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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Botox injections

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Botox injections

Post  KJ on Wed Aug 21, 2013 6:54 pm

Hi, I'm new to this forum but have had vulvodynia for over 5 years!! Just recently,
I received my first round of botox injections...9 days ago. Big flare up and no relief so far. Has anyone else been through the process? If so, what was the outcome? I was hopeful, but now I feel terrible and worried that nothing will work!

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 7:01 pm

Did you do that for vulovdynia or vaginismus? I heard that it could help muscles and I have heard of people having success from it. I chose not to do it and just dilated instead. Have you contacted your doctor yet, maybe it's a normal side effect? The good news is, it eventually runs its course and goes away. But maybe your body just needs to adjust and it will be better in a few weeks. Keep us updated and good luck!!

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 7:49 pm

I was diagnosed "this time" with vestibulitis... He said the botox would stop the muscle spasms...it has just made my life hard...more Vicodin and I'm just exhausted from being in pain.

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 8:14 pm

hmm... Have you tried physical therapy?? For muscles, it works pretty well! But probably don't try anything new quite yet. I had a vestibulectomy in December and went thru PT with the thought of if it didn't work, I would try botox. I only mention PT because if botox doesn't work, maybe you could try that and feel better? But that probably doesn't make you too excited to hear that. This is such a frustrating condition, because sometimes it takes a long time to find out if something works. I would say wait a few more weeks and see what happens. If it doesn't work for you keep in mind that it will eventually wear off and you can try something new after. Where are you from? Hang in there, you will find something that works for you! Smile

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 8:29 pm

Yes, I actually start physical therapy on Monday...I've done it before without success but never in combination with the botox...I wonder if a vestibulectomy is in my future...what were your symptoms? I'm in Sacramento California area.

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 8:49 pm

Mainly pain with sex. Excruciating if you have to do surgery it really isn't that bad :)and oooh cali I live in Florida

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 9:09 pm

Mine is a burning sensation all around the area..outside and in...no sex for me...wouldn't even attempt it!!

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 9:26 pm

I'm pretty much ok now the surgery really helped Smile does it hurt all the time?

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 9:30 pm

Mostly...I wake up okay and after about 2 hours I am a mess again...probably from sitting. Desk job.

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 9:39 pm

Haha I get crazy yeast crap... fun and than I flip I have an std pretty sure my boyfriend would but l like hearing that lol ugh I hate this!

Alana3

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Re: Botox injections

Post  Annie82 on Thu Aug 22, 2013 1:18 pm

KJ wrote:Mine is a burning sensation all around the area..outside and in...no sex for me...wouldn't even attempt it!!
Hi, I had a burning sensation, in and out too. It was like hot sandpaper was constantly rubbing against me. Not sure if you have a similar experience. The thing that helped me was trigger point therapy. I'm not completely better yet but the burning sensation is gone completely. Only skin sensitivity on the right side is left. I don't know anything about botox (sorry) but I hope you feel better soon.

Annie82

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Re: Botox injections

Post  KJ on Thu Aug 22, 2013 3:05 pm

Thank you...I am starting PT Monday and trigger point therapy is probably part of it...I will look forward to feeling better.

KJ

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Re: Botox injections

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