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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Lyrica - how to know if it is working?

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Lyrica - how to know if it is working?

Post  Veronica001 on Sat Aug 31, 2013 5:32 am

Hi,

I have been taking Lyrica for 3 months, I started on 75 mg and am now taking 300mg and I am not really sure if it is working for me or not. While my symptoms haven't really gotten worse I am not sure if they have really improved either and it is so hard to tell as I can't remember what normal feels like after 1.5 years of this condition. I don't know if 3 months is too little for there to be a positive effect or not and my dr. is hopeless, I am overseas now and have emailed him a few times and haven't really received any help.

Can anyone who has tried Lyrica please let me know how the treatment is going for them and how long it took for them to receive any positive effects.

Any information or stories at all would be so so greatly appreciated!

Thanks guys

Veronica001

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re- lyrica

Post  zarli on Sat Aug 31, 2013 9:49 am

Hi
For me it worked pretty much straight away, although I do take nortriptyline also. I haven't got much info on Lyrica but my guess would be it would have worked by now. Maybe try a new doctor where you are and see if they could try something else. Good luck and keep trying.

zarli

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Re: Lyrica - how to know if it is working?

Post  Sarah001 on Sat Aug 31, 2013 1:09 pm

I take Lyrica and it didn't help me until I got to 300mg but then it stopped working and I had to increase to 450mg which is where I'm at now. It only helps the unprovoked widespread burning in my case and it doesn't make the skin feel normal it kind of changes the sensation from burning to slight prickling for me. You can go all the way up to 600mg of Lyrica if you don't feel the current dose is working and it doesn't sound like it is after 3 months to be honest. I don't know if you have unprovoked or provoked only or if your pain is widespread or localised? It depends on the type of pain you are trying to treat to be honest.
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Sarah001

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Lyrica does not work for me

Post  Fingerscrossed on Mon Nov 11, 2013 2:46 am

I'm currently weaning myself off lyrica because it was making me sleepy, even after the first month or so. I was getting drowsy while driving two hours on an interstate to my therapy appointments and to make matters even worse, it was making me fall asleep in my graduate school classes. I actually had to take a nap at a gas station so that I could continue home after I was finished with my appointments. I don't think I've been this sleepy during the day since I was a little girl. I hope everyone else has a better experience with it than I have. I can't wait to be finished with those evil things--only 3 more pills to go!

Fingerscrossed

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Re: Lyrica - how to know if it is working?

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