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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

The pill and premarin

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The pill and premarin

Post  Annie82 on Wed Jul 24, 2013 10:47 am

Hi everyone. Well, once I changed my pill from Yaz to Minesse - the burning sandpaper feeling inside stopped. Also no longer have horrible pains during ovulation. The minesse was too light (4 weeks of bleeding on the second pack) so I switch to Mercilon. Only one month in, so I hope it goes well. Went to the chiropractor for help with my hip and the opening of my vagina also relaxed after a few weeks of treatment - very little pain when inserting dialators now. Also had very sensitive skin on the little labias - after a few months of using premarin and 2% lignocaine this has improved. I stopped using lignocaine in the last two weeks. Toilet paper doesn't hurt me so much anymore and I can walk a bit without feeling like my little labia is going to shrivel up and fall off. Hope this information helps someone. I sometimes do have a pulling sensation in my left outer labia - does anyone else have this?

On another note - I was a new relationship when this all started and I handled it so badly that I ended up losing a great guy. I'm trying to be strong and get through it but it seems like everywhere I turn it's sex, sex, sex - any advice on how to cope? I'm 31 years old but he's the first man I've ever loved enough to be with and it all started falling to pieces a few weeks later. I waited for that one man and it was so special and now it's all gone. Feeling lost. Any advice or similar story would help. And for what it's worth - I think we're all very brave for getting out of bed in the morning and facing the day. I know one person told me - it's not like you have cancer. Well, yes, it's not. But I still went through a lot with this thing - a lot of body pains and emotional and I'm sure for many of us, it's very difficult. So I do think we're very brave and strong for putting up a fight.


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Re: The pill and premarin

Post  tinkerbelle2 on Sat Oct 19, 2013 4:39 pm

Hi Annie,

I agree it's annoying when people compare it to other pains or conditions - doesn't mean it isn't debilitating! They obviously don't understand.

How are you now? Xx

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Re: The pill and premarin

Post  cupcake25 on Tue Oct 29, 2013 2:37 am

Annie, I'm so sorry to hear about your suffering. I see some unfortunate similarities in our stories. I understand the birth control cycle. I think my problems all began because of birth control. I've quit it altogether and am feeling better, but still not 100% normal. Also, lidocaine caused me more pain and suffering than anything else. Be careful what you put down there! I had a doctor throw creams and pills at me without testing or culturing, and I just kept getting worse and worse. I've quit using all medications, antibiotics, and anti-fungals, and feel much better (that's not to say don't use those things if you have an infection).

I've recently suffered the break up of my first love as well. We had some problems outside of V, but the issues with intimacy was the catalyst. I'm sorry this is how your first love ended. Experiencing a break up is painful enough without having to deal with V. If you're feeling the same anger and sadness I am, it's sometimes hard to keep going. To be positive, though-- you are still young. Don't give up hope of finding love. Maybe finding someone else right now doesn't even sound appealing, but one day it will. And you'll have the happy, healthy relationship you deserve. Until then, focus on yourself. Look at the silver lining- you are now able to focus on becoming healthy and nurturing your body, without having to worry about someone else. I know this may seem like a weak light at the end of the tunnel, but one day soon it will all feel okay again.

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Re: The pill and premarin

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