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    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 1

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25


    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 8

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured


    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

    Comments: 0

    Will there be an end?

    Fri Apr 27, 2018 12:06 am by Krista2828

    I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

    I am in my 20's.. it shouldn't be this way.

    Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

    Comments: 6

    you can be healed so easy and quite fast.

    Thu Apr 26, 2018 11:46 pm by pussycat

    Hello everyone,
    i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

    Comments: 4

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35

    Seriously!?!? Endometriosis and yeast

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    Seriously!?!? Endometriosis and yeast

    Post  Alana3 on Tue Jul 23, 2013 8:07 pm

    So I keep getting reoccurring yeast infections which as you can imagine are a PAIN IN THE ASS! No matter what I do, the yeast comes back and with it irritation and pain. So I went into the doctor today and we did my annual at the same time. I told him that I was having some right sided pain whenever I used my dilators and during my period. Drumroll please... He strongly thinks I have endometriosis, so I go in for an ultrasound on Friday. As you can imagine, I am really bummed, I am "cured" of vulvodynia, only to be thrown back to the wolves and have reoccurring yeast and endometriosis. He is putting me on continual birth control pills so I hopefully (yeah right I'm sure something will go wrong, please) won't get my period anymore. I would never wish this on anyone, but I am getting so fricken annoyed by constantly having something wrong with me. It's really awful. Why me and not someone else? Not that I would ever want anyone to actually go thru this.

    So my question is does anyone else on here have endometriosis and/or reoccurring yeast? I am at my wits end, and as you can imagine, the pain of endo sucks. Plus it's not JUST during my period, but anytime I use my dilators, have an exam, etc etc. It feels like someone is applying pressure to what I assume is my ovary. I guess the good news is that I won't get a period assuming my body decides to cut me a break with this birth control. GER I am so frustrated, I thought I paid my dues with vulvodynia. Nope just kidding, I'm not done with medical hell Sad Any advice is welcome! Thanks in advance!


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    Re: Seriously!?!? Endometriosis and yeast

    Post  EviE°Bee on Thu Oct 10, 2013 7:46 am

    What do you use for your yeast infections alana?

    Evie Bee


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    Re: Seriously!?!? Endometriosis and yeast

    Post  Alana3 on Thu Oct 10, 2013 12:17 pm

    Custom compounds and diflucan. But after I got off a probiotic changed my birth control and staryed havong sex I havent had a yeast infection in a month. Dont ask if the sex really has anything to do with it but I'm happy yeast sucks


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    Re: Seriously!?!? Endometriosis and yeast

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