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Looking for a friend..... and new problems

Sat Jan 06, 2018 5:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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So frustrating!!

Wed Jan 03, 2018 7:15 pm by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Fri Jan 12, 2018 6:10 pm by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 9:46 am by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Tue Dec 05, 2017 8:50 pm by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 3:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 2:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 2:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 8:47 am by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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misaligned pelvis

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misaligned pelvis

Post  Delilah1 on Wed Sep 11, 2013 5:07 pm

Hello ladies. I visited a chiropractor. Learned that I have a misaligned pelvis, slight scoliosis and one leg longer than the other.
I have had several adjustments. I haven't noticed it helping with the vulvodynia pain. I think it has caused more discomfort. Is it normal to have an increase in pain after adjustments or physio?
I'm also wondering if someone who sees a women's physiotherapist could share with me exactly how they go about treating a misaligned pelvis? Thank you

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Re: misaligned pelvis

Post  Kathy100 on Thu Sep 12, 2013 8:51 am

I've recently started seeing a new physio for myofascial release. She found that my pelvis was misaligned (the right hip was over half an inch higher than my left), there was no movement in the mid section of my back and my shoulders were permanently up!.
Last week she re-aligned my pelvis by loosening all the surrounding muscles first, and then gently pushing down on my right sit bone. It didn't hurt at all and afterwards my weight distribution when I stood up felt completely different and so much better. I didn't have any flare up afterwards but everyone is different. This week she did more work on my stomach, pelvic and leg muscles. The day & night afterwards I had pain in my stomach which has now worn off & a minor flare up of the v pain which has now worn off. I understand that it's normal to have a temporary flare up after physio as long as overall you are gradually making progress. I have never been to a chiropractor but they should warn you beforehand about flare ups.

I hope this helps.

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Re: misaligned pelvis

Post  Sarah001 on Thu Sep 12, 2013 4:12 pm

The misaligned pelvis, the bain of my life!! Most cases present with the right leg longer than the left because the right side ilium is in anterior rotation (forward and down at the front) and the left in a compensatory posterior rotation (backwards and down at the back) this throws the hip position out so the longer leg makes the same side of the pelvis higher in standing. A true leg length Discrepancy is tested by having the patient sit and if the pelvis is level once the legs are taken out of the equation it's a true LLD but most cases are functional so caused by the misalignment. There are upslips, downslips and inflares and outflares but I won't bore you with those! The unlevel pelvis creates an unlevel base for the spine so it has to curve into either an S or C shape to accommodate that and that makes one shoulder higher than the other. Naturally as the bones are all out of whack the muscles have to lengthen and shorten in accordance with this and muscle imbalances are created which in turn cause the majority of the pain. Usually the longer leg will have a flatter arch and be prone to collapsing inwards to enable the leg to clear the ground and the muscles most often a problem are tight hamstrings, glutes and external oblique on the left along with weak hip flexors and tight hip flexors and overstretched hamstrings, glutes and external oblique on the right.

As the pelvic bones have moved the pelvic floor has too because it attaches to those bones so one side will be tighter than the other (usually the left) and the external hip rotators being very closely related to the PF will also change with one side tighter than the other. This creates a rotation of the body and causes yet more problems. Some are lucky enough that the muscles aren't horribly affected and a correction holds, others like myself can't hold a correction for more than a few days. The soft tissue is usually key to pain relief though and chiros aren't as good as physios when it comes to soft tissue. They also can make matters worse if they treat the loose side (whichever is in anterior rotation is the weaker side) with aggressive techniques as opposed to the gentler methods employed by physios. If you aren't holding the correction you won't get pain relief until you do and most likely the pelvic floor will have to take a back seat while the misalignment is sorted out. Even if you do hold a correction the soft tissue also needs help as it will be full of trigger points and some areas strained and others shortened so the misalignment needs dealing with first but rest assured all the problems you've mentioned are typical of a misaligned pelvis and not separate problems. I would try a physio instead to see if a different method might work better and for help with the soft tissue.

Sorry to bore everyone as per!! Rolling Eyes 
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Re: misaligned pelvis

Post  Delilah1 on Thu Sep 12, 2013 5:15 pm

Thank you Kathy and Sarah for your replies!

Sarah, you did not bore me with your reply! It was all very informative. When I was a child my mother took me to the doctor because of a "funny feeling" I kept having in my leg. At the time, the doctor didn't know what caused it. I know now that it was restless leg. However, the doctor did diagnose the slight scoliosis in my spine at that time. Do you think having the scoliosis all my life could be what caused the misaligned pelvis? You really know your stuff! Have you considered becoming a physical therapist? Very Happy  The chiropractor did tell me that my left side was in posterior rotation. One clue to this was because when I sit on a toilet my left labia bulges out quite a bit more than the right. I get left hip and groin pain when I try to do my power walking.
I asked my V specialist for a physical therpy referral. He thought he needed to get the burning pain under control first before I started too much manipulation. He wanted me to try amitriptyline first. Do you know if this is a common approach? I would like to start physio as soon as possible. That's why I went to a chiropractor. In the US you don't need a doctor's referral for them like you do Physical therapy. Thank you for listening. It really helps.

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Re: misaligned pelvis

Post  Kathy100 on Fri Sep 13, 2013 4:19 am

My doctor did put me on amitriptyline first and it did get the burning pain under control within 3 days. A few weeks later I swopped to notriptyline because I couldn't cope with all the side effects of ami.  I'm still taking nortriptyline a low dose every other day but I'm hoping with the new physio I'll be able to come off it altogether.  I think the common approach with Drs in the UK is drugs first rather than try and get to the root of problem. My doctor wouldn't refer me as she thought it was "problem solved" when the ami kicked in.  The first physio I saw was recommended by a pain consultant I saw privately.  She helped temporarily but somehow missed the mis-aligned pelvis!! So my pain which had spread to back, buttocks and legs by then always came back.

I think taking the ami can give you some breathing space from the pain and I was told by the consultant also it gives the nerves a rest.  Bear in mind you can't immediately stop taking it you have reduce the dose gradually.

Sarah thanks for all the info on mis-aligned pelvis - you know so much - mine has held for a week so far - each time I stand up I'm checking that the weight distribution is the same....fingers crossed.

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Re: misaligned pelvis

Post  Kathy100 on Fri Sep 13, 2013 4:36 am

Delilah - forgot to say, if you can start physio sooner rather than later - you may save yourself several months of pain. I left it for a for a while because the nortriptyline was working & my symptoms got worse.

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Re: misaligned pelvis

Post  Sarah001 on Fri Sep 13, 2013 6:54 am

I agree with kathy the sooner the better because a misaligned pelvis can wreak havoc on the body. With the power walking I don't know how well you stabilise your pelvis with your glute medius but I'd guess not very well, try walking towards a mirror the way you power walk and if your pelvis is tilting laterally you need to sort that out to stabilise whilst walking.

And Kathy I had 2 Osteopaths miss my misaligned pelvis before someone spotted it, mine was really noticeable too so how they managed to miss it is a mystery!!
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