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» Struggling
Yesterday at 3:19 am by doublej

Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Spoke with my Physical Therapist

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Spoke with my Physical Therapist

Post  Jenn89 on Sun Sep 15, 2013 7:46 pm

So I talked to my physical therapist about the forum I found. Which was kind of hard to bring up! She likes to make a lot of small talk during our sessions to help pass the time, but I had things I wanted to discuss this time. Smile

Anyway, I told her I found a support forum and that some women have found relief through the help of a chiropractor and some through surgery. She told me there's no way I need either. If she thought I needed a chiropractor, she would have sent me a long time ago. She said it's all about the tension in my muscles. I need to learn to relax them and desensitize the nerves.
She told me to really really really push my dilator exercises at home and I should see a big improvement within 2 months.

I trust what she's telling me, but at the same time, it's disappointing. It's been about 6 or 7 years. Why am I not cured already? But at the same time, I don't push my exercises at home. I don't have a lot of privacy so it's hard. I was also told I really need to keep up with applying my Halobetasol. Which I constantly forget, but have recently been really good with it... (the past 3 weeks-ish)

Blahhhhhh....... I just gotta keep pushing. I did my exercises today, about an hour ago, and I'm still sore. Sad I just hope keeping up with the Halobetasol and the dilator exercises makes a difference. I'm really going to try very hard this time. I'm so sick of this. I can live a normal life up until the dating part comes in. I've been single for 3 years now. It's getting old.


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Re: Spoke with my Physical Therapist

Post  Alana3 on Mon Sep 16, 2013 12:17 pm

I don't know what your condition is but maybe see a vulvodynia specialist and see what they say but remember everyone is different. I needed both surgery and pt


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Re: Spoke with my Physical Therapist

Post  cba321 on Mon Sep 16, 2013 11:03 pm

My initial women's health physio told me not to go to a chiro, but i went anyway. I found it helpful and she was able to align my pelvis using dual torque. My general pelvis pain physio encouraged it and my next women's health physio who helped me way more also said chiro was a good idea.

The idea is that yes it is the muscles that are tight but they are pulling the bones and joints out of alignment and if you can learn to relax your muscles it is good to have the joints aligned to help with the process as the muscles begin to relax, ideally...

There is a bit of professional tension between physio and chiro as well. Best to research yourself and weigh up advice from a range of health professionals


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Re: Spoke with my Physical Therapist

Post  Jenn89 on Tue Sep 17, 2013 9:20 pm

I see a specialist also. She referred me to this PT. I'll talk to her at my next appointment. But i don't think that's until February or something. I was thinking about calling her and talking g to her about it but I don't know. I don't wanna waste her time. I'm just trying to step up my game with the home exercises before I actually call her I guess. Then i can at least say I've been working hard at PT and it's not working.

My only issue there is that she keeps wanting to refer me to a different PT. She says this other woman is so much better. But she doesn't take insurance and she's over an hour away from me. I can't afford that.


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