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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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New Member, happy to see an active forum! My story..

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New Member, happy to see an active forum! My story..

Post  Jenn89 on Mon Aug 19, 2013 12:37 am

I haven't really done any research or looked into Vulvodynia much AT ALL since I was diagnosed with it almost 7 years ago. It's been such a long and frustrating thing for me to deal with, and I cry at almost all of my doctors appointments. At my last one, she thought it would be a good idea to see a counselor. I can't picture someone knowing nothing about my condition being able to help me, so I decided to go on a hunt for a site. I was pleased to see that this one seems to be pretty active.

As for my story, I don't remember ever having pain. I used to have trouble inserting tampons. I was finally able to insert one one day when I was about 16. When I went to take it out, it wouldn't come out and was extremely painful to tug on. I was at my boyfriend's (now ex) house at the time and I had to ask him to take me home. I had to tell him it was girl problems.
Then I get home and I have to talk to my Mom, who I don't really share information with anyway. Turns out, I needed to take a trip to the ER. Thank God I got there just before the last female doctor left. They had to give me a few shots of numbing medicine down there to soothe the pain. No Turns out my hymen was very thick and they referred me to see an OBGYN since I never had.
I saw my first doctor who referred me to another doctor, who referred me to another doctor, who referred me to another doctor and so on..... until finally one decided I would need surgery to have my hymen removed.
I believe my hymenectomy was in 2007.
After the surgery I remember being told to sit on ice packs, and that was very painful.
My doctors now think that the surgery was a trigger, but I was already genetically set up this way.

I've tried (I'll be making many spelling errors) lidocaine, halobetasol, compounded ointments, neurontin, an antidepressant, physical therapy, and I'm doing exercises at home. Nothing seems to help. I'm completely hopeless.
It's hard living as a 23 year old with this issue. It's not easy finding a man that will understand.
I ended up breaking things off with my then boyfriend for other reasons, but he was very understanding. And unfortunately I just found another guy who was EXTREMELY understanding, but things just didn't work out.

I guess I just need some uplifiting words and advice, but not lies. I hate when my friends try to say the right thing. They don't really understand. I appreciate their effort, but I guess I just need to talk to someone who's going through it.

Sorry it's so long. I hope some of you still take the time to read it. I really need some support!

Jenn89

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Re: New Member, happy to see an active forum! My story..

Post  Cat_in_Canada on Sun Aug 25, 2013 3:54 am

Hi Jenn,

Thanks for sharing your story. I understand how frustrating it can be to suffer from this condition. I've talked about my condition to two different psychiatrists. My current psychiatrist tries to be understanding, but I'm not sure if she really gets it. However, she is much better than the first psychiatrist I saw, who told me that my problem was that I was trying to have sex outside of marriage, and that once I was married and trying to get pregnant, everything would work out. I thought that was pretty unprofessional and offensive!

I have also had a tampon stuck inside me before. If anyone else has this problem, one thing to try before going to the ER is to drink a ton of water. For me, it is difficult for my muscles to remain tensed when I'm peeing, so that is how I got the tampon out! I don't know if that would work for everyone though.

It can be difficult to find a partner that is understanding, and I'm glad you have had some positive experiences. I think the most important thing in a relationship is to communicate what you are feeling, and to make sure that he understands that the problems you may be having with sex are due to your medical condition, not him.

Cat

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Re: New Member, happy to see an active forum! My story..

Post  tinkerbelle2 on Sat Oct 12, 2013 6:58 pm

Hi Jenn, I'm also quite new to this forum and delighted that people actually respond.

Sorry to hear you've had such a rough time. I'm 21 so not much younger than you, and it really is such an awful thing to go through. Things are stressful enough at our age.

How are things with you at the moment? I've tried most of the things that you have too and none have made any permanent improvements. Xx
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Re: New Member, happy to see an active forum! My story..

Post  Nelsonhs30 on Thu Oct 24, 2013 6:35 am

Jenn, my story is identical to yours! Also had the hymenectomy which probably triggered my vulvodynia. Hang in there! Something will work! I'm currently on gabapentin 1000mg and still waiting. Have you taking of surgery? It may be our best option, especially if nothing else was working for you. Stay strong! Personal message me if you ever wanna talk!!

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Re: New Member, happy to see an active forum! My story..

Post  mary jane on Thu Oct 24, 2013 8:22 pm

Jenn, what are your symptoms ?
So sorry to hear you have this, I know what it's like , I'm 26 and feels like I will die alone and in pain
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Re: New Member, happy to see an active forum! My story..

Post  Jenn89 on Wed Aug 27, 2014 12:02 am

Wow. I feel like a horrible person! I was so excited to find a forum that was active.. Then i became inactive. I recently hit a milestone though so I thought of this forum and told myself I needed to catch up! Things are still pretty painful. Even everyday things like driving in the car or sitting in a chair get me. The dating thing is still rough. But i have to say, every person that I was saying & told, was so understanding. It's crazy. I've been so lucky! As for my milestone, well, I finally had intercourse for the first time at age 24.
It hurt.
We used lots of lube, it wasn't so bad going in, but he said I was so tense I was pushing him back out. So I had to remind myself to relax and took deep breaths. Every time he would "flex" I would feel tons of pain! So he tried to hold back on that. He coached me through it. Finally after only about 3-5 minutes I told him I had to stop. He pulled out and I just laid there. As I laid there I felt the blood leaving my face and I started to see stars. I was about to pass out. Ugh. I don't know if it was the anxiety, the pain, or both, but it was rough.
I think if I practice more, it'll get better.

Jenn89

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Re: New Member, happy to see an active forum! My story..

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