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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Botox injections

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Botox injections

Post  KJ on Wed Aug 21, 2013 6:54 pm

Hi, I'm new to this forum but have had vulvodynia for over 5 years!! Just recently,
I received my first round of botox injections...9 days ago. Big flare up and no relief so far. Has anyone else been through the process? If so, what was the outcome? I was hopeful, but now I feel terrible and worried that nothing will work!

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 7:01 pm

Did you do that for vulovdynia or vaginismus? I heard that it could help muscles and I have heard of people having success from it. I chose not to do it and just dilated instead. Have you contacted your doctor yet, maybe it's a normal side effect? The good news is, it eventually runs its course and goes away. But maybe your body just needs to adjust and it will be better in a few weeks. Keep us updated and good luck!!

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 7:49 pm

I was diagnosed "this time" with vestibulitis... He said the botox would stop the muscle spasms...it has just made my life hard...more Vicodin and I'm just exhausted from being in pain.

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 8:14 pm

hmm... Have you tried physical therapy?? For muscles, it works pretty well! But probably don't try anything new quite yet. I had a vestibulectomy in December and went thru PT with the thought of if it didn't work, I would try botox. I only mention PT because if botox doesn't work, maybe you could try that and feel better? But that probably doesn't make you too excited to hear that. This is such a frustrating condition, because sometimes it takes a long time to find out if something works. I would say wait a few more weeks and see what happens. If it doesn't work for you keep in mind that it will eventually wear off and you can try something new after. Where are you from? Hang in there, you will find something that works for you! Smile

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 8:29 pm

Yes, I actually start physical therapy on Monday...I've done it before without success but never in combination with the botox...I wonder if a vestibulectomy is in my future...what were your symptoms? I'm in Sacramento California area.

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 8:49 pm

Mainly pain with sex. Excruciating if you have to do surgery it really isn't that bad :)and oooh cali I live in Florida

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 9:09 pm

Mine is a burning sensation all around the area..outside and in...no sex for me...wouldn't even attempt it!!

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 9:26 pm

I'm pretty much ok now the surgery really helped Smile does it hurt all the time?

Alana3

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Re: Botox injections

Post  KJ on Wed Aug 21, 2013 9:30 pm

Mostly...I wake up okay and after about 2 hours I am a mess again...probably from sitting. Desk job.

KJ

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Re: Botox injections

Post  Alana3 on Wed Aug 21, 2013 9:39 pm

Haha I get crazy yeast crap... fun and than I flip I have an std pretty sure my boyfriend would but l like hearing that lol ugh I hate this!

Alana3

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Re: Botox injections

Post  Annie82 on Thu Aug 22, 2013 1:18 pm

KJ wrote:Mine is a burning sensation all around the area..outside and in...no sex for me...wouldn't even attempt it!!
Hi, I had a burning sensation, in and out too. It was like hot sandpaper was constantly rubbing against me. Not sure if you have a similar experience. The thing that helped me was trigger point therapy. I'm not completely better yet but the burning sensation is gone completely. Only skin sensitivity on the right side is left. I don't know anything about botox (sorry) but I hope you feel better soon.

Annie82

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Re: Botox injections

Post  KJ on Thu Aug 22, 2013 3:05 pm

Thank you...I am starting PT Monday and trigger point therapy is probably part of it...I will look forward to feeling better.

KJ

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Re: Botox injections

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