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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

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» Recently Diagnosed.... Help!
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» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

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New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

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Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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All things pregnancy and birth!!! so confused!!

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All things pregnancy and birth!!! so confused!!

Post  Sebby (Admin) on Thu Aug 01, 2013 9:14 pm

Hi Ladies,

Me and my husband are planning on trying for a baby next year.

I cannot always have intercourse so this is one stumbling block that I am trying to work on! unfortunately anxiety around sex can often completely shut down my sex drive Sad

So all being well and I do manage to get pregnant I then have to deal with the whole birth issue...very very scary!Shocked 

I am concerned about vulval and vaginal pain during birth and whether I will tighten up like I do initially during intercourse! Once I relax a bit I do stretch and its more comfortable but as for birth...I have no idea how the whole thing works. I worry it won't actually be possible for me to give birth and it will be dangerous for the baby.

I have been considering whether I would opt for caesarean? How easy is this to get? I have read recently that in the uk if after 'counselling' you still insist on a caesarean they should under nhs guidelines let you have one. I guess I figure I wont be taken seriously by the doctors.

I have read a few posts about pregnancy on this forum last year and it seemed that vaginal delivery was being promoted and recommended which was a surprise but a nice surprise.

So if anyone knows anything, let me know!

Thanks all

x

Sebby
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Re: All things pregnancy and birth!!! so confused!!

Post  Sarah001 on Thu Aug 01, 2013 9:23 pm

Hi Sebby,
I don't know much about the pregnancy and birth thing but hold on a minute, Husband??! When did that happen you minx? Laughing  It's really nice to see you back on here and life has obviously changed alot for you! x
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Re: All things pregnancy and birth!!! so confused!!

Post  Alana3 on Thu Aug 01, 2013 9:50 pm

I asked my doc hypothetically because I def do not ever want to get pregnant. But he said don't let anyone talk you into a c-section as they can be dangerous. He also mentioned that vulvodynia can get better by pregnancy and birth. Also you can have his sperm put in you without sex too but... I doubt that's the route you want to take lol

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Re: All things pregnancy and birth!!! so confused!!

Post  Sebby (Admin) on Fri Aug 02, 2013 2:24 pm

Hi Hun Smile I haven't really announced my marriage have I?! It's been 8 months and I'm real lucky he is so patient and kind. Had a big relapse of depression prior to getting engaged but I'm hopeful I'm handling things better now!
I have read that vaginal birth can help stretch you lol I think I do fear the baby won't be able to come out! x
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Re: All things pregnancy and birth!!! so confused!!

Post  Alana3 on Fri Aug 02, 2013 3:19 pm

Pretty sure you can't stop it haha Wink talk to your doc!

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Re: All things pregnancy and birth!!! so confused!!

Post  Sarah001 on Fri Aug 02, 2013 7:25 pm

Well congratulations sweetheart! cheers  And turns out I do know something you might find helpful, try this link:

http://www.epi-no.co.uk/index.php/product-category/epi-no-delphine-plus/

That might give you the confidence to know your muscles will stretch and I know some women even "give birth" to the balloon part to practice! I intend to buy one when I'm ready for some serious pelvic floor stretching which isn't yet but it's good to know it's out there when I'm ready. Once again congratulations on your marriage! xx
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Re: All things pregnancy and birth!!! so confused!!

Post  Alana3 on Fri Aug 02, 2013 8:21 pm

Why would you want to strengthen your muscles though? That in my case would defeat physical therapy and everything else I have gone thru. Maybe for other women who don't have these issues we do but if your muscles are already tight I'm pretty sure this would make it worse?

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Re: All things pregnancy and birth!!! so confused!!

Post  Sarah001 on Fri Aug 02, 2013 9:46 pm

It's used pre birth to stretch the muscles, by inflating the balloon it stretches the tissue and if necessary it can be used after to strengthen the muscles as a type of biofeedback device. I'm certain inflating a balloon is going to stretch the muscles Alana, if you read the description it says it can stretch them to 10 cm so enough to give birth to the baby's head. It's entirely up to the individual if they want to strengthen afterwards and can be used solely for the stretching so suitable for us V sufferers.
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Re: All things pregnancy and birth!!! so confused!!

Post  Alana3 on Fri Aug 02, 2013 9:55 pm

Honestly was just asking...

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Re: All things pregnancy and birth!!! so confused!!

Post  Sebby (Admin) on Sun Aug 04, 2013 7:35 am

Thank you Sarah, this looks very interesting! Would most deff try it! One of my main fears is tearing : o I have dialators also that I may try again just so I can feel more confident wiv sex so I can't actually get pregnant lol! x
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Re: All things pregnancy and birth!!! so confused!!

