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» I'm sorry im rambling
Today at 5:49 am by Jet227

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 0

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0


Anyone feel their job is making symptoms worse?

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Anyone feel their job is making symptoms worse?

Post  Sunflower82 on Fri Sep 13, 2013 6:52 am

Hi,
This may seen a little odd, but I think my job is making my pain worse! I work in a school for children with autism in a position with responsibility for implementing programmes and training staff and deal with problem behaviour which can be aggressive ! I constantly feel like I'm making sure everyone is ok and I feel I'm always in fight or flight mode, I really enjoy my job and love the kids. But I've been bk to school for 4 days with the kids and my vulvar pain is back after 7 weeks of no pain ! Really struggling with making a difficult decision but this is the only job I have ever done and I don't want to be one of those people who just work with the less challenging kids !

Anyone been in a similar situation. ?

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Re: Anyone feel their job is making symptoms worse?

Post  Sarah001 on Fri Sep 13, 2013 12:05 pm

My job definitely does because I stand almost all day and have lousy posture and the quicker I have to go the worse I get for breath holding, gripping with the glutes and upper abs and it makes my pain off the scale. I find if I pay attention and make sure I breathe properly and don't grip with anything I only feel slightly worse at the end of the day as opposed to horrendous. I would say try and pay attention to what you're doing and work out if you clench or don't breathe properly before you leave your job, it could be a case of learning not to do these things whilst at work to keep the pain away.
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Re: Anyone feel their job is making symptoms worse?

Post  Elc88 on Mon Sep 23, 2013 6:12 pm

It's not likely to be stress related is it? Do you find the works stressful or is it just full on? Do you spend more time sitting when you're at work vs holiday time? Is there a chance it's even your work chair?

I wouldn't say my work makes my condition worse, but sometimes I do notice it stings a little more because I sit at a desk all day and probably have really bad posture...

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Anyone feel their job is making there symptoms worse

Post  Sunflower82 on Mon Sep 23, 2013 7:58 pm

Thanks for both your responses, not sure how I can describe my job, I run around like a headless chicken after children and spent time training other people, I have to get physically involved playing chase, jumping on the trampoline, riding scooters ! I do sit down on and off, but it can be a stressful environment working with children who can be aggressive. I also have to restrain children at times as well, dealing with aggressive behaviour often leaves you in a constant state of fight or flight which mean I can not relax when I'm not relaxed I hold in my tummy muscles which has an effect on my pelvic floor muscles.

Hope this gives u an idea of work day.

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Re: Anyone feel their job is making symptoms worse?

Post  tinkerbelle2 on Thu Oct 03, 2013 2:25 pm

Hey sunflower,
I'm a care assistant and I work with elderly clients, and children and adults with learning disabilities so slightly similar!

Because the job comes with a lot of responsibility obviously you have to make sure you don't have too much time off, are on time etc. This pressure can be hard for me to cope with. I find the VV sometimes makes me want to not do anything and makes me run a little late as I'm trying to find creams and painkillers in the morning  (I should probably get more prepared the night before but I never learn!)

I do find stress seems to make the burning worse. Weirdly, when I was on holiday for 3 weeks the pain was not gone but greatly reduced. I was going in the sea and pool every day, I don't know if the cooling effect of the water was soothing maybe? No
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Re:anyone feel their job is making their symptoms worse.

Post  Sunflower82 on Thu Oct 03, 2013 7:25 pm

Hi,
Thanks for your reply, I found the same when I was on honeymoon! Nearly any burning, I wonder if the salt water helped, we swam in the sea and the pool which was salt water! The shower in the room was also salt mildly salty!

Also has a nerve block in my back ten days before so don't know if it was a combination of that and getting married and being off work !

Kt

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Re: Anyone feel their job is making symptoms worse?

Post  tinkerbelle2 on Sat Oct 05, 2013 2:15 pm

That's really interesting!

Yeah, good life events seem to at least make it slightly more bearable. I might try some bath salts to see if that does anything.

Belle
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Re: Anyone feel their job is making symptoms worse?

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