Log in
Latest topics
Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
The Complete V treatment kit
5 posters
Page 1 of 1
The Complete V treatment kit
Hi, has anyone tried this? It contains:
Supplement dosage sheet to review with your doctor
Calcium Citrate with Magnesium - 180 caps
Grapeseed Extract - 120 caps - 60 mg
One 40 mg tube Calendula creme
Acidophilus - 100 caps
Organic Flax Seed Oil - 100 soft gels
Grapeseed Extract - 60 caps
Olive Leaf Extract - 60 caps
Woman's Ultra multi-vitamins - 180 caps
FREE The Vulvodynia Treatment Guide - a 70-page e-guide that will be emailed to you after your order is approved- a $16.95 value
Supplement dosage sheet to review with your doctor
Calcium Citrate with Magnesium - 180 caps
Grapeseed Extract - 120 caps - 60 mg
One 40 mg tube Calendula creme
Acidophilus - 100 caps
Organic Flax Seed Oil - 100 soft gels
Grapeseed Extract - 60 caps
Olive Leaf Extract - 60 caps
Woman's Ultra multi-vitamins - 180 caps
FREE The Vulvodynia Treatment Guide - a 70-page e-guide that will be emailed to you after your order is approved- a $16.95 value
Annie82- Posts : 16
Join date : 2013-04-30
Re: The Complete V treatment kit
Be careful people will sell you anything. Maybe depending on the v you have it could help maybe. That just seems like they want money.. if that we're so good docs would have it in their office. I've heard of some of that being helpful but I would be careful. Couldn't hurt tho. I just know that in my case it wouldn't have helped. Cant hurt but if it were a matter of taking vitamins this wouldnt be as frustrating as it is. Be careful with stuff like this... only because they promise a cure but if it were that easy everyone would be fixed by now....
Alana3- Posts : 1093
Join date : 2012-09-25
Re: The Complete V treatment kit
Thanks, I want to know if anyone has tried it or any of the products in the list. I do understand that everyone's symptoms and causes are different and would have followed up with further questions to any individual that replied stating which product or combinations of products they tried. At the moment, most of my pain is gone, it's just a tenderness on the right labia minora that is bothering me. My doctor has me using Premarin (Estrogen) cream that helps but has not remedied the problem. And yes - I know your warning about using creams and creating an environment that bacteria can nest in
Annie82- Posts : 16
Join date : 2013-04-30
Re: The Complete V treatment kit
I found the calendula cream burned and irritated. It has thought to have helped other women but yes it all depends on the individual!
Re: The Complete V treatment kit
I bought the v treatment awhile back. I got the calcium citrate w/ magnesium supplements, the "book" , and the calendula cream. What you find out in the "book" is that the author suffered from crystals in urine due to high oxylates. So her remedy was/is a strict low oxylate diet; mixing estrogen cream/ointment w/ the calendula cream x3/day and the oral supplements. The estrogen recommended was obviously prescription and the kind that is not supposed to promote breast cancer. I think the author of the V treatment primarily suffered from vulvar skin issues. I was disappointed at best. Because diet changes are hard for me. I am not a natural in the kitchen and the list of high I chalet foods is overwhelming. Also, when followed strictly symptoms can get severely worse due to 'dumping' before they get better if this is truly thee cause. You have to start slow. However a low oxylate diet may help some people immensely. I don't notice changes in myself w/ diet. But I find it hard to tell because how do you know how long it will take to react to things or to get better? Wishing everyone well!
Leslieg- Posts : 86
Join date : 2013-08-09
Re: The Complete V treatment kit
Spelling error in my post above 'chalet' should oxylate.
Leslieg- Posts : 86
Join date : 2013-08-09
Re: The Complete V treatment kit
I found that website ages ago too and tried everything on that list plus calendula cream and the supplements did nothing plus like Sebby the calendula cream burned and made matters worse.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: The Complete V treatment kit
Hi, please don't apologise, I like reading your posts. Was saying that I know about your aversion to creams and oils because I know how strongly you feel about that. If you see my reply to you - the first thing I said was thanks, because I always appreciate a reply!Alana3 wrote:Sorry just trying to help
Annie82- Posts : 16
Join date : 2013-04-30
Re: The Complete V treatment kit
Thank you for the replies everyone. I really appreciate it. My estrogen cream is not helping me at all. The other cream my doctor recommended that usually soothes the skin was canestan - but my skin hated it and formed a pimple like thing. Medicinal olive oil helps when I'm using dialators but nothing seems to help with the skin sensitivity. I even tried using nothing for weeks - but that just made my labia feel dry. Any suggestions, experience and advice is always appreciated. Thank you.
