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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Botox Injection

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Botox Injection

Post  Husband on Fri Oct 01, 2010 3:07 pm

Hi Ladys,
Today is he day after. First at all I have to say, if this is going to work, I really do not understand, why Botox is not the therapy of first choice. It took about 10 minutes and in accordance with my wife, it was even not painful except this moment, when the needle is touching the skin for one second. She got this at 4 points and now we have to wait and see, how it works.
So fare no side effects. I will keep you informed.

Husband

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Re: Botox Injection

Post  jules on Sun Oct 03, 2010 4:48 pm

thanks for the update. I'm very interested to hear whether this works or not. how long were you told it would work for? i hope it works for her!

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Re: Botox Injection

Post  Husband on Mon Oct 04, 2010 7:15 am

Hi Jules,
So fare there is a positive development in spite of a 50 % reduction of Amitriptylin. This week she will stop taking Amitriptylin. The doctor told her it will last between 4 weeks in any case up to 12 weeks or maybe more. The problem seems to be the fact, that for generalized Vulvodynia it is not so easy to find the exact area for the injection. Maybe he has to repeat some injection elsewhere. But up to now we are happy.

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Re: Botox Injection

Post  jules on Tue Oct 05, 2010 2:46 am

I'm glad to hear things are going well so far. Is she going off the Amit. as a result of side effects or it just didn't work? I also have generalized Vulvodynia. I have used Botox on my forehead for frown lines. it only lasts for about a month for me. i imagine it would be the same in the vulva. hope your wife continues to have a decrease in her pain.

jules

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Re: Botox Injection

Post  Sebby (Admin) on Tue Oct 05, 2010 6:46 am


Glad it is going well so far and I do hope it can help to reduce the pain significantly!

Good luck to you both and keep us updated

Sebby
xxxx
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Sebby (Admin)
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Re: Botox Injection

Post  jules on Thu Nov 11, 2010 6:17 am

Hey Husband,

Please report: how did the botox work? would she do it again? if there was/is relief how much and for how long?

Would love to hear the report.

thanks!

jules

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Re: Botox Injection

Post  Husband on Sat Nov 13, 2010 9:25 am

Hi Jules;
After the reduction of Ami the pain came back. Back to 25mg Ami the pain dropped on an acceptable level. So we decided to repeat the treatment with a slight increase of 30 units Botox. But there seems to be not a real significant improvement. She still takes Ami and is it o.K, almost pain free, but we do not know how much the influence of Botox is. Maybe she is anyhow in a painless phase.
I think Botox is a very good option for vestibule vulvodynia not for generalized form.
The second injection has been done last week so I will keep you informed.

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Re: Botox Injection

Post  jules on Mon Nov 22, 2010 4:58 am

Good luck w/ the results of the second trial. Let us know how it goes. sorry it was not the miracle you were hoping for...damn this disorder. at least there are some meds that can help a little.

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Re: Botox Injection

Post  Husband on Mon Nov 22, 2010 10:36 am

It does not work, in spite of the second injection there is a flare up. However my wife shared the Botox with a woman, who suffered not at generalized vulvodynia and she reported an improvement.
Explanation for not working in our case could be: Botox is not a painkiller; there is more a relaxing influence at those areas. And for any pain which is linked to pelvic muscles problems this treatment is most recommendable.

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vulvoldynia, hip pain, and botox

Post  chester on Wed Nov 24, 2010 3:09 am

Hi! I am new here and just read your post. I live in ny and found a dr who seems to have found a connection between hip pain and vulvoldynia for SOME paitents she has found that paitents with the hip pain, botox helps and others the botox loosens muscles that are overcompensating for some other pelvic floor issue and can make the pain worse! I dont remember all the details but next time i am there i will ask her.

chester

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Re: Botox Injection

Post  jules on Thu Nov 25, 2010 5:52 pm

husband, has your wife tried Lyrica? There are other meds that may help. Sorry the Botox did not work. Sometimes it takes the right mix of meds and also adding physical therapy. Good luck!

Chester....thanks for the info.

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Re: Botox Injection

Post  Husband on Fri Nov 26, 2010 8:23 am

Hi Jules, yes she also tried Lyrica. But she thinks Ami works better. However, since a few days, there is really a bad flare up. I recommended using both in combination. We will see….

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Re: Botox Injection

Post  jules on Sat Nov 27, 2010 5:50 pm

I have not tried ami yet. Today, my pain is at a minimum. I think the meds i am using are helpful. hope your wife's flare up goes away soon.

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Re: Botox Injection

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