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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


I'm healed

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I'm healed

Post  HopeandFaith on Sun Jun 30, 2013 2:22 am

I'm healed and like so many I'm still confused, grateful but confused. The one thing I can definitely attribute to my healing is my unwillingness to live with vulvodynia.

Its been 3 and a half years of sheer terror. I've been to every place the other women here have (except surgery), begging to live, begging to die, praying for a cure, a miracle, and answer, then praying to die, then not praying at all.

I wish I could give you specific steps to help you heal but I can't really see I got a true miracle, I'm fine but I don't know how it happened. Maybe just time, as I've read from others. Maybe the chiropractor, the accupuncture, the tapping, meditation, yoga, nortrityline, lidocaine gel 5% topical at night, the episiotomy scar massage and stretching of the vulva, the gluten free diet, the B12 and other vitamins. Just writing this is exhausting. Let me tell you what I think I know.

Its started with chronic yeast infections and a dose of monistat 3 day
I was diagnosed with vulvavestibulitis.
Prescribed biofeedback and nortriptyline 5mg, at night, now up to 10mg (i'm scared to stop taking it)
Estrace cream two a day to vulva
I had pain and burning like sitting in acid on both sides of the vulva
Right side pain subsided in three weeks after starting the above.
Left pain subsided notably but did not go away for another year plus
Never had painful sex, in fact sex distracted the pain until it was over then it would be agony
I never had pain at night, once asleep I was pain free - this is a sign that the pain may not be 'real' meaning there is no infection or misaligned back etc, it may be the nerves in the vulva overreacting to earlier chronic infection and sending pain messages to the brain
What I know is that this can really be caused by so many things, there are so many stories of anguish and some of hope.

I used to cry when I woke up because my prayer at nights would be to not wake up. Its been a lonely heartbreaking, relationship eradicating journey through the depths of despair.

If you can, please hold on, please keep trying, through all the disappointment, which just shreds you to pieces - I know, through all the loss and all the fear.

Since I obviously wasn't going to die I became determined to live and to live without pain and I am here someone living without pain.

Love and hope to you all.





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Re: I'm healed

Post  Sarah001 on Sun Jun 30, 2013 11:38 am

I'm really pleased you are painfree again however I want to make sure other women don't get confused by the part about pain at night, the lack of pain at night can still be musculoskeletal as when you lay down it takes the pressure off the muscles that are tight which in turn relieves any nerves affected by them so other ladies reading this please note no pain at night does not rule out misalignment etc. But congratulations and long may it last for you!
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Re: I'm healed

Post  Kathy100 on Tue Jul 02, 2013 2:41 pm

I'll second Sarahs post. I found that through physio that my pelvis is mis-aligned & my left hip / shoulder are twisting forward plus my lower back was compressed which was causing pressure on the nerves and then causing the pain. When I lie down on my back there is no pain as I'm stretched out but on my sides unless I use a pillow between my knees there is pain.

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Re: I'm healed

Post  Delilah1 on Thu Jul 04, 2013 1:48 am

Thank you for sharing your story! It is so encouraging to hear that you are feeling better. Vulvodynia is such a crazy, horrible thing to live with. It is unbelievable to me that so many women have suffered with this for years and the medical community knows so little. I keep telling myself that I will be pain free one day and feel normal again. I have had days recently when the pain/burning has been minimal and I tell myself that is proof that my body is fighting this and winning. Did you notice that your healing started in this way? Was it a gradual healing? I have noticed that I am not quite as dry as I was when the pain was at its worst and the red spots have disappeared on the left side of my labia minora. I think the burning pain is receding but now I am feeling more of a rawness or soreness in the vestibule. I still have the red lines/spots on the right side but I think the tissue in the whole vulvar area is becoming less red and more pink like I used to be some days. I was told to use Crisco to moisturize the skin. Have you ever tried that? I haven't tried it yet. Afraid to put anything on that could set me back. Do you think the Nortriptyline is what stopped the pain burning for you? Are there any things that you noticed changing along the way that made you think you were getting better slowly?
Hugs
Delilah

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Re: I'm healed

Post  tinkerbelle2 on Mon Sep 30, 2013 10:23 am

Congratulations! So happy for you!

This is heartwarming to read & gives me hope that all of our pain and irritation CAN go away. Smile
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me too

Post  mushroomvisionlala on Mon Sep 30, 2013 4:02 pm

Im so traumatized by what Ive been thru, years of hell and despair, living a half life cuz of the chronic pain, and shame, its like I have Post Traumatic Shock Syndrome.
I attribute my healing to God too.
Now I have to do what I promised to him, for healing me. (live a good life) be a Good person, etc) had to revamp my views on sex, etc.
I never want a chastisement like this again, ever.

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Re: I'm healed

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