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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Has anyone had problems with micturate urge?

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Has anyone had problems with micturate urge?

Post  Lena_84 on Thu Sep 12, 2013 4:29 am

As I have painful urination, some times It seems I want to pee every hour (but I drink much), but sometimes I don't feel any urge Sad Even in the morning I don't feel any urge. Since vulvodynia has come I have pain/discomfort in pubis area. Sometimes It seems to me that signal for urination hides inside pubis or something like that,that's why I can't feel urge Sad Sometimes I think that my brain stops these signals as urination is painful for me (like hot water). When I feel urge it isn't as it was before,strange feeling. I'm scared of future worsening. Or may be it is side effects of amitriptyline/lyrica?
Has anyone had similar problems?

Lena_84

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Re: Has anyone had problems with micturate urge?

Post  zarli on Thu Sep 12, 2013 12:00 pm

I have a lot of bladder problems different to you though but my specialist tells me that vulvadynia can cause irritable bladder. I go to bed at night and straight away I'm up and down to the toilet 6 to 7 times sometimes with burning, needless to say I have had many UTI test done all negative. I take a valium if it goes on for more than three nights and it relaxes the bladder and I can get some sleep. I know one of the side affects of amil med is slow urination. Good luck

zarli

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Re: Has anyone had problems with micturate urge?

Post  EviE°Bee on Wed Oct 02, 2013 12:48 am

I'm having the same problem right now. It comes and goes but gets worse before period and after. I pee every hour on the hour, right before bed and right when I wake up. If I drink normal temp water, it's even worse. If I drink cold water it's not as bad. I can usually sleep through the night but I try and stop drinking 2 hrs before bed.

EviE°Bee

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Re: Has anyone had problems with micturate urge?

Post  EviE°Bee on Wed Oct 02, 2013 12:50 am

It really sucks and it makes me feel anxious. :-\ I'm waiting for an appt to urologist, I'll share whatever info he shares.

EviE°Bee

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Re: Has anyone had problems with micturate urge?

Post  burningturning on Wed Oct 02, 2013 8:52 am

Have you ever tried acupuncture? I've heard that acupuncture works very well for generalized unprovoked V, especially for pain during urination.

burningturning

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Re: Has anyone had problems with micturate urge?

Post  Lena_84 on Wed Oct 02, 2013 10:44 am

I tryed,but it didn't help. I think it depends on acupuncturist's experience. Mine has never treated vuvodynia. Also it depends on points which are treated. We treated pudendal nerve. May be we should treat something else and other points. I also noticed that my hips,buttocks and genital area's sensation are changed.I did't say about it to my acupuncturist. But definitely I feel in strange way while sitting or when clothes touch this area.

Lena_84

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Re: Has anyone had problems with micturate urge?

Post  burningturning on Wed Oct 02, 2013 11:33 am

Sorry to hear that acupuncture didn't work for you Sad
However, I believe it's important to find an acupunturist specialized in vulva. I've spoken with an acupuncturist about my condition but he refused to treat me stating that he has no experience in vulva. I did some research and found out there are some medical doctors (even some gynaecologists and urogynecologists) who treat vulvodynia with medical acupuncture and neural therapy. Now I'm in a different treatment so if it won't work, I'll definitely give a try to that medicial acupuncture. Because if V has something to do with nerves, neural theraphy is worth a shot.
I hope this helps you.

burningturning

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Re: Has anyone had problems with micturate urge?

Post  Lena_84 on Wed Oct 02, 2013 1:42 pm

Unfortunately, noone specializes in vulva in Russia and Japan. I was treated by neuropathologist. I think it's the best in my situation to be treated by someone who knows about nerves.We hadn't much time to try everything. This time I asked another person (who also doesn't have experience) and she answered that she will try.But I think it's better to be treated by the doctor.
Because my symptoms vary from from day or month it was difficult to say what exactly was problem.We treated just painful side, not in whole.May be it's better to treat in whole.Question 

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Re: Has anyone had problems with micturate urge?

Post  Alana3 on Wed Oct 02, 2013 3:45 pm

Maybe you have ic?

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Re: Has anyone had problems with micturate urge?

Post  Lena_84 on Thu Oct 03, 2013 12:46 am

Aana, now I'm thinking about dysaesthesia or paresthesia or something like that. I noticed that sometimes I have a slight burning in my face in the morning when I wake up.
May be I have problems in general? Sad 

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Re: Has anyone had problems with micturate urge?

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