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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Botox Injection
4 posters
Page 1 of 1
Botox Injection
Hi Ladys,
Today is he day after. First at all I have to say, if this is going to work, I really do not understand, why Botox is not the therapy of first choice. It took about 10 minutes and in accordance with my wife, it was even not painful except this moment, when the needle is touching the skin for one second. She got this at 4 points and now we have to wait and see, how it works.
So fare no side effects. I will keep you informed.
Today is he day after. First at all I have to say, if this is going to work, I really do not understand, why Botox is not the therapy of first choice. It took about 10 minutes and in accordance with my wife, it was even not painful except this moment, when the needle is touching the skin for one second. She got this at 4 points and now we have to wait and see, how it works.
So fare no side effects. I will keep you informed.
Husband- Posts : 29
Join date : 2010-08-30
Age : 57
Location : Germany
Re: Botox Injection
thanks for the update. I'm very interested to hear whether this works or not. how long were you told it would work for? i hope it works for her!
jules- Posts : 225
Join date : 2010-03-17
Re: Botox Injection
Hi Jules,
So fare there is a positive development in spite of a 50 % reduction of Amitriptylin. This week she will stop taking Amitriptylin. The doctor told her it will last between 4 weeks in any case up to 12 weeks or maybe more. The problem seems to be the fact, that for generalized Vulvodynia it is not so easy to find the exact area for the injection. Maybe he has to repeat some injection elsewhere. But up to now we are happy.
So fare there is a positive development in spite of a 50 % reduction of Amitriptylin. This week she will stop taking Amitriptylin. The doctor told her it will last between 4 weeks in any case up to 12 weeks or maybe more. The problem seems to be the fact, that for generalized Vulvodynia it is not so easy to find the exact area for the injection. Maybe he has to repeat some injection elsewhere. But up to now we are happy.
Husband- Posts : 29
Join date : 2010-08-30
Age : 57
Location : Germany
Re: Botox Injection
I'm glad to hear things are going well so far. Is she going off the Amit. as a result of side effects or it just didn't work? I also have generalized Vulvodynia. I have used Botox on my forehead for frown lines. it only lasts for about a month for me. i imagine it would be the same in the vulva. hope your wife continues to have a decrease in her pain.
jules- Posts : 225
Join date : 2010-03-17
Re: Botox Injection
Glad it is going well so far and I do hope it can help to reduce the pain significantly!
Good luck to you both and keep us updated
Sebby
xxxx
Re: Botox Injection
Hey Husband,
Please report: how did the botox work? would she do it again? if there was/is relief how much and for how long?
Would love to hear the report.
thanks!
Please report: how did the botox work? would she do it again? if there was/is relief how much and for how long?
Would love to hear the report.
thanks!
jules- Posts : 225
Join date : 2010-03-17
Re: Botox Injection
Hi Jules;
After the reduction of Ami the pain came back. Back to 25mg Ami the pain dropped on an acceptable level. So we decided to repeat the treatment with a slight increase of 30 units Botox. But there seems to be not a real significant improvement. She still takes Ami and is it o.K, almost pain free, but we do not know how much the influence of Botox is. Maybe she is anyhow in a painless phase.
I think Botox is a very good option for vestibule vulvodynia not for generalized form.
The second injection has been done last week so I will keep you informed.
After the reduction of Ami the pain came back. Back to 25mg Ami the pain dropped on an acceptable level. So we decided to repeat the treatment with a slight increase of 30 units Botox. But there seems to be not a real significant improvement. She still takes Ami and is it o.K, almost pain free, but we do not know how much the influence of Botox is. Maybe she is anyhow in a painless phase.
I think Botox is a very good option for vestibule vulvodynia not for generalized form.
The second injection has been done last week so I will keep you informed.
Husband- Posts : 29
Join date : 2010-08-30
Age : 57
Location : Germany
Re: Botox Injection
Good luck w/ the results of the second trial. Let us know how it goes. sorry it was not the miracle you were hoping for...damn this disorder. at least there are some meds that can help a little.
jules- Posts : 225
Join date : 2010-03-17
Re: Botox Injection
It does not work, in spite of the second injection there is a flare up. However my wife shared the Botox with a woman, who suffered not at generalized vulvodynia and she reported an improvement.
Explanation for not working in our case could be: Botox is not a painkiller; there is more a relaxing influence at those areas. And for any pain which is linked to pelvic muscles problems this treatment is most recommendable.
Explanation for not working in our case could be: Botox is not a painkiller; there is more a relaxing influence at those areas. And for any pain which is linked to pelvic muscles problems this treatment is most recommendable.
Husband- Posts : 29
Join date : 2010-08-30
Age : 57
Location : Germany
vulvoldynia, hip pain, and botox
Hi! I am new here and just read your post. I live in ny and found a dr who seems to have found a connection between hip pain and vulvoldynia for SOME paitents she has found that paitents with the hip pain, botox helps and others the botox loosens muscles that are overcompensating for some other pelvic floor issue and can make the pain worse! I dont remember all the details but next time i am there i will ask her.
chester- Posts : 4
Join date : 2010-11-23
Location : ny
Re: Botox Injection
husband, has your wife tried Lyrica? There are other meds that may help. Sorry the Botox did not work. Sometimes it takes the right mix of meds and also adding physical therapy. Good luck!
Chester....thanks for the info.
Chester....thanks for the info.
jules- Posts : 225
Join date : 2010-03-17
Re: Botox Injection
Hi Jules, yes she also tried Lyrica. But she thinks Ami works better. However, since a few days, there is really a bad flare up. I recommended using both in combination. We will see….
Husband- Posts : 29
Join date : 2010-08-30
Age : 57
Location : Germany
Re: Botox Injection
I have not tried ami yet. Today, my pain is at a minimum. I think the meds i am using are helpful. hope your wife's flare up goes away soon.
jules- Posts : 225
Join date : 2010-03-17
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer