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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Vulvodynia estriol treatment and candida-like symptoms

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Vulvodynia estriol treatment and candida-like symptoms

Post  sablenicoise on Sat Aug 03, 2013 11:34 am

Hello
I'm 21 years old, i have been suffering with Vulvodynia for 1 year and 3 month, and recently (8 days ago) i have started taking estriol vaginal suppositories in a hope to get some relief from them (my estrogen leves are a bit lower than normal). So far no relief but after 5 days of estriol i got yeast-lie symptoms: i itch A LOT (i didn't before on a normal basis, only when i had yeast) and the burning and stabing-like pain and pain with urination and when sitting got worse and the vagina also seems a bit swollen and i find in even harder to insert the suppositories.

When i first noticed the yeast like symptoms i panicked and took a fluconazole 150 mg tablet, and the next day i went to the doctor's to have a vaginal discharge exam done. I have now the results of the examan and there is no yeast detected! I'm so confused.. is it possible that the yeast didn't appear in the exam because of the fluconazole i took the night before? (my doctor told me that seeing as i took it orally it shouldn't influence the results) or because of the estriol suppositories?

Or is it possible that i really don't have yeast and it's just because of the estriol? I also noticed that the first 5 days of estriol i didn't have candida like symptomps and neither allergic reactions or feeling worse immediatley affter inserting the estriol suppositor.

Also i'm on a strict low-oxalate diet, and also on a no-sugar, no-yeast, no-almost nothing diet since what looks like forever and it's really getting me down as i wight about 40 kg (it's true unfortunately, and i'm afraid i will loose even more weight).
I wear only 100% cotton, no-elastic band, white, underwear which i wash manually with olive oil soap, and then iron them to kill all bacteria.

Has anybody else experienced yeast-like simptoms during estriol treatment? Is it normal? I know that after 8 days of estriol i shouldn't expect to feel better but the itching and burning are so horrible especially at night after the suppositorie starts to melt and (sorry fot the image) to run down the vagina.. Also..is it possible that i do in fact have yeast but the results came negative because of the fluconazole i took a night before?

I would enourmously appreciate if someone could tell me, but even if not, i'm glad i found this site and i can talk with other women wth this problem (i have read a lot of sites but never had the courage to speak to anyone about it until now)

have a good day Smile

sablenicoise

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Re: Vulvodynia estriol treatment and candida-like symptoms

Post  Alana3 on Sat Aug 03, 2013 12:25 pm

Go off the estrogen and see if you feel better..

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Re: Vulvodynia estriol treatment and candida-like symptoms

Post  Elc88 on Sat Aug 03, 2013 12:33 pm

If the Dr said the Fluconazole wouldn't influence the results, then they're probably right.

I took estrogen over the Chirstmas period, and from what I recall, I did get a slight discharge from it. I assumed it was the melted suppository mixed with a little bit of extra friskiness Embarassed  I did get a strong burning sensation when I came off of it, but not so much while I was on it, unless I accidentily scratched myself while inserting the suppository. Still, check the ingredients and make sure you're not allergic to any of them!


Last edited by Elc88 on Sat Aug 03, 2013 12:43 pm; edited 1 time in total

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Re: Vulvodynia estriol treatment and candida-like symptoms

Post  Elc88 on Sat Aug 03, 2013 12:42 pm

Alana3 wrote:Go off the estrogen and see if you feel better..

I wouldn't recommend this - the pain will get worse when you first come off, and your emotions will be all over the place. It's not something you should start and stop. I was advised to take it for at least a month and to stop taking it if I didn't notice an improvement after 6 weeks. If you were prescribed it after being diagnosed with low estrogen levels, then you need to talk to your Dr before you stop.

I really can't warn you enough - when I abruptly stopped taking estrogen, I became really emotional and was thrown into depression, so be prepared, and try to come off it slowly.

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Re: Vulvodynia estriol treatment and candida-like symptoms

Post  Alana3 on Sat Aug 03, 2013 2:18 pm

Its a suposetory lol no emotions youre not taking it.orally theres no way it will mess with your mood. As for the pain shes worse I would come off it. But this isnt an antidepressant or birth control you should be fine. I wouldn't want yeast like feeling all the.time. but not a chance after 5 days and not going thru your bloodstream will this cause any emotional changes.

