Vulvodynia Support
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» Hope to all my suffering ladies
Cured..my story EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Cured..my story EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Cured..my story EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Cured..my story EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Cured..my story EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Cured..my story EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Cured..my story EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Cured..my story EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Cured..my story EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Cured..my story

3 posters

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Post  mushroomvisionlala Fri Sep 27, 2013 10:31 pm

Hello. Just wanted to share my story with everyone here, since Ive been haunting these boards for a couple years now.
My Vulvodynia (itching, burning, swollen, extreme pain with intercourse, pain would not go away, keep me up all night every night for the rest of my life) turned out to be a very stubborn, very long standing case of both BV, and yeast. Had chronic yeast infections my whole life, but I eventually got BV aswell from all the douching and different things I was doing over the years to cure it. I always had pain and irritation, but nothing that prevented me from having sex, or having children (--not all the time, usually once a week or more, but then long breaks in between as I would get cracks, and fissures around the labia and anal area-from yeast), but in the last four years or so, things got really bad, to wear I could barely function as a human being, let alone as a wife.

OTC meds never worked (monistat, canesteen, etc) Diflucan-flucon- one or two pills) LAUGHS, never even touched my infections, Flagyl..never worked, Clindesse. and Metrogel, altho making things feel a whole lot better and soothed, never cured anything as the infection (and pain and misery that comes with it)would come right back after a few days of stopping the medicine. Azithromycin..Did 2 weeks of Metro and Clinda cream..still not gone..feel better, come right back..Tried all the natural things, even BV essentials and stuff you can get now, homeopathinc things at the pharmacy, didint work to eradicate the problem.

So finally I got serious. I got CRAZY..I did tons of research, like all of you here..I started doctor shopping. I knew this was an infection, i decided I needed larger doses of available treatments, which many doctors are hesitant to prescribe. I have insurance, so all was good. I made several appointments with several different Doctors, sum over an hour away. Saw both GYNs, and family general practice physicians.

I had pelvic, and lab cultures done over a dozen times in a three month period. Sometimes Id culture out clue cells for BV or yeast cells, sometimes I wouldnt, either way, I knew how to talk to them to get the medication I wanted. i always walked outta there with something.
Was put on a 14 days course of Metronizidol (Flagyl)..I had just done 14 days of Clindesse and felt better, but didnt feel cured. He said I had copious clue cells on the wet mount. frustrated, knowing Flagyl never worked for me, I got online. This is the biggest script id ever gotten so I was hopeful, maybe it would do something.

I started researching max dosages..I found several posts of women who were given 4 (2 grams, 2000 mg) 4 500mg tablets of metro to take AT ONCE on the first day of treatment, then continue with the usual dose of 500mg twice a day for a week to two weeks after. This is the dosage to cure Trich..a sexually transmitted organism..but i did find some postings of women who also did it for BV. That means the levels of metro in the body are very high, high enough to maybe work???, and kill whatever ive got going on ??? who knows..I did it.

I started with 4 of the 500mg(2000mg) tabs in the morning with a bagel and cream cheese, mild nausea..a metallic taste all day, but all was good..then the 500mg dose that night, then continued to finish my medication for the 13 days whatever I have left. For brain abscess and other serious infections, flagyl can be taken at pretty high dosages for up to a month, so I knew I was safe. The max dosage per day is 2500mg, i looked up all the different dosages for different infections it can be prescribed, and I tried to go high..because I think the reason why metro doesnt work for so many women to cure their problems(and theres tons of women on line who complain about this) is they dont prescribe you enough medicine to fully eradicate the infection.

Anyway BV was cured after that, but then I had massive yeast overgrowth, so i was prescribed one diflucan and a pack pf terezol yeast cream 7 day and was sent on my way.

Ofcourse I was back to square one again in this misery..incurable yeast infection 10 times worse now. So, I started researching Diflucan and other antifungals. I visited the candida diet site and other related sites like Curezone, etc, what people do for chronic candida, as I know this is my problem. Nifty antifungals i learned about, commonly prescribed for systematic and severe yeast and candida fungal infections.

