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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Bonjour.. The newbie here

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Bonjour.. The newbie here

Post  key_lime_teddy on Thu Oct 07, 2010 1:32 pm

Greetings from the states.

Where do I start. I guess there is a part of me that is in shock of what is wrong with me and if this is the place for me. Dealing with a UTI at the moment. That is a nightmare. I had went to the doctor 3 weeks ago for a UTI and was told that it was not one. Sent home in tears, with all the symptoms of one. I spent hours on the web doing reseaching and just treated it as a yeast infection at home. Was sick after a week of home treatment, so I went off to a new doctor. She then told me that it is a yeast infection, but did not check to see if I had a UTI. She treated me with Fluconazole. But the symptoms where still there, and was getting worse by the day. I was so sick, I thought I was going to lose my mind. My husband rushed me into the ER after 3 weeks of not sleeping, eating, pain and consent burning. I was told it was a UTI after 3 weeks. I was so happy to know that I was not crazy and that I could be treated. Well being sick these last 3 weeks. I talked to my bosses, they are doctors and I feel comfortable talking to them. My female boss brought up to me "Vulvodynia".

So I spent the last couple of day googling about it and it sounds like me.
I started to cry. Is this all the pain and discomfort I felt from tampons, riding bikes, during/after sex, setting to long on chairs and etc. Have to do with a condtion called Vulvodynia. I though this was normal for all woman to feel burning during normal things like this.

I hope if I have this condtion, that they can treat it soon.

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I am in the sates also !!!!!!

Post  Somedaysoon on Thu Oct 07, 2010 2:22 pm

I hope that things will get better for us soon !!!!!!!!!!!!!!!!!


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Re: Bonjour.. The newbie here

Post  Sarah001 on Thu Oct 07, 2010 6:20 pm

If you are only a few weeks in I still think they need to completely rule out infections by doing a culture of your urine and a culture of a vaginal swab. Next step is to establish if there is anything to see on the skin, if there is a vulvar dermatologist should know if it's a skin condition or not. If the skin looks normal and you have no infections pain control is the next step, there are plenty of painkillers available and lots of us on here have found some relief with low dose anti depressants (Amitriptyline etc) or anti convulsants (Gabapentin etc) so that needs sorting out for you. Once you have some pain control on the go you should get your pelvic floor tested to see if it's that that's causing or adding to your problems and get your alignment checked too as misalignments of the pelvis or hips are often to blame. If it i vulvodynia the earlier you get going on treatment the easier it is to treat so don't delay.

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Re: Bonjour.. The newbie here

Post  Sebby (Admin) on Sun Oct 10, 2010 8:56 am

Welcome to the forum, Yes I would say more tests to rule out persistant infection as your symptoms are fairly new.

I would personally warn against constantly using any thrush creams down there as this can make you more sensitive but you can be treated with oral thrush pills.

As for normal..after speaking to a couple of mates of mine who do not have vulvodynia they do indeed go through episdoes of pain, urine infections and skin sensitivity so I do think this is far more widespread than we think.

The vulva is a delicate part and its bound to get sore etc just like skin and tissues on other parts of our bodies.

The term Vulvodynia just means Vulval pain so can be applied to anyone with persistant pains no matter what the cause so make sure you keep going back to the dr for the tests.

If it turns out you do not have infection then it could be a skin issue or like sarah said a pelvic floor issue or even a nerve issue.

Keep plodding on you can find relief and we are here for you

Sebby (Admin)

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Re: Bonjour.. The newbie here

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