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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Spoke with my Physical Therapist

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Spoke with my Physical Therapist

Post  Jenn89 on Sun Sep 15, 2013 7:46 pm

So I talked to my physical therapist about the forum I found. Which was kind of hard to bring up! She likes to make a lot of small talk during our sessions to help pass the time, but I had things I wanted to discuss this time. Smile

Anyway, I told her I found a support forum and that some women have found relief through the help of a chiropractor and some through surgery. She told me there's no way I need either. If she thought I needed a chiropractor, she would have sent me a long time ago. She said it's all about the tension in my muscles. I need to learn to relax them and desensitize the nerves.
She told me to really really really push my dilator exercises at home and I should see a big improvement within 2 months.

I trust what she's telling me, but at the same time, it's disappointing. It's been about 6 or 7 years. Why am I not cured already? But at the same time, I don't push my exercises at home. I don't have a lot of privacy so it's hard. I was also told I really need to keep up with applying my Halobetasol. Which I constantly forget, but have recently been really good with it... (the past 3 weeks-ish)

Blahhhhhh....... I just gotta keep pushing. I did my exercises today, about an hour ago, and I'm still sore. Sad I just hope keeping up with the Halobetasol and the dilator exercises makes a difference. I'm really going to try very hard this time. I'm so sick of this. I can live a normal life up until the dating part comes in. I've been single for 3 years now. It's getting old.


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Re: Spoke with my Physical Therapist

Post  Alana3 on Mon Sep 16, 2013 12:17 pm

I don't know what your condition is but maybe see a vulvodynia specialist and see what they say but remember everyone is different. I needed both surgery and pt


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Re: Spoke with my Physical Therapist

Post  cba321 on Mon Sep 16, 2013 11:03 pm

My initial women's health physio told me not to go to a chiro, but i went anyway. I found it helpful and she was able to align my pelvis using dual torque. My general pelvis pain physio encouraged it and my next women's health physio who helped me way more also said chiro was a good idea.

The idea is that yes it is the muscles that are tight but they are pulling the bones and joints out of alignment and if you can learn to relax your muscles it is good to have the joints aligned to help with the process as the muscles begin to relax, ideally...

There is a bit of professional tension between physio and chiro as well. Best to research yourself and weigh up advice from a range of health professionals


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Re: Spoke with my Physical Therapist

Post  Jenn89 on Tue Sep 17, 2013 9:20 pm

I see a specialist also. She referred me to this PT. I'll talk to her at my next appointment. But i don't think that's until February or something. I was thinking about calling her and talking g to her about it but I don't know. I don't wanna waste her time. I'm just trying to step up my game with the home exercises before I actually call her I guess. Then i can at least say I've been working hard at PT and it's not working.

My only issue there is that she keeps wanting to refer me to a different PT. She says this other woman is so much better. But she doesn't take insurance and she's over an hour away from me. I can't afford that.


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