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» Vestibulectory removes 85% of pain, Birth removes 15%
Yesterday at 8:27 pm by pangea

» Recovered! It gets better!
Fri May 26, 2017 9:40 pm by mary jane

» Pain management - what works for me
Fri May 26, 2017 6:21 pm by SinclairSassy

» Vestibulitiis surgery
Mon May 22, 2017 4:18 pm by Gill

» Does it go away?
Mon May 22, 2017 2:12 pm by mary jane

» Amitriptyline and Uribel
Mon May 22, 2017 1:35 pm by SinclairSassy

» Post Full Vestibulectomy - 5 Years Later - Please Read
Mon May 22, 2017 10:12 am by flick001

» Social Security Disability Benefits
Fri May 19, 2017 8:50 pm by SinclairSassy

» Recovered from Vulvodynia
Thu May 18, 2017 4:20 pm by sarahjane1332343

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 9

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

New to the group

Fri Mar 17, 2017 9:52 pm by canuck girl

Hi Everyone
I found the site tonight, and am so pleased I did, I hadn't realised it was such  a problem, and I for one am grateful that the group exists. I recently had a really awful , well the worst one I had ever had UTI, after 4 days of antibiotics it should have cleared though. i now had this awful feeling, and sensations, very sore, burning, some strange sensations I have  that  are hard …

Comments: 1

How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

Comments: 4


Vitamin E? Olive oil?

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Vitamin E? Olive oil?

Post  cupcake25 on Mon Aug 19, 2013 6:19 pm

Has anyone every tried applying vitamin e or olive oil topically? I have a dry spot at the entrance of my vagina, but I'm scared to apply anything as creams/gels seem to make everything worse.
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Re: Vitamin E? Olive oil?

Post  Alana3 on Mon Aug 19, 2013 6:46 pm

I wouldn't it causes infection

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Re: Vitamin E? Olive oil?

Post  Elc88 on Mon Aug 19, 2013 7:16 pm

Someone else on here said they were using Coconut Oil as a moisturiser. I've not tried it so don't know if it will work.

I was given a tub of emulsifying ointment (also known as emulsifying wax) which I think is basically a parafin wax that you apply each day. The gyno said it keeps things nice and moisturised and it's really unlikely to cause you to have any sort of reaction.

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Re: Vitamin E? Olive oil?

Post  Sarah001 on Mon Aug 19, 2013 7:47 pm

I've found plain baby oil to be very soothing plus vaseline mixed with a drop of lavendar oil. I think the oil justs stops friction in my case but it really helps. As for infections I think we're all a bit different because I get UTIs if I use water based lubes but not if I use oils. The only way to find out if it's going to help you though is to try it seeing as we're all different!
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Re: Vitamin E? Olive oil?

Post  LalaYe on Tue Aug 20, 2013 11:42 pm

I use E oil, I think it smooth it, it is not medication so it shouldn't cause any side effect believe me I have used so much medication down there before to treat yeast and bacterial infection and etc. now I can't use anything. V E did helped me at beginning but now doesn't help anymore. I don't know about coconut oil, where can you buy it?

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...

Post  lavrose on Wed Aug 21, 2013 12:24 pm

Ive gotten a yeast infection from using coconut oil before, but it did make me feel better while I used it, vitamin e will soothe the area a bit, ive tried it before too, ive also tried primrose oil, and that also made me feel a little better, but you can get a yeast infection.
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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 2:44 pm

Thank you, ladies. I think I'm going to opt to stay away from these oils.
Lavrose, did you get a yeast infection from primrose oil? I'm taking it orally, not applying it vaginally. I hope that doesn't run a risk of infection too Shocked

LalaYe- you can get coconut oil from the grocery store (especially Whole Foods, Fresh Market). I cook with it. Be careful about using it vaginally, though. I've heard from several women it causes infections because of its anti-yeast/anti-bacterial properties.


Last edited by cupcake25 on Wed Aug 21, 2013 2:49 pm; edited 1 time in total
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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 2:46 pm

Elc88- I've never heard of emulsifying wax. Where do you get it?
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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:07 pm

Orally is fine but if it's not directly applied its probably but doing much...

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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:11 pm

Not* my doc said you can take whatever but if it's not directly applied its not gonna be that effective...

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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 3:22 pm

Thanks Alana! I'm taking the primrose oil in hopes that it will help balance stuff out and ease IBS/PMS symptoms. I've also read that over a period of time it has anti-inflammatory properties. I don't expect it to help the V pain much. I'm way too scared to put anything on topically at this point lol.
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Re: Vitamin E? Olive oil?

Post  Sebby (Admin) on Wed Aug 21, 2013 3:34 pm

Coconut oil was ok for me, it is soothing. I would only use any cream as a short term measure anything can irritate me after a while!
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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:57 pm

Yeah if it works foe your pms let me know! Im the worst

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Vitamin E

Post  let's kick this on Thu Jul 07, 2016 5:31 pm

Vitamin E oil is helping me a lot! I also have been drinking Aloe every day and going to a Chiro that also practices homeopathic natural healing. I'm going to her tomorrow she is in Bettendorf Ia. I believe she is helping me I've been pain free for a couple of weeks!!!!

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I've been pain free for months!!!!

Post  let's kick this on Mon Mar 20, 2017 7:02 pm

HI GALS!!! Sorry I haven't been on this site for a long while. For those of you still suffering Dr. Jaroslava Odvarko cured me she is worth he trip to Bettendorf, Ia. she is a Chiropractor/ homeopathic Dr. her phone # (563)359-0351. I have not had any burning or pain in months Thank God. I know I tried everything and nothing help until I went to Dr. O please share she is amazing!!!! Very Happy Very Happy Very Happy Very Happy Very Happy

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Re: Vitamin E? Olive oil?

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