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» 7 months since the diagnosis
Today at 9:09 am by Gaby

» Did going off antidepressants cause this?
Yesterday at 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Women's physio in London??

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Women's physio in London??

Post  Sebby (Admin) on Fri Aug 16, 2013 1:26 pm

Just wondering if anyone knows of a good women's physio in London? Still awaiting pain clinic appt which I have to now complain and chase as they lost the first fax referral! Sad
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Re: Women's physio in London??

Post  Sarah001 on Fri Aug 16, 2013 5:43 pm

Sebby sweetie ring the hospitals near you and get them to put you through to physio, then ask about specifically tight pelvic floors and V as not all of them deal with it and usually they get the WH Physio to call you and have a chat then once you decide which one to go to get your GP to refer you. I did it that way but not many people realise they can call direct and talk to the physio first. If you're going private do the same thing and talk to them about it before you go and pay for a session. Some WH Physios only deal with lax pelvic floors and stress incontinence so a phone call first saves a delay. Good luck and let us know how you get on. x
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Physio london

Post  Sunflower82 on Sun Aug 18, 2013 9:44 am

Hi,
I saw a great Physio in London, who really understands the condition if it wasn't for her I don't think I would be where I am today. The only down side is she is private so it's expensive and I found I had to space out the sessions which I think had an impact on the treatment! I then when to the royal free for women's health Physio and I was in more pain than I had ever been in before! If u are interested I can give you the name of the Physio I saw in London ?

Kt

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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Aug 21, 2013 3:55 pm

Thanks ladies! I will deff contact my local hospitals physio departments. I wasn't aware that you could request a chat with the physio!
And yes Sunflower I would deff like the name and number of your private physio. The nhs can be long winded and frustrating so if I can afford it I would look at paying. x
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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Sep 04, 2013 8:14 am

I emailed 3 London clinics to find out if they treated Vulvodynia related pelvic pain. Emailed Friday but nothing back yet. Had a similar issue once with 2 nhs physios where I previously lived, that time I had written to them and got no response.. I have found another clinic whose website specifically talks about pelvic/vulval pain, trigger points etc so I have called and left a message for a call back.
If I don't get a call back I think I am going to check out if they have access to a blacklist with my name on it! Lol
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Re: Women's physio in London??

Post  Sarah001 on Wed Sep 04, 2013 2:18 pm

Lol Sebby! Laughing  If you don't get an answer phone so it puts them on the spot, you can't ignore a phone call as easily as an email! Good luck and let us know how you get on. x
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Women's Physio in London

Post  Sunflower82 on Mon Sep 09, 2013 6:09 am

Hi,
Try sixphysio in London, it's expensive but I would reccommend.

Kt

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Re: Women's physio in London??

Post  Sebby (Admin) on Mon Sep 09, 2013 6:24 am

Oh wow thanks my, they are who I'm gonna try! Sinead emailed me back Smile I'm gonna try the monument clinic as Its nearer. They are expensive but about the same as the other pelvic pain physios I've looked at. How often did you go? I think it might have to be every fortnight for me. I'm already working on techniques in Isa Herrera's book 'Ending Female Pain'.
I need some guidance though and an assessment of what my crazy pelvic floor muscles are doing! I'll put some money aside for extra sessions if I need them. It's hard to tell at this point.
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Women's Physio london

Post  Sunflower82 on Mon Sep 09, 2013 4:54 pm

Hi,
It's been a very long journey for me, I went every week for about a month then every other week! I still go every now and again. It's really hard to keep up with due to the cost and I'm going to be honest in the beginning it made things worse ( don't want to put u off) but be prepared. Make sure u do the homework it will help in the long term. Check out yes lube for when u get that far!
I went to the one in high street ken and now go to kings rd, compared to what I had on the Nhs this is so individual, when I when to the hospital it felt like you have vulvodynia and this is the treatment plan, rather than what each person needs, after the second session I was in so much pain which last three weeks! Didn't want to go bk !

If u can stick at it and give it a chance !

Good luck

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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Sep 11, 2013 9:46 am

I've got my appt at the Kensington clinic today at 1pm! Am very nervous but hopeful. I'm quite surprised how nervous I am! It's a bit of a train journey so taking a book to distract me. Got my bag with my ending female pain book, biofeedback device and dialators. My dialators are in a box I can never open lol my husband has to open it! So I've transferred them to the only pouch I could find in the house which is see through! I'm having visions of dropping my bad on the train and them rolling down the carriage! Lol
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that made me laugh

Post  zarli on Wed Sep 11, 2013 10:57 am

Hi Sebby, you made me laugh about dropping your bag. I am off to my new physio app next week, I would love to hear about yours as mine has never delt with vulvadynia before but sounds very enthusiastic to help me. Where did you get your book from called ending female pain? Ive never herd of that and would be interested in having a read. Good luck for your appointment:D 

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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Sep 11, 2013 11:50 am

I ordered the book off the Internet. It's all physio based with advice on dialators, trigger points, external manual therapy, reverse kegals and normal kegals, yoga, Pilates and more! It's Ending Female Pain by Isa Herrera. Maybe also recommend the book to your physio if you like it!
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Re: Women's physio in London??

Post  Sarah001 on Wed Sep 11, 2013 5:40 pm

How did the physio appointment go Sebby?
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Re: Women's physio in London??

Post  Melian on Wed Aug 26, 2015 10:57 pm

I am seeing Dr Reid in Hampstead, and doing physio there as well!. Royal free hospital!

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Re: Women's physio in London??

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