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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Want to give up

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Want to give up

Post  Princess-j13 on Thu Jul 11, 2013 4:34 pm

Has anyone had their vagina and everything removed. I can't deal with the pain anymore. I've had it all my life and now it's so bad that I'll randomly start having spasms so bad that it's like I'm in labor. I'm only 22 and idk what else to do after physical therapy, nerve blocks etc has only made me worse. I don't want to give up on relationships but idk how to live with this anymore

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Re: Want to give up

Post  Alana3 on Thu Jul 11, 2013 5:24 pm

I had a vestibulectomy which helped me but my pain was onky localized so I don't know if that would help you

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Re: Want to give up

Post  Princess-j13 on Thu Jul 11, 2013 6:53 pm

I have general vestibulitis and vaginismus, my pain is much worse inside. Thanks tho!

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Re: Want to give up

Post  ringostarr26 on Fri Jul 12, 2013 3:01 am

Hey Princess-j13,

I am only 23 so i know how you are feeling. I have suffered since I was about 17 and at times it can be really hard. I have tried everything too but all I can offer you is hope. I suffer from generalized vulvodynia so there are days when my pain is with me 24/7. That being said, over the years I have learned to cope and deal with the pain. Also, my flares are a lot less frequent. Relationships are extremely hard but believe me there are guys that are completely understanding. I have been with my boyfriend for almost 2 years and he has never complained once. He supports me and will literally sit with me while i cry and eat ice cream because I'm in so much pain lol. Just have hope and try to relax. I have really bad anxiety and my symptoms are 10x worse when I am constantly thinking about it!

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Re: Want to give up

Post  BpCookie on Sun Jul 14, 2013 6:48 pm

To anyone who wants to give up, dont let this thing beat you. Keep fighting and keep trying to find that one Dr. who can help you. There is some one, some thing, that can help you, you just have to find it.

Ive only had mine for over two years and I just wanted to give up. I would just take my pain meds and lay in bed crying, just wanting to die so that the pain would go away. I was in a constant depression. Then I turned that depression into something constructive. I was determind to find relief. I researched my VLSC, started thinking outside the box and went to many Gynos, Pain specialists, vulva specialists, etc. Just recently I had surgery done where The Dr. lasered my vulva and removed my Hymenal tabs. It will take me a few month before I know if it worked or not.

So what Im encouraging you to do is, keep trying everything, keep seeing different Dr.s, do research and in the end you may want to try surgery.

Hang in there everyone.

hugs to all
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Re: Want to give up

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