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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Cystoscopy

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Cystoscopy

Post  Kathye10 on Wed Aug 07, 2013 6:52 pm

Hey Ladies,

I saw a new Dr today who is a highly regarded Uro/Gyno. He did the Q-tip test (like I haven't a a bunch of those already) and said that my urethra had pain when pressed upon. I have never had any bladder issues with this, as far as pain goes. But I do have to push a little extra to get it all out. I have pelvic floor dysfunction and I am seeing a PT for that. I'm questioning whether or not to do the test. He says I should know if there is something wrong in that area as well. He knows I cannot afford all these procedures so he will do it for just my co-pay and write off the rest (very nice) But I want to know if 1.) This is a painful procedure 2.) Can it cause any complications?

Thank you!
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Re: Cystoscopy

Post  Alana3 on Wed Aug 07, 2013 7:05 pm

If your doctor prescribed it its probably worth it. You're knocked out typically and it might burn to pee aftrr. With any surgery there is a risk of complications. You just have to ask yourself is it worth it to find out or stay sick? Sounds like they may be testing you for IC. Look it up or ask your doctor its done everyday tho so I doubt youre at risk for many complications but there's always a chance of anything happening. If you dont have bladder pain I don't know why he'd want to do that. PFD would cause you to strain a bit too...

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Re: Cystoscopy

Post  Sarah001 on Thu Aug 08, 2013 8:31 am

Pelvic Floor Dysfunction as you know causes us to force the urine out so that's definitely caused by PFD and it also can tighten around the urethral area and cause pain there too. Alot of people who have been diagnosed with IC either rightly or wrongly find treating the pelvic floor eliminates symptoms so PFD can mimic IC. I would say ask your physio about the procedure and see if he/she thinks it's a good idea, remember more pain will tighten the pelvic floor up even more so it's not something I would rush into without a physio talk first but if they think it's a good idea then it's entirely up to you whether you go ahead or not. IC has some dramatic bladder symptoms and if you've had none except for the pushing the urine out past tight muscles I think it's unlikely you have IC or any other bladder problems for that matter. Don't feel you have to have every test done suggested if it doesn't seem right for your symptoms, you can always go back once you've dealt with the muscular side of things if you still have some symptoms.
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Re: Cystoscopy

Post  Kathye10 on Sun Aug 11, 2013 2:29 pm

I agree. I did not mention to him that I have PFD, if he took a few seconds to check maybe he would have known. I believe it is totally muscle related and since I have no burning in my urethra or bladder, it think it's best to stay away from that procedure. I don't need any "after complications" or it making matters worse. Thank you ladies for your feedback. That's a big NO on that test, lol Hope you are both feeling as good as you can Very Happy 
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Re:CYSTOSCOPY

Post  Sunflower82 on Tue Aug 20, 2013 4:15 pm

Hi,
I had two years ago when I first started this long journey. I'm going to be honest it is very uncomfortable after its a little like going for a wee with shards of glass in it! But the more you drink the more it eases off! You have to go to the loo before you leave, after about 4 hours and lots of litres of water the pain does go way. They give you a course of antibotics to take as the risk of infection is high but I never got one ! For me they didn't find anything and said it was from IC but it turned out years later this was the start of vulvodynia.

Hope this helps.

Kt

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It doesnt hurt that much

Post  Jessica11 on Wed Aug 21, 2013 12:30 pm

Ive had it done before, and it really doesnt hurt that much. If youve had alot of bladder infections before and theyve done a clean catch on you (catheter inserted into bladder to get urine sample) instead of peeing in a cup, it feels like that. When they first insert the camera, thats the worst part of it, and it only lasts a couple seconds, and they also put numbing gel in there beforehand, its not as bad as you think its gonna be, but seeing all the docotrs and nurses around me, and being told it was considered a "surgical" procedure made me really nervous:cyclops: pale but it was cool, and the whole thing only took 10 min

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pee

Post  Jessica11 on Wed Aug 21, 2013 12:35 pm

Yea, while they are looking in there, they spray water in your bladder to get a better look see at things and I peed alot after, and it hurt for a few days a little bit when I peed, thats all, really, not a big deal.
Many times people with vulvodynia, also have a condition called interstitial cystitus.
Many times, the whole vulvodynia thing starts with interstital cystitus, cuz your on tons and tons of antibiotics to get rid of repeat bladder infections, and then you end up with a yeast or bacterial infections cuz ABX kill off all the good bacteria, and its just this whole vicious, horrible, nitemare cycle.

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Re: Cystoscopy

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