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Re: Vulvodynia estriol treatment and candida-like symptoms

Post  sablenicoise on Sat Aug 03, 2013 2:35 pm

thank you for your answers!

i really wanted to stay on the estrogen for at least a month because my doctor said that i can't see any results sooner.
i was hoping that maybe the yeast like symptoms stopped if i treated the yeast (which i dont' know if i have or not!) with diflucan, probiotics, coconut oil and lots of yoghurts. So far i haven't gotten any results but it's been only 2 and a half days...

probably i would feel better if i stopped the estrogen, but then i would be in the same place i was 9 days ago, and that is not a very good place ..but i really thought of it as my only chance out of this hell. i have tried almost everything else (therapy, pelvic floor exercises, low oxalate diet, anti yeast diet, wearing 100% cotton underwear, no detergent, special soap for private parts..etc) and also i noticed that my pain varies in the menstrual cycle, usually it's better in day 14 during ovulation and worse before and during period. Unfortunately this hasn't been the case this month as now it should have been ovulation and i feel worse because of the yeast like symptoms..

would it be better to stop the estrogen completely, get rid of the yeast symptoms and then start back the estrogen and taking probiotics vaginal suppositories at the same time? or should i try to continue with estrogen and anti yeast diet and hope the yeast symptoms will fade? i still don't understand how the yeast symptoms could be something directly related to the estrogen(like allergy or something) , and not to yeast, because in the first 5 days of the treatment i was ok, no itch, no burning...

Maybe it's not estrogen what i need for vulvodynia?

my doctors are not very documented in what vulvodynia is, and have never seen anything like it before so i'm a bit like a guinea pig for them.. also in my country you can;t find other estrogen suppositories, and no estrogen cream at all, no testosteron, and no compounding of the two.. Sad

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Re: Vulvodynia estriol treatment and candida-like symptoms

Post  Elc88 on Sat Aug 03, 2013 2:41 pm

Even if you don't take it orally, it still enters the blood stream. Regardless of how you take it, it tops up estrogen levels in your system and your body gets used to producing less estrogen itself so you suffer withdrawal symptoms when you come off it. Maybe not all of the same symptoms, but definitely some of them, case in point, I became very emotional and started to suffer depression.

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Re: Vulvodynia estriol treatment and candida-like symptoms

Post  Elc88 on Sat Aug 03, 2013 3:13 pm

Sablenicoise, I thought the best thing to do would be to have a quick search:

https://ssl.adam.com/content.aspx?productId=47&pid=47&gid=602127&site=welldynerx.adam.com&login=well1815

Definitely discharge is a normal side effect of the suppository, and it's also possible that the itchiness is a side effect. Like I say, I felt the itchiness was worse when I first stopped, and I remember noticing a bit more discomfort when I forgot to take a dose (e.g. staying at a friends for new year), but nothing too bad. Even though I hated the suppository, I was like you - I persevered through 6 weeks in the hope I had found a cure! It didn't help me, but that doesn't mean it won't help you. If you have low estrogen levels, then I'd be really worried about stopping it without having a replacement to move on to.

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Re: Vulvodynia estriol treatment and candida-like symptoms

Post  Alana3 on Sat Aug 03, 2013 3:49 pm

Whatever you say... topicals typically dint make you r emotional and give you side effects that other drugs do when taken orally hence why doctors give them to you. I was taking antidepressants topically so I didn't suffer weight changes or depression. And so I could get off of them easy. Was that the only drug you took when you became emotional? mood isn't even listed as side effects. Typically drugs taken that don't pass thru your liver are not going to alter your mood, weight, etc but can cause other problems where you apply it. Itchy, discharge, swelling, redness, etc. I've been on all that crap and none of it worked but it certainly didn't affect my mood. Birth control pills on the other hand yes. This whole thing is emotional, but estrogen is usually handled pretty well when applied in a specific spot. Doctors give it to you that way so the side effects are minimal

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Re: Vulvodynia estriol treatment and candida-like symptoms

Post  Alana3 on Sat Aug 03, 2013 4:27 pm

And in a previous post I put that it doesnt go thru bloodflow I meant liver.

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Re: Vulvodynia estriol treatment and candida-like symptoms

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