knees there is pain.

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Re: I'm healed

Post  Delilah1 on Thu Jul 04, 2013 1:48 am

Thank you for sharing your story! It is so encouraging to hear that you are feeling better. Vulvodynia is such a crazy, horrible thing to live with. It is unbelievable to me that so many women have suffered with this for years and the medical community knows so little. I keep telling myself that I will be pain free one day and feel normal again. I have had days recently when the pain/burning has been minimal and I tell myself that is proof that my body is fighting this and winning. Did you notice that your healing started in this way? Was it a gradual healing? I have noticed that I am not quite as dry as I was when the pain was at its worst and the red spots have disappeared on the left side of my labia minora. I think the burning pain is receding but now I am feeling more of a rawness or soreness in the vestibule. I still have the red lines/spots on the right side but I think the tissue in the whole vulvar area is becoming less red and more pink like I used to be some days. I was told to use Crisco to moisturize the skin. Have you ever tried that? I haven't tried it yet. Afraid to put anything on that could set me back. Do you think the Nortriptyline is what stopped the pain burning for you? Are there any things that you noticed changing along the way that made you think you were getting better slowly?
Hugs
Delilah

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Re: I'm healed

Post  tinkerbelle2 on Mon Sep 30, 2013 10:23 am

Congratulations! So happy for you!

This is heartwarming to read & gives me hope that all of our pain and irritation CAN go away. Smile
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me too

Post  mushroomvisionlala on Mon Sep 30, 2013 4:02 pm

Im so traumatized by what Ive been thru, years of hell and despair, living a half life cuz of the chronic pain, and shame, its like I have Post Traumatic Shock Syndrome.
I attribute my healing to God too.
Now I have to do what I promised to him, for healing me. (live a good life) be a Good person, etc) had to revamp my views on sex, etc.
I never want a chastisement like this again, ever.

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Re: I'm healed

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