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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Distraught, i need someone please

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Distraught, i need someone please

Post  quell183 on Wed Sep 25, 2013 3:31 am

I am very new to this. I am almost 21 years old and have been dealing with this pain for about 5 months. Ive seen various doctors. About 5 gynecologists and have been treated for bv, cervicitis, yeast infections, ive gotten a steroid cream but nothing has worked. I noticed this pain back in may when i had a pap smear and realized that it hurt more than it had the first time i had a pelvic exam. About a week later i had sex for the first time in 10 months and felt a sharp pain and had to stop. Ever since that day ive never felt the same. Prior to all of this i felt completley fine, no burning or pain or anything. The gynecologist had mentioned they saw a little cut also. I havent been officially diagnosed but i know this is what i have. Im distraught and feel that there is no hope for me. Im too young to be going through so much emotional and physical pain. I dont have insurance so its even harder for me and i feel like nobody understands. I just want to feel better and go back to feeling normal. Crying or Very sad Sometimes i just want to die.

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Re: Distraught, i need someone please

Post  zarli on Wed Sep 25, 2013 8:55 am

Hi, are you taking any medication at present? Please know there is help available and you are doing the right thing reading and researching on here. Every one is so different and different things work for different women. I felt just as you are explaining how you feel when I found out I had this problem but I got help and things improved immensely. Very Happy 

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Thank You for answering

Post  quell183 on Wed Sep 25, 2013 5:54 pm

No i am not, im am applying for medi-cal and then have to make an apointment at a regional hospital so they can see me and who knows how long that will take. I really am afraid that nothing is going to work. I read so many womens posts and saw that most things have failed Sad 

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Re: Distraught, i need someone please

Post  Elc88 on Wed Sep 25, 2013 9:55 pm

Hi quell! You're a little older than I was when my pain first showed up - I was 20, and definitely felt I was too young to be going through all this restriction to my life! But it hasn't ruined my life, and I've been able to go on and achieve everything I would have if I hadn't had the condition.

You're doing the right thing by being proactive in finding a cure. I am fortunate to be on the NHS, but even then it was over a year before I even saw a gynaecologist, so the fact you have already been seen is promising, and I hope it means you can find a cure sooner! Good luck!

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Elc88

Post  quell183 on Thu Sep 26, 2013 5:17 am

Thank you elc. I appreciate the support, all i really have is you guys on this forum to help me because nobody else can.

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Re: Distraught, i need someone please

Post  Sarah001 on Thu Sep 26, 2013 4:27 pm

Hi quell what I would suggest while you're waiting for your appointments is buying a copy of both When Sex Hurts and Heal Pelvic Pain. Both are available from Amazon and very inexpensive and the first talks about all known causes of V and will help you look in the right direction treatment wise and also give you plenty of knowledge for appointments and the the second is about the musculoskeletal causes of V and will help you to learn which muscles to look at for trigger points and tightness which could also be something to get on with while you wait. I was an idiot and waited 6 months to see a vulvar specialist while doing very little other than try a few creams meanwhile my pain went from a localized pain to generalised so I would always say get those books and start working through them to give yourself the best chance.
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Sarah001

Post  quell183 on Fri Sep 27, 2013 1:33 am

How am i supposed to find a vulvar specialist? I dont know how long it will be until i am seen again. and i already feel that its gotten worse than from when i started.

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Re: Distraught, i need someone please

Post  Sarah001 on Fri Sep 27, 2013 1:29 pm

I'm guessing from the time of your posts you're not in the UK so I can't advise how to find a specialist elsewhere I'm afraid, I only know how to find people in the UK. In answer to another question on a different thread physio is the UK's version of a Physical Therapist. If you let everyone know where you're from someone else might be able to advise how to find a specialist.
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Re: Distraught, i need someone please

Post  tinkerbelle2 on Mon Sep 30, 2013 10:18 am

Hi quel! I'm also 21 but mine started before I'd had sex, when I was 17 (sorry, I don't want to scare you! ).

It could be that having something new in your vagina disrupted it and it's now extra sensitive. It's so strange though because in a way that's what we are born for, surely our bodies have evolved to go back to normal after sex? I hope they evolve to get rid of this damn pain!
Doctors seem to know so little about triggers and causes. I'm still awaiting my next appointment so can't really recommend anything to you that has really worked for me yet, but good luck and I'll keep you posted.

Explore all options that are available to you, different things work for different people.
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Re: Distraught, i need someone please

Post  quell183 on Tue Oct 01, 2013 7:00 am

I know, its crazy how it can happen out of the blue too. It's very unfortunate that doctors dont really seem to remember that this is a condition and instead just basically tell you they dont know what is wrong. I think ive been doing better, mentally at least, ive stopped thinking about it as much. I hope your doc appointments go well and keep us updated on what happens.

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Re: Distraught, i need someone please

Post  EviE°Bee on Wed Oct 02, 2013 4:09 pm

Where are you from quell?

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Re: Distraught, i need someone please

Post  quell183 on Wed Oct 02, 2013 8:06 pm

Im in Southern California.

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Re: Distraught, i need someone please

Post  Leslieg on Thu Oct 03, 2013 12:42 am

Hi Quell, I don't live in California but I'm sure if you do an Internet search for vulvar specialist in California something will come up. Maybe in LA? If you find something read reviews if any and call them, call more than one if you need to. The national vulvodynia association may also be able to help you find a physician that specializes in this in your area. i live in NH so I can't offer specific help. I see a specialist in Boston. Keep searching, you will find something. In the meantime, buy all cotton underwear, try to buy cotton sanitary products. Don't use Always....they are know to use chemicals that cause irritation. Rinse with water after urinating......some woman carry a small bottle of water in their purse. I actually did this for a time. Wash without or with very little soap for sensitive skin. Your vagina is actually self cleaning. Pay attention to what you do and what you eat to see if there is any correlation to your pain. Go without undies when you're home. Don't wear undies to bed. These are the basics most if us do. I don't know what doctors will recommend. Some women also use a thin layer of vasoline to create a barrier and lesson friction to sensitive tissues. Hang in there, love. You will find the answers. Do these things and you may find some relief while you wait for appointment. Be Well and stay positive. Sorry for typos, I'm typing on phone.

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Re: Distraught, i need someone please

Post  quell183 on Thu Oct 03, 2013 3:53 am

Thank you. I do try and do those things, except im not sure which pads to get? I havent gotten my period this month yet, but previous months i used always infinity and i seemed to be okay? I'm not sure what foods to avoid because the burning hot feeling is worse some days and better other days?

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Re: Distraught, i need someone please

Post  tinkerbelle2 on Wed Oct 09, 2013 5:34 pm

Hey quell how have you been feeling ? xx
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Re: Distraught, i need someone please

Post  quell183 on Thu Oct 10, 2013 6:55 am

Hello everyone, i have not been able to go to the doctor yet. I have been feeling the same, maybe a little bit better. I guess my symptoms vary from day to day. Sometimes it burns and other days it feels normal, or ill be fine all day and out of nowhere i feel the burning on my left side. Regardless, i still have that feeling that there is something there. Ive been using aveeno sensitive wash and it doesnt irritate me. I also used tampons and they dont really bother me, but i feel on that side a little more pressure. Im not sure, what to think about my situation.

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Re: Distraught, i need someone please

Post  EviE°Bee on Sat Oct 12, 2013 9:19 pm

You should try desitin for babies. It was recommended from a Doc because I felt dry.I was hesitant to try it because im sensitive to everything but it feels good when I apply it. Just make sure to get the original, not the sented lavender.

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Re: Distraught, i need someone please

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