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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

The pill and premarin

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The pill and premarin

Post  Annie82 on Wed Jul 24, 2013 10:47 am

Hi everyone. Well, once I changed my pill from Yaz to Minesse - the burning sandpaper feeling inside stopped. Also no longer have horrible pains during ovulation. The minesse was too light (4 weeks of bleeding on the second pack) so I switch to Mercilon. Only one month in, so I hope it goes well. Went to the chiropractor for help with my hip and the opening of my vagina also relaxed after a few weeks of treatment - very little pain when inserting dialators now. Also had very sensitive skin on the little labias - after a few months of using premarin and 2% lignocaine this has improved. I stopped using lignocaine in the last two weeks. Toilet paper doesn't hurt me so much anymore and I can walk a bit without feeling like my little labia is going to shrivel up and fall off. Hope this information helps someone. I sometimes do have a pulling sensation in my left outer labia - does anyone else have this?

On another note - I was a new relationship when this all started and I handled it so badly that I ended up losing a great guy. I'm trying to be strong and get through it but it seems like everywhere I turn it's sex, sex, sex - any advice on how to cope? I'm 31 years old but he's the first man I've ever loved enough to be with and it all started falling to pieces a few weeks later. I waited for that one man and it was so special and now it's all gone. Feeling lost. Any advice or similar story would help. And for what it's worth - I think we're all very brave for getting out of bed in the morning and facing the day. I know one person told me - it's not like you have cancer. Well, yes, it's not. But I still went through a lot with this thing - a lot of body pains and emotional and I'm sure for many of us, it's very difficult. So I do think we're very brave and strong for putting up a fight.


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Re: The pill and premarin

Post  tinkerbelle2 on Sat Oct 19, 2013 4:39 pm

Hi Annie,

I agree it's annoying when people compare it to other pains or conditions - doesn't mean it isn't debilitating! They obviously don't understand.

How are you now? Xx

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Re: The pill and premarin

Post  cupcake25 on Tue Oct 29, 2013 2:37 am

Annie, I'm so sorry to hear about your suffering. I see some unfortunate similarities in our stories. I understand the birth control cycle. I think my problems all began because of birth control. I've quit it altogether and am feeling better, but still not 100% normal. Also, lidocaine caused me more pain and suffering than anything else. Be careful what you put down there! I had a doctor throw creams and pills at me without testing or culturing, and I just kept getting worse and worse. I've quit using all medications, antibiotics, and anti-fungals, and feel much better (that's not to say don't use those things if you have an infection).

I've recently suffered the break up of my first love as well. We had some problems outside of V, but the issues with intimacy was the catalyst. I'm sorry this is how your first love ended. Experiencing a break up is painful enough without having to deal with V. If you're feeling the same anger and sadness I am, it's sometimes hard to keep going. To be positive, though-- you are still young. Don't give up hope of finding love. Maybe finding someone else right now doesn't even sound appealing, but one day it will. And you'll have the happy, healthy relationship you deserve. Until then, focus on yourself. Look at the silver lining- you are now able to focus on becoming healthy and nurturing your body, without having to worry about someone else. I know this may seem like a weak light at the end of the tunnel, but one day soon it will all feel okay again.

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Re: The pill and premarin

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