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» Vulvadynia
Yesterday at 11:53 pm by Linda Williams

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Constant pain, I want to die.
Wed Jul 19, 2017 10:55 pm by jungleclover

» What is Vulvodynia?
Wed Jul 19, 2017 10:42 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

» Surgery Success - Still early days, but going well so far!
Sun Jul 16, 2017 8:42 pm by sarahjane1332343

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3


Vitamin E? Olive oil?

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Vitamin E? Olive oil?

Post  cupcake25 on Mon Aug 19, 2013 6:19 pm

Has anyone every tried applying vitamin e or olive oil topically? I have a dry spot at the entrance of my vagina, but I'm scared to apply anything as creams/gels seem to make everything worse.
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Re: Vitamin E? Olive oil?

Post  Alana3 on Mon Aug 19, 2013 6:46 pm

I wouldn't it causes infection

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Re: Vitamin E? Olive oil?

Post  Elc88 on Mon Aug 19, 2013 7:16 pm

Someone else on here said they were using Coconut Oil as a moisturiser. I've not tried it so don't know if it will work.

I was given a tub of emulsifying ointment (also known as emulsifying wax) which I think is basically a parafin wax that you apply each day. The gyno said it keeps things nice and moisturised and it's really unlikely to cause you to have any sort of reaction.

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Re: Vitamin E? Olive oil?

Post  Sarah001 on Mon Aug 19, 2013 7:47 pm

I've found plain baby oil to be very soothing plus vaseline mixed with a drop of lavendar oil. I think the oil justs stops friction in my case but it really helps. As for infections I think we're all a bit different because I get UTIs if I use water based lubes but not if I use oils. The only way to find out if it's going to help you though is to try it seeing as we're all different!
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Re: Vitamin E? Olive oil?

Post  LalaYe on Tue Aug 20, 2013 11:42 pm

I use E oil, I think it smooth it, it is not medication so it shouldn't cause any side effect believe me I have used so much medication down there before to treat yeast and bacterial infection and etc. now I can't use anything. V E did helped me at beginning but now doesn't help anymore. I don't know about coconut oil, where can you buy it?

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...

Post  lavrose on Wed Aug 21, 2013 12:24 pm

Ive gotten a yeast infection from using coconut oil before, but it did make me feel better while I used it, vitamin e will soothe the area a bit, ive tried it before too, ive also tried primrose oil, and that also made me feel a little better, but you can get a yeast infection.
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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 2:44 pm

Thank you, ladies. I think I'm going to opt to stay away from these oils.
Lavrose, did you get a yeast infection from primrose oil? I'm taking it orally, not applying it vaginally. I hope that doesn't run a risk of infection too Shocked

LalaYe- you can get coconut oil from the grocery store (especially Whole Foods, Fresh Market). I cook with it. Be careful about using it vaginally, though. I've heard from several women it causes infections because of its anti-yeast/anti-bacterial properties.


Last edited by cupcake25 on Wed Aug 21, 2013 2:49 pm; edited 1 time in total
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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 2:46 pm

Elc88- I've never heard of emulsifying wax. Where do you get it?
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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:07 pm

Orally is fine but if it's not directly applied its probably but doing much...

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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:11 pm

Not* my doc said you can take whatever but if it's not directly applied its not gonna be that effective...

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Re: Vitamin E? Olive oil?

Post  cupcake25 on Wed Aug 21, 2013 3:22 pm

Thanks Alana! I'm taking the primrose oil in hopes that it will help balance stuff out and ease IBS/PMS symptoms. I've also read that over a period of time it has anti-inflammatory properties. I don't expect it to help the V pain much. I'm way too scared to put anything on topically at this point lol.
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Re: Vitamin E? Olive oil?

Post  Sebby (Admin) on Wed Aug 21, 2013 3:34 pm

Coconut oil was ok for me, it is soothing. I would only use any cream as a short term measure anything can irritate me after a while!
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Re: Vitamin E? Olive oil?

Post  Alana3 on Wed Aug 21, 2013 3:57 pm

Yeah if it works foe your pms let me know! Im the worst

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Vitamin E

Post  let's kick this on Thu Jul 07, 2016 5:31 pm

Vitamin E oil is helping me a lot! I also have been drinking Aloe every day and going to a Chiro that also practices homeopathic natural healing. I'm going to her tomorrow she is in Bettendorf Ia. I believe she is helping me I've been pain free for a couple of weeks!!!!

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I've been pain free for months!!!!

Post  let's kick this on Mon Mar 20, 2017 7:02 pm

HI GALS!!! Sorry I haven't been on this site for a long while. For those of you still suffering Dr. Jaroslava Odvarko cured me she is worth he trip to Bettendorf, Ia. she is a Chiropractor/ homeopathic Dr. her phone # (563)359-0351. I have not had any burning or pain in months Thank God. I know I tried everything and nothing help until I went to Dr. O please share she is amazing!!!! Very Happy Very Happy Very Happy Very Happy Very Happy

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Re: Vitamin E? Olive oil?

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