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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Questions about amitriptyline and physio

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Questions about amitriptyline and physio

Post  Delilah1 on Mon Jul 15, 2013 3:23 pm

Has anyone tried amitriptyline or nortriptyline for a while (6 months or so) and your pain went away and then you slowly stopped taking it and the pain stayed away?   I've been wondering if this is all caused by muscles/nerves then why is it if you have a pinched nerve/muscle issue or alignment issue in your upper torso  you don't get a sore irritated, raw, red throat?  It's the same kind of body cavity-??  I still wonder if secondary V is caused by some kind of infection not identified yet.   People used to believe gastric ulcers were caused by stress and now they know it's caused by Hpylori bacteria.  They now believe IBS is caused by some bacteria.(still researching it)  Just wondering and wanted to share my thoughts.  thanks

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Re: Questions about amitriptyline and physio

Post  jen007 on Tue Jul 16, 2013 4:46 am

Delilah1,

I had been taking amitriptyline for about 6 months a while back. It did help reduce the pain, but it didn't go away completely. I eventually stopped taking it. The side effects were bothering me a bit. They weren't really bad or anything. One was weight gain...accept for me it made me completely loose my appetite and I ended up loosing quite a bit of weight. You're more likely to gain though, I was like the only person who ever had that symptom that my doctor knew of. Also because amitriptyline is an anti-depressant I started to feel less like myself. Just more quiet and wanting to stay home and lay around. After I stopped taking it the pain came back about a week or so later. Its been over a year and I still struggle with the weight loss. I can't seem the gain the weight back sadly. I was small the begin with so now I'm even more tiny.

I hope I was of some help! Let me know if you have any other questions about amitriptyline!

-Jen

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Re: Questions about amitriptyline and physio

Post  Kathy100 on Tue Jul 16, 2013 9:43 am

Hi Delilah1

I've been taking nortriptyline since December - I started on amitriptyline but couldn't take the side effects (I was zombie like, forgetful, made mistakes at work & had tingling in the legs on a 10mg dose). The nortriptyline helped a lot with the burning pain (and the specialist I was seeing said that it gave the nerves a break) - I'm now trying to wean myself off it and am down to 5mg a day. The main side effects for me were feeling tired, drugged, anxious and also, more seriously a drop in blood pressure. Like Jen I lost weight which I'd put down to the stress of it all which I haven't gained back but it could have been the tablets. Physio helped me and doing stretches to correct my pelvis (which is misaligned) is helping too. The V pain is still there but much less. From my experience taking it helped me with a break from the pain before I started physio but watch out for the side effects.
Hope this helps & good luck!

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Re: Questions about amitriptyline and physio

Post  Sarah001 on Tue Jul 16, 2013 4:41 pm

Hi Delilah, I take Ami which was originally prescribed for sleep issues due to my Fibro but the vulvar specialist upped the dose to see if it would help my pain and it didn't I'm afraid, I was woozy to begin with but I don't even notice it now (I still take it for sleep). I gained 5 pounds from the Ami then it stopped (until I started on the Lyrica and I ballooned! Rolling Eyes ) and the only symptom I have now is a very dry mouth at all times which has damaged my teeth from lack of saliva but luckily my dentist has put me on a prescription toothpaste to help my teeth.

As for the nerve question, the redness in the vestibule is more likely the muscles being affected by the nerves and clenching and spasming. If your throat did the same you'd be an emergency situation so it would never get to the raw red throat stage! Some trigger points cause weird sensations too like some of mine make me itchy when I press them and on me the referral patterns are often unexpected and odd. Nerves can cause pain anywhere along their course and upset the soft tissue along the way. physio has helped alot of ladies on this forum so it's well worth giving it a decent try but make sure you do the homework or it will fail. Good luck.
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Re: Questions about amitriptyline and physio

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