Vulvodynia Support
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» Hope to all my suffering ladies
Anyone in the Seattle area? Gyno recommendations? Support groups? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Anyone in the Seattle area? Gyno recommendations? Support groups? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Anyone in the Seattle area? Gyno recommendations? Support groups? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Anyone in the Seattle area? Gyno recommendations? Support groups? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Anyone in the Seattle area? Gyno recommendations? Support groups? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Anyone in the Seattle area? Gyno recommendations? Support groups? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Anyone in the Seattle area? Gyno recommendations? Support groups? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Anyone in the Seattle area? Gyno recommendations? Support groups? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Anyone in the Seattle area? Gyno recommendations? Support groups? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Anyone in the Seattle area? Gyno recommendations? Support groups?

2 posters

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Anyone in the Seattle area? Gyno recommendations? Support groups? Empty Anyone in the Seattle area? Gyno recommendations? Support groups?

Post  gl987 Sun Aug 25, 2013 4:17 am

Just discovered this support group and I'm so grateful for it. Seriously a blessing to know I am not alone!

I began having a stinging/cutting/burning/throbbing pain around the opening of my vagina about 2 months ago. I'm 26 and still a virgin, and couldn't figure out what was wrong. I finally saw a gynecologist and got my test results this week. They were negative for yeast infection and bacterial vaginosis. I had a feeling it wasn't an infection because my period and discharge has been normal. My doctor doesn't have any other ideas except maybe skin sensitivity, which is something I do deal with on other parts of my body.  

I felt like I was at a dead end until I began researching about vulvodynia. The more I've been researching and going through forums, my instincts tell me this is what I have. I relate to everything everyone is saying, and it is refreshing to know I'm not making this up. I get discouraged describing the symptoms to people because they often think I'm overreacting, and it has been a lonely, frightening, and depressing journey.

Is there anyone in the Seattle area? If so, any recommendations for gynecologists who know about vulvodynia? Any support groups around this area too?

Thanks in advance!

gl987

Posts : 1
Join date : 2013-08-25

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Anyone in the Seattle area? Gyno recommendations? Support groups? Empty Re: Anyone in the Seattle area? Gyno recommendations? Support groups?

Post  Starfish24 Mon Aug 26, 2013 5:05 pm

Hey gl987, I live in the Seattle area. I'm sorry I don't have any recommendations for gynecologists; I'm currently going thru a change with my health insurance. But I would also love to join a support group, I have never met anyone with vulvodynia. My mom and sisters have no idea what Im talking about and I know there trying to be supportive but sometimes it's deppressing to talk to people who have no understanding of this condition. No one should go thru this alone. Im here if you want to talk or maybe start some type of support group in the Seattle area. Very Happy 

Starfish24

Posts : 1
Join date : 2013-08-26

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