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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Has anyone had problems with micturate urge?

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Has anyone had problems with micturate urge?

Post  Lena_84 on Thu Sep 12, 2013 4:29 am

As I have painful urination, some times It seems I want to pee every hour (but I drink much), but sometimes I don't feel any urge Sad Even in the morning I don't feel any urge. Since vulvodynia has come I have pain/discomfort in pubis area. Sometimes It seems to me that signal for urination hides inside pubis or something like that,that's why I can't feel urge Sad Sometimes I think that my brain stops these signals as urination is painful for me (like hot water). When I feel urge it isn't as it was before,strange feeling. I'm scared of future worsening. Or may be it is side effects of amitriptyline/lyrica?
Has anyone had similar problems?

Lena_84

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Re: Has anyone had problems with micturate urge?

Post  zarli on Thu Sep 12, 2013 12:00 pm

I have a lot of bladder problems different to you though but my specialist tells me that vulvadynia can cause irritable bladder. I go to bed at night and straight away I'm up and down to the toilet 6 to 7 times sometimes with burning, needless to say I have had many UTI test done all negative. I take a valium if it goes on for more than three nights and it relaxes the bladder and I can get some sleep. I know one of the side affects of amil med is slow urination. Good luck

zarli

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Re: Has anyone had problems with micturate urge?

Post  EviE°Bee on Wed Oct 02, 2013 12:48 am

I'm having the same problem right now. It comes and goes but gets worse before period and after. I pee every hour on the hour, right before bed and right when I wake up. If I drink normal temp water, it's even worse. If I drink cold water it's not as bad. I can usually sleep through the night but I try and stop drinking 2 hrs before bed.

EviE°Bee

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Re: Has anyone had problems with micturate urge?

Post  EviE°Bee on Wed Oct 02, 2013 12:50 am

It really sucks and it makes me feel anxious. :-\ I'm waiting for an appt to urologist, I'll share whatever info he shares.

EviE°Bee

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Re: Has anyone had problems with micturate urge?

Post  burningturning on Wed Oct 02, 2013 8:52 am

Have you ever tried acupuncture? I've heard that acupuncture works very well for generalized unprovoked V, especially for pain during urination.

burningturning

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Re: Has anyone had problems with micturate urge?

Post  Lena_84 on Wed Oct 02, 2013 10:44 am

I tryed,but it didn't help. I think it depends on acupuncturist's experience. Mine has never treated vuvodynia. Also it depends on points which are treated. We treated pudendal nerve. May be we should treat something else and other points. I also noticed that my hips,buttocks and genital area's sensation are changed.I did't say about it to my acupuncturist. But definitely I feel in strange way while sitting or when clothes touch this area.

Lena_84

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Re: Has anyone had problems with micturate urge?

Post  burningturning on Wed Oct 02, 2013 11:33 am

Sorry to hear that acupuncture didn't work for you Sad
However, I believe it's important to find an acupunturist specialized in vulva. I've spoken with an acupuncturist about my condition but he refused to treat me stating that he has no experience in vulva. I did some research and found out there are some medical doctors (even some gynaecologists and urogynecologists) who treat vulvodynia with medical acupuncture and neural therapy. Now I'm in a different treatment so if it won't work, I'll definitely give a try to that medicial acupuncture. Because if V has something to do with nerves, neural theraphy is worth a shot.
I hope this helps you.

burningturning

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Re: Has anyone had problems with micturate urge?

Post  Lena_84 on Wed Oct 02, 2013 1:42 pm

Unfortunately, noone specializes in vulva in Russia and Japan. I was treated by neuropathologist. I think it's the best in my situation to be treated by someone who knows about nerves.We hadn't much time to try everything. This time I asked another person (who also doesn't have experience) and she answered that she will try.But I think it's better to be treated by the doctor.
Because my symptoms vary from from day or month it was difficult to say what exactly was problem.We treated just painful side, not in whole.May be it's better to treat in whole.Question 

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Re: Has anyone had problems with micturate urge?

Post  Alana3 on Wed Oct 02, 2013 3:45 pm

Maybe you have ic?

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Re: Has anyone had problems with micturate urge?

Post  Lena_84 on Thu Oct 03, 2013 12:46 am

Aana, now I'm thinking about dysaesthesia or paresthesia or something like that. I noticed that sometimes I have a slight burning in my face in the morning when I wake up.
May be I have problems in general? Sad 

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Re: Has anyone had problems with micturate urge?

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