Log in

I forgot my password

Latest topics
Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


New member looking for a support system

View previous topic View next topic Go down

New member looking for a support system

Post  iheartcereal on Tue Jul 16, 2013 6:07 am

Hello all-

I am 32 and have been suffering from vulvadynia for years and am in dire need of a support system.  Basically, I've never had pain-free sex and experience a lot of pain/stabbing/burning with penetration.  I have some pelvic floor issues, but the doctors also think there's some neurological issues as well.  So much burning.  I did about a year of physical therapy a year ago and have been at it again for a few months.  I've tried dilators, creams, pills, etc and have seen many doctors about this.  Unfortunately, I do not feel any closer to a solution than I did when all of this started.  It's so frustrating when you do what the doctors tell you and still nothing improves.  I'm losing hope and feel very isolated and alone.  My husband tries to be supportive, but he does not understand what this condition has done to me mentally- let alone physically.  Because this issue is so private and not easily understood by those who do not suffer from it, my husband, therapist, and health care professionals are the only ones that know what I'm going through.  It's hard to keep something like this secret, especially when I feel like it's ruling my life but I'm too embarrassed and ashamed to tell anyone the truth.  My husband wants kids and as things stand, it's just not an option.  At this point in time, I can barely get through a pelvic exam.  I'm also getting to the age where all of my friends are having babies and it makes for an awkward conversation when people ask me if my husband and I plan to start a family.  What am I supposed to tell them?  Not only am I worried that I'll never be cured, I'm afraid this condition is going to ruin my marriage.  I really need to connect with people like me so that I feel understood by SOMEONE!

Thanks for letting me vent.  I hope to find some solace on this message board.

iheartcereal

Posts : 4
Join date : 2013-07-16

View user profile

Back to top Go down

Re: New member looking for a support system

Post  tandaschroeder on Tue Jul 16, 2013 9:07 pm

You can email me at: amandanielsen8@gmail.com. I agree with everything you said & have been through it all. I have experienced that heartache and mental anguish. If there's one thing I want every woman to know, it's that there is a cure. Email me any time.

tandaschroeder

Posts : 26
Join date : 2012-10-30
Age : 30

View user profile

Back to top Go down

Re: New member looking for a support system

Post  Tashie999 on Thu Jul 25, 2013 8:47 pm

Hi,

Just to give you some hope, I thought I would never be able to have children. But I had no issues, just had to time it right & bear the pain to conceive & I have 2 gorgeous children now. I would also argue that if sex was not possible but you wanted to get pregnant that there are other diy options you could try. Its a challenge yes but not impossible.

I still have a lot of pain but on a positive my gyneo has advised that having the children naturally did kill off some of those hyper sensitive nerves so things are a little better post pregnancy.

keep positive hun
T X

Tashie999

Posts : 3
Join date : 2013-07-25

View user profile

Back to top Go down

Re: New member looking for a support system

Post  iheartcereal on Sun Aug 04, 2013 5:21 am

Tashie999 - Thanks for giving me some hope! I have been doing research of my own and have seen there are several ways of getting pregnant without penetration. Who knew?

I have heard that a vaginal birth can open things up a bit; however, my physical therapist has also told me that it can go the other way. See has seen, time and time again, many of her patients worse off than the were before because of all the tearing, stitches, and scar tissue. It's overwhelming because you never know how your body is going to respond. At this point in my life, I just don't want any more trauma to the area than I have already endured.

iheartcereal

Posts : 4
Join date : 2013-07-16

View user profile

Back to top Go down

Re: New member looking for a support system

Post  Sebby (Admin) on Sun Aug 04, 2013 8:04 am

Hey and welcome to the forum, I too am 32 and since I got married recently do find people ask all the time about us having a baby! I'm so so broody and so so scared lol.
With regards to the tearing in childbirth issue take a look at my post about pregnancy and birth in forum 'support and advice' Sarah has posted a link to a training device to help stretch muscles before birth and reduce likely hood of tearing!
In general, keep intimacy alive with your husband, it doesn't have to be penetration. I know it's hard, sometimes just the thought of messing around down there can cause anxiety! I'm being referred to a different pain clinic also. So always keep fighting, looking for answers and post if you need support x

Oh and Tashie999 - I would be really interested to find out how giving birth was for you? In terms if v.
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: New member looking for a support system

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum