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    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 0

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 3

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules


    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1

    Vulvodynia help

    Tue Nov 14, 2017 4:27 pm by Katiej

    Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

    Comments: 3

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    New and terrified

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    New and terrified

    Post  Claud92 on Mon Aug 26, 2013 7:48 pm

    Hi, I'm new here but this has been a problem I've had for about 3 years now.

    For me the pain is at about 4-6 o'clock and ranges from being "uncomfortable" to mind bendingly awful during intercourse.

    Personally I've got to the stage now where I'm just angry, I feel its robed me of my rights and feel less of a woman because I can't do the whole sex thing. It's something I think about/am aware of every single day and I have no way of fixing it.

    My boyfriend is amazing, we've only been together 6 months but I only got the nerve to go to the doctor since I've been with him (it went from being tolerable to terrible very fast). I we've managed to have sex on a handful of occasions, but only once pain free - I cried (which scared the shit out of him)

    Is there any hope for me?

    I'm in the UK so have the NHS to support me, but this isn't something most 20 year olds have, or if they do they dont talk about it.

    Does anyone have any advice on home remedies I can try for now?
    Thanks, Claud


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    Re: New and terrified

    Post  Alana3 on Mon Aug 26, 2013 8:05 pm


    Yes, there are so many things you can try! It helps to have an understanding boyfriend-mine is too! For the meantime, I used to do baking soda and make a paste and put it down there, it relieved the sting. There are a lot of prescriptions you can take ranging from nerves to antidepressants. Also, topicals! I had a topical mixed with gabapentin and amitryptilene (sp?) which worked for a little while, but quit. I actually just had the surgery in December and had sex pain free the first time this month! So definitely do not let anyone tell you there is no cure- there is, it just takes a while to find it (remember everyone is different so what worked/was appropriate for me, may or may not do it for you). Some people here have tried oils, I think it could work, but my argument with that as my doctor explained to me that they really only work when applied to the problem area and can lead to infections because they trap the bacteria and such inside. But hey you never know, I know a lot of people swear by coconut oil! Another thing that worked for me was acupuncture, but I had to find someone who was willing to research, and it was great (possibly massage too). Finally, physical therapy helps pretty well too, I just recently stopped going because I was fed up with not feeling normal, but I feel that I can have sex, and its working for me. Also, botox is said to help, but I would really research that before I tried it, the good news with botox tho is that if it doesn't work, it eventually wears off and you were just like you were before (the bad news is if it works, you get to go and do it all over again lol).

    So my point here is that where it is extremely overwhelming, there is definitely hope for you to feel better, it just takes a lot of experimenting and patience, which isn't always the easiest when you feel awful Sad I hope you feel better soon though, and if you have any questions, I can try and help. But slow down, you are going to be OK just take it day by day and find out as much as you can along the ride. I swear I know more about the vagina than most medical students lol.


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