Vulvodynia Support
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» Hope to all my suffering ladies
Botox injections EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Botox injections EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Botox injections EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Botox injections EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Botox injections EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Botox injections EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Botox injections EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Botox injections EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Botox injections EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  KJ Wed Aug 21, 2013 6:54 pm

Hi, I'm new to this forum but have had vulvodynia for over 5 years!! Just recently,
I received my first round of botox injections...9 days ago. Big flare up and no relief so far. Has anyone else been through the process? If so, what was the outcome? I was hopeful, but now I feel terrible and worried that nothing will work!

KJ

Posts : 19
Join date : 2013-08-21

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Post  Alana3 Wed Aug 21, 2013 7:01 pm

Did you do that for vulovdynia or vaginismus? I heard that it could help muscles and I have heard of people having success from it. I chose not to do it and just dilated instead. Have you contacted your doctor yet, maybe it's a normal side effect? The good news is, it eventually runs its course and goes away. But maybe your body just needs to adjust and it will be better in a few weeks. Keep us updated and good luck!!

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  KJ Wed Aug 21, 2013 7:49 pm

I was diagnosed "this time" with vestibulitis... He said the botox would stop the muscle spasms...it has just made my life hard...more Vicodin and I'm just exhausted from being in pain.

KJ

Posts : 19
Join date : 2013-08-21

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Post  Alana3 Wed Aug 21, 2013 8:14 pm

hmm... Have you tried physical therapy?? For muscles, it works pretty well! But probably don't try anything new quite yet. I had a vestibulectomy in December and went thru PT with the thought of if it didn't work, I would try botox. I only mention PT because if botox doesn't work, maybe you could try that and feel better? But that probably doesn't make you too excited to hear that. This is such a frustrating condition, because sometimes it takes a long time to find out if something works. I would say wait a few more weeks and see what happens. If it doesn't work for you keep in mind that it will eventually wear off and you can try something new after. Where are you from? Hang in there, you will find something that works for you! Smile

Alana3

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Post  KJ Wed Aug 21, 2013 8:29 pm

Yes, I actually start physical therapy on Monday...I've done it before without success but never in combination with the botox...I wonder if a vestibulectomy is in my future...what were your symptoms? I'm in Sacramento California area.

KJ

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Join date : 2013-08-21

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Post  Alana3 Wed Aug 21, 2013 8:49 pm

Mainly pain with sex. Excruciating if you have to do surgery it really isn't that bad :)and oooh cali I live in Florida

Alana3

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Post  KJ Wed Aug 21, 2013 9:09 pm

Mine is a burning sensation all around the area..outside and in...no sex for me...wouldn't even attempt it!!

KJ

Posts : 19
Join date : 2013-08-21

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Post  Alana3 Wed Aug 21, 2013 9:26 pm

I'm pretty much ok now the surgery really helped Smile does it hurt all the time?

Alana3

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Post  KJ Wed Aug 21, 2013 9:30 pm

Mostly...I wake up okay and after about 2 hours I am a mess again...probably from sitting. Desk job.

KJ

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Post  Alana3 Wed Aug 21, 2013 9:39 pm

Haha I get crazy yeast crap... fun and than I flip I have an std pretty sure my boyfriend would but l like hearing that lol ugh I hate this!

Alana3

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Post  Annie82 Thu Aug 22, 2013 1:18 pm

KJ wrote:Mine is a burning sensation all around the area..outside and in...no sex for me...wouldn't even attempt it!!
Hi, I had a burning sensation, in and out too. It was like hot sandpaper was constantly rubbing against me. Not sure if you have a similar experience. The thing that helped me was trigger point therapy. I'm not completely better yet but the burning sensation is gone completely. Only skin sensitivity on the right side is left. I don't know anything about botox (sorry) but I hope you feel better soon.

Annie82

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Join date : 2013-04-30

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Post  KJ Thu Aug 22, 2013 3:05 pm

Thank you...I am starting PT Monday and trigger point therapy is probably part of it...I will look forward to feeling better.

KJ

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