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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Spoke with my Physical Therapist

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Spoke with my Physical Therapist

Post  Jenn89 on Sun Sep 15, 2013 7:46 pm

So I talked to my physical therapist about the forum I found. Which was kind of hard to bring up! She likes to make a lot of small talk during our sessions to help pass the time, but I had things I wanted to discuss this time. Smile

Anyway, I told her I found a support forum and that some women have found relief through the help of a chiropractor and some through surgery. She told me there's no way I need either. If she thought I needed a chiropractor, she would have sent me a long time ago. She said it's all about the tension in my muscles. I need to learn to relax them and desensitize the nerves.
She told me to really really really push my dilator exercises at home and I should see a big improvement within 2 months.

I trust what she's telling me, but at the same time, it's disappointing. It's been about 6 or 7 years. Why am I not cured already? But at the same time, I don't push my exercises at home. I don't have a lot of privacy so it's hard. I was also told I really need to keep up with applying my Halobetasol. Which I constantly forget, but have recently been really good with it... (the past 3 weeks-ish)

Blahhhhhh....... I just gotta keep pushing. I did my exercises today, about an hour ago, and I'm still sore. Sad I just hope keeping up with the Halobetasol and the dilator exercises makes a difference. I'm really going to try very hard this time. I'm so sick of this. I can live a normal life up until the dating part comes in. I've been single for 3 years now. It's getting old.


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Re: Spoke with my Physical Therapist

Post  Alana3 on Mon Sep 16, 2013 12:17 pm

I don't know what your condition is but maybe see a vulvodynia specialist and see what they say but remember everyone is different. I needed both surgery and pt


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Re: Spoke with my Physical Therapist

Post  cba321 on Mon Sep 16, 2013 11:03 pm

My initial women's health physio told me not to go to a chiro, but i went anyway. I found it helpful and she was able to align my pelvis using dual torque. My general pelvis pain physio encouraged it and my next women's health physio who helped me way more also said chiro was a good idea.

The idea is that yes it is the muscles that are tight but they are pulling the bones and joints out of alignment and if you can learn to relax your muscles it is good to have the joints aligned to help with the process as the muscles begin to relax, ideally...

There is a bit of professional tension between physio and chiro as well. Best to research yourself and weigh up advice from a range of health professionals


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Re: Spoke with my Physical Therapist

Post  Jenn89 on Tue Sep 17, 2013 9:20 pm

I see a specialist also. She referred me to this PT. I'll talk to her at my next appointment. But i don't think that's until February or something. I was thinking about calling her and talking g to her about it but I don't know. I don't wanna waste her time. I'm just trying to step up my game with the home exercises before I actually call her I guess. Then i can at least say I've been working hard at PT and it's not working.

My only issue there is that she keeps wanting to refer me to a different PT. She says this other woman is so much better. But she doesn't take insurance and she's over an hour away from me. I can't afford that.


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Re: Spoke with my Physical Therapist

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