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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Lyrica - how to know if it is working?

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Lyrica - how to know if it is working?

Post  Veronica001 on Sat Aug 31, 2013 5:32 am


I have been taking Lyrica for 3 months, I started on 75 mg and am now taking 300mg and I am not really sure if it is working for me or not. While my symptoms haven't really gotten worse I am not sure if they have really improved either and it is so hard to tell as I can't remember what normal feels like after 1.5 years of this condition. I don't know if 3 months is too little for there to be a positive effect or not and my dr. is hopeless, I am overseas now and have emailed him a few times and haven't really received any help.

Can anyone who has tried Lyrica please let me know how the treatment is going for them and how long it took for them to receive any positive effects.

Any information or stories at all would be so so greatly appreciated!

Thanks guys


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re- lyrica

Post  zarli on Sat Aug 31, 2013 9:49 am

For me it worked pretty much straight away, although I do take nortriptyline also. I haven't got much info on Lyrica but my guess would be it would have worked by now. Maybe try a new doctor where you are and see if they could try something else. Good luck and keep trying.


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Re: Lyrica - how to know if it is working?

Post  Sarah001 on Sat Aug 31, 2013 1:09 pm

I take Lyrica and it didn't help me until I got to 300mg but then it stopped working and I had to increase to 450mg which is where I'm at now. It only helps the unprovoked widespread burning in my case and it doesn't make the skin feel normal it kind of changes the sensation from burning to slight prickling for me. You can go all the way up to 600mg of Lyrica if you don't feel the current dose is working and it doesn't sound like it is after 3 months to be honest. I don't know if you have unprovoked or provoked only or if your pain is widespread or localised? It depends on the type of pain you are trying to treat to be honest.

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Lyrica does not work for me

Post  Fingerscrossed on Mon Nov 11, 2013 2:46 am

I'm currently weaning myself off lyrica because it was making me sleepy, even after the first month or so. I was getting drowsy while driving two hours on an interstate to my therapy appointments and to make matters even worse, it was making me fall asleep in my graduate school classes. I actually had to take a nap at a gas station so that I could continue home after I was finished with my appointments. I don't think I've been this sleepy during the day since I was a little girl. I hope everyone else has a better experience with it than I have. I can't wait to be finished with those evil things--only 3 more pills to go!


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Re: Lyrica - how to know if it is working?

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