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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Botox injections

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Botox injections

Post  KJ on Wed Aug 21, 2013 6:54 pm

Hi, I'm new to this forum but have had vulvodynia for over 5 years!! Just recently,
I received my first round of botox injections...9 days ago. Big flare up and no relief so far. Has anyone else been through the process? If so, what was the outcome? I was hopeful, but now I feel terrible and worried that nothing will work!

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 7:01 pm

Did you do that for vulovdynia or vaginismus? I heard that it could help muscles and I have heard of people having success from it. I chose not to do it and just dilated instead. Have you contacted your doctor yet, maybe it's a normal side effect? The good news is, it eventually runs its course and goes away. But maybe your body just needs to adjust and it will be better in a few weeks. Keep us updated and good luck!!

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 7:49 pm

I was diagnosed "this time" with vestibulitis... He said the botox would stop the muscle spasms...it has just made my life hard...more Vicodin and I'm just exhausted from being in pain.

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 8:14 pm

hmm... Have you tried physical therapy?? For muscles, it works pretty well! But probably don't try anything new quite yet. I had a vestibulectomy in December and went thru PT with the thought of if it didn't work, I would try botox. I only mention PT because if botox doesn't work, maybe you could try that and feel better? But that probably doesn't make you too excited to hear that. This is such a frustrating condition, because sometimes it takes a long time to find out if something works. I would say wait a few more weeks and see what happens. If it doesn't work for you keep in mind that it will eventually wear off and you can try something new after. Where are you from? Hang in there, you will find something that works for you! Smile

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 8:29 pm

Yes, I actually start physical therapy on Monday...I've done it before without success but never in combination with the botox...I wonder if a vestibulectomy is in my future...what were your symptoms? I'm in Sacramento California area.

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 8:49 pm

Mainly pain with sex. Excruciating if you have to do surgery it really isn't that bad :)and oooh cali I live in Florida

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 9:09 pm

Mine is a burning sensation all around the area..outside and in...no sex for me...wouldn't even attempt it!!

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 9:26 pm

I'm pretty much ok now the surgery really helped Smile does it hurt all the time?

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 9:30 pm

Mostly...I wake up okay and after about 2 hours I am a mess again...probably from sitting. Desk job.

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 9:39 pm

Haha I get crazy yeast crap... fun and than I flip I have an std pretty sure my boyfriend would but l like hearing that lol ugh I hate this!

Alana3

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Re: Botox injections

Post  Annie82 on Thu Aug 22, 2013 1:18 pm

KJ wrote:Mine is a burning sensation all around the area..outside and in...no sex for me...wouldn't even attempt it!!
Hi, I had a burning sensation, in and out too. It was like hot sandpaper was constantly rubbing against me. Not sure if you have a similar experience. The thing that helped me was trigger point therapy. I'm not completely better yet but the burning sensation is gone completely. Only skin sensitivity on the right side is left. I don't know anything about botox (sorry) but I hope you feel better soon.

Annie82

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Re: Botox injections

Post  KJ on Thu Aug 22, 2013 3:05 pm

Thank you...I am starting PT Monday and trigger point therapy is probably part of it...I will look forward to feeling better.

KJ

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Re: Botox injections

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