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    » Honey decreased my pain considerably!
    Yesterday at 12:53 pm by mhhh

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    Yesterday at 1:15 am by MDias

    » Gabapentin gel and pregnancy
    Sat Jul 14, 2018 4:15 pm by Georgie 121212

    » From a concerned husband
    Fri Jul 13, 2018 6:02 pm by emalita

    » I'M NEW - Do I listen to my gyno who I feel has it wrong?
    Fri Jul 13, 2018 2:58 pm by Gaby

    » Hi girls! New in this forum
    Fri Jul 13, 2018 2:31 pm by Gaby

    » Newbie and feeling helpless
    Thu Jul 12, 2018 6:35 pm by emalita

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    » Hello. In Need of Advice, Please and Thank You. Long Read.
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    From a concerned husband

    Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

    Hello everyone,

    This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

    I’m sure a lot …

    Comments: 1

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 9

    Hi girls! New in this forum

    Fri Jul 13, 2018 2:31 pm by Gaby

    Hi everyone!

    Also joining the V club, Here my story:

    It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

    Comments: 0

    Newbie and feeling helpless

    Wed Jul 11, 2018 1:52 pm by Taylor1

    Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

    Comments: 1

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 5

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

    Comments: 0


    New and terrified

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    New and terrified

    Post  Claud92 on Mon Aug 26, 2013 7:48 pm

    Hi, I'm new here but this has been a problem I've had for about 3 years now.

    For me the pain is at about 4-6 o'clock and ranges from being "uncomfortable" to mind bendingly awful during intercourse.

    Personally I've got to the stage now where I'm just angry, I feel its robed me of my rights and feel less of a woman because I can't do the whole sex thing. It's something I think about/am aware of every single day and I have no way of fixing it.

    My boyfriend is amazing, we've only been together 6 months but I only got the nerve to go to the doctor since I've been with him (it went from being tolerable to terrible very fast). I we've managed to have sex on a handful of occasions, but only once pain free - I cried (which scared the shit out of him)

    Is there any hope for me?

    I'm in the UK so have the NHS to support me, but this isn't something most 20 year olds have, or if they do they dont talk about it.

    Does anyone have any advice on home remedies I can try for now?
    Thanks, Claud

    Claud92

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    Location : Birmingham, UK

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    Re: New and terrified

    Post  Alana3 on Mon Aug 26, 2013 8:05 pm

    Hey!

    Yes, there are so many things you can try! It helps to have an understanding boyfriend-mine is too! For the meantime, I used to do baking soda and make a paste and put it down there, it relieved the sting. There are a lot of prescriptions you can take ranging from nerves to antidepressants. Also, topicals! I had a topical mixed with gabapentin and amitryptilene (sp?) which worked for a little while, but quit. I actually just had the surgery in December and had sex pain free the first time this month! So definitely do not let anyone tell you there is no cure- there is, it just takes a while to find it (remember everyone is different so what worked/was appropriate for me, may or may not do it for you). Some people here have tried oils, I think it could work, but my argument with that as my doctor explained to me that they really only work when applied to the problem area and can lead to infections because they trap the bacteria and such inside. But hey you never know, I know a lot of people swear by coconut oil! Another thing that worked for me was acupuncture, but I had to find someone who was willing to research, and it was great (possibly massage too). Finally, physical therapy helps pretty well too, I just recently stopped going because I was fed up with not feeling normal, but I feel that I can have sex, and its working for me. Also, botox is said to help, but I would really research that before I tried it, the good news with botox tho is that if it doesn't work, it eventually wears off and you were just like you were before (the bad news is if it works, you get to go and do it all over again lol).

    So my point here is that where it is extremely overwhelming, there is definitely hope for you to feel better, it just takes a lot of experimenting and patience, which isn't always the easiest when you feel awful Sad I hope you feel better soon though, and if you have any questions, I can try and help. But slow down, you are going to be OK just take it day by day and find out as much as you can along the ride. I swear I know more about the vagina than most medical students lol.

    Alana3

    Posts : 1090
    Join date : 2012-09-25

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