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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Has anyone had problems with micturate urge?

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Has anyone had problems with micturate urge?

Post  Lena_84 on Thu Sep 12, 2013 4:29 am

As I have painful urination, some times It seems I want to pee every hour (but I drink much), but sometimes I don't feel any urge Sad Even in the morning I don't feel any urge. Since vulvodynia has come I have pain/discomfort in pubis area. Sometimes It seems to me that signal for urination hides inside pubis or something like that,that's why I can't feel urge Sad Sometimes I think that my brain stops these signals as urination is painful for me (like hot water). When I feel urge it isn't as it was before,strange feeling. I'm scared of future worsening. Or may be it is side effects of amitriptyline/lyrica?
Has anyone had similar problems?

Lena_84

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Re: Has anyone had problems with micturate urge?

Post  zarli on Thu Sep 12, 2013 12:00 pm

I have a lot of bladder problems different to you though but my specialist tells me that vulvadynia can cause irritable bladder. I go to bed at night and straight away I'm up and down to the toilet 6 to 7 times sometimes with burning, needless to say I have had many UTI test done all negative. I take a valium if it goes on for more than three nights and it relaxes the bladder and I can get some sleep. I know one of the side affects of amil med is slow urination. Good luck

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Re: Has anyone had problems with micturate urge?

Post  EviE°Bee on Wed Oct 02, 2013 12:48 am

I'm having the same problem right now. It comes and goes but gets worse before period and after. I pee every hour on the hour, right before bed and right when I wake up. If I drink normal temp water, it's even worse. If I drink cold water it's not as bad. I can usually sleep through the night but I try and stop drinking 2 hrs before bed.

EviE°Bee

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Re: Has anyone had problems with micturate urge?

Post  EviE°Bee on Wed Oct 02, 2013 12:50 am

It really sucks and it makes me feel anxious. :-\ I'm waiting for an appt to urologist, I'll share whatever info he shares.

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Re: Has anyone had problems with micturate urge?

Post  burningturning on Wed Oct 02, 2013 8:52 am

Have you ever tried acupuncture? I've heard that acupuncture works very well for generalized unprovoked V, especially for pain during urination.

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Re: Has anyone had problems with micturate urge?

Post  Lena_84 on Wed Oct 02, 2013 10:44 am

I tryed,but it didn't help. I think it depends on acupuncturist's experience. Mine has never treated vuvodynia. Also it depends on points which are treated. We treated pudendal nerve. May be we should treat something else and other points. I also noticed that my hips,buttocks and genital area's sensation are changed.I did't say about it to my acupuncturist. But definitely I feel in strange way while sitting or when clothes touch this area.

Lena_84

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Re: Has anyone had problems with micturate urge?

Post  burningturning on Wed Oct 02, 2013 11:33 am

Sorry to hear that acupuncture didn't work for you Sad
However, I believe it's important to find an acupunturist specialized in vulva. I've spoken with an acupuncturist about my condition but he refused to treat me stating that he has no experience in vulva. I did some research and found out there are some medical doctors (even some gynaecologists and urogynecologists) who treat vulvodynia with medical acupuncture and neural therapy. Now I'm in a different treatment so if it won't work, I'll definitely give a try to that medicial acupuncture. Because if V has something to do with nerves, neural theraphy is worth a shot.
I hope this helps you.

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Re: Has anyone had problems with micturate urge?

Post  Lena_84 on Wed Oct 02, 2013 1:42 pm

Unfortunately, noone specializes in vulva in Russia and Japan. I was treated by neuropathologist. I think it's the best in my situation to be treated by someone who knows about nerves.We hadn't much time to try everything. This time I asked another person (who also doesn't have experience) and she answered that she will try.But I think it's better to be treated by the doctor.
Because my symptoms vary from from day or month it was difficult to say what exactly was problem.We treated just painful side, not in whole.May be it's better to treat in whole.Question 

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Re: Has anyone had problems with micturate urge?

Post  Alana3 on Wed Oct 02, 2013 3:45 pm

Maybe you have ic?

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Re: Has anyone had problems with micturate urge?

Post  Lena_84 on Thu Oct 03, 2013 12:46 am

Aana, now I'm thinking about dysaesthesia or paresthesia or something like that. I noticed that sometimes I have a slight burning in my face in the morning when I wake up.
May be I have problems in general? Sad 

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Re: Has anyone had problems with micturate urge?

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