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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

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Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


misaligned pelvis

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misaligned pelvis

Post  Delilah1 on Wed Sep 11, 2013 10:07 pm

Hello ladies. I visited a chiropractor. Learned that I have a misaligned pelvis, slight scoliosis and one leg longer than the other.
I have had several adjustments. I haven't noticed it helping with the vulvodynia pain. I think it has caused more discomfort. Is it normal to have an increase in pain after adjustments or physio?
I'm also wondering if someone who sees a women's physiotherapist could share with me exactly how they go about treating a misaligned pelvis? Thank you

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Re: misaligned pelvis

Post  Kathy100 on Thu Sep 12, 2013 1:51 pm

I've recently started seeing a new physio for myofascial release. She found that my pelvis was misaligned (the right hip was over half an inch higher than my left), there was no movement in the mid section of my back and my shoulders were permanently up!.
Last week she re-aligned my pelvis by loosening all the surrounding muscles first, and then gently pushing down on my right sit bone. It didn't hurt at all and afterwards my weight distribution when I stood up felt completely different and so much better. I didn't have any flare up afterwards but everyone is different. This week she did more work on my stomach, pelvic and leg muscles. The day & night afterwards I had pain in my stomach which has now worn off & a minor flare up of the v pain which has now worn off. I understand that it's normal to have a temporary flare up after physio as long as overall you are gradually making progress. I have never been to a chiropractor but they should warn you beforehand about flare ups.

I hope this helps.

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Re: misaligned pelvis

Post  Sarah001 on Thu Sep 12, 2013 9:12 pm

The misaligned pelvis, the bain of my life!! Most cases present with the right leg longer than the left because the right side ilium is in anterior rotation (forward and down at the front) and the left in a compensatory posterior rotation (backwards and down at the back) this throws the hip position out so the longer leg makes the same side of the pelvis higher in standing. A true leg length Discrepancy is tested by having the patient sit and if the pelvis is level once the legs are taken out of the equation it's a true LLD but most cases are functional so caused by the misalignment. There are upslips, downslips and inflares and outflares but I won't bore you with those! The unlevel pelvis creates an unlevel base for the spine so it has to curve into either an S or C shape to accommodate that and that makes one shoulder higher than the other. Naturally as the bones are all out of whack the muscles have to lengthen and shorten in accordance with this and muscle imbalances are created which in turn cause the majority of the pain. Usually the longer leg will have a flatter arch and be prone to collapsing inwards to enable the leg to clear the ground and the muscles most often a problem are tight hamstrings, glutes and external oblique on the left along with weak hip flexors and tight hip flexors and overstretched hamstrings, glutes and external oblique on the right.

As the pelvic bones have moved the pelvic floor has too because it attaches to those bones so one side will be tighter than the other (usually the left) and the external hip rotators being very closely related to the PF will also change with one side tighter than the other. This creates a rotation of the body and causes yet more problems. Some are lucky enough that the muscles aren't horribly affected and a correction holds, others like myself can't hold a correction for more than a few days. The soft tissue is usually key to pain relief though and chiros aren't as good as physios when it comes to soft tissue. They also can make matters worse if they treat the loose side (whichever is in anterior rotation is the weaker side) with aggressive techniques as opposed to the gentler methods employed by physios. If you aren't holding the correction you won't get pain relief until you do and most likely the pelvic floor will have to take a back seat while the misalignment is sorted out. Even if you do hold a correction the soft tissue also needs help as it will be full of trigger points and some areas strained and others shortened so the misalignment needs dealing with first but rest assured all the problems you've mentioned are typical of a misaligned pelvis and not separate problems. I would try a physio instead to see if a different method might work better and for help with the soft tissue.

Sorry to bore everyone as per!! Rolling Eyes 
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Re: misaligned pelvis

Post  Delilah1 on Thu Sep 12, 2013 10:15 pm

Thank you Kathy and Sarah for your replies!

Sarah, you did not bore me with your reply! It was all very informative. When I was a child my mother took me to the doctor because of a "funny feeling" I kept having in my leg. At the time, the doctor didn't know what caused it. I know now that it was restless leg. However, the doctor did diagnose the slight scoliosis in my spine at that time. Do you think having the scoliosis all my life could be what caused the misaligned pelvis? You really know your stuff! Have you considered becoming a physical therapist? Very Happy  The chiropractor did tell me that my left side was in posterior rotation. One clue to this was because when I sit on a toilet my left labia bulges out quite a bit more than the right. I get left hip and groin pain when I try to do my power walking.
I asked my V specialist for a physical therpy referral. He thought he needed to get the burning pain under control first before I started too much manipulation. He wanted me to try amitriptyline first. Do you know if this is a common approach? I would like to start physio as soon as possible. That's why I went to a chiropractor. In the US you don't need a doctor's referral for them like you do Physical therapy. Thank you for listening. It really helps.

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Re: misaligned pelvis

Post  Kathy100 on Fri Sep 13, 2013 9:19 am

My doctor did put me on amitriptyline first and it did get the burning pain under control within 3 days. A few weeks later I swopped to notriptyline because I couldn't cope with all the side effects of ami.  I'm still taking nortriptyline a low dose every other day but I'm hoping with the new physio I'll be able to come off it altogether.  I think the common approach with Drs in the UK is drugs first rather than try and get to the root of problem. My doctor wouldn't refer me as she thought it was "problem solved" when the ami kicked in.  The first physio I saw was recommended by a pain consultant I saw privately.  She helped temporarily but somehow missed the mis-aligned pelvis!! So my pain which had spread to back, buttocks and legs by then always came back.

I think taking the ami can give you some breathing space from the pain and I was told by the consultant also it gives the nerves a rest.  Bear in mind you can't immediately stop taking it you have reduce the dose gradually.

Sarah thanks for all the info on mis-aligned pelvis - you know so much - mine has held for a week so far - each time I stand up I'm checking that the weight distribution is the same....fingers crossed.

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Re: misaligned pelvis

Post  Kathy100 on Fri Sep 13, 2013 9:36 am

Delilah - forgot to say, if you can start physio sooner rather than later - you may save yourself several months of pain. I left it for a for a while because the nortriptyline was working & my symptoms got worse.

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Re: misaligned pelvis

Post  Sarah001 on Fri Sep 13, 2013 11:54 am

I agree with kathy the sooner the better because a misaligned pelvis can wreak havoc on the body. With the power walking I don't know how well you stabilise your pelvis with your glute medius but I'd guess not very well, try walking towards a mirror the way you power walk and if your pelvis is tilting laterally you need to sort that out to stabilise whilst walking.

And Kathy I had 2 Osteopaths miss my misaligned pelvis before someone spotted it, mine was really noticeable too so how they managed to miss it is a mystery!!
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