Annie82- Posts : 16
Join date : 2013-04-30
Re: The Complete V treatment kit
Sorry to be a pest - what were her symptoms that signaled that her urine was affecting her? Did it hurt when she urinated?Leslieg wrote:I bought the v treatment awhile back. I got the calcium citrate w/ magnesium supplements, the "book" , and the calendula cream. What you find out in the "book" is that the author suffered from crystals in urine due to high oxylates. So her remedy was/is a strict low oxylate diet; mixing estrogen cream/ointment w/ the calendula cream x3/day and the oral supplements. The estrogen recommended was obviously prescription and the kind that is not supposed to promote breast cancer. I think the author of the V treatment primarily suffered from vulvar skin issues. I was disappointed at best. Because diet changes are hard for me. I am not a natural in the kitchen and the list of high I chalet foods is overwhelming. Also, when followed strictly symptoms can get severely worse due to 'dumping' before they get better if this is truly thee cause. You have to start slow. However a low oxylate diet may help some people immensely. I don't notice changes in myself w/ diet. But I find it hard to tell because how do you know how long it will take to react to things or to get better? Wishing everyone well!
Annie82- Posts : 16
Join date : 2013-04-30
Re: The Complete V treatment kit
I will reread it and get back to you. I have to find the email (the 70 page book is emailed to you when you buy the kit). Im pretty sure I still have it saved. I remember reading that she would sometimes feel symptoms flare within hours after eating foods high in oxylates. I believe she said she would get tiny blisters on her vulvar at times; inflammation and raw feelings and clearly sex was uncomfortable.
I have similar symptoms excuding blisters. I become raw-like during a flare w/ red skin and sharp pin prick feelings and sometimes itch. the more red, the more discomfort. i still take calcium citrate but I buy it at a grocery store instead of through the v- treatment people. I haven't been able to see a pattern within myself for cause of flares. I can eat a big spinach salad and may flare 3 days later so I'm not convinced its from high oxylates. However I haven't given the low oxylate diet a fair try. I went camping this weekend and ate all kinds of 'bad for you foods' including many Oreos. I'm home now and feel a flare coming on. So now I'm wondering if chocolate is the culprit. ( high in oxylates) . It's exhausting having these thoughts constantly running through your mind and attempting to live life at the same time. I go through a lot of lidocaine. :/ I am having the North American Series Allergy Patch testing done at the end of September. This was recommended by the vulvar dermatologist that I see. I am praying that this is all caused by something I can avoid. Imagine?!?!? ive had syprome for 5 years now. i pray the solution is that simple. I switched to hypoallergenic everything years ago and nothing helped so I truly did not think this was an allergy. I thought that mine was lichen planus. At my first doctors appointment, the nurse practitioner eluded to lichen planus and I never let that diagnosis go. Thankfully the doctors disagree w/ me. that has made me happy. My biopsy 5 years ago was inconclusive but they said that happens a lot. Now I wonder if im allergic to toilet paper. I'll post on here if I learn anything new. I wish you all well!
I have similar symptoms excuding blisters. I become raw-like during a flare w/ red skin and sharp pin prick feelings and sometimes itch. the more red, the more discomfort. i still take calcium citrate but I buy it at a grocery store instead of through the v- treatment people. I haven't been able to see a pattern within myself for cause of flares. I can eat a big spinach salad and may flare 3 days later so I'm not convinced its from high oxylates. However I haven't given the low oxylate diet a fair try. I went camping this weekend and ate all kinds of 'bad for you foods' including many Oreos. I'm home now and feel a flare coming on. So now I'm wondering if chocolate is the culprit. ( high in oxylates) . It's exhausting having these thoughts constantly running through your mind and attempting to live life at the same time. I go through a lot of lidocaine. :/ I am having the North American Series Allergy Patch testing done at the end of September. This was recommended by the vulvar dermatologist that I see. I am praying that this is all caused by something I can avoid. Imagine?!?!? ive had syprome for 5 years now. i pray the solution is that simple. I switched to hypoallergenic everything years ago and nothing helped so I truly did not think this was an allergy. I thought that mine was lichen planus. At my first doctors appointment, the nurse practitioner eluded to lichen planus and I never let that diagnosis go. Thankfully the doctors disagree w/ me. that has made me happy. My biopsy 5 years ago was inconclusive but they said that happens a lot. Now I wonder if im allergic to toilet paper. I'll post on here if I learn anything new. I wish you all well!
Leslieg- Posts : 86
Join date : 2013-08-09
Re: The Complete V treatment kit
Thank you Leslieg, for your reply. I look forward to hearing about your patch test, please keep us informed.
Annie82- Posts : 16
Join date : 2013-04-30
Re: The Complete V treatment kit
For the vestibule Annie I use a drop of lavendar oil mixed in with a healthy blob of vaseline, it works great for me but I would do a test patch first just to make sure it doesn't make you worse. My skin hates canesten cream too and gets really irritated by it
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Page 1 of 1
Permissions in this forum:
You cannot reply to topics in this forum
|
|
Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer