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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Bonjour.. The newbie here

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Bonjour.. The newbie here

Post  key_lime_teddy on Thu Oct 07, 2010 1:32 pm

Greetings from the states.

Where do I start. I guess there is a part of me that is in shock of what is wrong with me and if this is the place for me. Dealing with a UTI at the moment. That is a nightmare. I had went to the doctor 3 weeks ago for a UTI and was told that it was not one. Sent home in tears, with all the symptoms of one. I spent hours on the web doing reseaching and just treated it as a yeast infection at home. Was sick after a week of home treatment, so I went off to a new doctor. She then told me that it is a yeast infection, but did not check to see if I had a UTI. She treated me with Fluconazole. But the symptoms where still there, and was getting worse by the day. I was so sick, I thought I was going to lose my mind. My husband rushed me into the ER after 3 weeks of not sleeping, eating, pain and consent burning. I was told it was a UTI after 3 weeks. I was so happy to know that I was not crazy and that I could be treated. Well being sick these last 3 weeks. I talked to my bosses, they are doctors and I feel comfortable talking to them. My female boss brought up to me "Vulvodynia".

So I spent the last couple of day googling about it and it sounds like me.
I started to cry. Is this all the pain and discomfort I felt from tampons, riding bikes, during/after sex, setting to long on chairs and etc. Have to do with a condtion called Vulvodynia. I though this was normal for all woman to feel burning during normal things like this.

I hope if I have this condtion, that they can treat it soon.

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I am in the sates also !!!!!!

Post  Somedaysoon on Thu Oct 07, 2010 2:22 pm

I hope that things will get better for us soon !!!!!!!!!!!!!!!!!


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Re: Bonjour.. The newbie here

Post  Sarah001 on Thu Oct 07, 2010 6:20 pm

If you are only a few weeks in I still think they need to completely rule out infections by doing a culture of your urine and a culture of a vaginal swab. Next step is to establish if there is anything to see on the skin, if there is a vulvar dermatologist should know if it's a skin condition or not. If the skin looks normal and you have no infections pain control is the next step, there are plenty of painkillers available and lots of us on here have found some relief with low dose anti depressants (Amitriptyline etc) or anti convulsants (Gabapentin etc) so that needs sorting out for you. Once you have some pain control on the go you should get your pelvic floor tested to see if it's that that's causing or adding to your problems and get your alignment checked too as misalignments of the pelvis or hips are often to blame. If it i vulvodynia the earlier you get going on treatment the easier it is to treat so don't delay.

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Re: Bonjour.. The newbie here

Post  Sebby (Admin) on Sun Oct 10, 2010 8:56 am

Welcome to the forum, Yes I would say more tests to rule out persistant infection as your symptoms are fairly new.

I would personally warn against constantly using any thrush creams down there as this can make you more sensitive but you can be treated with oral thrush pills.

As for normal..after speaking to a couple of mates of mine who do not have vulvodynia they do indeed go through episdoes of pain, urine infections and skin sensitivity so I do think this is far more widespread than we think.

The vulva is a delicate part and its bound to get sore etc just like skin and tissues on other parts of our bodies.

The term Vulvodynia just means Vulval pain so can be applied to anyone with persistant pains no matter what the cause so make sure you keep going back to the dr for the tests.

If it turns out you do not have infection then it could be a skin issue or like sarah said a pelvic floor issue or even a nerve issue.

Keep plodding on you can find relief and we are here for you

Sebby (Admin)

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Re: Bonjour.. The newbie here

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