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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

Ovarian Cysts

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Ovarian Cysts

Post  JemimaSurrender on Thu Jul 04, 2013 10:48 am

I was just wondering if anyone has, or have had, an ovarian cyst?

I first had mine, a dermoid cyst, just over two years ago (and subsequently found I had polycystic ovaries too) and opted to have it removed. Then about six months ago I found I've got another one, much bigger, and growing all the time. They do run in families, and my sister has suffered with them terribly for years, so I expect to always have them on and off.

But I was just curious to see if anyone else has had them and whether they find there's any correlation between having one and flare ups?

I was feeling better for about thirteen months and sex was tolerable, but now it's getting bad again and sex is pretty painful so I wasn't sure if it's somehow related to the cyst.

I think I'll opt to have this one out too. It's pretty awful because you're damned if you do and damned if you don't, either way I could lose an ovary, and have to endure more scars too.

I think we all deserve medals...


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Re: Ovarian Cysts

Post  Alana3 on Thu Jul 04, 2013 11:54 am

Yeah cysts cause pain with sex...


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Re: Ovarian Cysts

Post  ringostarr26 on Thu Jul 04, 2013 9:52 pm

I had a dermoid cyst when i was 16 removed and they found another one the following year but it went away on its own. I also have endometriosis so pain with sex is a definitely heightened ugh!


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Re: Ovarian Cysts

Post  JemimaSurrender on Sat Jul 27, 2013 10:53 am

I don't think my pain is any worse because of the cyst in that sense. I mean, like, it doesn't hurt when it's being prodded internally or anything like that, but I do have an inclination that the cyst is upsetting my hormones, which then makes my skin burn and sting more.

Anyway, I saw my consultant last week and they gave me the option of leaving it in or having it out. I was kind of torn. If I leave it in the chances are it will continue to grow as it has done and may take over my ovary (as it did with my sister, resulting in her loosing it), or, I can have it out, risking damage to the ovary anyway.

I decided to go ahead with it anyway. I figured, by the time I get a date for the op it will only have grown more, but if I change my mind in the meantime I can always cancel it.

I don't really want another op though. The scarring has only just started to go down from my last one (over two years ago), but, what can you do eh?

Do you ever wonder if men have it this hard!?


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Re: Ovarian Cysts

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