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    » Post Vestibulectomy
    Tue Aug 22, 2017 6:48 pm by JGD13

    » Vestibulectomy
    Fri Aug 18, 2017 12:39 pm by Hopeitworks

    » Anyone been to see Dr.Claire Bailey in Birmingham?
    Tue Aug 15, 2017 6:36 pm by Kezz

    » Recently Diagnosed.... Help!
    Tue Aug 15, 2017 2:57 pm by amyhp

    » Discomfort from my own liquids
    Sun Aug 13, 2017 4:27 am by Hopeitworks

    » Anyone else have burning on the front of thighs?
    Sun Aug 13, 2017 2:20 am by Hopeitworks

    » Partial Vestibulectomy
    Sun Aug 13, 2017 1:38 am by infinitelywondering

    » Anyone being treated by Drexel University???
    Sat Aug 12, 2017 8:50 pm by Hopeitworks

    » Post Vestibulectomy Pain !!!
    Sat Aug 12, 2017 8:00 pm by sj17

    Post Vestibulectomy

    Thu Aug 03, 2017 6:15 pm by infinitelywondering


    I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

    However, today I came home and have done the following things:

    -washed with warm water
    -applied manuka honey to the area
    -ensured I wash at least 3 times a day and dab the area dry gently
    -use frozen peas to stop the swelling

    As of now I am …

    Comments: 1

    Partial Vestibulectomy

    Mon Jul 31, 2017 6:44 pm by JGD13

    Hi all i am new here.
    I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
    After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

    Comments: 4

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 3

    Anyone from the PNW?

    Sat Aug 05, 2017 7:54 am by jungleclover

    I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

    Comments: 0

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 22

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 1

    New to the site and just had a vestibulectomy

    Fri Aug 04, 2017 12:19 am by Hopeitworks

    Hello Everyone,

    I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

    Comments: 2

    can anyone recommend a good dermatologist in LA?

    Thu Jul 27, 2017 4:17 pm by saffron

    Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

    I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

    Comments: 3

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 0

    New and terrified

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    New and terrified

    Post  Claud92 on Mon Aug 26, 2013 7:48 pm

    Hi, I'm new here but this has been a problem I've had for about 3 years now.

    For me the pain is at about 4-6 o'clock and ranges from being "uncomfortable" to mind bendingly awful during intercourse.

    Personally I've got to the stage now where I'm just angry, I feel its robed me of my rights and feel less of a woman because I can't do the whole sex thing. It's something I think about/am aware of every single day and I have no way of fixing it.

    My boyfriend is amazing, we've only been together 6 months but I only got the nerve to go to the doctor since I've been with him (it went from being tolerable to terrible very fast). I we've managed to have sex on a handful of occasions, but only once pain free - I cried (which scared the shit out of him)

    Is there any hope for me?

    I'm in the UK so have the NHS to support me, but this isn't something most 20 year olds have, or if they do they dont talk about it.

    Does anyone have any advice on home remedies I can try for now?
    Thanks, Claud


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    Re: New and terrified

    Post  Alana3 on Mon Aug 26, 2013 8:05 pm


    Yes, there are so many things you can try! It helps to have an understanding boyfriend-mine is too! For the meantime, I used to do baking soda and make a paste and put it down there, it relieved the sting. There are a lot of prescriptions you can take ranging from nerves to antidepressants. Also, topicals! I had a topical mixed with gabapentin and amitryptilene (sp?) which worked for a little while, but quit. I actually just had the surgery in December and had sex pain free the first time this month! So definitely do not let anyone tell you there is no cure- there is, it just takes a while to find it (remember everyone is different so what worked/was appropriate for me, may or may not do it for you). Some people here have tried oils, I think it could work, but my argument with that as my doctor explained to me that they really only work when applied to the problem area and can lead to infections because they trap the bacteria and such inside. But hey you never know, I know a lot of people swear by coconut oil! Another thing that worked for me was acupuncture, but I had to find someone who was willing to research, and it was great (possibly massage too). Finally, physical therapy helps pretty well too, I just recently stopped going because I was fed up with not feeling normal, but I feel that I can have sex, and its working for me. Also, botox is said to help, but I would really research that before I tried it, the good news with botox tho is that if it doesn't work, it eventually wears off and you were just like you were before (the bad news is if it works, you get to go and do it all over again lol).

    So my point here is that where it is extremely overwhelming, there is definitely hope for you to feel better, it just takes a lot of experimenting and patience, which isn't always the easiest when you feel awful Sad I hope you feel better soon though, and if you have any questions, I can try and help. But slow down, you are going to be OK just take it day by day and find out as much as you can along the ride. I swear I know more about the vagina than most medical students lol.


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