Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Help with coping strategies EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Help with coping strategies EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Help with coping strategies EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Help with coping strategies EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Help with coping strategies EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Help with coping strategies EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Help with coping strategies EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Help with coping strategies EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Help with coping strategies EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Help with coping strategies

3 posters

Go down

Help with coping strategies Empty Help with coping strategies

Post  tweety Thu Sep 30, 2010 12:04 pm

Hi gals,

I got a busy 3 months ahead of me and I need advice on how to deal with it all. Over the next 3 months, I will be catching up with my GFs to celebrate a recent engagement of one of my closest friends, then attending the formal engagement where I'll have to see my ex and his GF, organising a hen's, attending the hen's and seeing my ex's GF there, doing my bridesmaid duties of helping out wherever I can with wedding stuff, then attending the wedding where I have to see my ex and his GF. Pretty much the world around me right now revolves around engagements, planning weddings and organising and helping out with weddings and babies.

Sorry, I know I'm whinging and I admit a lot of the time I'm ok bout it. But I know I'm just gona struggle to be constantly happy around all of this. How do I deal with it? It's not only the wedding stuff but it's also having to see my ex on numerous occasions with his GF(who we haven't formally been introduced to each other as yet). I know I'm need timeout from it and I can only handle spending very limited amounts of time around my friends.

I hate having to see my past and seeing ppl move on with life... it's hard to deal with. I've been a bit emotional lately which has hindered my physio progress too.

Advice anyone? I've booked myself in for an appointment with my counsellor next week. I need it.

Cheers,

Sue

tweety

Posts : 71
Join date : 2010-03-14
Location : Melbourne

Back to top Go down

Help with coping strategies Empty Re: Help with coping strategies

Post  Mouse Thu Sep 30, 2010 4:39 pm

Hi Sue, Wow what a lot you have on! When you look at the whole package it's huge. So baby steps all the way love! Take each event as it comes, give it a big tick and move onto the next one. His GF is probably bricking it about seeing you as well. Everyone and I mean everyone has insecurities, the trick is faking it. Confidence is an illusion.

I do best when I take each day as it comes and try not to buy into "F%$k this is going to be my life" foreverness. Therapy has been a godsend for me, I haven't always been very sensible where this shizzer is concerned. Just exorcising some of my demons and who knew I had so many has been a really positive experience. Therapy is a great place to start.

You will be (with the exception of the bride Smile the best dressed person there! I was given the name matron of dishonour when I was bridesmaid last. I still love that. Oh and I'm the kiss of death, every person I've been bridesmaid for has ended up divorced.... oops!

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

Back to top Go down

Help with coping strategies Empty Re: Help with coping strategies

Post  naomi Sun Oct 03, 2010 9:53 pm

wow! sounds like my situation...all my friends/family are getting married, having kids etc etc etc blah blah blaaaaaaah Razz I get so so jealous of them. Actually jealous is the wrong word, I think I feel resentment towards it and left behind. Is that how u feel Tweety? It just makes me insides feel like they are knotting up....like i reallllly try hard to feel happy for them but i hate the fact that im stuck in a desperate situation and I feel theres no way out.

I try to deal with it all but usually sitting them down and talking. The other day it was a mates birthday and i felt really crap, mentally and physically. I sat my friends down and said whats going on and explained to them. When I open up to them it makes me feel better as they can see where im coming from and they have more compassion (right word??!) I dont know Im probably talking crap on here, just babbling away.

Also if i have something coming up that means I have to make an effort, like a wedding. I really go 'all out' and pamper myself...massage, manicure, facial...it cheers me up and gets me more into the mood for doing stuff. Also go and buy an outfit that makes u feel like a princess!!!

I tend not to drink too much, enough to feel pissed and more confident that i feel i can cope with things, but not too much to the point where im a blubbering wreck (unforch that has happened a couple of times over the summer and it knocked me back for a bit).

What else?...music...i have a playlist off songs on my ipod that ive picked that i listen too when i need perking up and they instantly make me feel happier.

It is sooo hard though trying to cope with life, get on with things. When around you every other bugger is getting on woth it!!! argggghhhhhhhh!!! so hard!
naomi
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

Back to top Go down

Help with coping strategies Empty Re: Help with coping strategies

Post  naomi Sun Oct 03, 2010 10:03 pm

Oh, i forgot to say, I see a lady one a week for an hour session, shes a Psychiatrist/Psychotherapist. It def does help to sort things out head-wise, for me anyway one a week, I kind of treat her like a human diary and tell her everything...from how im feeling, appointments coming up, medication changes. It clears me head in a way. Also, they are there to write profession reports etc which i needed when i had to prove to the government I was unfit for work.

Right, bed for me im shattered.

love to you all, and keep us posted Tweety...dont worry about letting off steam on here...thats wat the sites here for!!

XXXXX
naomi
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

Back to top Go down

Help with coping strategies Empty Re: Help with coping strategies

Post  tweety Tue Oct 05, 2010 12:47 pm

Yeh, I thought I was ok with the engagement but I when I think of it sometimes I find it hard to smile about it. I am happy for her but sometimes it's just too hard. Will be her bridesmaid too. It's fun being BM but you know... you just have days where it's harder to feel happy.

I don't want to say anything to my friends right now because the news is still new and I don't wanna rain on her parade.

Mouse - You're so funny... I can't believe your the maid of dishonour... Maybe that's one way to get out of being a BM... hehehhe

Naomi, you're right. The hardest things is seeing everyone else get on with that part of their life except you. That's what hurts the most and something I've never been able to shake off.

