Vulvodynia Support
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» Hope to all my suffering ladies
misaligned pelvis EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
misaligned pelvis EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
misaligned pelvis EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
misaligned pelvis EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
misaligned pelvis EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
misaligned pelvis EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
misaligned pelvis EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
misaligned pelvis EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
misaligned pelvis EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


misaligned pelvis

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Post  Delilah1 Wed Sep 11, 2013 10:07 pm

Hello ladies. I visited a chiropractor. Learned that I have a misaligned pelvis, slight scoliosis and one leg longer than the other.
I have had several adjustments. I haven't noticed it helping with the vulvodynia pain. I think it has caused more discomfort. Is it normal to have an increase in pain after adjustments or physio?
I'm also wondering if someone who sees a women's physiotherapist could share with me exactly how they go about treating a misaligned pelvis? Thank you

Delilah1

Posts : 55
Join date : 2013-04-24

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Post  Kathy100 Thu Sep 12, 2013 1:51 pm

I've recently started seeing a new physio for myofascial release. She found that my pelvis was misaligned (the right hip was over half an inch higher than my left), there was no movement in the mid section of my back and my shoulders were permanently up!.
Last week she re-aligned my pelvis by loosening all the surrounding muscles first, and then gently pushing down on my right sit bone. It didn't hurt at all and afterwards my weight distribution when I stood up felt completely different and so much better. I didn't have any flare up afterwards but everyone is different. This week she did more work on my stomach, pelvic and leg muscles. The day & night afterwards I had pain in my stomach which has now worn off & a minor flare up of the v pain which has now worn off. I understand that it's normal to have a temporary flare up after physio as long as overall you are gradually making progress. I have never been to a chiropractor but they should warn you beforehand about flare ups.

I hope this helps.

Kathy100

Posts : 95
Join date : 2012-12-17

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Post  Sarah001 Thu Sep 12, 2013 9:12 pm

The misaligned pelvis, the bain of my life!! Most cases present with the right leg longer than the left because the right side ilium is in anterior rotation (forward and down at the front) and the left in a compensatory posterior rotation (backwards and down at the back) this throws the hip position out so the longer leg makes the same side of the pelvis higher in standing. A true leg length Discrepancy is tested by having the patient sit and if the pelvis is level once the legs are taken out of the equation it's a true LLD but most cases are functional so caused by the misalignment. There are upslips, downslips and inflares and outflares but I won't bore you with those! The unlevel pelvis creates an unlevel base for the spine so it has to curve into either an S or C shape to accommodate that and that makes one shoulder higher than the other. Naturally as the bones are all out of whack the muscles have to lengthen and shorten in accordance with this and muscle imbalances are created which in turn cause the majority of the pain. Usually the longer leg will have a flatter arch and be prone to collapsing inwards to enable the leg to clear the ground and the muscles most often a problem are tight hamstrings, glutes and external oblique on the left along with weak hip flexors and tight hip flexors and overstretched hamstrings, glutes and external oblique on the right.

As the pelvic bones have moved the pelvic floor has too because it attaches to those bones so one side will be tighter than the other (usually the left) and the external hip rotators being very closely related to the PF will also change with one side tighter than the other. This creates a rotation of the body and causes yet more problems. Some are lucky enough that the muscles aren't horribly affected and a correction holds, others like myself can't hold a correction for more than a few days. The soft tissue is usually key to pain relief though and chiros aren't as good as physios when it comes to soft tissue. They also can make matters worse if they treat the loose side (whichever is in anterior rotation is the weaker side) with aggressive techniques as opposed to the gentler methods employed by physios. If you aren't holding the correction you won't get pain relief until you do and most likely the pelvic floor will have to take a back seat while the misalignment is sorted out. Even if you do hold a correction the soft tissue also needs help as it will be full of trigger points and some areas strained and others shortened so the misalignment needs dealing with first but rest assured all the problems you've mentioned are typical of a misaligned pelvis and not separate problems. I would try a physio instead to see if a different method might work better and for help with the soft tissue.

Sorry to bore everyone as per!! Rolling Eyes 
Sarah001
Sarah001

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Post  Delilah1 Thu Sep 12, 2013 10:15 pm

Thank you Kathy and Sarah for your replies!

Sarah, you did not bore me with your reply! It was all very informative. When I was a child my mother took me to the doctor because of a "funny feeling" I kept having in my leg. At the time, the doctor didn't know what caused it. I know now that it was restless leg. However, the doctor did diagnose the slight scoliosis in my spine at that time. Do you think having the scoliosis all my life could be what caused the misaligned pelvis? You really know your stuff! Have you considered becoming a physical therapist? Very Happy  The chiropractor did tell me that my left side was in posterior rotation. One clue to this was because when I sit on a toilet my left labia bulges out quite a bit more than the right. I get left hip and groin pain when I try to do my power walking.
I asked my V specialist for a physical therpy referral. He thought he needed to get the burning pain under control first before I started too much manipulation. He wanted me to try amitriptyline first. Do you know if this is a common approach? I would like to start physio as soon as possible. That's why I went to a chiropractor. In the US you don't need a doctor's referral for them like you do Physical therapy. Thank you for listening. It really helps.

Delilah1

Posts : 55
Join date : 2013-04-24

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Post  Kathy100 Fri Sep 13, 2013 9:19 am

My doctor did put me on amitriptyline first and it did get the burning pain under control within 3 days. A few weeks later I swopped to notriptyline because I couldn't cope with all the side effects of ami.  I'm still taking nortriptyline a low dose every other day but I'm hoping with the new physio I'll be able to come off it altogether.  I think the common approach with Drs in the UK is drugs first rather than try and get to the root of problem. My doctor wouldn't refer me as she thought it was "problem solved" when the ami kicked in.  The first physio I saw was recommended by a pain consultant I saw privately.  She helped temporarily but somehow missed the mis-aligned pelvis!! So my pain which had spread to back, buttocks and legs by then always came back.

I think taking the ami can give you some breathing space from the pain and I was told by the consultant also it gives the nerves a rest.  Bear in mind you can't immediately stop taking it you have reduce the dose gradually.

Sarah thanks for all the info on mis-aligned pelvis - you know so much - mine has held for a week so far - each time I stand up I'm checking that the weight distribution is the same....fingers crossed.

Kathy100

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Join date : 2012-12-17

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Post  Kathy100 Fri Sep 13, 2013 9:36 am

Delilah - forgot to say, if you can start physio sooner rather than later - you may save yourself several months of pain. I left it for a for a while because the nortriptyline was working & my symptoms got worse.

Kathy100

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Post  Sarah001 Fri Sep 13, 2013 11:54 am

I agree with kathy the sooner the better because a misaligned pelvis can wreak havoc on the body. With the power walking I don't know how well you stabilise your pelvis with your glute medius but I'd guess not very well, try walking towards a mirror the way you power walk and if your pelvis is tilting laterally you need to sort that out to stabilise whilst walking.

And Kathy I had 2 Osteopaths miss my misaligned pelvis before someone spotted it, mine was really noticeable too so how they managed to miss it is a mystery!!
Sarah001
Sarah001

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