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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

Spoke with my Physical Therapist

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Spoke with my Physical Therapist

Post  Jenn89 on Sun Sep 15, 2013 7:46 pm

So I talked to my physical therapist about the forum I found. Which was kind of hard to bring up! She likes to make a lot of small talk during our sessions to help pass the time, but I had things I wanted to discuss this time. Smile

Anyway, I told her I found a support forum and that some women have found relief through the help of a chiropractor and some through surgery. She told me there's no way I need either. If she thought I needed a chiropractor, she would have sent me a long time ago. She said it's all about the tension in my muscles. I need to learn to relax them and desensitize the nerves.
She told me to really really really push my dilator exercises at home and I should see a big improvement within 2 months.

I trust what she's telling me, but at the same time, it's disappointing. It's been about 6 or 7 years. Why am I not cured already? But at the same time, I don't push my exercises at home. I don't have a lot of privacy so it's hard. I was also told I really need to keep up with applying my Halobetasol. Which I constantly forget, but have recently been really good with it... (the past 3 weeks-ish)

Blahhhhhh....... I just gotta keep pushing. I did my exercises today, about an hour ago, and I'm still sore. Sad I just hope keeping up with the Halobetasol and the dilator exercises makes a difference. I'm really going to try very hard this time. I'm so sick of this. I can live a normal life up until the dating part comes in. I've been single for 3 years now. It's getting old.


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Age : 27
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Re: Spoke with my Physical Therapist

Post  Alana3 on Mon Sep 16, 2013 12:17 pm

I don't know what your condition is but maybe see a vulvodynia specialist and see what they say but remember everyone is different. I needed both surgery and pt


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Re: Spoke with my Physical Therapist

Post  cba321 on Mon Sep 16, 2013 11:03 pm

My initial women's health physio told me not to go to a chiro, but i went anyway. I found it helpful and she was able to align my pelvis using dual torque. My general pelvis pain physio encouraged it and my next women's health physio who helped me way more also said chiro was a good idea.

The idea is that yes it is the muscles that are tight but they are pulling the bones and joints out of alignment and if you can learn to relax your muscles it is good to have the joints aligned to help with the process as the muscles begin to relax, ideally...

There is a bit of professional tension between physio and chiro as well. Best to research yourself and weigh up advice from a range of health professionals


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Re: Spoke with my Physical Therapist

Post  Jenn89 on Tue Sep 17, 2013 9:20 pm

I see a specialist also. She referred me to this PT. I'll talk to her at my next appointment. But i don't think that's until February or something. I was thinking about calling her and talking g to her about it but I don't know. I don't wanna waste her time. I'm just trying to step up my game with the home exercises before I actually call her I guess. Then i can at least say I've been working hard at PT and it's not working.

My only issue there is that she keeps wanting to refer me to a different PT. She says this other woman is so much better. But she doesn't take insurance and she's over an hour away from me. I can't afford that.


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Re: Spoke with my Physical Therapist

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