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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

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you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

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Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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All things pregnancy and birth!!! so confused!!

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All things pregnancy and birth!!! so confused!!

Post  Sebby (Admin) on Thu Aug 01, 2013 9:14 pm

Hi Ladies,

Me and my husband are planning on trying for a baby next year.

I cannot always have intercourse so this is one stumbling block that I am trying to work on! unfortunately anxiety around sex can often completely shut down my sex drive Sad

So all being well and I do manage to get pregnant I then have to deal with the whole birth issue...very very scary!Shocked 

I am concerned about vulval and vaginal pain during birth and whether I will tighten up like I do initially during intercourse! Once I relax a bit I do stretch and its more comfortable but as for birth...I have no idea how the whole thing works. I worry it won't actually be possible for me to give birth and it will be dangerous for the baby.

I have been considering whether I would opt for caesarean? How easy is this to get? I have read recently that in the uk if after 'counselling' you still insist on a caesarean they should under nhs guidelines let you have one. I guess I figure I wont be taken seriously by the doctors.

I have read a few posts about pregnancy on this forum last year and it seemed that vaginal delivery was being promoted and recommended which was a surprise but a nice surprise.

So if anyone knows anything, let me know!

Thanks all

x

Sebby
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Re: All things pregnancy and birth!!! so confused!!

Post  Sarah001 on Thu Aug 01, 2013 9:23 pm

Hi Sebby,
I don't know much about the pregnancy and birth thing but hold on a minute, Husband??! When did that happen you minx? Laughing  It's really nice to see you back on here and life has obviously changed alot for you! x
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Re: All things pregnancy and birth!!! so confused!!

Post  Alana3 on Thu Aug 01, 2013 9:50 pm

I asked my doc hypothetically because I def do not ever want to get pregnant. But he said don't let anyone talk you into a c-section as they can be dangerous. He also mentioned that vulvodynia can get better by pregnancy and birth. Also you can have his sperm put in you without sex too but... I doubt that's the route you want to take lol

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Re: All things pregnancy and birth!!! so confused!!

Post  Sebby (Admin) on Fri Aug 02, 2013 2:24 pm

Hi Hun Smile I haven't really announced my marriage have I?! It's been 8 months and I'm real lucky he is so patient and kind. Had a big relapse of depression prior to getting engaged but I'm hopeful I'm handling things better now!
I have read that vaginal birth can help stretch you lol I think I do fear the baby won't be able to come out! x
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Re: All things pregnancy and birth!!! so confused!!

Post  Alana3 on Fri Aug 02, 2013 3:19 pm

Pretty sure you can't stop it haha Wink talk to your doc!

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Re: All things pregnancy and birth!!! so confused!!

Post  Sarah001 on Fri Aug 02, 2013 7:25 pm

Well congratulations sweetheart! cheers  And turns out I do know something you might find helpful, try this link:

http://www.epi-no.co.uk/index.php/product-category/epi-no-delphine-plus/

That might give you the confidence to know your muscles will stretch and I know some women even "give birth" to the balloon part to practice! I intend to buy one when I'm ready for some serious pelvic floor stretching which isn't yet but it's good to know it's out there when I'm ready. Once again congratulations on your marriage! xx
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Re: All things pregnancy and birth!!! so confused!!

Post  Alana3 on Fri Aug 02, 2013 8:21 pm

Why would you want to strengthen your muscles though? That in my case would defeat physical therapy and everything else I have gone thru. Maybe for other women who don't have these issues we do but if your muscles are already tight I'm pretty sure this would make it worse?

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Re: All things pregnancy and birth!!! so confused!!

Post  Sarah001 on Fri Aug 02, 2013 9:46 pm

It's used pre birth to stretch the muscles, by inflating the balloon it stretches the tissue and if necessary it can be used after to strengthen the muscles as a type of biofeedback device. I'm certain inflating a balloon is going to stretch the muscles Alana, if you read the description it says it can stretch them to 10 cm so enough to give birth to the baby's head. It's entirely up to the individual if they want to strengthen afterwards and can be used solely for the stretching so suitable for us V sufferers.
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Re: All things pregnancy and birth!!! so confused!!

Post  Alana3 on Fri Aug 02, 2013 9:55 pm

Honestly was just asking...

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Re: All things pregnancy and birth!!! so confused!!

Post  Sebby (Admin) on Sun Aug 04, 2013 7:35 am

Thank you Sarah, this looks very interesting! Would most deff try it! One of my main fears is tearing : o I have dialators also that I may try again just so I can feel more confident wiv sex so I can't actually get pregnant lol! x
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Re: All things pregnancy and birth!!! so confused!!

