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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Women's physio in London??

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Women's physio in London??

Post  Sebby (Admin) on Fri Aug 16, 2013 1:26 pm

Just wondering if anyone knows of a good women's physio in London? Still awaiting pain clinic appt which I have to now complain and chase as they lost the first fax referral! Sad
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Re: Women's physio in London??

Post  Sarah001 on Fri Aug 16, 2013 5:43 pm

Sebby sweetie ring the hospitals near you and get them to put you through to physio, then ask about specifically tight pelvic floors and V as not all of them deal with it and usually they get the WH Physio to call you and have a chat then once you decide which one to go to get your GP to refer you. I did it that way but not many people realise they can call direct and talk to the physio first. If you're going private do the same thing and talk to them about it before you go and pay for a session. Some WH Physios only deal with lax pelvic floors and stress incontinence so a phone call first saves a delay. Good luck and let us know how you get on. x
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Physio london

Post  Sunflower82 on Sun Aug 18, 2013 9:44 am

Hi,
I saw a great Physio in London, who really understands the condition if it wasn't for her I don't think I would be where I am today. The only down side is she is private so it's expensive and I found I had to space out the sessions which I think had an impact on the treatment! I then when to the royal free for women's health Physio and I was in more pain than I had ever been in before! If u are interested I can give you the name of the Physio I saw in London ?

Kt

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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Aug 21, 2013 3:55 pm

Thanks ladies! I will deff contact my local hospitals physio departments. I wasn't aware that you could request a chat with the physio!
And yes Sunflower I would deff like the name and number of your private physio. The nhs can be long winded and frustrating so if I can afford it I would look at paying. x
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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Sep 04, 2013 8:14 am

I emailed 3 London clinics to find out if they treated Vulvodynia related pelvic pain. Emailed Friday but nothing back yet. Had a similar issue once with 2 nhs physios where I previously lived, that time I had written to them and got no response.. I have found another clinic whose website specifically talks about pelvic/vulval pain, trigger points etc so I have called and left a message for a call back.
If I don't get a call back I think I am going to check out if they have access to a blacklist with my name on it! Lol
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Re: Women's physio in London??

Post  Sarah001 on Wed Sep 04, 2013 2:18 pm

Lol Sebby! Laughing  If you don't get an answer phone so it puts them on the spot, you can't ignore a phone call as easily as an email! Good luck and let us know how you get on. x
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Women's Physio in London

Post  Sunflower82 on Mon Sep 09, 2013 6:09 am

Hi,
Try sixphysio in London, it's expensive but I would reccommend.

Kt

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Re: Women's physio in London??

Post  Sebby (Admin) on Mon Sep 09, 2013 6:24 am

Oh wow thanks my, they are who I'm gonna try! Sinead emailed me back Smile I'm gonna try the monument clinic as Its nearer. They are expensive but about the same as the other pelvic pain physios I've looked at. How often did you go? I think it might have to be every fortnight for me. I'm already working on techniques in Isa Herrera's book 'Ending Female Pain'.
I need some guidance though and an assessment of what my crazy pelvic floor muscles are doing! I'll put some money aside for extra sessions if I need them. It's hard to tell at this point.
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Women's Physio london

Post  Sunflower82 on Mon Sep 09, 2013 4:54 pm

Hi,
It's been a very long journey for me, I went every week for about a month then every other week! I still go every now and again. It's really hard to keep up with due to the cost and I'm going to be honest in the beginning it made things worse ( don't want to put u off) but be prepared. Make sure u do the homework it will help in the long term. Check out yes lube for when u get that far!
I went to the one in high street ken and now go to kings rd, compared to what I had on the Nhs this is so individual, when I when to the hospital it felt like you have vulvodynia and this is the treatment plan, rather than what each person needs, after the second session I was in so much pain which last three weeks! Didn't want to go bk !

If u can stick at it and give it a chance !

Good luck

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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Sep 11, 2013 9:46 am

I've got my appt at the Kensington clinic today at 1pm! Am very nervous but hopeful. I'm quite surprised how nervous I am! It's a bit of a train journey so taking a book to distract me. Got my bag with my ending female pain book, biofeedback device and dialators. My dialators are in a box I can never open lol my husband has to open it! So I've transferred them to the only pouch I could find in the house which is see through! I'm having visions of dropping my bad on the train and them rolling down the carriage! Lol
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that made me laugh

Post  zarli on Wed Sep 11, 2013 10:57 am

Hi Sebby, you made me laugh about dropping your bag. I am off to my new physio app next week, I would love to hear about yours as mine has never delt with vulvadynia before but sounds very enthusiastic to help me. Where did you get your book from called ending female pain? Ive never herd of that and would be interested in having a read. Good luck for your appointment:D 

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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Sep 11, 2013 11:50 am

I ordered the book off the Internet. It's all physio based with advice on dialators, trigger points, external manual therapy, reverse kegals and normal kegals, yoga, Pilates and more! It's Ending Female Pain by Isa Herrera. Maybe also recommend the book to your physio if you like it!
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Re: Women's physio in London??

Post  Sarah001 on Wed Sep 11, 2013 5:40 pm

How did the physio appointment go Sebby?
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Re: Women's physio in London??

Post  Melian on Wed Aug 26, 2015 10:57 pm

I am seeing Dr Reid in Hampstead, and doing physio there as well!. Royal free hospital!

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Re: Women's physio in London??

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