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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

New member looking for a support system

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New member looking for a support system

Post  iheartcereal on Tue Jul 16, 2013 6:07 am

Hello all-

I am 32 and have been suffering from vulvadynia for years and am in dire need of a support system.  Basically, I've never had pain-free sex and experience a lot of pain/stabbing/burning with penetration.  I have some pelvic floor issues, but the doctors also think there's some neurological issues as well.  So much burning.  I did about a year of physical therapy a year ago and have been at it again for a few months.  I've tried dilators, creams, pills, etc and have seen many doctors about this.  Unfortunately, I do not feel any closer to a solution than I did when all of this started.  It's so frustrating when you do what the doctors tell you and still nothing improves.  I'm losing hope and feel very isolated and alone.  My husband tries to be supportive, but he does not understand what this condition has done to me mentally- let alone physically.  Because this issue is so private and not easily understood by those who do not suffer from it, my husband, therapist, and health care professionals are the only ones that know what I'm going through.  It's hard to keep something like this secret, especially when I feel like it's ruling my life but I'm too embarrassed and ashamed to tell anyone the truth.  My husband wants kids and as things stand, it's just not an option.  At this point in time, I can barely get through a pelvic exam.  I'm also getting to the age where all of my friends are having babies and it makes for an awkward conversation when people ask me if my husband and I plan to start a family.  What am I supposed to tell them?  Not only am I worried that I'll never be cured, I'm afraid this condition is going to ruin my marriage.  I really need to connect with people like me so that I feel understood by SOMEONE!

Thanks for letting me vent.  I hope to find some solace on this message board.


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Re: New member looking for a support system

Post  tandaschroeder on Tue Jul 16, 2013 9:07 pm

You can email me at: amandanielsen8@gmail.com. I agree with everything you said & have been through it all. I have experienced that heartache and mental anguish. If there's one thing I want every woman to know, it's that there is a cure. Email me any time.


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Re: New member looking for a support system

Post  Tashie999 on Thu Jul 25, 2013 8:47 pm


Just to give you some hope, I thought I would never be able to have children. But I had no issues, just had to time it right & bear the pain to conceive & I have 2 gorgeous children now. I would also argue that if sex was not possible but you wanted to get pregnant that there are other diy options you could try. Its a challenge yes but not impossible.

I still have a lot of pain but on a positive my gyneo has advised that having the children naturally did kill off some of those hyper sensitive nerves so things are a little better post pregnancy.

keep positive hun


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Re: New member looking for a support system

Post  iheartcereal on Sun Aug 04, 2013 5:21 am

Tashie999 - Thanks for giving me some hope! I have been doing research of my own and have seen there are several ways of getting pregnant without penetration. Who knew?

I have heard that a vaginal birth can open things up a bit; however, my physical therapist has also told me that it can go the other way. See has seen, time and time again, many of her patients worse off than the were before because of all the tearing, stitches, and scar tissue. It's overwhelming because you never know how your body is going to respond. At this point in my life, I just don't want any more trauma to the area than I have already endured.


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Re: New member looking for a support system

Post  Sebby (Admin) on Sun Aug 04, 2013 8:04 am

Hey and welcome to the forum, I too am 32 and since I got married recently do find people ask all the time about us having a baby! I'm so so broody and so so scared lol.
With regards to the tearing in childbirth issue take a look at my post about pregnancy and birth in forum 'support and advice' Sarah has posted a link to a training device to help stretch muscles before birth and reduce likely hood of tearing!
In general, keep intimacy alive with your husband, it doesn't have to be penetration. I know it's hard, sometimes just the thought of messing around down there can cause anxiety! I'm being referred to a different pain clinic also. So always keep fighting, looking for answers and post if you need support x

Oh and Tashie999 - I would be really interested to find out how giving birth was for you? In terms if v.
Sebby (Admin)

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Re: New member looking for a support system

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