1 – Itraconazole (Sporanox) appears to be at least as potent as ketoconazole and some say may be as good as fluconazole, but not in my opinion. It needs stomach acid to be absorbed, so it should be taken with food. The dose is 200 mg per day. If not enough drug is being absorbed, blood levels may need to be checked so the dose can be increased. An Itraconazole oral solution is more effective and puts higher levels of the drug in the blood than the capsule.

2 – Ketoconazole (Nizoral) is taken at 200 or 400 mg once per day. It also needs stomach acid to be absorbed, so it should be taken with food. Antacids should be avoided. It may not be well absorbed in people with digestive problems or who cannot eat very much.

3 – Fluconazole (Diflucan) is taken at 200 mg the first day, then 100 mg once a day thereafter. Treatment typically lasts from ten days up to two weeks for oral or skin candidiasis and three weeks for esophageal infection (or two weeks after symptoms clear up, whichever is longer). The dose may be increased to 400 mg per day if the lower dose does not work. I have found this drug to be quite hard on the digestive system, particularly the stomach and liver and can make some who take it quite nauseous indeed.

and Nystatin. You can get it in powder form, but it is expensive.

I realized none of these medicines are available without a prescription, and trying to convince any one of my doctors to prescribe them for me would be like pulling teeth, I realized I had to pull a gangster move.

I booked a few more appointments with a few more doctors.
haunting all the health boards I saw several women stating that it often took more than one diflucan to cure up a yeast infection, sumtimes up to 6 for six consecutive nights, at 150mg per night, to clear an infection..

i could not understand why so many women said this little worthless pink pill cleared up yeast infections for them..I knew even 3 maybe even 6 would not be enough for me.
Many times if your lucky) a Doctor will prescribe, 3 Diflucan to clear up a severe yeast infection, to be taken 72 hours apart. It works for many women.
I ended up doing it, and ofcourse, it didnt work for me, But I felt a whole lot better.

The key is, I felt improvement, i felt a difference, so I knew the Diflucan had some power, I knew I was on to something, but did I need more?? More research..Safe dosages. Some people are even prescribed Diflucan for months (HIV or LYME related illneses) for severe fungus..One person was prescribed Diflucan at 150mg to be taken every night for 2 weeks..
I still had a few doctor appointments ahead of me, so I managed to Hustle 3 Diflucan out of each visit, even when I did not culture out for yeast.
I ended up taking it for 5 more days at 150mg a day and it cleared everything up for me.
Now, you guys Im not recommending you guys do this, as you have to be careful of allergies, and also your liver, etc, you should prolly monitor your liver, etc, drink lots of water, etc, this is just what I do. and my system handled everything without any problems. what Im trying to say is, if you have a really bad, really stubborn infection, its gonna require stronger treatment, and as we all know, Doctors are very hesitant about this, and downplay and just dont understand what it is you need and whats going on, and what your going thru.

anyway, kefir and Ultimate flora vaginal support capsules are a must,a nd I still do insert them on occasional to correct balance and irritation, etc. Will post sum links about things i found on candida and BV, thank you

mushroomvisionlala

Posts : 10
Join date : 2013-09-27

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Post  tinkerbelle2 Sat Sep 28, 2013 10:59 pm

Hey, congratulations on getting cured!

It's heart warming to read stories like that as there is hope for us all!

Well done for your perseverance, determination and research! I am currently at the stage you were. Getting serious and getting crazy. I am constantly doing research and have just signed up to about 10 forums!

I am going to get my old vagina back whatever it takes!
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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Post  quell183 Sun Sep 29, 2013 5:44 am

Hey congrats on finding something that works for you! I think maybe some of the women who read this will have more hope. I don't really know if this would work for me because i dont even think ive ever had a yeast infection? Are you able to have pain free sex now and did all the burning fiery feeling go away?

quell183

Posts : 24
Join date : 2013-09-25

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