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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Vitamin E? Olive oil?

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Vitamin E? Olive oil?

Post  cupcake25 on Mon Aug 19, 2013 6:19 pm

Has anyone every tried applying vitamin e or olive oil topically? I have a dry spot at the entrance of my vagina, but I'm scared to apply anything as creams/gels seem to make everything worse.
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Re: Vitamin E? Olive oil?

Post  Alana3 on Mon Aug 19, 2013 6:46 pm

I wouldn't it causes infection

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Re: Vitamin E? Olive oil?

Post  Elc88 on Mon Aug 19, 2013 7:16 pm

Someone else on here said they were using Coconut Oil as a moisturiser. I've not tried it so don't know if it will work.

I was given a tub of emulsifying ointment (also known as emulsifying wax) which I think is basically a parafin wax that you apply each day. The gyno said it keeps things nice and moisturised and it's really unlikely to cause you to have any sort of reaction.

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Re: Vitamin E? Olive oil?

Post  Sarah001 on Mon Aug 19, 2013 7:47 pm

I've found plain baby oil to be very soothing plus vaseline mixed with a drop of lavendar oil. I think the oil justs stops friction in my case but it really helps. As for infections I think we're all a bit different because I get UTIs if I use water based lubes but not if I use oils. The only way to find out if it's going to help you though is to try it seeing as we're all different!
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Re: Vitamin E? Olive oil?

Post  LalaYe on Tue Aug 20, 2013 11:42 pm

I use E oil, I think it smooth it, it is not medication so it shouldn't cause any side effect believe me I have used so much medication down there before to treat yeast and bacterial infection and etc. now I can't use anything. V E did helped me at beginning but now doesn't help anymore. I don't know about coconut oil, where can you buy it?

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...

Post  lavrose on Wed Aug 21, 2013 12:24 pm

Ive gotten a yeast infection from using coconut oil before, but it did make me feel better while I used it, vitamin e will soothe the area a bit, ive tried it before too, ive also tried primrose oil, and that also made me feel a little better, but you can get a yeast infection.
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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 2:44 pm

Thank you, ladies. I think I'm going to opt to stay away from these oils.
Lavrose, did you get a yeast infection from primrose oil? I'm taking it orally, not applying it vaginally. I hope that doesn't run a risk of infection too Shocked

LalaYe- you can get coconut oil from the grocery store (especially Whole Foods, Fresh Market). I cook with it. Be careful about using it vaginally, though. I've heard from several women it causes infections because of its anti-yeast/anti-bacterial properties.


Last edited by cupcake25 on Wed Aug 21, 2013 2:49 pm; edited 1 time in total
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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 2:46 pm

Elc88- I've never heard of emulsifying wax. Where do you get it?
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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:07 pm

Orally is fine but if it's not directly applied its probably but doing much...

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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:11 pm

Not* my doc said you can take whatever but if it's not directly applied its not gonna be that effective...

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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 3:22 pm

Thanks Alana! I'm taking the primrose oil in hopes that it will help balance stuff out and ease IBS/PMS symptoms. I've also read that over a period of time it has anti-inflammatory properties. I don't expect it to help the V pain much. I'm way too scared to put anything on topically at this point lol.
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Re: Vitamin E? Olive oil?

Post  Sebby (Admin) on Wed Aug 21, 2013 3:34 pm

Coconut oil was ok for me, it is soothing. I would only use any cream as a short term measure anything can irritate me after a while!
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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:57 pm

Yeah if it works foe your pms let me know! Im the worst

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Vitamin E

Post  let's kick this on Thu Jul 07, 2016 5:31 pm

Vitamin E oil is helping me a lot! I also have been drinking Aloe every day and going to a Chiro that also practices homeopathic natural healing. I'm going to her tomorrow she is in Bettendorf Ia. I believe she is helping me I've been pain free for a couple of weeks!!!!

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I've been pain free for months!!!!

Post  let's kick this on Mon Mar 20, 2017 7:02 pm

HI GALS!!! Sorry I haven't been on this site for a long while. For those of you still suffering Dr. Jaroslava Odvarko cured me she is worth he trip to Bettendorf, Ia. she is a Chiropractor/ homeopathic Dr. her phone # (563)359-0351. I have not had any burning or pain in months Thank God. I know I tried everything and nothing help until I went to Dr. O please share she is amazing!!!! Very Happy Very Happy Very Happy Very Happy Very Happy

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Re: Vitamin E? Olive oil?

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