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» Honey decreased my pain considerably!
Yesterday at 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Yesterday at 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
Tue Jul 10, 2018 12:27 am by srbry

» Hello. In Need of Advice, Please and Thank You. Long Read.
Sun Jul 08, 2018 3:58 am by cg1991

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Want to give up

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Want to give up

Post  Princess-j13 on Thu Jul 11, 2013 4:34 pm

Has anyone had their vagina and everything removed. I can't deal with the pain anymore. I've had it all my life and now it's so bad that I'll randomly start having spasms so bad that it's like I'm in labor. I'm only 22 and idk what else to do after physical therapy, nerve blocks etc has only made me worse. I don't want to give up on relationships but idk how to live with this anymore


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Re: Want to give up

Post  Alana3 on Thu Jul 11, 2013 5:24 pm

I had a vestibulectomy which helped me but my pain was onky localized so I don't know if that would help you


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Re: Want to give up

Post  Princess-j13 on Thu Jul 11, 2013 6:53 pm

I have general vestibulitis and vaginismus, my pain is much worse inside. Thanks tho!


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Re: Want to give up

Post  ringostarr26 on Fri Jul 12, 2013 3:01 am

Hey Princess-j13,

I am only 23 so i know how you are feeling. I have suffered since I was about 17 and at times it can be really hard. I have tried everything too but all I can offer you is hope. I suffer from generalized vulvodynia so there are days when my pain is with me 24/7. That being said, over the years I have learned to cope and deal with the pain. Also, my flares are a lot less frequent. Relationships are extremely hard but believe me there are guys that are completely understanding. I have been with my boyfriend for almost 2 years and he has never complained once. He supports me and will literally sit with me while i cry and eat ice cream because I'm in so much pain lol. Just have hope and try to relax. I have really bad anxiety and my symptoms are 10x worse when I am constantly thinking about it!


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Re: Want to give up

Post  BpCookie on Sun Jul 14, 2013 6:48 pm

To anyone who wants to give up, dont let this thing beat you. Keep fighting and keep trying to find that one Dr. who can help you. There is some one, some thing, that can help you, you just have to find it.

Ive only had mine for over two years and I just wanted to give up. I would just take my pain meds and lay in bed crying, just wanting to die so that the pain would go away. I was in a constant depression. Then I turned that depression into something constructive. I was determind to find relief. I researched my VLSC, started thinking outside the box and went to many Gynos, Pain specialists, vulva specialists, etc. Just recently I had surgery done where The Dr. lasered my vulva and removed my Hymenal tabs. It will take me a few month before I know if it worked or not.

So what Im encouraging you to do is, keep trying everything, keep seeing different Dr.s, do research and in the end you may want to try surgery.

Hang in there everyone.

hugs to all

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Re: Want to give up

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