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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
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» Cured, cyst in foot
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» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
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» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

Bonjour.. The newbie here

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Bonjour.. The newbie here

Post  key_lime_teddy on Thu Oct 07, 2010 1:32 pm

Greetings from the states.

Where do I start. I guess there is a part of me that is in shock of what is wrong with me and if this is the place for me. Dealing with a UTI at the moment. That is a nightmare. I had went to the doctor 3 weeks ago for a UTI and was told that it was not one. Sent home in tears, with all the symptoms of one. I spent hours on the web doing reseaching and just treated it as a yeast infection at home. Was sick after a week of home treatment, so I went off to a new doctor. She then told me that it is a yeast infection, but did not check to see if I had a UTI. She treated me with Fluconazole. But the symptoms where still there, and was getting worse by the day. I was so sick, I thought I was going to lose my mind. My husband rushed me into the ER after 3 weeks of not sleeping, eating, pain and consent burning. I was told it was a UTI after 3 weeks. I was so happy to know that I was not crazy and that I could be treated. Well being sick these last 3 weeks. I talked to my bosses, they are doctors and I feel comfortable talking to them. My female boss brought up to me "Vulvodynia".

So I spent the last couple of day googling about it and it sounds like me.
I started to cry. Is this all the pain and discomfort I felt from tampons, riding bikes, during/after sex, setting to long on chairs and etc. Have to do with a condtion called Vulvodynia. I though this was normal for all woman to feel burning during normal things like this.

I hope if I have this condtion, that they can treat it soon.

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I am in the sates also !!!!!!

Post  Somedaysoon on Thu Oct 07, 2010 2:22 pm

I hope that things will get better for us soon !!!!!!!!!!!!!!!!!


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Re: Bonjour.. The newbie here

Post  Sarah001 on Thu Oct 07, 2010 6:20 pm

If you are only a few weeks in I still think they need to completely rule out infections by doing a culture of your urine and a culture of a vaginal swab. Next step is to establish if there is anything to see on the skin, if there is a vulvar dermatologist should know if it's a skin condition or not. If the skin looks normal and you have no infections pain control is the next step, there are plenty of painkillers available and lots of us on here have found some relief with low dose anti depressants (Amitriptyline etc) or anti convulsants (Gabapentin etc) so that needs sorting out for you. Once you have some pain control on the go you should get your pelvic floor tested to see if it's that that's causing or adding to your problems and get your alignment checked too as misalignments of the pelvis or hips are often to blame. If it i vulvodynia the earlier you get going on treatment the easier it is to treat so don't delay.

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Re: Bonjour.. The newbie here

Post  Sebby (Admin) on Sun Oct 10, 2010 8:56 am

Welcome to the forum, Yes I would say more tests to rule out persistant infection as your symptoms are fairly new.

I would personally warn against constantly using any thrush creams down there as this can make you more sensitive but you can be treated with oral thrush pills.

As for normal..after speaking to a couple of mates of mine who do not have vulvodynia they do indeed go through episdoes of pain, urine infections and skin sensitivity so I do think this is far more widespread than we think.

The vulva is a delicate part and its bound to get sore etc just like skin and tissues on other parts of our bodies.

The term Vulvodynia just means Vulval pain so can be applied to anyone with persistant pains no matter what the cause so make sure you keep going back to the dr for the tests.

If it turns out you do not have infection then it could be a skin issue or like sarah said a pelvic floor issue or even a nerve issue.

Keep plodding on you can find relief and we are here for you

Sebby (Admin)

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Re: Bonjour.. The newbie here

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