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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Anyone feel their job is making symptoms worse?

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Anyone feel their job is making symptoms worse?

Post  Sunflower82 on Fri Sep 13, 2013 6:52 am

Hi,
This may seen a little odd, but I think my job is making my pain worse! I work in a school for children with autism in a position with responsibility for implementing programmes and training staff and deal with problem behaviour which can be aggressive ! I constantly feel like I'm making sure everyone is ok and I feel I'm always in fight or flight mode, I really enjoy my job and love the kids. But I've been bk to school for 4 days with the kids and my vulvar pain is back after 7 weeks of no pain ! Really struggling with making a difficult decision but this is the only job I have ever done and I don't want to be one of those people who just work with the less challenging kids !

Anyone been in a similar situation. ?

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Re: Anyone feel their job is making symptoms worse?

Post  Sarah001 on Fri Sep 13, 2013 12:05 pm

My job definitely does because I stand almost all day and have lousy posture and the quicker I have to go the worse I get for breath holding, gripping with the glutes and upper abs and it makes my pain off the scale. I find if I pay attention and make sure I breathe properly and don't grip with anything I only feel slightly worse at the end of the day as opposed to horrendous. I would say try and pay attention to what you're doing and work out if you clench or don't breathe properly before you leave your job, it could be a case of learning not to do these things whilst at work to keep the pain away.
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Re: Anyone feel their job is making symptoms worse?

Post  Elc88 on Mon Sep 23, 2013 6:12 pm

It's not likely to be stress related is it? Do you find the works stressful or is it just full on? Do you spend more time sitting when you're at work vs holiday time? Is there a chance it's even your work chair?

I wouldn't say my work makes my condition worse, but sometimes I do notice it stings a little more because I sit at a desk all day and probably have really bad posture...

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Anyone feel their job is making there symptoms worse

Post  Sunflower82 on Mon Sep 23, 2013 7:58 pm

Thanks for both your responses, not sure how I can describe my job, I run around like a headless chicken after children and spent time training other people, I have to get physically involved playing chase, jumping on the trampoline, riding scooters ! I do sit down on and off, but it can be a stressful environment working with children who can be aggressive. I also have to restrain children at times as well, dealing with aggressive behaviour often leaves you in a constant state of fight or flight which mean I can not relax when I'm not relaxed I hold in my tummy muscles which has an effect on my pelvic floor muscles.

Hope this gives u an idea of work day.

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Re: Anyone feel their job is making symptoms worse?

Post  tinkerbelle2 on Thu Oct 03, 2013 2:25 pm

Hey sunflower,
I'm a care assistant and I work with elderly clients, and children and adults with learning disabilities so slightly similar!

Because the job comes with a lot of responsibility obviously you have to make sure you don't have too much time off, are on time etc. This pressure can be hard for me to cope with. I find the VV sometimes makes me want to not do anything and makes me run a little late as I'm trying to find creams and painkillers in the morning  (I should probably get more prepared the night before but I never learn!)

I do find stress seems to make the burning worse. Weirdly, when I was on holiday for 3 weeks the pain was not gone but greatly reduced. I was going in the sea and pool every day, I don't know if the cooling effect of the water was soothing maybe? No
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Re:anyone feel their job is making their symptoms worse.

Post  Sunflower82 on Thu Oct 03, 2013 7:25 pm

Hi,
Thanks for your reply, I found the same when I was on honeymoon! Nearly any burning, I wonder if the salt water helped, we swam in the sea and the pool which was salt water! The shower in the room was also salt mildly salty!

Also has a nerve block in my back ten days before so don't know if it was a combination of that and getting married and being off work !

Kt

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Re: Anyone feel their job is making symptoms worse?

Post  tinkerbelle2 on Sat Oct 05, 2013 2:15 pm

That's really interesting!

Yeah, good life events seem to at least make it slightly more bearable. I might try some bath salts to see if that does anything.

Belle
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Re: Anyone feel their job is making symptoms worse?

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