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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New to forum, seeking advice and referrals

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New to forum, seeking advice and referrals

Post  dandelion18 on Thu Aug 01, 2013 4:12 pm

Hi, I am new to this forum and am seeking any sort of advice on whether y'all think this might be vulvodynia. I was also wondering if there any any female OB/GYNS on the East Coast that you could recommend who are good at treating this. And if anyone knows anything about Dr. Harris or Dr. Coady at SoHo OB/GYN?

Several years ago, my OB/GYN suspected a yeast infection. When one round of antibiotics didn't work, she prescribed another. Yeast cultures always seem to test positive in office, but negative once they are sent to the lab. I have recurrent itching, pain, burning, and discharge. Sometimes a cream, medicine, or other treatment will help, but the symptoms always seem to return. In addition, pelvic exams are extremely painful for me.

I have just been to my third OB/GYN. I really liked her, but she said she wouldn't be able to treat me long term. I am getting concerned because it seems like I keep getting "dropped" by doctors. In addition, they only want to do pelvic exams under anesthesia. She also wants to do more biopsies (a past biopsy wasn't very helpful). What can you all suggest? Any doctor recommendations?

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Thu Aug 01, 2013 5:07 pm

Dr trabin in florida is awesome

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Re: New to forum, seeking advice and referrals

Post  dandelion18 on Thu Aug 01, 2013 10:15 pm

Thanks! I guess that I should have mentioned that Florida is a bit far and any recommendations for the Northeast greatly appreciated...

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Thu Aug 01, 2013 10:52 pm

Dr Goldstein in New York I think is where he is

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Re: New to forum, seeking advice and referrals

Post  dandelion18 on Fri Aug 02, 2013 12:01 am

Thanks again! Anyone else had similar problems with exams?

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Fri Aug 02, 2013 11:55 am

Pretty much everyone here had the same problem. Hopefully she gave you anti fungal and not antibiotics for yeast as that wouldn't do much. I would get another opinion. I wouldn't stick to just female but who has enough experience. Women tend to try and compare I even had one tell me it wasn't that bad. Really? You wake up in pain everyday? I found male doctors take more time and most specialize. Go with experience not gender. At any rate, I'm "cured" now so but it took a while to get there If you have pvd surgery is an option and something I recommend. But again thats me so I don't know how you feel about it but I'm mostky better now. Just find a good doc!

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Re: New to forum, seeking advice and referrals

Post  dandelion18 on Fri Aug 02, 2013 8:33 pm

Thank you so much. Really appreciate your responsiveness ; ) I was given diflucan. Should I have been given something different?

I am mainly concerned as the doctor wants to do a repeat biopsy and says that Behcet's disease could also be a possibility. Not sure if that was also a diagnosis anyone else here was given... What is pvd?

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Fri Aug 02, 2013 10:02 pm

Diflucan is an antifungal youre good! Provoked vulvodynia is pvd basically meaning your pain is obly there when its messed with. And usually only in a specific location. Does that sound like you? I have no idea what the other disease is but if you have already had the biopsy done I wouldn't go back thru it... google vulvar specialists in your area I had so many useless things done

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Re: New to forum, seeking advice and referrals

Post  dandelion18 on Fri Aug 02, 2013 10:41 pm

Oh, OK. Yeah, it is odd in the sense that sometimes it settles down and only bugs me when provoked, other times it seems spontaneous.

Behcet's is an autoimmune disease.

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Fri Aug 02, 2013 11:19 pm

So why would they do a biopsy for that?

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Re: New to forum, seeking advice and referrals

Post  Sarah001 on Sat Aug 03, 2013 1:53 pm

I think I'd be a bit reluctant about the biopsy because Behcets can't be diagnosed by specific tests it's a diagnosis of exclusion so the biopsy won't say if you have it it just rules other things out which the first biopsy should already have done. Behcets was mentioned to me when I went to a small GU clinic but when I went a consultant at a larger one she said no Behcets would cause ulcers and the mouth is pretty much always affected too so I'd be very wary about that doctor and research Behcets before you go again so you're armed with some knowledge. Have a read at this link about symptoms:

http://www.nhs.uk/Conditions/Behcets-disease/Pages/Symptoms.aspx
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Re: New to forum, seeking advice and referrals

Post  dandelion18 on Sun Aug 04, 2013 4:22 pm

There was an ulcer that was noticed during exam, so I guess you do have to consider Behcet's as a possibility whenever that happens. I do also occasionally get canker sores in my mouth. But I also have to agree with you on the biopsy - not sure what it would show. Does this still sound like Behcet's? Aren't there other tests that could diagnose it? My thought is that it might be VBD or VVD as a yeast infection seemed to set this whole cycle off and it has never quite gotten back to baseline.

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Mon Aug 05, 2013 1:40 am

I get canker sores all the time too could just be your immune system, allergies or stress levels

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Re: New to forum, seeking advice and referrals

Post  LalaYe on Thu Aug 15, 2013 3:26 am

Hi, I'm new too. I'm also on the east coast, and being in the similar situations as you in the past year. Long story short, I had been treated for yeast multiple times even when I had no yeast at all. I also had biopsy done because a doctor thought I had warts. I had been to many different doctors to confirm if it was really warts, they all said no. I finally had the biopsy ruled out the of warts. But I am still a little worried about the accuracy of the biopsy because my condition never got better. It only got worst. I don't think they are warts, but my skins are not smooth and have pain constantly. It wasn't like that before. It might be I had been treated for yeast and bacteria infection too much I don't know. Anyways, I'm still looking for the right doctor, keep in touch.

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Re: New to forum, seeking advice and referrals

Post  Alana3 on Thu Aug 15, 2013 3:38 am

Where are youfrom?

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Re: New to forum, seeking advice and referrals

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