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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Questions about amitriptyline and physio

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Questions about amitriptyline and physio

Post  Delilah1 on Mon Jul 15, 2013 3:23 pm

Has anyone tried amitriptyline or nortriptyline for a while (6 months or so) and your pain went away and then you slowly stopped taking it and the pain stayed away?   I've been wondering if this is all caused by muscles/nerves then why is it if you have a pinched nerve/muscle issue or alignment issue in your upper torso  you don't get a sore irritated, raw, red throat?  It's the same kind of body cavity-??  I still wonder if secondary V is caused by some kind of infection not identified yet.   People used to believe gastric ulcers were caused by stress and now they know it's caused by Hpylori bacteria.  They now believe IBS is caused by some bacteria.(still researching it)  Just wondering and wanted to share my thoughts.  thanks

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Re: Questions about amitriptyline and physio

Post  jen007 on Tue Jul 16, 2013 4:46 am

Delilah1,

I had been taking amitriptyline for about 6 months a while back. It did help reduce the pain, but it didn't go away completely. I eventually stopped taking it. The side effects were bothering me a bit. They weren't really bad or anything. One was weight gain...accept for me it made me completely loose my appetite and I ended up loosing quite a bit of weight. You're more likely to gain though, I was like the only person who ever had that symptom that my doctor knew of. Also because amitriptyline is an anti-depressant I started to feel less like myself. Just more quiet and wanting to stay home and lay around. After I stopped taking it the pain came back about a week or so later. Its been over a year and I still struggle with the weight loss. I can't seem the gain the weight back sadly. I was small the begin with so now I'm even more tiny.

I hope I was of some help! Let me know if you have any other questions about amitriptyline!

-Jen

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Re: Questions about amitriptyline and physio

Post  Kathy100 on Tue Jul 16, 2013 9:43 am

Hi Delilah1

I've been taking nortriptyline since December - I started on amitriptyline but couldn't take the side effects (I was zombie like, forgetful, made mistakes at work & had tingling in the legs on a 10mg dose). The nortriptyline helped a lot with the burning pain (and the specialist I was seeing said that it gave the nerves a break) - I'm now trying to wean myself off it and am down to 5mg a day. The main side effects for me were feeling tired, drugged, anxious and also, more seriously a drop in blood pressure. Like Jen I lost weight which I'd put down to the stress of it all which I haven't gained back but it could have been the tablets. Physio helped me and doing stretches to correct my pelvis (which is misaligned) is helping too. The V pain is still there but much less. From my experience taking it helped me with a break from the pain before I started physio but watch out for the side effects.
Hope this helps & good luck!

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Re: Questions about amitriptyline and physio

Post  Sarah001 on Tue Jul 16, 2013 4:41 pm

Hi Delilah, I take Ami which was originally prescribed for sleep issues due to my Fibro but the vulvar specialist upped the dose to see if it would help my pain and it didn't I'm afraid, I was woozy to begin with but I don't even notice it now (I still take it for sleep). I gained 5 pounds from the Ami then it stopped (until I started on the Lyrica and I ballooned! Rolling Eyes ) and the only symptom I have now is a very dry mouth at all times which has damaged my teeth from lack of saliva but luckily my dentist has put me on a prescription toothpaste to help my teeth.

As for the nerve question, the redness in the vestibule is more likely the muscles being affected by the nerves and clenching and spasming. If your throat did the same you'd be an emergency situation so it would never get to the raw red throat stage! Some trigger points cause weird sensations too like some of mine make me itchy when I press them and on me the referral patterns are often unexpected and odd. Nerves can cause pain anywhere along their course and upset the soft tissue along the way. physio has helped alot of ladies on this forum so it's well worth giving it a decent try but make sure you do the homework or it will fail. Good luck.
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