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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


is there a relationship with monthly cramps?

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is there a relationship with monthly cramps?

Post  Elc88 on Fri Aug 02, 2013 9:40 pm

This is probably a strange one, and I hope it hasn't been asked before. I have always suffered from painful periods - most months, I wind up curled up in a little ball trying not to faint! I sometimes wonder if what I'm going through is in any way related. I do notice a slightly worse burning semsation, but use natural products. Does anyone else suffer with this as well? My periods have never been the same since I started on the microgynon pill ages ago, and that's when all my pain first started (though it got a lot worse when I went on my second contraceptive pill)

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Re: is there a relationship with monthly cramps?

Post  Alana3 on Fri Aug 02, 2013 9:58 pm

I have it too and was just diagnosed with endometriosis so maybe it's related to that too? But vulvodynia wouldn't cause cramps but during my period I itch and burn worse too but cramps I woukd imagine wouldnt go with v.

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Re: is there a relationship with monthly cramps?

Post  Elc88 on Sat Aug 03, 2013 7:54 am

I don't think the v causes the cramps, but wondered if cramps are something that can lead to V. I know they're very separate things, but if you're used to crippling pain in that region (and it's all in a way linked to reproduction) is it possible it's a trigger?

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Re: is there a relationship with monthly cramps?

Post  Alana3 on Sat Aug 03, 2013 12:23 pm

You probably have two separate things going on. Like I said I had vulvodynia and on top if that endometriosis. When you get cramps I would assume that the pain might be worse because your muscles tighten down there too but I doubt its related. When I had vulvodynia it was alwqys worse with my period but so were my cramps. I finally went on birth control and that helped big time

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Re: is there a relationship with monthly cramps?

Post  Sebby (Admin) on Sun Aug 04, 2013 7:43 am

I get painful periods, I don't think they are particularly linked? Cramps are the womb contracting, although if we have pelvic floor dysfunction then I do wonder if the womb cramps could set off the pelvic floor muscles?
I find my vulvodynia is worse just before a period so when I get the cramps the V has eased off. Cramps are pretty bad today and I said I would do dinner Sad gonna get hubby to help and dose myself up...... With whiskey if I need to! Lol
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Re: is there a relationship with monthly cramps?

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