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    Diagnosed recently, looking for advice

    Sun Sep 02, 2018 12:51 am by Cloudberry

    Hi everyone,

    I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

    I’m a woman in my late 20s. Before getting diagnosed …

    Comments: 3

    Hurting, Burning, Itching, and Worn Out

    Thu Aug 09, 2018 10:55 pm by donnambr

    This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

    Comments: 5

    Hi girls! New in this forum

    Fri Jul 13, 2018 2:31 pm by Gaby

    Hi everyone!

    Also joining the V club, Here my story:

    It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

    Comments: 1

    Newbie and feeling helpless

    Wed Jul 11, 2018 1:52 pm by Taylor1

    Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

    Comments: 3

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 6

    From a concerned husband

    Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

    Hello everyone,

    This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

    I’m sure a lot …

    Comments: 3

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25


    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 10

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    Seriously!?!? Endometriosis and yeast

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    Seriously!?!? Endometriosis and yeast

    Post  Alana3 on Tue Jul 23, 2013 8:07 pm

    So I keep getting reoccurring yeast infections which as you can imagine are a PAIN IN THE ASS! No matter what I do, the yeast comes back and with it irritation and pain. So I went into the doctor today and we did my annual at the same time. I told him that I was having some right sided pain whenever I used my dilators and during my period. Drumroll please... He strongly thinks I have endometriosis, so I go in for an ultrasound on Friday. As you can imagine, I am really bummed, I am "cured" of vulvodynia, only to be thrown back to the wolves and have reoccurring yeast and endometriosis. He is putting me on continual birth control pills so I hopefully (yeah right I'm sure something will go wrong, please) won't get my period anymore. I would never wish this on anyone, but I am getting so fricken annoyed by constantly having something wrong with me. It's really awful. Why me and not someone else? Not that I would ever want anyone to actually go thru this.

    So my question is does anyone else on here have endometriosis and/or reoccurring yeast? I am at my wits end, and as you can imagine, the pain of endo sucks. Plus it's not JUST during my period, but anytime I use my dilators, have an exam, etc etc. It feels like someone is applying pressure to what I assume is my ovary. I guess the good news is that I won't get a period assuming my body decides to cut me a break with this birth control. GER I am so frustrated, I thought I paid my dues with vulvodynia. Nope just kidding, I'm not done with medical hell Sad Any advice is welcome! Thanks in advance!


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    Re: Seriously!?!? Endometriosis and yeast

    Post  EviE°Bee on Thu Oct 10, 2013 7:46 am

    What do you use for your yeast infections alana?

    Evie Bee


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    Re: Seriously!?!? Endometriosis and yeast

    Post  Alana3 on Thu Oct 10, 2013 12:17 pm

    Custom compounds and diflucan. But after I got off a probiotic changed my birth control and staryed havong sex I havent had a yeast infection in a month. Dont ask if the sex really has anything to do with it but I'm happy yeast sucks


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    Re: Seriously!?!? Endometriosis and yeast

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