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    » Acupuncture advice please
    Today at 2:25 am by ryn207

    » New and need some help
    Today at 12:49 am by Sad

    » Please tell me this can get better
    Mon Feb 19, 2018 2:10 am by anon99

    » Lichen Sclerosus
    Fri Feb 16, 2018 2:47 am by ryn207

    » MAY HAVE FOUND A CURE- PLEASE READ
    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    » my rock bottom, psychological effects of vulvodynia, I told him he can leave me
    Wed Feb 14, 2018 6:43 am by renegade_magdalena

    » Some interesting information about nerve pain in general
    Wed Feb 14, 2018 3:58 am by Athena

    » Sore after using dilator for first time in a year
    Wed Feb 14, 2018 3:45 am by Athena

    » What helped me
    Wed Feb 14, 2018 3:38 am by Athena

    New and need some help

    Wed Feb 21, 2018 4:30 pm by LindafromNJ

    New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

    Comments: 1

    MAY HAVE FOUND A CURE- PLEASE READ

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


    after having a vestibulectomy with no success, I decided to visit …

    Comments: 0

    NO PAIN DURING SEX

    Sat Feb 10, 2018 12:18 am by rockylife

    I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

    Comments: 2

    Newby not sure where to turn

    Thu Feb 01, 2018 3:32 pm by Cerjo87

    Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 8

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 4

    Vulvodynia from #metoo media coverage

    Thu Jan 25, 2018 9:01 pm by dooleyhornberg

    I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

    Comments: 0

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4


    New and terrified

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    New and terrified

    Post  Claud92 on Mon Aug 26, 2013 7:48 pm

    Hi, I'm new here but this has been a problem I've had for about 3 years now.

    For me the pain is at about 4-6 o'clock and ranges from being "uncomfortable" to mind bendingly awful during intercourse.

    Personally I've got to the stage now where I'm just angry, I feel its robed me of my rights and feel less of a woman because I can't do the whole sex thing. It's something I think about/am aware of every single day and I have no way of fixing it.

    My boyfriend is amazing, we've only been together 6 months but I only got the nerve to go to the doctor since I've been with him (it went from being tolerable to terrible very fast). I we've managed to have sex on a handful of occasions, but only once pain free - I cried (which scared the shit out of him)

    Is there any hope for me?

    I'm in the UK so have the NHS to support me, but this isn't something most 20 year olds have, or if they do they dont talk about it.

    Does anyone have any advice on home remedies I can try for now?
    Thanks, Claud

    Claud92

    Posts : 1
    Join date : 2013-08-26
    Location : Birmingham, UK

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    Re: New and terrified

    Post  Alana3 on Mon Aug 26, 2013 8:05 pm

    Hey!

    Yes, there are so many things you can try! It helps to have an understanding boyfriend-mine is too! For the meantime, I used to do baking soda and make a paste and put it down there, it relieved the sting. There are a lot of prescriptions you can take ranging from nerves to antidepressants. Also, topicals! I had a topical mixed with gabapentin and amitryptilene (sp?) which worked for a little while, but quit. I actually just had the surgery in December and had sex pain free the first time this month! So definitely do not let anyone tell you there is no cure- there is, it just takes a while to find it (remember everyone is different so what worked/was appropriate for me, may or may not do it for you). Some people here have tried oils, I think it could work, but my argument with that as my doctor explained to me that they really only work when applied to the problem area and can lead to infections because they trap the bacteria and such inside. But hey you never know, I know a lot of people swear by coconut oil! Another thing that worked for me was acupuncture, but I had to find someone who was willing to research, and it was great (possibly massage too). Finally, physical therapy helps pretty well too, I just recently stopped going because I was fed up with not feeling normal, but I feel that I can have sex, and its working for me. Also, botox is said to help, but I would really research that before I tried it, the good news with botox tho is that if it doesn't work, it eventually wears off and you were just like you were before (the bad news is if it works, you get to go and do it all over again lol).

    So my point here is that where it is extremely overwhelming, there is definitely hope for you to feel better, it just takes a lot of experimenting and patience, which isn't always the easiest when you feel awful Sad I hope you feel better soon though, and if you have any questions, I can try and help. But slow down, you are going to be OK just take it day by day and find out as much as you can along the ride. I swear I know more about the vagina than most medical students lol.

    Alana3

    Posts : 1086
    Join date : 2012-09-25

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