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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Pain medication

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Pain medication

Post  KJ on Fri Aug 23, 2013 3:25 am

I, like many of you, have been on amitripaline, nortriptaline, tramadol, Valium, Effexor, etc.... Right now the ONLY thing that works for me is Vicodin! I hate taking it too because I know it isn't good for me...but it works! There is a fine line in the medication world and I am just really scared that even though it is what allows me to work and be productive, that it is doing me more harm than good. Is anybody else having these internal fights with themselves about pain meds?

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Re: Pain medication

Post  EviE°Bee on Wed Oct 02, 2013 3:38 am

Vicodin seemed to give me relief for a lil while but I couldnt continue to take it because i'm taking gabapentin. :-\ i feel your pain though i dont like taking meds, period. I would take the vicodin only when i really needed it, if it was unbearable. My Dr said all these meds have some effect, most negative in the long run. I feel your pain, literally. We gotta keep going. Research, read others stories, and keep trying everything out there. I hope this helped a little. Muah. Good luck babe.

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Re: Pain medication

Post  mary jane on Tue Oct 08, 2013 10:09 pm

KJ, with all of those chemicals going inside of your body, try to eat as healthy as possible !
and add supplements, manuka honey umf 5, some magnesium...magnesium is pretty good for nerve pain !
drink smoothies from time to time, salads, kale, etc.
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Re: Pain medication

Post  Takver on Sun Oct 13, 2013 3:10 pm

First of all, congratulations on finding a painkiller that works! It's normal to feel nervous about taking strong pain meds. You can have quite a bit of control over it, however. The things to be concerned about are:

a) Side effects.

b) Liver damage from the acetaminophen.

c) Tolerance to the hydrocodone.

d) Addiction to the hydrocodone.

Let's deal with the acetaminophen first. In the UK, where it's known as paracetamol, they go to great effort to make sure that people are aware that it doesn't take much to cause damage, sell it in smaller quantities, flag up all meds containing it and so forth. In the US, the drug companies have a tight hold on this and do their best to make sure that patients aren't aware of the dangers. Check what meds you're taking that contain acetaminophen, and make sure that you don't get more than a total of 4g per day. If you're small (I only weigh about 110lb, for instance) or have other reasons to worry about your liver (e.g. high alcohol intake - although if you're drinking a lot of alcohol, mixing that with pain meds is a whole new issue), limit it to 3g.

Side effects. I've never tried hydrocodone, it's not used in the UK, but it sounds very similar to codeine. Anyway, just keep an eye out for those, and if they occur, talk about them with your doctor to see what can be done. If you get constipation, for instance, you might find that taking extra magnesium helps, or two tablespoons of whole linseed (flaxseed) taken every morning with two full glasses of water. The side effects tend to be irksome rather than dangerous, but keep an eye out for dizziness and impaired concentration -if affected, do not drink, drive or operate heavy machinery, etc.

Tolerance and addiction - not actually the same thing! Tolerance means that you find that the same dose is no longer working for you after a while, and you need to move up to a higher dose to get the same effect. With some medications, such as amitriptyline and gabapentin, there is a wide range of therapeutic doses, so this may be OK. With opioids, not so much. If you are on the maximum dose and you find that it's no longer doing much for the pain, go and have a serious chat with your doctor. You may find that switching to a stronger opioid helps, or combining meds, but at this stage it is very much something that needs to be handled by a doctor, preferably a pain specialist. You may also just have to give up on that med, or take it on an on-off schedule so that you don't build up a tolerance to it.

Addiction means that you can't stop taking the drug, or have serious problems when you try to do so. This is a danger with all opioids, and I also had very nasty withdrawal from gabapentin. The addiction doesn't have to be psychological. This is the main danger to watch out for. I'd suggest that you start keeping a diary of when you take the vicodin, and how often a day you take it. Ask your doctor how long they reckon it would be safe to take it for at a stretch without risking problems of this nature. If they say that you can take it indefinitely, find another doctor. Yes, some people can take opioids long-term without having problems, but it absolutely should not be the default assumption. Try a week, stop, see how you do. Then two weeks. You may not need to take the meds every day, which is much better for you if you can manage it.

For instance, I've taken the highest dose of co-codamol (codeine and acetaminophen) for a month solid on two occasions, both times combined with tramadol. I was in extreme pain due to acute calcific tendinitis in my shoulder. The first time I was stoned off my face, itchy, constipated, and generally out of it, but I was absolutely fine when I stopped. The second time, I was jittery and couldn't sleep much for the next week. Thankfully I've not had such long episodes of such acute pain since then, and the longest I think I've taken the highest dose for every day in a row is a week or two.

Don't worry about approaching your doctor with your concerns. A good doctor will see it as a sign of a responsible patient, and will be happy to work with you. It also makes it easier to get stronger meds if you ever need them. Building up a good relationship with your doctor is essential when you have chronic pain.
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Nocturnal panic attack from co-codamol

Post  mary jane on Mon Oct 14, 2013 9:43 am

This is a warning to any potential co-codamol user.
After a one-week break from this drug, I took half a pill (I emptied half of a capsule) before bed Saturday night because I had horrible pain.
At 3 AM I woke up suddenly, I couldn't feel my left arm. MY legs were shaking and was feeling very light-headed.
I get up, feel like fainting, feel like something is seriously wrong. After crying out for an ambulance, I get even worse, room is spinning, my legs are spasming and shaking like no tomorrow.
Ambulance arrives, they tell me I'm having a panic attack Sad
I've never heard of a sudden panic attack manifesting so awful, I thought I was going to die Sad
Two days later and I still feel very dizzy.
I'm never taking these again for my ocasional pains.
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Re: Pain medication

Post  Alana3 on Mon Oct 14, 2013 2:51 pm

If you ever have another panic attack, try taking a Benadryl, they calm you down. But beware, any painkillers can cause that to happen, they all pretty much say anxiety on them. I try not taking anything stronger than Advil, I never felt that it really helped my pain, they just made me drowsy where I slept thru the pain. What a way of life..

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Re: Pain medication

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