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Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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Want to give up

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Want to give up

Post  Princess-j13 on Thu Jul 11, 2013 4:34 pm

Has anyone had their vagina and everything removed. I can't deal with the pain anymore. I've had it all my life and now it's so bad that I'll randomly start having spasms so bad that it's like I'm in labor. I'm only 22 and idk what else to do after physical therapy, nerve blocks etc has only made me worse. I don't want to give up on relationships but idk how to live with this anymore


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Re: Want to give up

Post  Alana3 on Thu Jul 11, 2013 5:24 pm

I had a vestibulectomy which helped me but my pain was onky localized so I don't know if that would help you


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Re: Want to give up

Post  Princess-j13 on Thu Jul 11, 2013 6:53 pm

I have general vestibulitis and vaginismus, my pain is much worse inside. Thanks tho!


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Re: Want to give up

Post  ringostarr26 on Fri Jul 12, 2013 3:01 am

Hey Princess-j13,

I am only 23 so i know how you are feeling. I have suffered since I was about 17 and at times it can be really hard. I have tried everything too but all I can offer you is hope. I suffer from generalized vulvodynia so there are days when my pain is with me 24/7. That being said, over the years I have learned to cope and deal with the pain. Also, my flares are a lot less frequent. Relationships are extremely hard but believe me there are guys that are completely understanding. I have been with my boyfriend for almost 2 years and he has never complained once. He supports me and will literally sit with me while i cry and eat ice cream because I'm in so much pain lol. Just have hope and try to relax. I have really bad anxiety and my symptoms are 10x worse when I am constantly thinking about it!


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Re: Want to give up

Post  BpCookie on Sun Jul 14, 2013 6:48 pm

To anyone who wants to give up, dont let this thing beat you. Keep fighting and keep trying to find that one Dr. who can help you. There is some one, some thing, that can help you, you just have to find it.

Ive only had mine for over two years and I just wanted to give up. I would just take my pain meds and lay in bed crying, just wanting to die so that the pain would go away. I was in a constant depression. Then I turned that depression into something constructive. I was determind to find relief. I researched my VLSC, started thinking outside the box and went to many Gynos, Pain specialists, vulva specialists, etc. Just recently I had surgery done where The Dr. lasered my vulva and removed my Hymenal tabs. It will take me a few month before I know if it worked or not.

So what Im encouraging you to do is, keep trying everything, keep seeing different Dr.s, do research and in the end you may want to try surgery.

Hang in there everyone.

hugs to all

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Location : Arizona

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Re: Want to give up

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