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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 6

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


is there a relationship with monthly cramps?

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is there a relationship with monthly cramps?

Post  Elc88 on Fri Aug 02, 2013 9:40 pm

This is probably a strange one, and I hope it hasn't been asked before. I have always suffered from painful periods - most months, I wind up curled up in a little ball trying not to faint! I sometimes wonder if what I'm going through is in any way related. I do notice a slightly worse burning semsation, but use natural products. Does anyone else suffer with this as well? My periods have never been the same since I started on the microgynon pill ages ago, and that's when all my pain first started (though it got a lot worse when I went on my second contraceptive pill)

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Re: is there a relationship with monthly cramps?

Post  Alana3 on Fri Aug 02, 2013 9:58 pm

I have it too and was just diagnosed with endometriosis so maybe it's related to that too? But vulvodynia wouldn't cause cramps but during my period I itch and burn worse too but cramps I woukd imagine wouldnt go with v.

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Re: is there a relationship with monthly cramps?

Post  Elc88 on Sat Aug 03, 2013 7:54 am

I don't think the v causes the cramps, but wondered if cramps are something that can lead to V. I know they're very separate things, but if you're used to crippling pain in that region (and it's all in a way linked to reproduction) is it possible it's a trigger?

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Re: is there a relationship with monthly cramps?

Post  Alana3 on Sat Aug 03, 2013 12:23 pm

You probably have two separate things going on. Like I said I had vulvodynia and on top if that endometriosis. When you get cramps I would assume that the pain might be worse because your muscles tighten down there too but I doubt its related. When I had vulvodynia it was alwqys worse with my period but so were my cramps. I finally went on birth control and that helped big time

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Re: is there a relationship with monthly cramps?

Post  Sebby (Admin) on Sun Aug 04, 2013 7:43 am

I get painful periods, I don't think they are particularly linked? Cramps are the womb contracting, although if we have pelvic floor dysfunction then I do wonder if the womb cramps could set off the pelvic floor muscles?
I find my vulvodynia is worse just before a period so when I get the cramps the V has eased off. Cramps are pretty bad today and I said I would do dinner Sad gonna get hubby to help and dose myself up...... With whiskey if I need to! Lol
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Re: is there a relationship with monthly cramps?

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