Vulvodynia Support
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» Hope to all my suffering ladies
Really feel that my pain is a skin or gland thing EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Really feel that my pain is a skin or gland thing EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Really feel that my pain is a skin or gland thing EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Really feel that my pain is a skin or gland thing EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Really feel that my pain is a skin or gland thing EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Really feel that my pain is a skin or gland thing EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Really feel that my pain is a skin or gland thing EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Really feel that my pain is a skin or gland thing EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Really feel that my pain is a skin or gland thing EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Really feel that my pain is a skin or gland thing

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Really feel that my pain is a skin or gland thing Empty Really feel that my pain is a skin or gland thing

Post  tinkerbelle2 Fri Oct 11, 2013 7:38 pm

Rather than muscle or nerve (or is all pain to do with nerves as they create the pain sensation? !). So I'm thinking botox may work better than physiotherapy. But will wait to see gyno's thoughts. After looking with a mirror, I think my burning is located at the glands (bartholins/skenes not sure which is which! )


Last edited by tinkerbelle2 on Tue Nov 19, 2013 1:25 pm; edited 1 time in total
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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Post  mary jane Fri Oct 11, 2013 9:15 pm

the bartholin glands can become chronically inflamed, so it is possible.
I really hope you will find relief soon !
mary jane
mary jane

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Post  tinkerbelle2 Sat Oct 12, 2013 8:34 am

Oh yeah you said one of your symptoms was a cyst maryjane? I think my Vvd is definitely in those glands as it is in 2 points just inside the opening.
tinkerbelle2
tinkerbelle2

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Age : 31
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Post  mary jane Sat Oct 12, 2013 8:49 am

I don't have a cyst right now, a cyst caused this pain and the VVS syndrome. A small pea-sized cyst.
It was infected. I was taking Yasmin and Naproxen at the time. This created a cocktail of chemicals in the area and triggered the pain. Plus the older scar tissue present inside form the other cysts.
Yes that's right, these glands are at the opening.
mary jane
mary jane

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Post  tinkerbelle2 Thu Oct 31, 2013 1:27 pm

I wonder if I could have a cyst of some sort. I guess they'll be examining me (for the millionth time ha) so they'll see anything. I think the pill might have had something to do with this whole thing too. Or thrush and cystitis. Or the combo. I miss my old vagina so bad! Lol. I think I may have that persistent arousal thing too although often I am not in the mood for sex as I don't want anything in me!
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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Post  Alana3 Thu Oct 31, 2013 1:41 pm

Don't borrow trouble by other people's symptoms concentrate on yourself and see what your doctors says if you had a cyst it more than likely would be found by now. The problem with vulvodynia is there are so many widespread reasons for having vaginal pain that just because someone is having something similar does not mean that's what's happening to you.

Alana3

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Post  Kathy100 Thu Oct 31, 2013 3:29 pm

Nerve pain can be caused by the pelvic floor muscles being tight and over stretched which in turn irritates the nerves and causes the pain. The most important thing is to get a treatment plan put together that suits you, then hopefully you'll start to get better.

Kathy100

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