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» Change in birth control question
Yesterday at 3:47 pm by Jo44

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Anyone feel their job is making symptoms worse?

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Anyone feel their job is making symptoms worse?

Post  Sunflower82 on Fri Sep 13, 2013 6:52 am

Hi,
This may seen a little odd, but I think my job is making my pain worse! I work in a school for children with autism in a position with responsibility for implementing programmes and training staff and deal with problem behaviour which can be aggressive ! I constantly feel like I'm making sure everyone is ok and I feel I'm always in fight or flight mode, I really enjoy my job and love the kids. But I've been bk to school for 4 days with the kids and my vulvar pain is back after 7 weeks of no pain ! Really struggling with making a difficult decision but this is the only job I have ever done and I don't want to be one of those people who just work with the less challenging kids !

Anyone been in a similar situation. ?

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Re: Anyone feel their job is making symptoms worse?

Post  Sarah001 on Fri Sep 13, 2013 12:05 pm

My job definitely does because I stand almost all day and have lousy posture and the quicker I have to go the worse I get for breath holding, gripping with the glutes and upper abs and it makes my pain off the scale. I find if I pay attention and make sure I breathe properly and don't grip with anything I only feel slightly worse at the end of the day as opposed to horrendous. I would say try and pay attention to what you're doing and work out if you clench or don't breathe properly before you leave your job, it could be a case of learning not to do these things whilst at work to keep the pain away.
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Re: Anyone feel their job is making symptoms worse?

Post  Elc88 on Mon Sep 23, 2013 6:12 pm

It's not likely to be stress related is it? Do you find the works stressful or is it just full on? Do you spend more time sitting when you're at work vs holiday time? Is there a chance it's even your work chair?

I wouldn't say my work makes my condition worse, but sometimes I do notice it stings a little more because I sit at a desk all day and probably have really bad posture...

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Anyone feel their job is making there symptoms worse

Post  Sunflower82 on Mon Sep 23, 2013 7:58 pm

Thanks for both your responses, not sure how I can describe my job, I run around like a headless chicken after children and spent time training other people, I have to get physically involved playing chase, jumping on the trampoline, riding scooters ! I do sit down on and off, but it can be a stressful environment working with children who can be aggressive. I also have to restrain children at times as well, dealing with aggressive behaviour often leaves you in a constant state of fight or flight which mean I can not relax when I'm not relaxed I hold in my tummy muscles which has an effect on my pelvic floor muscles.

Hope this gives u an idea of work day.

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Re: Anyone feel their job is making symptoms worse?

Post  tinkerbelle2 on Thu Oct 03, 2013 2:25 pm

Hey sunflower,
I'm a care assistant and I work with elderly clients, and children and adults with learning disabilities so slightly similar!

Because the job comes with a lot of responsibility obviously you have to make sure you don't have too much time off, are on time etc. This pressure can be hard for me to cope with. I find the VV sometimes makes me want to not do anything and makes me run a little late as I'm trying to find creams and painkillers in the morning  (I should probably get more prepared the night before but I never learn!)

I do find stress seems to make the burning worse. Weirdly, when I was on holiday for 3 weeks the pain was not gone but greatly reduced. I was going in the sea and pool every day, I don't know if the cooling effect of the water was soothing maybe? No
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Re:anyone feel their job is making their symptoms worse.

Post  Sunflower82 on Thu Oct 03, 2013 7:25 pm

Hi,
Thanks for your reply, I found the same when I was on honeymoon! Nearly any burning, I wonder if the salt water helped, we swam in the sea and the pool which was salt water! The shower in the room was also salt mildly salty!

Also has a nerve block in my back ten days before so don't know if it was a combination of that and getting married and being off work !

Kt

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Re: Anyone feel their job is making symptoms worse?

Post  tinkerbelle2 on Sat Oct 05, 2013 2:15 pm

That's really interesting!

Yeah, good life events seem to at least make it slightly more bearable. I might try some bath salts to see if that does anything.

Belle
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Re: Anyone feel their job is making symptoms worse?

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