Log in

I forgot my password

Latest topics
» Anyone been to see Dr.Claire Bailey in Birmingham?
Yesterday at 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Yesterday at 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Acupuncture gave me my life back!

View previous topic View next topic Go down

Acupuncture gave me my life back!

Post  earthbalance on Sun Jul 21, 2013 9:25 pm

Hello everyone!

I was diagnosed with vulvodynia in January, after 5 visits to various doctors, gynos, and even a urologist. The pain set in during the second week of December, and was DEBILITATING. I was unable to do almost anything- work out, WORK, go to class, and I was entirely unable to have sex with my boyfriend. I felt like everything I loved (I was training to compete as a powerlifter so losing the gym was a devastating blow) and my basic human functions (sex with the person I love) were being taken from me and I was, of course, miserable. During my last gyno exam I asked when I would be able to have sex again and my gynecologist said, "I can't even get a finger in you, do you think you can even HAVE sex?" Of course I didn't mean as I was, I was just hoping for a sunny vaginal forecast for the future. But my future (from her perspective) was grim.

I received my diagnosis (the end of the world aka vulodvynia) and information about applying for disability (because my pain was so intense) and was told "This pain won't be the rest of your life, but it will be your life for the next little while--maybe a year or so. Your life isn't over, it will just be different. Is your partner understanding? You may not be able to have sex again soon, or maybe at all. But there are other ways to be intimate. You should get health insurance because you'll need to go frequently to a gynecologist and try different methods of pain management until you find one that works for you. Hopefully it won't be a long process."

I left feeling total helpless, my life snatched away by endless burning and pain. I'm 30 years old, fit, and prior to this vulvodynia, was healthy and happy! I was visiting my Dad when I received my diagnosis and he asked if I would be willing to try acupuncture. I told him I was willing to have my leg cut off to make the pain stop, so he made an appointment.

I will preface this by saying that my results (time-wise) are not typical, but the outcome (being pain free after acupuncture treatments) IS.

My vulvodynia has two kind of pains: an external burning that feels like acid had been thrown on me, and an internal pain that feels like open, swollen wounds--almost like the inside of my vagina was used as a scratching post for cats. Both types of pain were constant. I could barely SLEEP. Sit. Walk. Do ANYTHING.

Every day I used to rate my pain to let my boyfriend/parents (who were very worried about me) know how I felt. I went into my first acupuncture appointment at a 7. I explained this to my acupuncturist, and at some point during the treatment, she asked me to rate my external burning pain. I instantly started to say 7... but then I realized I barely felt ANY pain. I rated it at 2, and she was delighted and got to work on my internal pain.

Unfortunately, the internal pain stayed throughout my treatment, but I was SO HAPPY to be rid (even temporarily) of the burning that I considered the session a huge success.

Over the next couple of days my pain (burning AND internal!) diminished more and more, much to my disbelief and delight! 3 days later I came home. That night as my boyfriend and I laid in bed, I told him all about my treatment, how I felt my pain start to prickle and then... just evaporate off of me, and one thing lead to another and WE HAD SEX... WITHOUT PAIN! It felt great! We hadn't had sex in two months, and I was so happy and relieved and overwhelmed that I cried. I had thought that part of my life was gone forever. I felt like a human again.

A few days later, my pain came back. But long story short: I found a local community acupuncture clinic where I live. For the next 2 months I went twice a week ($35 a week), and each session would keep me pain free until the next. I was able to have sex, work out, use tampons, and be more or less normal.

Now I go only every week and a half, sometimes less. I still get pain when I'm stressed out, but it goes away within a day or two.

If you've made it through this story and relate, pleeeeease give acupuncture a try. Don't expect a miracle at the first session, but, I was told, generally within 7 sessions there should be change. Before you pump yourself full of drugs or do anything drastic, see what acupuncture can do for you! You don't have to believe in it for it work, just like anything else. (Just like you can disbelieve that 5 cups of coffee won't wake you up but if you drink them your belief won't stop you from bouncing off the walls!)

Acupuncture gave me my life back, and I hope if can give you yours! Very Happy

earthbalance

Posts : 1
Join date : 2013-07-21

View user profile

Back to top Go down

Re: Acupuncture gave me my life back!

Post  Finch on Sun Jul 28, 2013 1:52 pm

Thanks for sharing - this is a great success story. I'm so pleased you found something that works Smile
I have often wondered about acupuncture, as many people with vulvodynia have certain trigger points that can be linked to other parts of the body.
What was it like? Did it hurt or feel odd?

Finch

Finch

Posts : 10
Join date : 2013-01-02

View user profile

Back to top Go down

Re: Acupuncture gave me my life back!

Post  Sebby (Admin) on Sun Aug 18, 2013 10:51 am

Thank you for this, I'm definitely thinking of trying acupuncture. Is it better to try and find someone with some understanding and experience with vulva pain?
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Acupuncture gave me my life back!

Post  tinkerbelle2 on Tue Nov 19, 2013 1:31 pm

Hi, earthbalance!

Acupuncture is something I've been considering. My gp has mentioned it a couple of times. Not sure if you still post on here but has the pain still stayed away? ! Glad for you.
avatar
tinkerbelle2

Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Acupuncture gave me my life back!

Post  Alana3 on Tue Nov 19, 2013 1:55 pm

I tried it it works but the pain comes back unless you do it consistently at least for me but it relaxes you like no other give it a go cant hurt

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Acupuncture gave me my life back!

Post  mary jane on Tue Nov 19, 2013 6:03 pm

interesting- I'll list it down
avatar
mary jane

Posts : 310
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Acupuncture gave me my life back!

Post  young.sufferer on Thu Dec 05, 2013 1:51 am

This may we a silly question, but are you just receiving normal acupuncture or are you getting acupuncture on your actual vagina? Wondering what I should prepare myself for!

young.sufferer

Posts : 5
Join date : 2013-12-05

View user profile

Back to top Go down

Acupuncture help for V

Post  neesegjohnson on Thu Dec 08, 2016 3:41 pm

So, I have had 4 acupuncture treatments. Before I went I specifically told her I had vulvodynia so she would focus on the V area. After the 1st visit it felt better for a couple of days then returned. After each time, it has increasingly gotten better. I have had a one day flare up in the last 2 weeks and I believe it's a combination of things but definitely believe acupuncture helps cure vulvodynia. My girl said she has helped other women with V as well. I am now going every other week and as needed. I have had vulvodynia for 5-6 months. My plan is to gradually go down to once a month at some point. She puts only a few needles in, they do not hurt. She puts one on each side of the vagina close to that area but def. not in the vagina. Try it. I have done a lot of research on the problem and acupuncture stimulates your bodies natural healing abilities. Btw..I have pretty much tried everything!

neesegjohnson

Posts : 2
Join date : 2016-12-07

View user profile

Back to top Go down

Re: Acupuncture gave me my life back!

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum