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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
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» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Women's physio in London??

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Women's physio in London??

Post  Sebby (Admin) on Fri Aug 16, 2013 1:26 pm

Just wondering if anyone knows of a good women's physio in London? Still awaiting pain clinic appt which I have to now complain and chase as they lost the first fax referral! Sad
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Re: Women's physio in London??

Post  Sarah001 on Fri Aug 16, 2013 5:43 pm

Sebby sweetie ring the hospitals near you and get them to put you through to physio, then ask about specifically tight pelvic floors and V as not all of them deal with it and usually they get the WH Physio to call you and have a chat then once you decide which one to go to get your GP to refer you. I did it that way but not many people realise they can call direct and talk to the physio first. If you're going private do the same thing and talk to them about it before you go and pay for a session. Some WH Physios only deal with lax pelvic floors and stress incontinence so a phone call first saves a delay. Good luck and let us know how you get on. x
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Physio london

Post  Sunflower82 on Sun Aug 18, 2013 9:44 am

Hi,
I saw a great Physio in London, who really understands the condition if it wasn't for her I don't think I would be where I am today. The only down side is she is private so it's expensive and I found I had to space out the sessions which I think had an impact on the treatment! I then when to the royal free for women's health Physio and I was in more pain than I had ever been in before! If u are interested I can give you the name of the Physio I saw in London ?

Kt

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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Aug 21, 2013 3:55 pm

Thanks ladies! I will deff contact my local hospitals physio departments. I wasn't aware that you could request a chat with the physio!
And yes Sunflower I would deff like the name and number of your private physio. The nhs can be long winded and frustrating so if I can afford it I would look at paying. x
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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Sep 04, 2013 8:14 am

I emailed 3 London clinics to find out if they treated Vulvodynia related pelvic pain. Emailed Friday but nothing back yet. Had a similar issue once with 2 nhs physios where I previously lived, that time I had written to them and got no response.. I have found another clinic whose website specifically talks about pelvic/vulval pain, trigger points etc so I have called and left a message for a call back.
If I don't get a call back I think I am going to check out if they have access to a blacklist with my name on it! Lol
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Re: Women's physio in London??

Post  Sarah001 on Wed Sep 04, 2013 2:18 pm

Lol Sebby! Laughing  If you don't get an answer phone so it puts them on the spot, you can't ignore a phone call as easily as an email! Good luck and let us know how you get on. x
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Women's Physio in London

Post  Sunflower82 on Mon Sep 09, 2013 6:09 am

Hi,
Try sixphysio in London, it's expensive but I would reccommend.

Kt

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Re: Women's physio in London??

Post  Sebby (Admin) on Mon Sep 09, 2013 6:24 am

Oh wow thanks my, they are who I'm gonna try! Sinead emailed me back Smile I'm gonna try the monument clinic as Its nearer. They are expensive but about the same as the other pelvic pain physios I've looked at. How often did you go? I think it might have to be every fortnight for me. I'm already working on techniques in Isa Herrera's book 'Ending Female Pain'.
I need some guidance though and an assessment of what my crazy pelvic floor muscles are doing! I'll put some money aside for extra sessions if I need them. It's hard to tell at this point.
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Women's Physio london

Post  Sunflower82 on Mon Sep 09, 2013 4:54 pm

Hi,
It's been a very long journey for me, I went every week for about a month then every other week! I still go every now and again. It's really hard to keep up with due to the cost and I'm going to be honest in the beginning it made things worse ( don't want to put u off) but be prepared. Make sure u do the homework it will help in the long term. Check out yes lube for when u get that far!
I went to the one in high street ken and now go to kings rd, compared to what I had on the Nhs this is so individual, when I when to the hospital it felt like you have vulvodynia and this is the treatment plan, rather than what each person needs, after the second session I was in so much pain which last three weeks! Didn't want to go bk !

If u can stick at it and give it a chance !

Good luck

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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Sep 11, 2013 9:46 am

I've got my appt at the Kensington clinic today at 1pm! Am very nervous but hopeful. I'm quite surprised how nervous I am! It's a bit of a train journey so taking a book to distract me. Got my bag with my ending female pain book, biofeedback device and dialators. My dialators are in a box I can never open lol my husband has to open it! So I've transferred them to the only pouch I could find in the house which is see through! I'm having visions of dropping my bad on the train and them rolling down the carriage! Lol
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that made me laugh

Post  zarli on Wed Sep 11, 2013 10:57 am

Hi Sebby, you made me laugh about dropping your bag. I am off to my new physio app next week, I would love to hear about yours as mine has never delt with vulvadynia before but sounds very enthusiastic to help me. Where did you get your book from called ending female pain? Ive never herd of that and would be interested in having a read. Good luck for your appointment:D 

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Re: Women's physio in London??

Post  Sebby (Admin) on Wed Sep 11, 2013 11:50 am

I ordered the book off the Internet. It's all physio based with advice on dialators, trigger points, external manual therapy, reverse kegals and normal kegals, yoga, Pilates and more! It's Ending Female Pain by Isa Herrera. Maybe also recommend the book to your physio if you like it!
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Re: Women's physio in London??

Post  Sarah001 on Wed Sep 11, 2013 5:40 pm

How did the physio appointment go Sebby?
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Re: Women's physio in London??

Post  Melian on Wed Aug 26, 2015 10:57 pm

I am seeing Dr Reid in Hampstead, and doing physio there as well!. Royal free hospital!

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Re: Women's physio in London??

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