Vulvodynia Support
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» Hope to all my suffering ladies
Questions about amitriptyline and physio EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Questions about amitriptyline and physio EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Questions about amitriptyline and physio EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Questions about amitriptyline and physio EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Questions about amitriptyline and physio EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Questions about amitriptyline and physio EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Questions about amitriptyline and physio EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Questions about amitriptyline and physio EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Questions about amitriptyline and physio EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Questions about amitriptyline and physio

4 posters

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Questions about amitriptyline and physio Empty Questions about amitriptyline and physio

Post  Delilah1 Mon Jul 15, 2013 3:23 pm

Has anyone tried amitriptyline or nortriptyline for a while (6 months or so) and your pain went away and then you slowly stopped taking it and the pain stayed away?   I've been wondering if this is all caused by muscles/nerves then why is it if you have a pinched nerve/muscle issue or alignment issue in your upper torso  you don't get a sore irritated, raw, red throat?  It's the same kind of body cavity-??  I still wonder if secondary V is caused by some kind of infection not identified yet.   People used to believe gastric ulcers were caused by stress and now they know it's caused by Hpylori bacteria.  They now believe IBS is caused by some bacteria.(still researching it)  Just wondering and wanted to share my thoughts.  thanks

Delilah1

Posts : 55
Join date : 2013-04-24

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Questions about amitriptyline and physio Empty Re: Questions about amitriptyline and physio

Post  jen007 Tue Jul 16, 2013 4:46 am

Delilah1,

I had been taking amitriptyline for about 6 months a while back. It did help reduce the pain, but it didn't go away completely. I eventually stopped taking it. The side effects were bothering me a bit. They weren't really bad or anything. One was weight gain...accept for me it made me completely loose my appetite and I ended up loosing quite a bit of weight. You're more likely to gain though, I was like the only person who ever had that symptom that my doctor knew of. Also because amitriptyline is an anti-depressant I started to feel less like myself. Just more quiet and wanting to stay home and lay around. After I stopped taking it the pain came back about a week or so later. Its been over a year and I still struggle with the weight loss. I can't seem the gain the weight back sadly. I was small the begin with so now I'm even more tiny.

I hope I was of some help! Let me know if you have any other questions about amitriptyline!

-Jen

jen007

Posts : 152
Join date : 2012-11-05
Age : 31
Location : U.S.A

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Questions about amitriptyline and physio Empty Re: Questions about amitriptyline and physio

Post  Kathy100 Tue Jul 16, 2013 9:43 am

Hi Delilah1

I've been taking nortriptyline since December - I started on amitriptyline but couldn't take the side effects (I was zombie like, forgetful, made mistakes at work & had tingling in the legs on a 10mg dose). The nortriptyline helped a lot with the burning pain (and the specialist I was seeing said that it gave the nerves a break) - I'm now trying to wean myself off it and am down to 5mg a day. The main side effects for me were feeling tired, drugged, anxious and also, more seriously a drop in blood pressure. Like Jen I lost weight which I'd put down to the stress of it all which I haven't gained back but it could have been the tablets. Physio helped me and doing stretches to correct my pelvis (which is misaligned) is helping too. The V pain is still there but much less. From my experience taking it helped me with a break from the pain before I started physio but watch out for the side effects.
Hope this helps & good luck!

Kathy100

Posts : 95
Join date : 2012-12-17

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Post  Sarah001 Tue Jul 16, 2013 4:41 pm

Hi Delilah, I take Ami which was originally prescribed for sleep issues due to my Fibro but the vulvar specialist upped the dose to see if it would help my pain and it didn't I'm afraid, I was woozy to begin with but I don't even notice it now (I still take it for sleep). I gained 5 pounds from the Ami then it stopped (until I started on the Lyrica and I ballooned! Rolling Eyes ) and the only symptom I have now is a very dry mouth at all times which has damaged my teeth from lack of saliva but luckily my dentist has put me on a prescription toothpaste to help my teeth.

As for the nerve question, the redness in the vestibule is more likely the muscles being affected by the nerves and clenching and spasming. If your throat did the same you'd be an emergency situation so it would never get to the raw red throat stage! Some trigger points cause weird sensations too like some of mine make me itchy when I press them and on me the referral patterns are often unexpected and odd. Nerves can cause pain anywhere along their course and upset the soft tissue along the way. physio has helped alot of ladies on this forum so it's well worth giving it a decent try but make sure you do the homework or it will fail. Good luck.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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