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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
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» Hello. In Need of Advice, Please and Thank You. Long Read.
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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


New Member, happy to see an active forum! My story..

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New Member, happy to see an active forum! My story..

Post  Jenn89 on Mon Aug 19, 2013 12:37 am

I haven't really done any research or looked into Vulvodynia much AT ALL since I was diagnosed with it almost 7 years ago. It's been such a long and frustrating thing for me to deal with, and I cry at almost all of my doctors appointments. At my last one, she thought it would be a good idea to see a counselor. I can't picture someone knowing nothing about my condition being able to help me, so I decided to go on a hunt for a site. I was pleased to see that this one seems to be pretty active.

As for my story, I don't remember ever having pain. I used to have trouble inserting tampons. I was finally able to insert one one day when I was about 16. When I went to take it out, it wouldn't come out and was extremely painful to tug on. I was at my boyfriend's (now ex) house at the time and I had to ask him to take me home. I had to tell him it was girl problems.
Then I get home and I have to talk to my Mom, who I don't really share information with anyway. Turns out, I needed to take a trip to the ER. Thank God I got there just before the last female doctor left. They had to give me a few shots of numbing medicine down there to soothe the pain. No Turns out my hymen was very thick and they referred me to see an OBGYN since I never had.
I saw my first doctor who referred me to another doctor, who referred me to another doctor, who referred me to another doctor and so on..... until finally one decided I would need surgery to have my hymen removed.
I believe my hymenectomy was in 2007.
After the surgery I remember being told to sit on ice packs, and that was very painful.
My doctors now think that the surgery was a trigger, but I was already genetically set up this way.

I've tried (I'll be making many spelling errors) lidocaine, halobetasol, compounded ointments, neurontin, an antidepressant, physical therapy, and I'm doing exercises at home. Nothing seems to help. I'm completely hopeless.
It's hard living as a 23 year old with this issue. It's not easy finding a man that will understand.
I ended up breaking things off with my then boyfriend for other reasons, but he was very understanding. And unfortunately I just found another guy who was EXTREMELY understanding, but things just didn't work out.

I guess I just need some uplifiting words and advice, but not lies. I hate when my friends try to say the right thing. They don't really understand. I appreciate their effort, but I guess I just need to talk to someone who's going through it.

Sorry it's so long. I hope some of you still take the time to read it. I really need some support!

Jenn89

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Age : 28
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Re: New Member, happy to see an active forum! My story..

Post  Cat_in_Canada on Sun Aug 25, 2013 3:54 am

Hi Jenn,

Thanks for sharing your story. I understand how frustrating it can be to suffer from this condition. I've talked about my condition to two different psychiatrists. My current psychiatrist tries to be understanding, but I'm not sure if she really gets it. However, she is much better than the first psychiatrist I saw, who told me that my problem was that I was trying to have sex outside of marriage, and that once I was married and trying to get pregnant, everything would work out. I thought that was pretty unprofessional and offensive!

I have also had a tampon stuck inside me before. If anyone else has this problem, one thing to try before going to the ER is to drink a ton of water. For me, it is difficult for my muscles to remain tensed when I'm peeing, so that is how I got the tampon out! I don't know if that would work for everyone though.

It can be difficult to find a partner that is understanding, and I'm glad you have had some positive experiences. I think the most important thing in a relationship is to communicate what you are feeling, and to make sure that he understands that the problems you may be having with sex are due to your medical condition, not him.

Cat

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Re: New Member, happy to see an active forum! My story..

Post  tinkerbelle2 on Sat Oct 12, 2013 6:58 pm

Hi Jenn, I'm also quite new to this forum and delighted that people actually respond.

Sorry to hear you've had such a rough time. I'm 21 so not much younger than you, and it really is such an awful thing to go through. Things are stressful enough at our age.

How are things with you at the moment? I've tried most of the things that you have too and none have made any permanent improvements. Xx
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Re: New Member, happy to see an active forum! My story..

Post  Nelsonhs30 on Thu Oct 24, 2013 6:35 am

Jenn, my story is identical to yours! Also had the hymenectomy which probably triggered my vulvodynia. Hang in there! Something will work! I'm currently on gabapentin 1000mg and still waiting. Have you taking of surgery? It may be our best option, especially if nothing else was working for you. Stay strong! Personal message me if you ever wanna talk!!

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Re: New Member, happy to see an active forum! My story..

Post  mary jane on Thu Oct 24, 2013 8:22 pm

Jenn, what are your symptoms ?
So sorry to hear you have this, I know what it's like , I'm 26 and feels like I will die alone and in pain
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Re: New Member, happy to see an active forum! My story..

Post  Jenn89 on Wed Aug 27, 2014 12:02 am

Wow. I feel like a horrible person! I was so excited to find a forum that was active.. Then i became inactive. I recently hit a milestone though so I thought of this forum and told myself I needed to catch up! Things are still pretty painful. Even everyday things like driving in the car or sitting in a chair get me. The dating thing is still rough. But i have to say, every person that I was saying & told, was so understanding. It's crazy. I've been so lucky! As for my milestone, well, I finally had intercourse for the first time at age 24.
It hurt.
We used lots of lube, it wasn't so bad going in, but he said I was so tense I was pushing him back out. So I had to remind myself to relax and took deep breaths. Every time he would "flex" I would feel tons of pain! So he tried to hold back on that. He coached me through it. Finally after only about 3-5 minutes I told him I had to stop. He pulled out and I just laid there. As I laid there I felt the blood leaving my face and I started to see stars. I was about to pass out. Ugh. I don't know if it was the anxiety, the pain, or both, but it was rough.
I think if I practice more, it'll get better.

Jenn89

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Re: New Member, happy to see an active forum! My story..

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