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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New to forum, seeking advice and referrals

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New to forum, seeking advice and referrals

Post  dandelion18 on Thu Aug 01, 2013 4:12 pm

Hi, I am new to this forum and am seeking any sort of advice on whether y'all think this might be vulvodynia. I was also wondering if there any any female OB/GYNS on the East Coast that you could recommend who are good at treating this. And if anyone knows anything about Dr. Harris or Dr. Coady at SoHo OB/GYN?

Several years ago, my OB/GYN suspected a yeast infection. When one round of antibiotics didn't work, she prescribed another. Yeast cultures always seem to test positive in office, but negative once they are sent to the lab. I have recurrent itching, pain, burning, and discharge. Sometimes a cream, medicine, or other treatment will help, but the symptoms always seem to return. In addition, pelvic exams are extremely painful for me.

I have just been to my third OB/GYN. I really liked her, but she said she wouldn't be able to treat me long term. I am getting concerned because it seems like I keep getting "dropped" by doctors. In addition, they only want to do pelvic exams under anesthesia. She also wants to do more biopsies (a past biopsy wasn't very helpful). What can you all suggest? Any doctor recommendations?

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Thu Aug 01, 2013 5:07 pm

Dr trabin in florida is awesome

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Re: New to forum, seeking advice and referrals

Post  dandelion18 on Thu Aug 01, 2013 10:15 pm

Thanks! I guess that I should have mentioned that Florida is a bit far and any recommendations for the Northeast greatly appreciated...

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Thu Aug 01, 2013 10:52 pm

Dr Goldstein in New York I think is where he is

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Re: New to forum, seeking advice and referrals

Post  dandelion18 on Fri Aug 02, 2013 12:01 am

Thanks again! Anyone else had similar problems with exams?

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Fri Aug 02, 2013 11:55 am

Pretty much everyone here had the same problem. Hopefully she gave you anti fungal and not antibiotics for yeast as that wouldn't do much. I would get another opinion. I wouldn't stick to just female but who has enough experience. Women tend to try and compare I even had one tell me it wasn't that bad. Really? You wake up in pain everyday? I found male doctors take more time and most specialize. Go with experience not gender. At any rate, I'm "cured" now so but it took a while to get there If you have pvd surgery is an option and something I recommend. But again thats me so I don't know how you feel about it but I'm mostky better now. Just find a good doc!

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Re: New to forum, seeking advice and referrals

Post  dandelion18 on Fri Aug 02, 2013 8:33 pm

Thank you so much. Really appreciate your responsiveness ; ) I was given diflucan. Should I have been given something different?

I am mainly concerned as the doctor wants to do a repeat biopsy and says that Behcet's disease could also be a possibility. Not sure if that was also a diagnosis anyone else here was given... What is pvd?

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Fri Aug 02, 2013 10:02 pm

Diflucan is an antifungal youre good! Provoked vulvodynia is pvd basically meaning your pain is obly there when its messed with. And usually only in a specific location. Does that sound like you? I have no idea what the other disease is but if you have already had the biopsy done I wouldn't go back thru it... google vulvar specialists in your area I had so many useless things done

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Re: New to forum, seeking advice and referrals

Post  dandelion18 on Fri Aug 02, 2013 10:41 pm

Oh, OK. Yeah, it is odd in the sense that sometimes it settles down and only bugs me when provoked, other times it seems spontaneous.

Behcet's is an autoimmune disease.

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Fri Aug 02, 2013 11:19 pm

So why would they do a biopsy for that?

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Re: New to forum, seeking advice and referrals

Post  Sarah001 on Sat Aug 03, 2013 1:53 pm

I think I'd be a bit reluctant about the biopsy because Behcets can't be diagnosed by specific tests it's a diagnosis of exclusion so the biopsy won't say if you have it it just rules other things out which the first biopsy should already have done. Behcets was mentioned to me when I went to a small GU clinic but when I went a consultant at a larger one she said no Behcets would cause ulcers and the mouth is pretty much always affected too so I'd be very wary about that doctor and research Behcets before you go again so you're armed with some knowledge. Have a read at this link about symptoms:

http://www.nhs.uk/Conditions/Behcets-disease/Pages/Symptoms.aspx
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Re: New to forum, seeking advice and referrals

Post  dandelion18 on Sun Aug 04, 2013 4:22 pm

There was an ulcer that was noticed during exam, so I guess you do have to consider Behcet's as a possibility whenever that happens. I do also occasionally get canker sores in my mouth. But I also have to agree with you on the biopsy - not sure what it would show. Does this still sound like Behcet's? Aren't there other tests that could diagnose it? My thought is that it might be VBD or VVD as a yeast infection seemed to set this whole cycle off and it has never quite gotten back to baseline.

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Mon Aug 05, 2013 1:40 am

I get canker sores all the time too could just be your immune system, allergies or stress levels

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Re: New to forum, seeking advice and referrals

Post  LalaYe on Thu Aug 15, 2013 3:26 am

Hi, I'm new too. I'm also on the east coast, and being in the similar situations as you in the past year. Long story short, I had been treated for yeast multiple times even when I had no yeast at all. I also had biopsy done because a doctor thought I had warts. I had been to many different doctors to confirm if it was really warts, they all said no. I finally had the biopsy ruled out the of warts. But I am still a little worried about the accuracy of the biopsy because my condition never got better. It only got worst. I don't think they are warts, but my skins are not smooth and have pain constantly. It wasn't like that before. It might be I had been treated for yeast and bacteria infection too much I don't know. Anyways, I'm still looking for the right doctor, keep in touch.

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Thu Aug 15, 2013 3:38 am

Where are youfrom?

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Re: New to forum, seeking advice and referrals

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