Post  Sebby (Admin) on Sun Aug 18, 2013 10:54 am

Managed to have sex last nite Smile it does hurt at first but is much better once I relax and get into it lol! Did use contraception as still scared to get pregnant yet lol but pleased I'm able to practice!
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Re: All things pregnancy and birth!!! so confused!!

Post  tinkerbelle2 on Wed Dec 11, 2013 7:18 pm

Hi Sebby, did you get pregnant!?!?
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Re: All things pregnancy and birth!!! so confused!!

Post  Littlemiss24 on Fri Dec 27, 2013 10:06 pm

Hi everyone!! I'm knew on this site and am so glad I found it as I felt I was living with this all alone.

I have had vulvodynia ever since I became sexually active and like most of you self diagnosed myself as doctors don't understand what it is!!

I am currently 8 weeks pregnant and have been taking amitriptiline (anti depressants) for the past three years which really worked for me. My symptoms disappeared and very rarely showed an appearance. I am still taking the tablets whilst pregnant as doc has advised in on a very low dosage. However I hve had symptoms twice since being pregnant which makes me wonder if mine was triggered by sex but active due to hormones??

I am too worried about birth, doctors have told me i will defo tear which is going to probably make me worse. I have since read natural births can help with vulvodynia and having a meditating birth can help relax your vaginal muscles. I'm going to try and give it a go along with a water birth.

Also if you don't already. I wash with aqueous cream and use it as a cream if my symptoms are present and it really helps.

Hopefully all our prayers will be answerd and we can have a pain free life!!!

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Re: All things pregnancy and birth!!! so confused!!

Post  tinkerbelle2 on Sat Dec 28, 2013 2:12 pm

Hey little miss! Congratulations on the pregnancy. Very exciting! A meditating birth sounds like a lovely idea. I too like the sound of a water birth! I can't wait to have kids, not for a few years though! I hope you have as stress and pain free a pregnancy as possible and that giving birth sorts out the vulvodynia!
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Re: All things pregnancy and birth!!! so confused!!

Post  Littlemiss24 on Sat Dec 28, 2013 3:21 pm

Thanks hun!! I will let you all know if a natural birth is the cure!!


I have an appointment with the midwife in January so am going to ask a million questions and hopefully get referred to a specialist. If I find anything out that can help us all I'll update you

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Re: All things pregnancy and birth!!! so confused!!

Post  zarli on Sun Dec 29, 2013 1:48 am

Hi little miss I don't think Doctors should tell you that you will tare, they don't know that. I used olive oil during my pregnancies as a lube and I generally used it when I thought to rub it in. My Nana actually told me to do it and I have had four babies and no tares !! My vulva specialist told me to use it as a lube and it works really well.

I have heard so many success stories regarding birth helping with vulvodynia.

So think positive and enjoy your pregnancy, its such an amazing time of life.

Best Wishes
Zarli

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Re: All things pregnancy and birth!!! so confused!!

Post  Littlemiss24 on Sun Dec 29, 2013 3:16 pm

Hi zarli.

Olive oil? Not heard of that one before! I was contimplating using ky jelly if I have a birth in bed but hoping to have a water birth.

Did birth cure your vulvodynia??

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Re: All things pregnancy and birth!!! so confused!!

Post  zarli on Sun Dec 29, 2013 9:13 pm

My vulvodynia was diagnosed after my last baby was born, looking back I had symptoms of vulvodynia since I was 13 or so, although full blown Vulvodynia came into my life with a vengeance after I had my children.

Good luck

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Re: All things pregnancy and birth!!! so confused!!

Post  Sebby (Admin) on Thu May 08, 2014 1:55 pm

Thank you for your replies. No I haven't yet tried to get pregnant. Unfortunately having another relapse with depression and ending up in hospital made me realise I have to sort my head out first. I am in intensive therapy and so hoping I can beat my mood disorder.

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Re: All things pregnancy and birth!!! so confused!!

Post  Alana3 on Thu May 08, 2014 1:56 pm

I suffer from the same! I hope you get things rolling better for you soon!

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Re: All things pregnancy and birth!!! so confused!!

Post  alessandria on Thu May 08, 2014 5:49 pm

Sebby (Admin) wrote:Thank you for your replies. No I haven't yet tried to get pregnant. Unfortunately having another relapse with depression and ending up in hospital made me realise I have to sort my head out first. I am in intensive therapy and so hoping I can beat my mood disorder.


Awww Sebby! Sad I hope you are doing better now with the therapy, depression is such hell. But you are strong and you can make it through, I believe in you! I've gotten through to the other side after years of moderate to severe depression, and I'm here to talk if you ever need someone.

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Re: All things pregnancy and birth!!! so confused!!

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