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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Botox Injection

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Botox Injection

Post  Husband on Fri Oct 01, 2010 3:07 pm

Hi Ladys,
Today is he day after. First at all I have to say, if this is going to work, I really do not understand, why Botox is not the therapy of first choice. It took about 10 minutes and in accordance with my wife, it was even not painful except this moment, when the needle is touching the skin for one second. She got this at 4 points and now we have to wait and see, how it works.
So fare no side effects. I will keep you informed.

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Re: Botox Injection

Post  jules on Sun Oct 03, 2010 4:48 pm

thanks for the update. I'm very interested to hear whether this works or not. how long were you told it would work for? i hope it works for her!

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Re: Botox Injection

Post  Husband on Mon Oct 04, 2010 7:15 am

Hi Jules,
So fare there is a positive development in spite of a 50 % reduction of Amitriptylin. This week she will stop taking Amitriptylin. The doctor told her it will last between 4 weeks in any case up to 12 weeks or maybe more. The problem seems to be the fact, that for generalized Vulvodynia it is not so easy to find the exact area for the injection. Maybe he has to repeat some injection elsewhere. But up to now we are happy.

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Re: Botox Injection

Post  jules on Tue Oct 05, 2010 2:46 am

I'm glad to hear things are going well so far. Is she going off the Amit. as a result of side effects or it just didn't work? I also have generalized Vulvodynia. I have used Botox on my forehead for frown lines. it only lasts for about a month for me. i imagine it would be the same in the vulva. hope your wife continues to have a decrease in her pain.

jules

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Re: Botox Injection

Post  Sebby (Admin) on Tue Oct 05, 2010 6:46 am


Glad it is going well so far and I do hope it can help to reduce the pain significantly!

Good luck to you both and keep us updated

Sebby
xxxx
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Sebby (Admin)
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Re: Botox Injection

Post  jules on Thu Nov 11, 2010 6:17 am

Hey Husband,

Please report: how did the botox work? would she do it again? if there was/is relief how much and for how long?

Would love to hear the report.

thanks!

jules

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Re: Botox Injection

Post  Husband on Sat Nov 13, 2010 9:25 am

Hi Jules;
After the reduction of Ami the pain came back. Back to 25mg Ami the pain dropped on an acceptable level. So we decided to repeat the treatment with a slight increase of 30 units Botox. But there seems to be not a real significant improvement. She still takes Ami and is it o.K, almost pain free, but we do not know how much the influence of Botox is. Maybe she is anyhow in a painless phase.
I think Botox is a very good option for vestibule vulvodynia not for generalized form.
The second injection has been done last week so I will keep you informed.

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Re: Botox Injection

Post  jules on Mon Nov 22, 2010 4:58 am

Good luck w/ the results of the second trial. Let us know how it goes. sorry it was not the miracle you were hoping for...damn this disorder. at least there are some meds that can help a little.

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Re: Botox Injection

Post  Husband on Mon Nov 22, 2010 10:36 am

It does not work, in spite of the second injection there is a flare up. However my wife shared the Botox with a woman, who suffered not at generalized vulvodynia and she reported an improvement.
Explanation for not working in our case could be: Botox is not a painkiller; there is more a relaxing influence at those areas. And for any pain which is linked to pelvic muscles problems this treatment is most recommendable.

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vulvoldynia, hip pain, and botox

Post  chester on Wed Nov 24, 2010 3:09 am

Hi! I am new here and just read your post. I live in ny and found a dr who seems to have found a connection between hip pain and vulvoldynia for SOME paitents she has found that paitents with the hip pain, botox helps and others the botox loosens muscles that are overcompensating for some other pelvic floor issue and can make the pain worse! I dont remember all the details but next time i am there i will ask her.

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Re: Botox Injection

Post  jules on Thu Nov 25, 2010 5:52 pm

husband, has your wife tried Lyrica? There are other meds that may help. Sorry the Botox did not work. Sometimes it takes the right mix of meds and also adding physical therapy. Good luck!

Chester....thanks for the info.

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Re: Botox Injection

Post  Husband on Fri Nov 26, 2010 8:23 am

Hi Jules, yes she also tried Lyrica. But she thinks Ami works better. However, since a few days, there is really a bad flare up. I recommended using both in combination. We will see….

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Re: Botox Injection

Post  jules on Sat Nov 27, 2010 5:50 pm

I have not tried ami yet. Today, my pain is at a minimum. I think the meds i am using are helpful. hope your wife's flare up goes away soon.

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Re: Botox Injection

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