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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Bonjour.. The newbie here

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Bonjour.. The newbie here

Post  key_lime_teddy on Thu Oct 07, 2010 1:32 pm

Greetings from the states.

Where do I start. I guess there is a part of me that is in shock of what is wrong with me and if this is the place for me. Dealing with a UTI at the moment. That is a nightmare. I had went to the doctor 3 weeks ago for a UTI and was told that it was not one. Sent home in tears, with all the symptoms of one. I spent hours on the web doing reseaching and just treated it as a yeast infection at home. Was sick after a week of home treatment, so I went off to a new doctor. She then told me that it is a yeast infection, but did not check to see if I had a UTI. She treated me with Fluconazole. But the symptoms where still there, and was getting worse by the day. I was so sick, I thought I was going to lose my mind. My husband rushed me into the ER after 3 weeks of not sleeping, eating, pain and consent burning. I was told it was a UTI after 3 weeks. I was so happy to know that I was not crazy and that I could be treated. Well being sick these last 3 weeks. I talked to my bosses, they are doctors and I feel comfortable talking to them. My female boss brought up to me "Vulvodynia".

So I spent the last couple of day googling about it and it sounds like me.
I started to cry. Is this all the pain and discomfort I felt from tampons, riding bikes, during/after sex, setting to long on chairs and etc. Have to do with a condtion called Vulvodynia. I though this was normal for all woman to feel burning during normal things like this.

I hope if I have this condtion, that they can treat it soon.
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I am in the sates also !!!!!!

Post  Somedaysoon on Thu Oct 07, 2010 2:22 pm

I hope that things will get better for us soon !!!!!!!!!!!!!!!!!

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Re: Bonjour.. The newbie here

Post  Sarah001 on Thu Oct 07, 2010 6:20 pm

If you are only a few weeks in I still think they need to completely rule out infections by doing a culture of your urine and a culture of a vaginal swab. Next step is to establish if there is anything to see on the skin, if there is a vulvar dermatologist should know if it's a skin condition or not. If the skin looks normal and you have no infections pain control is the next step, there are plenty of painkillers available and lots of us on here have found some relief with low dose anti depressants (Amitriptyline etc) or anti convulsants (Gabapentin etc) so that needs sorting out for you. Once you have some pain control on the go you should get your pelvic floor tested to see if it's that that's causing or adding to your problems and get your alignment checked too as misalignments of the pelvis or hips are often to blame. If it i vulvodynia the earlier you get going on treatment the easier it is to treat so don't delay.
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Re: Bonjour.. The newbie here

Post  Sebby (Admin) on Sun Oct 10, 2010 8:56 am


Welcome to the forum, Yes I would say more tests to rule out persistant infection as your symptoms are fairly new.

I would personally warn against constantly using any thrush creams down there as this can make you more sensitive but you can be treated with oral thrush pills.

As for normal..after speaking to a couple of mates of mine who do not have vulvodynia they do indeed go through episdoes of pain, urine infections and skin sensitivity so I do think this is far more widespread than we think.

The vulva is a delicate part and its bound to get sore etc just like skin and tissues on other parts of our bodies.

The term Vulvodynia just means Vulval pain so can be applied to anyone with persistant pains no matter what the cause so make sure you keep going back to the dr for the tests.

If it turns out you do not have infection then it could be a skin issue or like sarah said a pelvic floor issue or even a nerve issue.

Keep plodding on you can find relief and we are here for you

Sebby
xxx
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Re: Bonjour.. The newbie here

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