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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Spoke with my Physical Therapist

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Spoke with my Physical Therapist

Post  Jenn89 on Sun Sep 15, 2013 7:46 pm

So I talked to my physical therapist about the forum I found. Which was kind of hard to bring up! She likes to make a lot of small talk during our sessions to help pass the time, but I had things I wanted to discuss this time. Smile

Anyway, I told her I found a support forum and that some women have found relief through the help of a chiropractor and some through surgery. She told me there's no way I need either. If she thought I needed a chiropractor, she would have sent me a long time ago. She said it's all about the tension in my muscles. I need to learn to relax them and desensitize the nerves.
She told me to really really really push my dilator exercises at home and I should see a big improvement within 2 months.

I trust what she's telling me, but at the same time, it's disappointing. It's been about 6 or 7 years. Why am I not cured already? But at the same time, I don't push my exercises at home. I don't have a lot of privacy so it's hard. I was also told I really need to keep up with applying my Halobetasol. Which I constantly forget, but have recently been really good with it... (the past 3 weeks-ish)

Blahhhhhh....... I just gotta keep pushing. I did my exercises today, about an hour ago, and I'm still sore. Sad I just hope keeping up with the Halobetasol and the dilator exercises makes a difference. I'm really going to try very hard this time. I'm so sick of this. I can live a normal life up until the dating part comes in. I've been single for 3 years now. It's getting old.


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Re: Spoke with my Physical Therapist

Post  Alana3 on Mon Sep 16, 2013 12:17 pm

I don't know what your condition is but maybe see a vulvodynia specialist and see what they say but remember everyone is different. I needed both surgery and pt


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Re: Spoke with my Physical Therapist

Post  cba321 on Mon Sep 16, 2013 11:03 pm

My initial women's health physio told me not to go to a chiro, but i went anyway. I found it helpful and she was able to align my pelvis using dual torque. My general pelvis pain physio encouraged it and my next women's health physio who helped me way more also said chiro was a good idea.

The idea is that yes it is the muscles that are tight but they are pulling the bones and joints out of alignment and if you can learn to relax your muscles it is good to have the joints aligned to help with the process as the muscles begin to relax, ideally...

There is a bit of professional tension between physio and chiro as well. Best to research yourself and weigh up advice from a range of health professionals


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Re: Spoke with my Physical Therapist

Post  Jenn89 on Tue Sep 17, 2013 9:20 pm

I see a specialist also. She referred me to this PT. I'll talk to her at my next appointment. But i don't think that's until February or something. I was thinking about calling her and talking g to her about it but I don't know. I don't wanna waste her time. I'm just trying to step up my game with the home exercises before I actually call her I guess. Then i can at least say I've been working hard at PT and it's not working.

My only issue there is that she keeps wanting to refer me to a different PT. She says this other woman is so much better. But she doesn't take insurance and she's over an hour away from me. I can't afford that.


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