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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Anyone been told or suspected a PROLAPSE????

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Anyone been told or suspected a PROLAPSE????

Post  jessica1980 on Wed Jul 03, 2013 7:12 pm

Hi ladies a few months ago I wrote a post entitled, "ALMOST GONE" sharing my progress with the kegals.
Although the kegals were helping to retreat the pain back....I was still having pain...especially when it came to my bladder.

After another round of testing....no bacteria, no yeast, no stds, and an expensive bill, I took the advice of my friends and sought, "Alternative Treatment." By an Ayurvedic Practitioner.
I had 5 women in all help me. I was told that I did indeed damage my pelvic floor muscles, and that I most likely had a prolapse. When I laid down on the table...they could not find my uterus. It turns out....my uterus fell on my bladder, and my bladder was partly collapsed, and my pelvic floor muscles were strained by holding this all up, which caused massive nerve pain in my vulva. The women spent 45 minutes massaging my uterus back into place.

My family was very skeptical of this....but I am sure you all will understand what a living hell this is...and the desperation of having nothing else left to loose.

Last night was the first night in 4 months I have able to sleep through the night without having to get up 4 times to use the bathroom. Peeing hasn't been as frequent, and when I do pee...it is a lot more than a few drops. I am feeling cramping where they dropped my uterus...and even even better....my bladder muscles are still sore...but nothing like they once were.

I was curious if any of you have been diagnosed with a uterine, or bladder, of rectal prolapse? Do any of you feel a slight bulge at the base of your vulva? Have any doctors done any ultrasounds to look at the surrounding organs your pelvic floor holds up?

We have all been through hell. I cry for myself and all of you. Unless you have experienced this...people have no idea. I am not crazy, and I never wanted this...nor did any of you.

I hope my experience helps some of you, as you have all helped me.

Please shared with me you experiences regarding this.




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Join date : 2013-06-11

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