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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New member thankful for this support system in this horrible nightmare

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New member thankful for this support system in this horrible nightmare

Post  cupcake25 on Tue Jul 16, 2013 9:13 pm

Hello everyone. I am so grateful to have a place to tell my story. I apologize for how long this is, but I just need some insight

I'm 25 and was diagnosed with vulvodynia 2 months ago. My issues began last year when I decided to try the Depo Provera birth control shot. Biggest mistake of my life!!!! I believe this was the start of my vagnial issues. I never had a yeast infection/bacterial infection before the depo shot, though if I think about it I have always had instances of painful intercourse, and have never been able to wear tampons comfortably.

So, about 4 months into taking the Depo shot I began a terrible cycle of illnesses. I had the flu for months, and on top of that began having excess vaginal discharge. I visited my gyno at the time (second biggest mistake of my life) who didn't bother to take a culture and simply gave me a gel for BV. To my surprise the gel didn't help. I returned and was given the same antibiotic in pill form, which made the discharge worse. At this point I was not only dealing with discharge but began feeling a faint discomfort, a sort of burning, aching sensation. I switched to my primary doctor at this point, began taking a THIRD round of the SAME
antibiotic, and halfway through received a phone call from the  office informing me that the whole time they were treating the wrong bacteria. I began another round of antibiotics plus Fluconazole (just in case), and still didnt feel better, and began feeling pelvic pain and pressure. After a final round of antibiotics, this time for a UTI  (which I don't believe I ever had), my primary care doctor said she could no longer help and sent me to a specialist. At this point my stomach was a mess from the antibiotics and my vagina was red and raw and burning.  The specialist sent in a culture for everything you could possibly have, and prescribed the vaginal lubricant/prebiotic Luvena, which helped the pain immensely. The results of the culture were not surprising: Candida Albicans. I was so relieved I almost cried. I began a Fluconaole regimen of one pill a day for 7 days. I cannot describe my dismay when this didnt make me feel better. The red raw feeling went away, but I was still having faint aching, itching, and burning. The specialist informed me after two more visits that there was no yeast (by visual diagnosis only) and diagnosed vulvodynia. She prescribed Zoloft, which made me desperately depressed, new birth control which made me extremely sick to my stomach, and lidocaine. Now, about a month later, I've quit all birth control and had my first period after 8 months. A couple days before my period started I felt like I was on fire! I was in so much pain, the burning horrible. I switched to all cotton, organic pads and liners with no relief. Once my period stopped I took a second round of 7 day Fluconazole, but only had relief for one day before the aching, swelling, and burning returned. Unfortunately I have to wait a week to see the specialist again.

I'm so confused and tired. My relationship is strained by the lack of intimacy, and I'm at the end of my rope. Just when I think it's gotten too much to handle, it seems to get worse. I'm way too young to have a sexless relationship. Is there something the doctors are missing? My primary care doctor did inform me that I have a strep b overgrowth, but that they don't worry about that because its supposed to be harmless unless you're pregnant.

Is it yeast? Is it some weird bacteria? What the hell is going on? I feel like I'm trapped in a hideous nightmare.


Last edited by cupcake25 on Tue Jul 16, 2013 9:14 pm; edited 1 time in total (Reason for editing : Typo)
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Re: New member thankful for this support system in this horrible nightmare

Post  Sarah001 on Wed Jul 17, 2013 9:17 pm

We've all been down the UTI/yeast/B.V road so you're not alone, doctors "diagnose" those things because they are commonly found in women but the only way to be sure is ask them to culture a swab and a urine sample so they can see exactly what's happening. Don't use anymore creams or take anymore antibiotics until you know what's there and what's not because they can make matters much worse. If it is yeast they can do a lengthy treament of oral tablets only so that could be ruled out. If you found using a probiotic lube a great help I'd add a supplement orally too if you haven't already and Vitamin D3 is very good for the immune system so that might help too. It might be an idea to go down the hormone testing route if those things don't work, expect barriers if you ask though because lots of ladies get told it can't be done because of how our hormones fluctuate each month but stand your ground if it's something you want done, I'm not sure where you're from but here in the U.K doctors aren't keen to test hormones unless your cycle has become abnormal. I want to clarify that they also don't mean abnormal to you they mean abnormal by the general population standards. If you're from the U.S you have a much better chance of getting the test done without much resistance. The book "When Sex Hurts" is excellent for helping figure out the cause and available on Amazon, I highly recommend it and once you know what is a possibility and what isn't it will give you a list of possible causes and treatments to start working through. It also has more detail about the hormone testing too. Good luck and don't give up, but please don't just slap anything downstairs they give you because it can make things so much worse. Wink 
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Re: New member thankful for this support system in this horrible nightmare

Post  cupcake25 on Fri Jul 19, 2013 6:05 pm

Hi Sarah! Thanks so much for your response. I expect hormones to be my root issue. Hormones messed up by birth control mixed with my immune system being compromised  because of the golden combo of celiac disease + the depo provera shot = bad bad bad. If only someone had told me the depo messes with your immune system!!!! Shame on me for not researching...
Anyhow, considering I never suffered a vaginal infection prior to the birth control fiasco, I'm hoping once it's all out of my system my body will regulate itself. If it does not, however, hormone testing will be a necessity. I have a feeling right now the testing won't be quite accurate because I just quit birth control a couple weeks ago. I also realize once certain infections (like yeast) get a foot in the door it's tough to get rid of them Sad.

I've been taking an oral probiotic for my stomach for a year or so, and it works wonders for tummy troubles. I'm sure it helps down there as well, though my gyno swears it only works if you apply it down there.
I actually began taking a Vitamin D supplement a couple days ago, and maybe it's in my head, but I swear I already feel better...

Best wishes,
Cupcake
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Re: New member thankful for this support system in this horrible nightmare

Post  Elc88 on Sun Jul 21, 2013 7:58 pm

These stories all sound so familiar... Although if you have just had a contraceptive injection, is there a chance you have an STI/STD? It's another intrusion, but it's worth going to your sexual health clinic if your swabs didn't already test for it. Definitely stand your ground and say no more creams and pills until you know what it is. You can use emulsifying ointment on a daily basis as a moisturiser, which can ease your discomfort. It's a fairly neutral waxy ointment, most pharmacists keep it behind the counter, but it's not too expensive.

You are really lucky to only have to wait a week between Gynaecologist appointments - I typically had to wait between 16 weeks to 6 months!

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Re: New member thankful for this support system in this horrible nightmare

Post  cupcake25 on Sun Jul 21, 2013 9:01 pm

Hi Elc88! Thanks for your response.
Yes, I'm finding more and more my experiences are so similar to those of other women, which is heartbreaking. If only I had been more educated when this first happened--
I didn't even know what BV was!

Fortunately I have been tested about 1,000 times for every STD under the sun, and am clean. I have been in a committed relationship for a while as well. I was diagnosed with genital herpes years and years ago, but I never have outbreaks (knock on wood) and don't see any correlation between the issues.

I'll look into the moisturizer you recommended. It's worth a shot! Thankfully I see my doctor soon O_O

Wow, I'm sorry you had to wait so long for appointments. I've become so accustomed to being in the doctors office every week so that sounds like torture! Part of my issue is being impatient, though. I've bounced between doctors-- which did far more harm than good.
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