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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

The pill and premarin

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The pill and premarin

Post  Annie82 on Wed Jul 24, 2013 10:47 am

Hi everyone. Well, once I changed my pill from Yaz to Minesse - the burning sandpaper feeling inside stopped. Also no longer have horrible pains during ovulation. The minesse was too light (4 weeks of bleeding on the second pack) so I switch to Mercilon. Only one month in, so I hope it goes well. Went to the chiropractor for help with my hip and the opening of my vagina also relaxed after a few weeks of treatment - very little pain when inserting dialators now. Also had very sensitive skin on the little labias - after a few months of using premarin and 2% lignocaine this has improved. I stopped using lignocaine in the last two weeks. Toilet paper doesn't hurt me so much anymore and I can walk a bit without feeling like my little labia is going to shrivel up and fall off. Hope this information helps someone. I sometimes do have a pulling sensation in my left outer labia - does anyone else have this?

On another note - I was a new relationship when this all started and I handled it so badly that I ended up losing a great guy. I'm trying to be strong and get through it but it seems like everywhere I turn it's sex, sex, sex - any advice on how to cope? I'm 31 years old but he's the first man I've ever loved enough to be with and it all started falling to pieces a few weeks later. I waited for that one man and it was so special and now it's all gone. Feeling lost. Any advice or similar story would help. And for what it's worth - I think we're all very brave for getting out of bed in the morning and facing the day. I know one person told me - it's not like you have cancer. Well, yes, it's not. But I still went through a lot with this thing - a lot of body pains and emotional and I'm sure for many of us, it's very difficult. So I do think we're very brave and strong for putting up a fight.


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Re: The pill and premarin

Post  tinkerbelle2 on Sat Oct 19, 2013 4:39 pm

Hi Annie,

I agree it's annoying when people compare it to other pains or conditions - doesn't mean it isn't debilitating! They obviously don't understand.

How are you now? Xx

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Re: The pill and premarin

Post  cupcake25 on Tue Oct 29, 2013 2:37 am

Annie, I'm so sorry to hear about your suffering. I see some unfortunate similarities in our stories. I understand the birth control cycle. I think my problems all began because of birth control. I've quit it altogether and am feeling better, but still not 100% normal. Also, lidocaine caused me more pain and suffering than anything else. Be careful what you put down there! I had a doctor throw creams and pills at me without testing or culturing, and I just kept getting worse and worse. I've quit using all medications, antibiotics, and anti-fungals, and feel much better (that's not to say don't use those things if you have an infection).

I've recently suffered the break up of my first love as well. We had some problems outside of V, but the issues with intimacy was the catalyst. I'm sorry this is how your first love ended. Experiencing a break up is painful enough without having to deal with V. If you're feeling the same anger and sadness I am, it's sometimes hard to keep going. To be positive, though-- you are still young. Don't give up hope of finding love. Maybe finding someone else right now doesn't even sound appealing, but one day it will. And you'll have the happy, healthy relationship you deserve. Until then, focus on yourself. Look at the silver lining- you are now able to focus on becoming healthy and nurturing your body, without having to worry about someone else. I know this may seem like a weak light at the end of the tunnel, but one day soon it will all feel okay again.

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Re: The pill and premarin

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