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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


New member looking for a support system

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New member looking for a support system

Post  iheartcereal on Tue Jul 16, 2013 6:07 am

Hello all-

I am 32 and have been suffering from vulvadynia for years and am in dire need of a support system.  Basically, I've never had pain-free sex and experience a lot of pain/stabbing/burning with penetration.  I have some pelvic floor issues, but the doctors also think there's some neurological issues as well.  So much burning.  I did about a year of physical therapy a year ago and have been at it again for a few months.  I've tried dilators, creams, pills, etc and have seen many doctors about this.  Unfortunately, I do not feel any closer to a solution than I did when all of this started.  It's so frustrating when you do what the doctors tell you and still nothing improves.  I'm losing hope and feel very isolated and alone.  My husband tries to be supportive, but he does not understand what this condition has done to me mentally- let alone physically.  Because this issue is so private and not easily understood by those who do not suffer from it, my husband, therapist, and health care professionals are the only ones that know what I'm going through.  It's hard to keep something like this secret, especially when I feel like it's ruling my life but I'm too embarrassed and ashamed to tell anyone the truth.  My husband wants kids and as things stand, it's just not an option.  At this point in time, I can barely get through a pelvic exam.  I'm also getting to the age where all of my friends are having babies and it makes for an awkward conversation when people ask me if my husband and I plan to start a family.  What am I supposed to tell them?  Not only am I worried that I'll never be cured, I'm afraid this condition is going to ruin my marriage.  I really need to connect with people like me so that I feel understood by SOMEONE!

Thanks for letting me vent.  I hope to find some solace on this message board.

iheartcereal

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Re: New member looking for a support system

Post  tandaschroeder on Tue Jul 16, 2013 9:07 pm

You can email me at: amandanielsen8@gmail.com. I agree with everything you said & have been through it all. I have experienced that heartache and mental anguish. If there's one thing I want every woman to know, it's that there is a cure. Email me any time.

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Re: New member looking for a support system

Post  Tashie999 on Thu Jul 25, 2013 8:47 pm

Hi,

Just to give you some hope, I thought I would never be able to have children. But I had no issues, just had to time it right & bear the pain to conceive & I have 2 gorgeous children now. I would also argue that if sex was not possible but you wanted to get pregnant that there are other diy options you could try. Its a challenge yes but not impossible.

I still have a lot of pain but on a positive my gyneo has advised that having the children naturally did kill off some of those hyper sensitive nerves so things are a little better post pregnancy.

keep positive hun
T X

Tashie999

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Re: New member looking for a support system

Post  iheartcereal on Sun Aug 04, 2013 5:21 am

Tashie999 - Thanks for giving me some hope! I have been doing research of my own and have seen there are several ways of getting pregnant without penetration. Who knew?

I have heard that a vaginal birth can open things up a bit; however, my physical therapist has also told me that it can go the other way. See has seen, time and time again, many of her patients worse off than the were before because of all the tearing, stitches, and scar tissue. It's overwhelming because you never know how your body is going to respond. At this point in my life, I just don't want any more trauma to the area than I have already endured.

iheartcereal

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Re: New member looking for a support system

Post  Sebby (Admin) on Sun Aug 04, 2013 8:04 am

Hey and welcome to the forum, I too am 32 and since I got married recently do find people ask all the time about us having a baby! I'm so so broody and so so scared lol.
With regards to the tearing in childbirth issue take a look at my post about pregnancy and birth in forum 'support and advice' Sarah has posted a link to a training device to help stretch muscles before birth and reduce likely hood of tearing!
In general, keep intimacy alive with your husband, it doesn't have to be penetration. I know it's hard, sometimes just the thought of messing around down there can cause anxiety! I'm being referred to a different pain clinic also. So always keep fighting, looking for answers and post if you need support x

Oh and Tashie999 - I would be really interested to find out how giving birth was for you? In terms if v.
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