Vulvodynia Support
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» Hope to all my suffering ladies
Pain medication  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Pain medication  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Pain medication  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Pain medication  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Pain medication  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Pain medication  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Pain medication  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Pain medication  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Pain medication  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Pain medication

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Pain medication  Empty Pain medication

Post  KJ Fri Aug 23, 2013 3:25 am

by KJ Today at 8:25 pm
I, like many of you, have been on amitripaline, nortriptaline, tramadol, Valium, Effexor, etc.... Right now the ONLY thing that works for me is Vicodin! I hate taking it too because I know it isn't good for me...but it works! There is a fine line in the medication world and I am just really scared that even though it is what allows me to work and be productive, that it is doing me more harm than good. Is anybody else having these internal fights with themselves about pain meds?

KJ

Posts : 19
Join date : 2013-08-21

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Post  Elc88 Fri Aug 23, 2013 6:47 am

Definitely! I've tried quite a few products over the years, and I've not stuck with any of them for more than 6 months. Most of them have warnings that prolonged use will increase your risk of certain cancers, and this has made me feel quite paranoid, not to mention the overtime my liver and kidneys have to do dealing with products I don't even need (which I think probably sounds daft!)

I wonder if you could look at what the difference is between vicodin and the others? Knowing how it's making things better might help you to find an alternative?

Elc88

Posts : 55
Join date : 2013-07-20

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Post  KJ Fri Aug 23, 2013 2:59 pm

Yes I need to do some research for sure. I know that I could not leave the house without something...very scary.

KJ

Posts : 19
Join date : 2013-08-21

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Post  Sebby (Admin) Sat Aug 24, 2013 10:22 am

Yes I do worry and so am looking more into other methods such as physio, acupuncture etc in the hope I won't need to be on strong meds for the rest of my life! I'm on pregabalin at the moment but have been on strong opiote type meds before.
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  KJ Sun Aug 25, 2013 2:22 am

It is so hard...I just hate the drugs..but I love them because they help me...would like to not need them someday

KJ

Posts : 19
Join date : 2013-08-21

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Pain medication  Empty saved my life

Post  zarli Mon Aug 26, 2013 9:09 am

Drugs literally felt like they saved my life. I hate taking them and have been doing so for 6 years but I couldn't live with out them. I try not to think of their affects ( sounds naïve I know ) but I have had 2 friends go through breast cancer and they keep me grounded on the fact that I'm alive and I can take medication to help me live more comfortable. I believe we girls have enough to worry about trying to beat Vulva without the added worry of the meds. Keep positive and lets keep trying to beat Vulva together.: 

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  KJ Mon Aug 26, 2013 3:26 pm

Thank you for that...I will try to be positive and allow the medicine to get me through.

KJ

Posts : 19
Join date : 2013-08-21

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Post  Sarah001 Tue Aug 27, 2013 8:45 pm

I hate taking them too, my goal is to get so I can at least lower the dose but for now they have helped alot with the constant burning but not much with the rawness
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Pain medication  Empty rawness

Post  zarli Wed Aug 28, 2013 3:45 am

Sarah have you tried Bepanthen cream for the rawness? It helps me when I have a flare up with it......

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  Sarah001 Wed Aug 28, 2013 4:17 pm

Tried all the nappy rash creams including one a GP recommended with titanium in it but they are too drying for me which is why I use lavendar oil mixed with vaseline instead which helps quite alot in the vestibule but thanks for the thought Wink 
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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