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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Vitamin E? Olive oil?

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Vitamin E? Olive oil?

Post  cupcake25 on Mon Aug 19, 2013 6:19 pm

Has anyone every tried applying vitamin e or olive oil topically? I have a dry spot at the entrance of my vagina, but I'm scared to apply anything as creams/gels seem to make everything worse.
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Re: Vitamin E? Olive oil?

Post  Alana3 on Mon Aug 19, 2013 6:46 pm

I wouldn't it causes infection

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Re: Vitamin E? Olive oil?

Post  Elc88 on Mon Aug 19, 2013 7:16 pm

Someone else on here said they were using Coconut Oil as a moisturiser. I've not tried it so don't know if it will work.

I was given a tub of emulsifying ointment (also known as emulsifying wax) which I think is basically a parafin wax that you apply each day. The gyno said it keeps things nice and moisturised and it's really unlikely to cause you to have any sort of reaction.

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Re: Vitamin E? Olive oil?

Post  Sarah001 on Mon Aug 19, 2013 7:47 pm

I've found plain baby oil to be very soothing plus vaseline mixed with a drop of lavendar oil. I think the oil justs stops friction in my case but it really helps. As for infections I think we're all a bit different because I get UTIs if I use water based lubes but not if I use oils. The only way to find out if it's going to help you though is to try it seeing as we're all different!
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Re: Vitamin E? Olive oil?

Post  LalaYe on Tue Aug 20, 2013 11:42 pm

I use E oil, I think it smooth it, it is not medication so it shouldn't cause any side effect believe me I have used so much medication down there before to treat yeast and bacterial infection and etc. now I can't use anything. V E did helped me at beginning but now doesn't help anymore. I don't know about coconut oil, where can you buy it?

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...

Post  lavrose on Wed Aug 21, 2013 12:24 pm

Ive gotten a yeast infection from using coconut oil before, but it did make me feel better while I used it, vitamin e will soothe the area a bit, ive tried it before too, ive also tried primrose oil, and that also made me feel a little better, but you can get a yeast infection.
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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 2:44 pm

Thank you, ladies. I think I'm going to opt to stay away from these oils.
Lavrose, did you get a yeast infection from primrose oil? I'm taking it orally, not applying it vaginally. I hope that doesn't run a risk of infection too Shocked

LalaYe- you can get coconut oil from the grocery store (especially Whole Foods, Fresh Market). I cook with it. Be careful about using it vaginally, though. I've heard from several women it causes infections because of its anti-yeast/anti-bacterial properties.


Last edited by cupcake25 on Wed Aug 21, 2013 2:49 pm; edited 1 time in total
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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 2:46 pm

Elc88- I've never heard of emulsifying wax. Where do you get it?
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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:07 pm

Orally is fine but if it's not directly applied its probably but doing much...

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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:11 pm

Not* my doc said you can take whatever but if it's not directly applied its not gonna be that effective...

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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 3:22 pm

Thanks Alana! I'm taking the primrose oil in hopes that it will help balance stuff out and ease IBS/PMS symptoms. I've also read that over a period of time it has anti-inflammatory properties. I don't expect it to help the V pain much. I'm way too scared to put anything on topically at this point lol.
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Re: Vitamin E? Olive oil?

Post  Sebby (Admin) on Wed Aug 21, 2013 3:34 pm

Coconut oil was ok for me, it is soothing. I would only use any cream as a short term measure anything can irritate me after a while!
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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:57 pm

Yeah if it works foe your pms let me know! Im the worst

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Vitamin E

Post  let's kick this on Thu Jul 07, 2016 5:31 pm

Vitamin E oil is helping me a lot! I also have been drinking Aloe every day and going to a Chiro that also practices homeopathic natural healing. I'm going to her tomorrow she is in Bettendorf Ia. I believe she is helping me I've been pain free for a couple of weeks!!!!

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I've been pain free for months!!!!

Post  let's kick this on Mon Mar 20, 2017 7:02 pm

HI GALS!!! Sorry I haven't been on this site for a long while. For those of you still suffering Dr. Jaroslava Odvarko cured me she is worth he trip to Bettendorf, Ia. she is a Chiropractor/ homeopathic Dr. her phone # (563)359-0351. I have not had any burning or pain in months Thank God. I know I tried everything and nothing help until I went to Dr. O please share she is amazing!!!! Very Happy Very Happy Very Happy Very Happy Very Happy

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Re: Vitamin E? Olive oil?

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