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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Ovarian Cysts

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Ovarian Cysts

Post  JemimaSurrender on Thu Jul 04, 2013 10:48 am

I was just wondering if anyone has, or have had, an ovarian cyst?

I first had mine, a dermoid cyst, just over two years ago (and subsequently found I had polycystic ovaries too) and opted to have it removed. Then about six months ago I found I've got another one, much bigger, and growing all the time. They do run in families, and my sister has suffered with them terribly for years, so I expect to always have them on and off.

But I was just curious to see if anyone else has had them and whether they find there's any correlation between having one and flare ups?

I was feeling better for about thirteen months and sex was tolerable, but now it's getting bad again and sex is pretty painful so I wasn't sure if it's somehow related to the cyst.

I think I'll opt to have this one out too. It's pretty awful because you're damned if you do and damned if you don't, either way I could lose an ovary, and have to endure more scars too.

I think we all deserve medals...

JemimaSurrender

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Re: Ovarian Cysts

Post  Alana3 on Thu Jul 04, 2013 11:54 am

Yeah cysts cause pain with sex...

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Re: Ovarian Cysts

Post  ringostarr26 on Thu Jul 04, 2013 9:52 pm

I had a dermoid cyst when i was 16 removed and they found another one the following year but it went away on its own. I also have endometriosis so pain with sex is a definitely heightened ugh!

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Re: Ovarian Cysts

Post  JemimaSurrender on Sat Jul 27, 2013 10:53 am

I don't think my pain is any worse because of the cyst in that sense. I mean, like, it doesn't hurt when it's being prodded internally or anything like that, but I do have an inclination that the cyst is upsetting my hormones, which then makes my skin burn and sting more.

Anyway, I saw my consultant last week and they gave me the option of leaving it in or having it out. I was kind of torn. If I leave it in the chances are it will continue to grow as it has done and may take over my ovary (as it did with my sister, resulting in her loosing it), or, I can have it out, risking damage to the ovary anyway.

I decided to go ahead with it anyway. I figured, by the time I get a date for the op it will only have grown more, but if I change my mind in the meantime I can always cancel it.

I don't really want another op though. The scarring has only just started to go down from my last one (over two years ago), but, what can you do eh?

Do you ever wonder if men have it this hard!?

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Re: Ovarian Cysts

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