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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Bonjour.. The newbie here
4 posters
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Bonjour.. The newbie here
Greetings from the states.
Where do I start. I guess there is a part of me that is in shock of what is wrong with me and if this is the place for me. Dealing with a UTI at the moment. That is a nightmare. I had went to the doctor 3 weeks ago for a UTI and was told that it was not one. Sent home in tears, with all the symptoms of one. I spent hours on the web doing reseaching and just treated it as a yeast infection at home. Was sick after a week of home treatment, so I went off to a new doctor. She then told me that it is a yeast infection, but did not check to see if I had a UTI. She treated me with Fluconazole. But the symptoms where still there, and was getting worse by the day. I was so sick, I thought I was going to lose my mind. My husband rushed me into the ER after 3 weeks of not sleeping, eating, pain and consent burning. I was told it was a UTI after 3 weeks. I was so happy to know that I was not crazy and that I could be treated. Well being sick these last 3 weeks. I talked to my bosses, they are doctors and I feel comfortable talking to them. My female boss brought up to me "Vulvodynia".
So I spent the last couple of day googling about it and it sounds like me.
I started to cry. Is this all the pain and discomfort I felt from tampons, riding bikes, during/after sex, setting to long on chairs and etc. Have to do with a condtion called Vulvodynia. I though this was normal for all woman to feel burning during normal things like this.
I hope if I have this condtion, that they can treat it soon.
Where do I start. I guess there is a part of me that is in shock of what is wrong with me and if this is the place for me. Dealing with a UTI at the moment. That is a nightmare. I had went to the doctor 3 weeks ago for a UTI and was told that it was not one. Sent home in tears, with all the symptoms of one. I spent hours on the web doing reseaching and just treated it as a yeast infection at home. Was sick after a week of home treatment, so I went off to a new doctor. She then told me that it is a yeast infection, but did not check to see if I had a UTI. She treated me with Fluconazole. But the symptoms where still there, and was getting worse by the day. I was so sick, I thought I was going to lose my mind. My husband rushed me into the ER after 3 weeks of not sleeping, eating, pain and consent burning. I was told it was a UTI after 3 weeks. I was so happy to know that I was not crazy and that I could be treated. Well being sick these last 3 weeks. I talked to my bosses, they are doctors and I feel comfortable talking to them. My female boss brought up to me "Vulvodynia".
So I spent the last couple of day googling about it and it sounds like me.
I started to cry. Is this all the pain and discomfort I felt from tampons, riding bikes, during/after sex, setting to long on chairs and etc. Have to do with a condtion called Vulvodynia. I though this was normal for all woman to feel burning during normal things like this.
I hope if I have this condtion, that they can treat it soon.
key_lime_teddy- Posts : 7
Join date : 2010-10-07
Age : 50
I am in the sates also !!!!!!
I hope that things will get better for us soon !!!!!!!!!!!!!!!!!
Somedaysoon- Posts : 2
Join date : 2010-10-07
Age : 61
Location : North Caroline
Re: Bonjour.. The newbie here
If you are only a few weeks in I still think they need to completely rule out infections by doing a culture of your urine and a culture of a vaginal swab. Next step is to establish if there is anything to see on the skin, if there is a vulvar dermatologist should know if it's a skin condition or not. If the skin looks normal and you have no infections pain control is the next step, there are plenty of painkillers available and lots of us on here have found some relief with low dose anti depressants (Amitriptyline etc) or anti convulsants (Gabapentin etc) so that needs sorting out for you. Once you have some pain control on the go you should get your pelvic floor tested to see if it's that that's causing or adding to your problems and get your alignment checked too as misalignments of the pelvis or hips are often to blame. If it i vulvodynia the earlier you get going on treatment the easier it is to treat so don't delay.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Bonjour.. The newbie here
Welcome to the forum, Yes I would say more tests to rule out persistant infection as your symptoms are fairly new.
I would personally warn against constantly using any thrush creams down there as this can make you more sensitive but you can be treated with oral thrush pills.
As for normal..after speaking to a couple of mates of mine who do not have vulvodynia they do indeed go through episdoes of pain, urine infections and skin sensitivity so I do think this is far more widespread than we think.
The vulva is a delicate part and its bound to get sore etc just like skin and tissues on other parts of our bodies.
The term Vulvodynia just means Vulval pain so can be applied to anyone with persistant pains no matter what the cause so make sure you keep going back to the dr for the tests.
If it turns out you do not have infection then it could be a skin issue or like sarah said a pelvic floor issue or even a nerve issue.
Keep plodding on you can find relief and we are here for you
Sebby
xxx
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer