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» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» What's next?
Sat Apr 14, 2018 4:28 pm by sally_jane

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Ovarian Cysts

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Ovarian Cysts

Post  JemimaSurrender on Thu Jul 04, 2013 10:48 am

I was just wondering if anyone has, or have had, an ovarian cyst?

I first had mine, a dermoid cyst, just over two years ago (and subsequently found I had polycystic ovaries too) and opted to have it removed. Then about six months ago I found I've got another one, much bigger, and growing all the time. They do run in families, and my sister has suffered with them terribly for years, so I expect to always have them on and off.

But I was just curious to see if anyone else has had them and whether they find there's any correlation between having one and flare ups?

I was feeling better for about thirteen months and sex was tolerable, but now it's getting bad again and sex is pretty painful so I wasn't sure if it's somehow related to the cyst.

I think I'll opt to have this one out too. It's pretty awful because you're damned if you do and damned if you don't, either way I could lose an ovary, and have to endure more scars too.

I think we all deserve medals...

JemimaSurrender

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Re: Ovarian Cysts

Post  Alana3 on Thu Jul 04, 2013 11:54 am

Yeah cysts cause pain with sex...

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Re: Ovarian Cysts

Post  ringostarr26 on Thu Jul 04, 2013 9:52 pm

I had a dermoid cyst when i was 16 removed and they found another one the following year but it went away on its own. I also have endometriosis so pain with sex is a definitely heightened ugh!

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Re: Ovarian Cysts

Post  JemimaSurrender on Sat Jul 27, 2013 10:53 am

I don't think my pain is any worse because of the cyst in that sense. I mean, like, it doesn't hurt when it's being prodded internally or anything like that, but I do have an inclination that the cyst is upsetting my hormones, which then makes my skin burn and sting more.

Anyway, I saw my consultant last week and they gave me the option of leaving it in or having it out. I was kind of torn. If I leave it in the chances are it will continue to grow as it has done and may take over my ovary (as it did with my sister, resulting in her loosing it), or, I can have it out, risking damage to the ovary anyway.

I decided to go ahead with it anyway. I figured, by the time I get a date for the op it will only have grown more, but if I change my mind in the meantime I can always cancel it.

I don't really want another op though. The scarring has only just started to go down from my last one (over two years ago), but, what can you do eh?

Do you ever wonder if men have it this hard!?

JemimaSurrender

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Re: Ovarian Cysts

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