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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Pain medication

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Pain medication

Post  KJ on Fri Aug 23, 2013 3:25 am

I, like many of you, have been on amitripaline, nortriptaline, tramadol, Valium, Effexor, etc.... Right now the ONLY thing that works for me is Vicodin! I hate taking it too because I know it isn't good for me...but it works! There is a fine line in the medication world and I am just really scared that even though it is what allows me to work and be productive, that it is doing me more harm than good. Is anybody else having these internal fights with themselves about pain meds?

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Re: Pain medication

Post  EviE°Bee on Wed Oct 02, 2013 3:38 am

Vicodin seemed to give me relief for a lil while but I couldnt continue to take it because i'm taking gabapentin. :-\ i feel your pain though i dont like taking meds, period. I would take the vicodin only when i really needed it, if it was unbearable. My Dr said all these meds have some effect, most negative in the long run. I feel your pain, literally. We gotta keep going. Research, read others stories, and keep trying everything out there. I hope this helped a little. Muah. Good luck babe.

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Re: Pain medication

Post  mary jane on Tue Oct 08, 2013 10:09 pm

KJ, with all of those chemicals going inside of your body, try to eat as healthy as possible !
and add supplements, manuka honey umf 5, some magnesium...magnesium is pretty good for nerve pain !
drink smoothies from time to time, salads, kale, etc.
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Re: Pain medication

Post  Takver on Sun Oct 13, 2013 3:10 pm

First of all, congratulations on finding a painkiller that works! It's normal to feel nervous about taking strong pain meds. You can have quite a bit of control over it, however. The things to be concerned about are:

a) Side effects.

b) Liver damage from the acetaminophen.

c) Tolerance to the hydrocodone.

d) Addiction to the hydrocodone.

Let's deal with the acetaminophen first. In the UK, where it's known as paracetamol, they go to great effort to make sure that people are aware that it doesn't take much to cause damage, sell it in smaller quantities, flag up all meds containing it and so forth. In the US, the drug companies have a tight hold on this and do their best to make sure that patients aren't aware of the dangers. Check what meds you're taking that contain acetaminophen, and make sure that you don't get more than a total of 4g per day. If you're small (I only weigh about 110lb, for instance) or have other reasons to worry about your liver (e.g. high alcohol intake - although if you're drinking a lot of alcohol, mixing that with pain meds is a whole new issue), limit it to 3g.

Side effects. I've never tried hydrocodone, it's not used in the UK, but it sounds very similar to codeine. Anyway, just keep an eye out for those, and if they occur, talk about them with your doctor to see what can be done. If you get constipation, for instance, you might find that taking extra magnesium helps, or two tablespoons of whole linseed (flaxseed) taken every morning with two full glasses of water. The side effects tend to be irksome rather than dangerous, but keep an eye out for dizziness and impaired concentration -if affected, do not drink, drive or operate heavy machinery, etc.

Tolerance and addiction - not actually the same thing! Tolerance means that you find that the same dose is no longer working for you after a while, and you need to move up to a higher dose to get the same effect. With some medications, such as amitriptyline and gabapentin, there is a wide range of therapeutic doses, so this may be OK. With opioids, not so much. If you are on the maximum dose and you find that it's no longer doing much for the pain, go and have a serious chat with your doctor. You may find that switching to a stronger opioid helps, or combining meds, but at this stage it is very much something that needs to be handled by a doctor, preferably a pain specialist. You may also just have to give up on that med, or take it on an on-off schedule so that you don't build up a tolerance to it.

Addiction means that you can't stop taking the drug, or have serious problems when you try to do so. This is a danger with all opioids, and I also had very nasty withdrawal from gabapentin. The addiction doesn't have to be psychological. This is the main danger to watch out for. I'd suggest that you start keeping a diary of when you take the vicodin, and how often a day you take it. Ask your doctor how long they reckon it would be safe to take it for at a stretch without risking problems of this nature. If they say that you can take it indefinitely, find another doctor. Yes, some people can take opioids long-term without having problems, but it absolutely should not be the default assumption. Try a week, stop, see how you do. Then two weeks. You may not need to take the meds every day, which is much better for you if you can manage it.

For instance, I've taken the highest dose of co-codamol (codeine and acetaminophen) for a month solid on two occasions, both times combined with tramadol. I was in extreme pain due to acute calcific tendinitis in my shoulder. The first time I was stoned off my face, itchy, constipated, and generally out of it, but I was absolutely fine when I stopped. The second time, I was jittery and couldn't sleep much for the next week. Thankfully I've not had such long episodes of such acute pain since then, and the longest I think I've taken the highest dose for every day in a row is a week or two.

Don't worry about approaching your doctor with your concerns. A good doctor will see it as a sign of a responsible patient, and will be happy to work with you. It also makes it easier to get stronger meds if you ever need them. Building up a good relationship with your doctor is essential when you have chronic pain.
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Nocturnal panic attack from co-codamol

Post  mary jane on Mon Oct 14, 2013 9:43 am

This is a warning to any potential co-codamol user.
After a one-week break from this drug, I took half a pill (I emptied half of a capsule) before bed Saturday night because I had horrible pain.
At 3 AM I woke up suddenly, I couldn't feel my left arm. MY legs were shaking and was feeling very light-headed.
I get up, feel like fainting, feel like something is seriously wrong. After crying out for an ambulance, I get even worse, room is spinning, my legs are spasming and shaking like no tomorrow.
Ambulance arrives, they tell me I'm having a panic attack Sad
I've never heard of a sudden panic attack manifesting so awful, I thought I was going to die Sad
Two days later and I still feel very dizzy.
I'm never taking these again for my ocasional pains.
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Re: Pain medication

Post  Alana3 on Mon Oct 14, 2013 2:51 pm

If you ever have another panic attack, try taking a Benadryl, they calm you down. But beware, any painkillers can cause that to happen, they all pretty much say anxiety on them. I try not taking anything stronger than Advil, I never felt that it really helped my pain, they just made me drowsy where I slept thru the pain. What a way of life..

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Re: Pain medication

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