Log in

I forgot my password

Latest topics
» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


just diagnosed and scared

View previous topic View next topic Go down

just diagnosed and scared

Post  whiteroses117 on Fri Aug 23, 2013 9:30 pm

Hi everyone,

My name was Kim, I was just recently diagnosed with vulvodynia. I've been also living with IC and IBS, but the vulvodynia is the worst. I have unprovoked V, and it currently hurts so much. I am laying here with ice, and it is helping a bit, but it will just go back to hurting after I have to pee again. This flare came out of nowhere- just went to the bathroom and it burned ever since. Sex is usually painful- I can rarely have sex with my boyfriend without wanting it to stop. I have listed what I'm using for all my disorders down below. I would love to talk to people who are going through this too; I have been very depressed and very scared and I don't know if I'll ever find relief. I would love to hear any success stories.

Thank you all for listening!

-Amitriptyline: 10 mg a night- hasn't helped yet
-Estrace: vaginal cream used 2/3 times a week- just messy and it burns when it comes out
-Neogyn: I started this about two weeks ago and it still burns when I put it on. Says it takes about 6-8 weeks to work, so I'm trying to be patient.
-Aloe pills: Unfortunately, these make me very nauseous. I need to be more regular with them, but I dead taking them.
-IC diet: I try to stick as close to it as I possibly can
-Imodium: I have bad IBS symptoms so I often need to take Imodium.

I hope to hear from you soon <3 -Kim

whiteroses117

Posts : 3
Join date : 2013-08-15

View user profile

Back to top Go down

Re: just diagnosed and scared

Post  KJ on Sat Aug 24, 2013 3:26 am

Hi Kim,
I know how you feel...it is such a painful and lonely disease. There are a lot of success stories on this site and new treatment ideas. I wish I could share a success story, but unfortunately I'm in your same boat. My doctor just tried a round of botox injections....I am in day 11 and still waiting for relief...I pray it works.
Glad you found us....you aren't alone anymore!

KJ

Posts : 19
Join date : 2013-08-21

View user profile

Back to top Go down

Re: just diagnosed and scared

Post  Sarah001 on Sat Aug 24, 2013 1:38 pm

Hi Kim,
I just wanted to say the dose of Ami you're on is very low, what they usually do with that one is increase the dosage by 10mg a week until 50mg and then see if it's helping at all. If it isn't they would then probably give either Gabapentin or Lyrica so it might be worth asking about increasing the dose to begin with. I'd also read "When Sex Hurts" and see if you can establish why the problem has occurred so you know better how to treat it. it's a really good book and covers all the known possible causes which is incredibly helpful when trying to put together a treatment plan. I know for practically everyone on here it seemed to arrive out of nowhere but often there are some other signs and symptoms before the V that can lead you in the right direction. For example alot of the ladies with tight pelvic floors had symptoms such as having to push urine out, constipation, back pain etc or those with hormonal issues have skipped periods or had just started a different birth control pill. It's a good idea to read up either in that book or online about causes and see what you can come up with.

avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

your not alone

Post  zarli on Sat Aug 24, 2013 2:14 pm

Hi Kim
Your not alone, since joining this forum I have felt so much better, just reading the positive comments is wonderful. There is always hope and new things to try. I agree with every thing Sarah said to you. And thank you Sarah you seem to answer every one with such positive remarks and it really makes a difference, you are appreciated. I am a true believer in that "Nothing ever stays the same", as much as you can be in pain one day you can have relief the next day. Up the amitriptyline Kim under guidance with your Doctor, I went up to 35mg and my pain went over night and that lasted for 4 years. Under Sarah advise Im trying to find the source of the pain now and I will never give up!!

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: just diagnosed and scared

Post  Sarah001 on Sat Aug 24, 2013 9:33 pm

Aww bless you zarli and keep trying to find that cause and eliminate it! I think proactive is the only way with health problems and the more clued up you get about it the better choices you make. Good luck girls! Very Happy 
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Thank you

Post  whiteroses117 on Mon Aug 26, 2013 8:15 pm

Thank you all for responding. I wish you all the best of luck. It means a lot to me to talk to people who are in my shoes. I'm going back to the doctor in a few weeks; hopefully he will up my dosage of Amitriptyline. Neogyn has been been burning, so I don't know if I should continue with it.

I am having a very bad flare for the last couple of days. I don't know if it's an actual flare or a yeast infection, just because it is so bad. I'm swollen, red, itchy, and it burns like crazy. I can't even wipe without it hurting. My urine has been burning it as well. Is this a flare? How long do flares last? I'm so new to all of this.

Again, thank you all for responding. I am very scared, and your responses really do help.

<3 Kim

whiteroses117

Posts : 3
Join date : 2013-08-15

View user profile

Back to top Go down

go to doctor

Post  zarli on Mon Aug 26, 2013 9:10 pm

Kim you need to see your doctor NOW not in a few weeks, your ami needs to go up now so it can help get rid of your symptoms and control the pain. When pain is controlled your symptoms will be relieved I believe. Try to not think bad things don't be scared there is help you just need to get to the doctors

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

also...

Post  zarli on Mon Aug 26, 2013 10:25 pm

also you should try BEPANTHEN ointment it is a nappy rash cream you will find it in your supermarket in the baby aisle it acts like a barrier and it is soothing, it will help stop your wee from stinging, and while your there try Johnsons baby soap in the baby aisle, its the only soap I can use. I hope this helps you.

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

zarli

Post  whiteroses117 on Mon Aug 26, 2013 10:52 pm

I called and I'm going in next week. I'm hoping he ups the dosage. Have you ever confused a flare with a yeast infection? I can't even have pants on (or anything touching the area) today. Thank god I have off today!

Also, thank you for the soap tip!! I use Aveeno soap- doesn't burn me. I'll try Johnson's though- may be even better!

whiteroses117

Posts : 3
Join date : 2013-08-15

View user profile

Back to top Go down

good news

Post  zarli on Tue Aug 27, 2013 11:10 am

Glad you got into your doctor tell him you have researched medication and 35 mg is what works be assertive with dr I always find it helps even though I get intimidated being assertive but its worth it!! I have had lots of flare ups and yes I used to get them checked for yeast infection which always proved negative!! Please let me know how you get on and don't forget to try the cream if you haven't already kindest regards Zarli

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: just diagnosed and scared

Post  Sebby (Admin) on Thu Aug 29, 2013 4:05 pm

Welcome to the forum, as you can see you are definitely not alone. We are all in or all have been where you are now. I am on lyrica and had to research that myself and ask for it! I am also doing pelvic floor training (trying a new routine)
Don't give up, things can and will improve. It's about finding the right treatment for you x
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

how are you going?

Post  zarli on Tue Sep 10, 2013 8:59 am

Hi Kim just wondering how you are going? Hope you have had some relief.

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: just diagnosed and scared

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum