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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
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Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Distraught, i need someone please

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Distraught, i need someone please

Post  quell183 on Wed Sep 25, 2013 3:31 am

I am very new to this. I am almost 21 years old and have been dealing with this pain for about 5 months. Ive seen various doctors. About 5 gynecologists and have been treated for bv, cervicitis, yeast infections, ive gotten a steroid cream but nothing has worked. I noticed this pain back in may when i had a pap smear and realized that it hurt more than it had the first time i had a pelvic exam. About a week later i had sex for the first time in 10 months and felt a sharp pain and had to stop. Ever since that day ive never felt the same. Prior to all of this i felt completley fine, no burning or pain or anything. The gynecologist had mentioned they saw a little cut also. I havent been officially diagnosed but i know this is what i have. Im distraught and feel that there is no hope for me. Im too young to be going through so much emotional and physical pain. I dont have insurance so its even harder for me and i feel like nobody understands. I just want to feel better and go back to feeling normal. Crying or Very sad Sometimes i just want to die.

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Re: Distraught, i need someone please

Post  zarli on Wed Sep 25, 2013 8:55 am

Hi, are you taking any medication at present? Please know there is help available and you are doing the right thing reading and researching on here. Every one is so different and different things work for different women. I felt just as you are explaining how you feel when I found out I had this problem but I got help and things improved immensely. Very Happy 

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Thank You for answering

Post  quell183 on Wed Sep 25, 2013 5:54 pm

No i am not, im am applying for medi-cal and then have to make an apointment at a regional hospital so they can see me and who knows how long that will take. I really am afraid that nothing is going to work. I read so many womens posts and saw that most things have failed Sad 

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Re: Distraught, i need someone please

Post  Elc88 on Wed Sep 25, 2013 9:55 pm

Hi quell! You're a little older than I was when my pain first showed up - I was 20, and definitely felt I was too young to be going through all this restriction to my life! But it hasn't ruined my life, and I've been able to go on and achieve everything I would have if I hadn't had the condition.

You're doing the right thing by being proactive in finding a cure. I am fortunate to be on the NHS, but even then it was over a year before I even saw a gynaecologist, so the fact you have already been seen is promising, and I hope it means you can find a cure sooner! Good luck!

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Elc88

Post  quell183 on Thu Sep 26, 2013 5:17 am

Thank you elc. I appreciate the support, all i really have is you guys on this forum to help me because nobody else can.

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Re: Distraught, i need someone please

Post  Sarah001 on Thu Sep 26, 2013 4:27 pm

Hi quell what I would suggest while you're waiting for your appointments is buying a copy of both When Sex Hurts and Heal Pelvic Pain. Both are available from Amazon and very inexpensive and the first talks about all known causes of V and will help you look in the right direction treatment wise and also give you plenty of knowledge for appointments and the the second is about the musculoskeletal causes of V and will help you to learn which muscles to look at for trigger points and tightness which could also be something to get on with while you wait. I was an idiot and waited 6 months to see a vulvar specialist while doing very little other than try a few creams meanwhile my pain went from a localized pain to generalised so I would always say get those books and start working through them to give yourself the best chance.
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Sarah001

Post  quell183 on Fri Sep 27, 2013 1:33 am

How am i supposed to find a vulvar specialist? I dont know how long it will be until i am seen again. and i already feel that its gotten worse than from when i started.

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Re: Distraught, i need someone please

Post  Sarah001 on Fri Sep 27, 2013 1:29 pm

I'm guessing from the time of your posts you're not in the UK so I can't advise how to find a specialist elsewhere I'm afraid, I only know how to find people in the UK. In answer to another question on a different thread physio is the UK's version of a Physical Therapist. If you let everyone know where you're from someone else might be able to advise how to find a specialist.
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Re: Distraught, i need someone please

Post  tinkerbelle2 on Mon Sep 30, 2013 10:18 am

Hi quel! I'm also 21 but mine started before I'd had sex, when I was 17 (sorry, I don't want to scare you! ).

It could be that having something new in your vagina disrupted it and it's now extra sensitive. It's so strange though because in a way that's what we are born for, surely our bodies have evolved to go back to normal after sex? I hope they evolve to get rid of this damn pain!
Doctors seem to know so little about triggers and causes. I'm still awaiting my next appointment so can't really recommend anything to you that has really worked for me yet, but good luck and I'll keep you posted.

Explore all options that are available to you, different things work for different people.
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Re: Distraught, i need someone please

Post  quell183 on Tue Oct 01, 2013 7:00 am

I know, its crazy how it can happen out of the blue too. It's very unfortunate that doctors dont really seem to remember that this is a condition and instead just basically tell you they dont know what is wrong. I think ive been doing better, mentally at least, ive stopped thinking about it as much. I hope your doc appointments go well and keep us updated on what happens.

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Re: Distraught, i need someone please

Post  EviE°Bee on Wed Oct 02, 2013 4:09 pm

Where are you from quell?

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Re: Distraught, i need someone please

Post  quell183 on Wed Oct 02, 2013 8:06 pm

Im in Southern California.

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Re: Distraught, i need someone please

Post  Leslieg on Thu Oct 03, 2013 12:42 am

Hi Quell, I don't live in California but I'm sure if you do an Internet search for vulvar specialist in California something will come up. Maybe in LA? If you find something read reviews if any and call them, call more than one if you need to. The national vulvodynia association may also be able to help you find a physician that specializes in this in your area. i live in NH so I can't offer specific help. I see a specialist in Boston. Keep searching, you will find something. In the meantime, buy all cotton underwear, try to buy cotton sanitary products. Don't use Always....they are know to use chemicals that cause irritation. Rinse with water after urinating......some woman carry a small bottle of water in their purse. I actually did this for a time. Wash without or with very little soap for sensitive skin. Your vagina is actually self cleaning. Pay attention to what you do and what you eat to see if there is any correlation to your pain. Go without undies when you're home. Don't wear undies to bed. These are the basics most if us do. I don't know what doctors will recommend. Some women also use a thin layer of vasoline to create a barrier and lesson friction to sensitive tissues. Hang in there, love. You will find the answers. Do these things and you may find some relief while you wait for appointment. Be Well and stay positive. Sorry for typos, I'm typing on phone.

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Re: Distraught, i need someone please

Post  quell183 on Thu Oct 03, 2013 3:53 am

Thank you. I do try and do those things, except im not sure which pads to get? I havent gotten my period this month yet, but previous months i used always infinity and i seemed to be okay? I'm not sure what foods to avoid because the burning hot feeling is worse some days and better other days?

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Re: Distraught, i need someone please

Post  tinkerbelle2 on Wed Oct 09, 2013 5:34 pm

Hey quell how have you been feeling ? xx
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Re: Distraught, i need someone please

Post  quell183 on Thu Oct 10, 2013 6:55 am

Hello everyone, i have not been able to go to the doctor yet. I have been feeling the same, maybe a little bit better. I guess my symptoms vary from day to day. Sometimes it burns and other days it feels normal, or ill be fine all day and out of nowhere i feel the burning on my left side. Regardless, i still have that feeling that there is something there. Ive been using aveeno sensitive wash and it doesnt irritate me. I also used tampons and they dont really bother me, but i feel on that side a little more pressure. Im not sure, what to think about my situation.

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Re: Distraught, i need someone please

Post  EviE°Bee on Sat Oct 12, 2013 9:19 pm

You should try desitin for babies. It was recommended from a Doc because I felt dry.I was hesitant to try it because im sensitive to everything but it feels good when I apply it. Just make sure to get the original, not the sented lavender.

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Re: Distraught, i need someone please

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