I've been feeling ok the past few days. But my schedule is just awfully packed on wkends over the next three mths. I'm struggling to fit in my gym and physio work. I don't know where my time goes... I barely manage to catch up with friends I haven't seen in months. And for some odd reason I've been feeling extra tired this past week. I'll probably have to talk to my doctor about my meds. I feel like I haven't had me time in ages and I just feel exhausted.

I'm considering whether to ask my manager if I can work home on days where I just feel too drowsy. Just so I can sleep in and wake up feeling refreshed. I've been so unproductive at work the past wk... Just been so sleepy at work and I can't seem to shake it off.

My jaw has been aching too. I think I've been grinding my teeth.

ANywayz, it's nearly midnight here and I need sleep.

Thanx gals, talk soon *hugz*

Sue

tweety

Posts : 71
Join date : 2010-03-14
Location : Melbourne

Back to top Go down

Help with coping strategies Empty Re: Help with coping strategies

Post  Mouse Tue Oct 05, 2010 7:05 pm

Hey tweety (I love your name, in my mind you are yellow though)...

Have you had your vitamin levels checked lately? Feeling tired is classic sign of deficiencies... maybe B12/iron? Don't forget because we are dealing with one big monster the body has other needs - demanding little F%$#@r. Because I have CD I have to be extra vigilant, on a GF diet it's hard to cover all the bases. I had vit D/calcium, B12 and folate deficiencies when I was diagnosed last year. B12 injections are loads of fun as well! Owww those little babies make your eyes water!

Have you tried mindfulness meditation? There's a great post on another site about how helpful it is. I do it a bit when I have ugly pain days. I'll have a scout around and find the book mentioned, there are audios as well. It's not your usual mediation hoopla and you don't need any incense - unless you really like that.

I've "heard" that alcoholics get through their disease one day at a time maybe that's not a bad approach to take. In your future there could be all those things you see your friends getting now. And you don't have to be happy every day, that would be waaayy too much hard work! Also sounds like you need some "me" time. Do some things you enjoy or nothing at all, maybe just sit in the sun???

Take care. I have work now.... UGH!


Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

Back to top Go down

Help with coping strategies Empty Re: Help with coping strategies

Post  tweety Wed Oct 06, 2010 8:23 am

hahahha.... a tweety bird n a mouse being friends.... HAHAHA

I've been seeing a GP my doctor recommended just to monitor my mental health. So I've had a few blood tests done and things. My iron levels are good. A little deficient in calcium and Vitamin D - but it has been gloomy and wintry for a while so that's expected. Other than that everything else is fine. The last time I saw her was a month ago and I was in a really good state of mind. Still trying to juggle my schedule a bit but quite positive and happy.

I'd say I've been feeling =( over the past wk or two... which could be why I feel extra sluggish.

Was actually feeling awake today. Slept in as I have been this week but my brain was awake and functioning which was good.

I've never heard of mindfulness meditation. Do you have the link somewhere?

I totally need me time... I just don't know when I can fit it in. Me going to gym is somewhat my me time but some rest and general bumming around would be nice. In the past week I've been consoling a friend over her recent break up... so that's kinda taken up most of my spare time. But what can you do really? It's just a hectic time I guess?

Anywayz... tired and hoping to sleep early tonite.

Cheers,

Sue

tweety

Posts : 71
Join date : 2010-03-14
Location : Melbourne

Back to top Go down

Help with coping strategies Empty Re: Help with coping strategies

Post  Mouse Wed Oct 06, 2010 9:03 am

Sue, did you get anything for that Vit D def? Do you think it would hurt to get everything checked again? Honestly you should listen to your body.

I've just read an article about CD and Vulvodynia and the woman that was about was deficient in a lot of things including vit D and folate. Her vulvodynia improved on a GF diet, I'm not holding out any hope of that because I was already GF when the nasty turned up.

I went to bed when I got home tonight and then couldn't sleep because I've had four coffees today, I'm fading fast now though. I'm mid cycle and true to form having a shit time.

My therapist said endorphins are your friend - well actually I said that, she said get your lazy ass off the sofa. So if you are getting enough exercise how are you going to get some relaxation? How about a half day off work owww maybe even a whole one and do a pamper day, catch a movie, eat somewhere nice owwww buy shoes! That always cheers me up.

I will post the mindfulness stuff tomorrow, Im almost horizontal now.

A mouse is ok but no cats!

Take care
Vicki

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

Back to top Go down

Help with coping strategies Empty Re: Help with coping strategies

Post  tweety Sun Oct 10, 2010 7:50 am

Hey there!

Yes, I've been taking Calcium supplements with extra Vitamin D in them. have been good by increasing my calcium intake too. My GP said the same... I needed to go back to the gym.

Had my Dr appointment on Friday but it wasn't with my usual GP =( given i'm so drowsy on my current level of meds, she suggested in decrease back to 50mg. I seme to be ok on 50mg.

I feel like I'm always taking time off to make my dr appointments and what not so I'm always making up my time too. Don;t have any sick leave left and am low on my annual leave.

I've got a pamper session coming up in 2 wks.. Yay! Plus I stil have a voucher for some day spa I need to use up before December so that should help =)

Cheers,

Sue

tweety

Posts : 71
Join date : 2010-03-14
Location : Melbourne

Back to top Go down

Help with coping strategies Empty Re: Help with coping strategies

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum