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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Pain medication

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Pain medication

Post  KJ on Fri Aug 23, 2013 3:25 am

I, like many of you, have been on amitripaline, nortriptaline, tramadol, Valium, Effexor, etc.... Right now the ONLY thing that works for me is Vicodin! I hate taking it too because I know it isn't good for me...but it works! There is a fine line in the medication world and I am just really scared that even though it is what allows me to work and be productive, that it is doing me more harm than good. Is anybody else having these internal fights with themselves about pain meds?

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Re: Pain medication

Post  EviEĀ°Bee on Wed Oct 02, 2013 3:38 am

Vicodin seemed to give me relief for a lil while but I couldnt continue to take it because i'm taking gabapentin. :-\ i feel your pain though i dont like taking meds, period. I would take the vicodin only when i really needed it, if it was unbearable. My Dr said all these meds have some effect, most negative in the long run. I feel your pain, literally. We gotta keep going. Research, read others stories, and keep trying everything out there. I hope this helped a little. Muah. Good luck babe.

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Re: Pain medication

Post  mary jane on Tue Oct 08, 2013 10:09 pm

KJ, with all of those chemicals going inside of your body, try to eat as healthy as possible !
and add supplements, manuka honey umf 5, some magnesium...magnesium is pretty good for nerve pain !
drink smoothies from time to time, salads, kale, etc.
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Re: Pain medication

Post  Takver on Sun Oct 13, 2013 3:10 pm

First of all, congratulations on finding a painkiller that works! It's normal to feel nervous about taking strong pain meds. You can have quite a bit of control over it, however. The things to be concerned about are:

a) Side effects.

b) Liver damage from the acetaminophen.

c) Tolerance to the hydrocodone.

d) Addiction to the hydrocodone.

Let's deal with the acetaminophen first. In the UK, where it's known as paracetamol, they go to great effort to make sure that people are aware that it doesn't take much to cause damage, sell it in smaller quantities, flag up all meds containing it and so forth. In the US, the drug companies have a tight hold on this and do their best to make sure that patients aren't aware of the dangers. Check what meds you're taking that contain acetaminophen, and make sure that you don't get more than a total of 4g per day. If you're small (I only weigh about 110lb, for instance) or have other reasons to worry about your liver (e.g. high alcohol intake - although if you're drinking a lot of alcohol, mixing that with pain meds is a whole new issue), limit it to 3g.

Side effects. I've never tried hydrocodone, it's not used in the UK, but it sounds very similar to codeine. Anyway, just keep an eye out for those, and if they occur, talk about them with your doctor to see what can be done. If you get constipation, for instance, you might find that taking extra magnesium helps, or two tablespoons of whole linseed (flaxseed) taken every morning with two full glasses of water. The side effects tend to be irksome rather than dangerous, but keep an eye out for dizziness and impaired concentration -if affected, do not drink, drive or operate heavy machinery, etc.

Tolerance and addiction - not actually the same thing! Tolerance means that you find that the same dose is no longer working for you after a while, and you need to move up to a higher dose to get the same effect. With some medications, such as amitriptyline and gabapentin, there is a wide range of therapeutic doses, so this may be OK. With opioids, not so much. If you are on the maximum dose and you find that it's no longer doing much for the pain, go and have a serious chat with your doctor. You may find that switching to a stronger opioid helps, or combining meds, but at this stage it is very much something that needs to be handled by a doctor, preferably a pain specialist. You may also just have to give up on that med, or take it on an on-off schedule so that you don't build up a tolerance to it.

Addiction means that you can't stop taking the drug, or have serious problems when you try to do so. This is a danger with all opioids, and I also had very nasty withdrawal from gabapentin. The addiction doesn't have to be psychological. This is the main danger to watch out for. I'd suggest that you start keeping a diary of when you take the vicodin, and how often a day you take it. Ask your doctor how long they reckon it would be safe to take it for at a stretch without risking problems of this nature. If they say that you can take it indefinitely, find another doctor. Yes, some people can take opioids long-term without having problems, but it absolutely should not be the default assumption. Try a week, stop, see how you do. Then two weeks. You may not need to take the meds every day, which is much better for you if you can manage it.

For instance, I've taken the highest dose of co-codamol (codeine and acetaminophen) for a month solid on two occasions, both times combined with tramadol. I was in extreme pain due to acute calcific tendinitis in my shoulder. The first time I was stoned off my face, itchy, constipated, and generally out of it, but I was absolutely fine when I stopped. The second time, I was jittery and couldn't sleep much for the next week. Thankfully I've not had such long episodes of such acute pain since then, and the longest I think I've taken the highest dose for every day in a row is a week or two.

Don't worry about approaching your doctor with your concerns. A good doctor will see it as a sign of a responsible patient, and will be happy to work with you. It also makes it easier to get stronger meds if you ever need them. Building up a good relationship with your doctor is essential when you have chronic pain.
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Nocturnal panic attack from co-codamol

Post  mary jane on Mon Oct 14, 2013 9:43 am

This is a warning to any potential co-codamol user.
After a one-week break from this drug, I took half a pill (I emptied half of a capsule) before bed Saturday night because I had horrible pain.
At 3 AM I woke up suddenly, I couldn't feel my left arm. MY legs were shaking and was feeling very light-headed.
I get up, feel like fainting, feel like something is seriously wrong. After crying out for an ambulance, I get even worse, room is spinning, my legs are spasming and shaking like no tomorrow.
Ambulance arrives, they tell me I'm having a panic attack Sad
I've never heard of a sudden panic attack manifesting so awful, I thought I was going to die Sad
Two days later and I still feel very dizzy.
I'm never taking these again for my ocasional pains.
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Re: Pain medication

Post  Alana3 on Mon Oct 14, 2013 2:51 pm

If you ever have another panic attack, try taking a Benadryl, they calm you down. But beware, any painkillers can cause that to happen, they all pretty much say anxiety on them. I try not taking anything stronger than Advil, I never felt that it really helped my pain, they just made me drowsy where I slept thru the pain. What a way of life..

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Re: Pain medication

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