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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


New member looking for a support system

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New member looking for a support system

Post  iheartcereal on Tue Jul 16, 2013 6:07 am

Hello all-

I am 32 and have been suffering from vulvadynia for years and am in dire need of a support system.  Basically, I've never had pain-free sex and experience a lot of pain/stabbing/burning with penetration.  I have some pelvic floor issues, but the doctors also think there's some neurological issues as well.  So much burning.  I did about a year of physical therapy a year ago and have been at it again for a few months.  I've tried dilators, creams, pills, etc and have seen many doctors about this.  Unfortunately, I do not feel any closer to a solution than I did when all of this started.  It's so frustrating when you do what the doctors tell you and still nothing improves.  I'm losing hope and feel very isolated and alone.  My husband tries to be supportive, but he does not understand what this condition has done to me mentally- let alone physically.  Because this issue is so private and not easily understood by those who do not suffer from it, my husband, therapist, and health care professionals are the only ones that know what I'm going through.  It's hard to keep something like this secret, especially when I feel like it's ruling my life but I'm too embarrassed and ashamed to tell anyone the truth.  My husband wants kids and as things stand, it's just not an option.  At this point in time, I can barely get through a pelvic exam.  I'm also getting to the age where all of my friends are having babies and it makes for an awkward conversation when people ask me if my husband and I plan to start a family.  What am I supposed to tell them?  Not only am I worried that I'll never be cured, I'm afraid this condition is going to ruin my marriage.  I really need to connect with people like me so that I feel understood by SOMEONE!

Thanks for letting me vent.  I hope to find some solace on this message board.

iheartcereal

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Re: New member looking for a support system

Post  tandaschroeder on Tue Jul 16, 2013 9:07 pm

You can email me at: amandanielsen8@gmail.com. I agree with everything you said & have been through it all. I have experienced that heartache and mental anguish. If there's one thing I want every woman to know, it's that there is a cure. Email me any time.

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Re: New member looking for a support system

Post  Tashie999 on Thu Jul 25, 2013 8:47 pm

Hi,

Just to give you some hope, I thought I would never be able to have children. But I had no issues, just had to time it right & bear the pain to conceive & I have 2 gorgeous children now. I would also argue that if sex was not possible but you wanted to get pregnant that there are other diy options you could try. Its a challenge yes but not impossible.

I still have a lot of pain but on a positive my gyneo has advised that having the children naturally did kill off some of those hyper sensitive nerves so things are a little better post pregnancy.

keep positive hun
T X

Tashie999

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Re: New member looking for a support system

Post  iheartcereal on Sun Aug 04, 2013 5:21 am

Tashie999 - Thanks for giving me some hope! I have been doing research of my own and have seen there are several ways of getting pregnant without penetration. Who knew?

I have heard that a vaginal birth can open things up a bit; however, my physical therapist has also told me that it can go the other way. See has seen, time and time again, many of her patients worse off than the were before because of all the tearing, stitches, and scar tissue. It's overwhelming because you never know how your body is going to respond. At this point in my life, I just don't want any more trauma to the area than I have already endured.

iheartcereal

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Re: New member looking for a support system

Post  Sebby (Admin) on Sun Aug 04, 2013 8:04 am

Hey and welcome to the forum, I too am 32 and since I got married recently do find people ask all the time about us having a baby! I'm so so broody and so so scared lol.
With regards to the tearing in childbirth issue take a look at my post about pregnancy and birth in forum 'support and advice' Sarah has posted a link to a training device to help stretch muscles before birth and reduce likely hood of tearing!
In general, keep intimacy alive with your husband, it doesn't have to be penetration. I know it's hard, sometimes just the thought of messing around down there can cause anxiety! I'm being referred to a different pain clinic also. So always keep fighting, looking for answers and post if you need support x

Oh and Tashie999 - I would be really interested to find out how giving birth was for you? In terms if v.
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