Post  Sebby (Admin) on Sun Aug 18, 2013 10:54 am

Managed to have sex last nite Smile it does hurt at first but is much better once I relax and get into it lol! Did use contraception as still scared to get pregnant yet lol but pleased I'm able to practice!
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Re: All things pregnancy and birth!!! so confused!!

Post  tinkerbelle2 on Wed Dec 11, 2013 7:18 pm

Hi Sebby, did you get pregnant!?!?
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Re: All things pregnancy and birth!!! so confused!!

Post  Littlemiss24 on Fri Dec 27, 2013 10:06 pm

Hi everyone!! I'm knew on this site and am so glad I found it as I felt I was living with this all alone.

I have had vulvodynia ever since I became sexually active and like most of you self diagnosed myself as doctors don't understand what it is!!

I am currently 8 weeks pregnant and have been taking amitriptiline (anti depressants) for the past three years which really worked for me. My symptoms disappeared and very rarely showed an appearance. I am still taking the tablets whilst pregnant as doc has advised in on a very low dosage. However I hve had symptoms twice since being pregnant which makes me wonder if mine was triggered by sex but active due to hormones??

I am too worried about birth, doctors have told me i will defo tear which is going to probably make me worse. I have since read natural births can help with vulvodynia and having a meditating birth can help relax your vaginal muscles. I'm going to try and give it a go along with a water birth.

Also if you don't already. I wash with aqueous cream and use it as a cream if my symptoms are present and it really helps.

Hopefully all our prayers will be answerd and we can have a pain free life!!!

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Re: All things pregnancy and birth!!! so confused!!

Post  tinkerbelle2 on Sat Dec 28, 2013 2:12 pm

Hey little miss! Congratulations on the pregnancy. Very exciting! A meditating birth sounds like a lovely idea. I too like the sound of a water birth! I can't wait to have kids, not for a few years though! I hope you have as stress and pain free a pregnancy as possible and that giving birth sorts out the vulvodynia!
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Re: All things pregnancy and birth!!! so confused!!

Post  Littlemiss24 on Sat Dec 28, 2013 3:21 pm

Thanks hun!! I will let you all know if a natural birth is the cure!!


I have an appointment with the midwife in January so am going to ask a million questions and hopefully get referred to a specialist. If I find anything out that can help us all I'll update you

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Re: All things pregnancy and birth!!! so confused!!

Post  zarli on Sun Dec 29, 2013 1:48 am

Hi little miss I don't think Doctors should tell you that you will tare, they don't know that. I used olive oil during my pregnancies as a lube and I generally used it when I thought to rub it in. My Nana actually told me to do it and I have had four babies and no tares !! My vulva specialist told me to use it as a lube and it works really well.

I have heard so many success stories regarding birth helping with vulvodynia.

So think positive and enjoy your pregnancy, its such an amazing time of life.

Best Wishes
Zarli

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Re: All things pregnancy and birth!!! so confused!!

Post  Littlemiss24 on Sun Dec 29, 2013 3:16 pm

Hi zarli.

Olive oil? Not heard of that one before! I was contimplating using ky jelly if I have a birth in bed but hoping to have a water birth.

Did birth cure your vulvodynia??

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Re: All things pregnancy and birth!!! so confused!!

Post  zarli on Sun Dec 29, 2013 9:13 pm

My vulvodynia was diagnosed after my last baby was born, looking back I had symptoms of vulvodynia since I was 13 or so, although full blown Vulvodynia came into my life with a vengeance after I had my children.

Good luck

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Re: All things pregnancy and birth!!! so confused!!

Post  Sebby (Admin) on Thu May 08, 2014 1:55 pm

Thank you for your replies. No I haven't yet tried to get pregnant. Unfortunately having another relapse with depression and ending up in hospital made me realise I have to sort my head out first. I am in intensive therapy and so hoping I can beat my mood disorder.

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Re: All things pregnancy and birth!!! so confused!!

Post  Alana3 on Thu May 08, 2014 1:56 pm

I suffer from the same! I hope you get things rolling better for you soon!

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Re: All things pregnancy and birth!!! so confused!!

Post  alessandria on Thu May 08, 2014 5:49 pm

Sebby (Admin) wrote:Thank you for your replies. No I haven't yet tried to get pregnant. Unfortunately having another relapse with depression and ending up in hospital made me realise I have to sort my head out first. I am in intensive therapy and so hoping I can beat my mood disorder.


Awww Sebby! Sad I hope you are doing better now with the therapy, depression is such hell. But you are strong and you can make it through, I believe in you! I've gotten through to the other side after years of moderate to severe depression, and I'm here to talk if you ever need someone.

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Re: All things pregnancy and birth!!! so confused!!

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