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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Cystoscopy

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Cystoscopy

Post  Kathye10 on Wed Aug 07, 2013 6:52 pm

Hey Ladies,

I saw a new Dr today who is a highly regarded Uro/Gyno. He did the Q-tip test (like I haven't a a bunch of those already) and said that my urethra had pain when pressed upon. I have never had any bladder issues with this, as far as pain goes. But I do have to push a little extra to get it all out. I have pelvic floor dysfunction and I am seeing a PT for that. I'm questioning whether or not to do the test. He says I should know if there is something wrong in that area as well. He knows I cannot afford all these procedures so he will do it for just my co-pay and write off the rest (very nice) But I want to know if 1.) This is a painful procedure 2.) Can it cause any complications?

Thank you!
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Re: Cystoscopy

Post  Alana3 on Wed Aug 07, 2013 7:05 pm

If your doctor prescribed it its probably worth it. You're knocked out typically and it might burn to pee aftrr. With any surgery there is a risk of complications. You just have to ask yourself is it worth it to find out or stay sick? Sounds like they may be testing you for IC. Look it up or ask your doctor its done everyday tho so I doubt youre at risk for many complications but there's always a chance of anything happening. If you dont have bladder pain I don't know why he'd want to do that. PFD would cause you to strain a bit too...

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Re: Cystoscopy

Post  Sarah001 on Thu Aug 08, 2013 8:31 am

Pelvic Floor Dysfunction as you know causes us to force the urine out so that's definitely caused by PFD and it also can tighten around the urethral area and cause pain there too. Alot of people who have been diagnosed with IC either rightly or wrongly find treating the pelvic floor eliminates symptoms so PFD can mimic IC. I would say ask your physio about the procedure and see if he/she thinks it's a good idea, remember more pain will tighten the pelvic floor up even more so it's not something I would rush into without a physio talk first but if they think it's a good idea then it's entirely up to you whether you go ahead or not. IC has some dramatic bladder symptoms and if you've had none except for the pushing the urine out past tight muscles I think it's unlikely you have IC or any other bladder problems for that matter. Don't feel you have to have every test done suggested if it doesn't seem right for your symptoms, you can always go back once you've dealt with the muscular side of things if you still have some symptoms.
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Re: Cystoscopy

Post  Kathye10 on Sun Aug 11, 2013 2:29 pm

I agree. I did not mention to him that I have PFD, if he took a few seconds to check maybe he would have known. I believe it is totally muscle related and since I have no burning in my urethra or bladder, it think it's best to stay away from that procedure. I don't need any "after complications" or it making matters worse. Thank you ladies for your feedback. That's a big NO on that test, lol Hope you are both feeling as good as you can Very Happy 
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Re:CYSTOSCOPY

Post  Sunflower82 on Tue Aug 20, 2013 4:15 pm

Hi,
I had two years ago when I first started this long journey. I'm going to be honest it is very uncomfortable after its a little like going for a wee with shards of glass in it! But the more you drink the more it eases off! You have to go to the loo before you leave, after about 4 hours and lots of litres of water the pain does go way. They give you a course of antibotics to take as the risk of infection is high but I never got one ! For me they didn't find anything and said it was from IC but it turned out years later this was the start of vulvodynia.

Hope this helps.

Kt

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It doesnt hurt that much

Post  Jessica11 on Wed Aug 21, 2013 12:30 pm

Ive had it done before, and it really doesnt hurt that much. If youve had alot of bladder infections before and theyve done a clean catch on you (catheter inserted into bladder to get urine sample) instead of peeing in a cup, it feels like that. When they first insert the camera, thats the worst part of it, and it only lasts a couple seconds, and they also put numbing gel in there beforehand, its not as bad as you think its gonna be, but seeing all the docotrs and nurses around me, and being told it was considered a "surgical" procedure made me really nervous:cyclops: pale but it was cool, and the whole thing only took 10 min

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pee

Post  Jessica11 on Wed Aug 21, 2013 12:35 pm

Yea, while they are looking in there, they spray water in your bladder to get a better look see at things and I peed alot after, and it hurt for a few days a little bit when I peed, thats all, really, not a big deal.
Many times people with vulvodynia, also have a condition called interstitial cystitus.
Many times, the whole vulvodynia thing starts with interstital cystitus, cuz your on tons and tons of antibiotics to get rid of repeat bladder infections, and then you end up with a yeast or bacterial infections cuz ABX kill off all the good bacteria, and its just this whole vicious, horrible, nitemare cycle.

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Re: Cystoscopy

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