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Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Vitamin E? Olive oil?

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Vitamin E? Olive oil?

Post  cupcake25 on Mon Aug 19, 2013 6:19 pm

Has anyone every tried applying vitamin e or olive oil topically? I have a dry spot at the entrance of my vagina, but I'm scared to apply anything as creams/gels seem to make everything worse.
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Re: Vitamin E? Olive oil?

Post  Alana3 on Mon Aug 19, 2013 6:46 pm

I wouldn't it causes infection

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Re: Vitamin E? Olive oil?

Post  Elc88 on Mon Aug 19, 2013 7:16 pm

Someone else on here said they were using Coconut Oil as a moisturiser. I've not tried it so don't know if it will work.

I was given a tub of emulsifying ointment (also known as emulsifying wax) which I think is basically a parafin wax that you apply each day. The gyno said it keeps things nice and moisturised and it's really unlikely to cause you to have any sort of reaction.

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Re: Vitamin E? Olive oil?

Post  Sarah001 on Mon Aug 19, 2013 7:47 pm

I've found plain baby oil to be very soothing plus vaseline mixed with a drop of lavendar oil. I think the oil justs stops friction in my case but it really helps. As for infections I think we're all a bit different because I get UTIs if I use water based lubes but not if I use oils. The only way to find out if it's going to help you though is to try it seeing as we're all different!
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Re: Vitamin E? Olive oil?

Post  LalaYe on Tue Aug 20, 2013 11:42 pm

I use E oil, I think it smooth it, it is not medication so it shouldn't cause any side effect believe me I have used so much medication down there before to treat yeast and bacterial infection and etc. now I can't use anything. V E did helped me at beginning but now doesn't help anymore. I don't know about coconut oil, where can you buy it?

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...

Post  lavrose on Wed Aug 21, 2013 12:24 pm

Ive gotten a yeast infection from using coconut oil before, but it did make me feel better while I used it, vitamin e will soothe the area a bit, ive tried it before too, ive also tried primrose oil, and that also made me feel a little better, but you can get a yeast infection.
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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 2:44 pm

Thank you, ladies. I think I'm going to opt to stay away from these oils.
Lavrose, did you get a yeast infection from primrose oil? I'm taking it orally, not applying it vaginally. I hope that doesn't run a risk of infection too Shocked

LalaYe- you can get coconut oil from the grocery store (especially Whole Foods, Fresh Market). I cook with it. Be careful about using it vaginally, though. I've heard from several women it causes infections because of its anti-yeast/anti-bacterial properties.


Last edited by cupcake25 on Wed Aug 21, 2013 2:49 pm; edited 1 time in total
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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 2:46 pm

Elc88- I've never heard of emulsifying wax. Where do you get it?
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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:07 pm

Orally is fine but if it's not directly applied its probably but doing much...

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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:11 pm

Not* my doc said you can take whatever but if it's not directly applied its not gonna be that effective...

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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 3:22 pm

Thanks Alana! I'm taking the primrose oil in hopes that it will help balance stuff out and ease IBS/PMS symptoms. I've also read that over a period of time it has anti-inflammatory properties. I don't expect it to help the V pain much. I'm way too scared to put anything on topically at this point lol.
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Re: Vitamin E? Olive oil?

Post  Sebby (Admin) on Wed Aug 21, 2013 3:34 pm

Coconut oil was ok for me, it is soothing. I would only use any cream as a short term measure anything can irritate me after a while!
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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:57 pm

Yeah if it works foe your pms let me know! Im the worst

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Vitamin E

Post  let's kick this on Thu Jul 07, 2016 5:31 pm

Vitamin E oil is helping me a lot! I also have been drinking Aloe every day and going to a Chiro that also practices homeopathic natural healing. I'm going to her tomorrow she is in Bettendorf Ia. I believe she is helping me I've been pain free for a couple of weeks!!!!

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I've been pain free for months!!!!

Post  let's kick this on Mon Mar 20, 2017 7:02 pm

HI GALS!!! Sorry I haven't been on this site for a long while. For those of you still suffering Dr. Jaroslava Odvarko cured me she is worth he trip to Bettendorf, Ia. she is a Chiropractor/ homeopathic Dr. her phone # (563)359-0351. I have not had any burning or pain in months Thank God. I know I tried everything and nothing help until I went to Dr. O please share she is amazing!!!! Very Happy Very Happy Very Happy Very Happy Very Happy

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Re: Vitamin E? Olive oil?

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