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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Ovarian Cysts

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Ovarian Cysts

Post  JemimaSurrender on Thu Jul 04, 2013 10:48 am

I was just wondering if anyone has, or have had, an ovarian cyst?

I first had mine, a dermoid cyst, just over two years ago (and subsequently found I had polycystic ovaries too) and opted to have it removed. Then about six months ago I found I've got another one, much bigger, and growing all the time. They do run in families, and my sister has suffered with them terribly for years, so I expect to always have them on and off.

But I was just curious to see if anyone else has had them and whether they find there's any correlation between having one and flare ups?

I was feeling better for about thirteen months and sex was tolerable, but now it's getting bad again and sex is pretty painful so I wasn't sure if it's somehow related to the cyst.

I think I'll opt to have this one out too. It's pretty awful because you're damned if you do and damned if you don't, either way I could lose an ovary, and have to endure more scars too.

I think we all deserve medals...


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Re: Ovarian Cysts

Post  Alana3 on Thu Jul 04, 2013 11:54 am

Yeah cysts cause pain with sex...


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Re: Ovarian Cysts

Post  ringostarr26 on Thu Jul 04, 2013 9:52 pm

I had a dermoid cyst when i was 16 removed and they found another one the following year but it went away on its own. I also have endometriosis so pain with sex is a definitely heightened ugh!


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Re: Ovarian Cysts

Post  JemimaSurrender on Sat Jul 27, 2013 10:53 am

I don't think my pain is any worse because of the cyst in that sense. I mean, like, it doesn't hurt when it's being prodded internally or anything like that, but I do have an inclination that the cyst is upsetting my hormones, which then makes my skin burn and sting more.

Anyway, I saw my consultant last week and they gave me the option of leaving it in or having it out. I was kind of torn. If I leave it in the chances are it will continue to grow as it has done and may take over my ovary (as it did with my sister, resulting in her loosing it), or, I can have it out, risking damage to the ovary anyway.

I decided to go ahead with it anyway. I figured, by the time I get a date for the op it will only have grown more, but if I change my mind in the meantime I can always cancel it.

I don't really want another op though. The scarring has only just started to go down from my last one (over two years ago), but, what can you do eh?

Do you ever wonder if men have it this hard!?


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Re: Ovarian Cysts

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