Vulvodynia Support
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» Hope to all my suffering ladies
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» Please tell me this can get better
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» By no means cured, but doing much better!
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» How I cured my Vulvodynia!
Ovarian Cysts EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
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» Gabapentin Gel. or other topical creams
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» IMPORTANT FOR UK SUFFERERS
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» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Ovarian Cysts EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  JemimaSurrender Thu Jul 04, 2013 10:48 am

I was just wondering if anyone has, or have had, an ovarian cyst?

I first had mine, a dermoid cyst, just over two years ago (and subsequently found I had polycystic ovaries too) and opted to have it removed. Then about six months ago I found I've got another one, much bigger, and growing all the time. They do run in families, and my sister has suffered with them terribly for years, so I expect to always have them on and off.

But I was just curious to see if anyone else has had them and whether they find there's any correlation between having one and flare ups?

I was feeling better for about thirteen months and sex was tolerable, but now it's getting bad again and sex is pretty painful so I wasn't sure if it's somehow related to the cyst.

I think I'll opt to have this one out too. It's pretty awful because you're damned if you do and damned if you don't, either way I could lose an ovary, and have to endure more scars too.

I think we all deserve medals...

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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Post  Alana3 Thu Jul 04, 2013 11:54 am

Yeah cysts cause pain with sex...

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  ringostarr26 Thu Jul 04, 2013 9:52 pm

I had a dermoid cyst when i was 16 removed and they found another one the following year but it went away on its own. I also have endometriosis so pain with sex is a definitely heightened ugh!

ringostarr26

Posts : 59
Join date : 2012-07-31

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Post  JemimaSurrender Sat Jul 27, 2013 10:53 am

I don't think my pain is any worse because of the cyst in that sense. I mean, like, it doesn't hurt when it's being prodded internally or anything like that, but I do have an inclination that the cyst is upsetting my hormones, which then makes my skin burn and sting more.

Anyway, I saw my consultant last week and they gave me the option of leaving it in or having it out. I was kind of torn. If I leave it in the chances are it will continue to grow as it has done and may take over my ovary (as it did with my sister, resulting in her loosing it), or, I can have it out, risking damage to the ovary anyway.

I decided to go ahead with it anyway. I figured, by the time I get a date for the op it will only have grown more, but if I change my mind in the meantime I can always cancel it.

I don't really want another op though. The scarring has only just started to go down from my last one (over two years ago), but, what can you do eh?

Do you ever wonder if men have it this hard!?

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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