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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Cured..my story

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Cured..my story

Post  mushroomvisionlala on Fri Sep 27, 2013 10:31 pm

Hello. Just wanted to share my story with everyone here, since Ive been haunting these boards for a couple years now.
My Vulvodynia (itching, burning, swollen, extreme pain with intercourse, pain would not go away, keep me up all night every night for the rest of my life) turned out to be a very stubborn, very long standing case of both BV, and yeast. Had chronic yeast infections my whole life, but I eventually got BV aswell from all the douching and different things I was doing over the years to cure it. I always had pain and irritation, but nothing that prevented me from having sex, or having children (--not all the time, usually once a week or more, but then long breaks in between as I would get cracks, and fissures around the labia and anal area-from yeast), but in the last four years or so, things got really bad, to wear I could barely function as a human being, let alone as a wife.

OTC meds never worked (monistat, canesteen, etc) Diflucan-flucon- one or two pills) LAUGHS, never even touched my infections, Flagyl..never worked, Clindesse. and Metrogel, altho making things feel a whole lot better and soothed, never cured anything as the infection (and pain and misery that comes with it)would come right back after a few days of stopping the medicine. Azithromycin..Did 2 weeks of Metro and Clinda cream..still not gone..feel better, come right back..Tried all the natural things, even BV essentials and stuff you can get now, homeopathinc things at the pharmacy, didint work to eradicate the problem.

So finally I got serious. I got CRAZY..I did tons of research, like all of you here..I started doctor shopping. I knew this was an infection, i decided I needed larger doses of available treatments, which many doctors are hesitant to prescribe. I have insurance, so all was good. I made several appointments with several different Doctors, sum over an hour away. Saw both GYNs, and family general practice physicians.

I had pelvic, and lab cultures done over a dozen times in a three month period. Sometimes Id culture out clue cells for BV or yeast cells, sometimes I wouldnt, either way, I knew how to talk to them to get the medication I wanted. i always walked outta there with something.
Was put on a 14 days course of Metronizidol (Flagyl)..I had just done 14 days of Clindesse and felt better, but didnt feel cured. He said I had copious clue cells on the wet mount. frustrated, knowing Flagyl never worked for me, I got online. This is the biggest script id ever gotten so I was hopeful, maybe it would do something.

I started researching max dosages..I found several posts of women who were given 4 (2 grams, 2000 mg) 4 500mg tablets of metro to take AT ONCE on the first day of treatment, then continue with the usual dose of 500mg twice a day for a week to two weeks after. This is the dosage to cure Trich..a sexually transmitted organism..but i did find some postings of women who also did it for BV. That means the levels of metro in the body are very high, high enough to maybe work???, and kill whatever ive got going on ??? who knows..I did it.

I started with 4 of the 500mg(2000mg) tabs in the morning with a bagel and cream cheese, mild nausea..a metallic taste all day, but all was good..then the 500mg dose that night, then continued to finish my medication for the 13 days whatever I have left. For brain abscess and other serious infections, flagyl can be taken at pretty high dosages for up to a month, so I knew I was safe. The max dosage per day is 2500mg, i looked up all the different dosages for different infections it can be prescribed, and I tried to go high..because I think the reason why metro doesnt work for so many women to cure their problems(and theres tons of women on line who complain about this) is they dont prescribe you enough medicine to fully eradicate the infection.

Anyway BV was cured after that, but then I had massive yeast overgrowth, so i was prescribed one diflucan and a pack pf terezol yeast cream 7 day and was sent on my way.

Ofcourse I was back to square one again in this misery..incurable yeast infection 10 times worse now. So, I started researching Diflucan and other antifungals. I visited the candida diet site and other related sites like Curezone, etc, what people do for chronic candida, as I know this is my problem. Nifty antifungals i learned about, commonly prescribed for systematic and severe yeast and candida fungal infections.

1 – Itraconazole (Sporanox) appears to be at least as potent as ketoconazole and some say may be as good as fluconazole, but not in my opinion. It needs stomach acid to be absorbed, so it should be taken with food. The dose is 200 mg per day. If not enough drug is being absorbed, blood levels may need to be checked so the dose can be increased. An Itraconazole oral solution is more effective and puts higher levels of the drug in the blood than the capsule.

2 – Ketoconazole (Nizoral) is taken at 200 or 400 mg once per day. It also needs stomach acid to be absorbed, so it should be taken with food. Antacids should be avoided. It may not be well absorbed in people with digestive problems or who cannot eat very much.

3 – Fluconazole (Diflucan) is taken at 200 mg the first day, then 100 mg once a day thereafter. Treatment typically lasts from ten days up to two weeks for oral or skin candidiasis and three weeks for esophageal infection (or two weeks after symptoms clear up, whichever is longer). The dose may be increased to 400 mg per day if the lower dose does not work. I have found this drug to be quite hard on the digestive system, particularly the stomach and liver and can make some who take it quite nauseous indeed.

and Nystatin. You can get it in powder form, but it is expensive.

I realized none of these medicines are available without a prescription, and trying to convince any one of my doctors to prescribe them for me would be like pulling teeth, I realized I had to pull a gangster move.

I booked a few more appointments with a few more doctors.
haunting all the health boards I saw several women stating that it often took more than one diflucan to cure up a yeast infection, sumtimes up to 6 for six consecutive nights, at 150mg per night, to clear an infection..

i could not understand why so many women said this little worthless pink pill cleared up yeast infections for them..I knew even 3 maybe even 6 would not be enough for me.
Many times if your lucky) a Doctor will prescribe, 3 Diflucan to clear up a severe yeast infection, to be taken 72 hours apart. It works for many women.
I ended up doing it, and ofcourse, it didnt work for me, But I felt a whole lot better.

The key is, I felt improvement, i felt a difference, so I knew the Diflucan had some power, I knew I was on to something, but did I need more?? More research..Safe dosages. Some people are even prescribed Diflucan for months (HIV or LYME related illneses) for severe fungus..One person was prescribed Diflucan at 150mg to be taken every night for 2 weeks..
I still had a few doctor appointments ahead of me, so I managed to Hustle 3 Diflucan out of each visit, even when I did not culture out for yeast.
I ended up taking it for 5 more days at 150mg a day and it cleared everything up for me.
Now, you guys Im not recommending you guys do this, as you have to be careful of allergies, and also your liver, etc, you should prolly monitor your liver, etc, drink lots of water, etc, this is just what I do. and my system handled everything without any problems. what Im trying to say is, if you have a really bad, really stubborn infection, its gonna require stronger treatment, and as we all know, Doctors are very hesitant about this, and downplay and just dont understand what it is you need and whats going on, and what your going thru.

anyway, kefir and Ultimate flora vaginal support capsules are a must,a nd I still do insert them on occasional to correct balance and irritation, etc. Will post sum links about things i found on candida and BV, thank you

mushroomvisionlala

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Re: Cured..my story

Post  tinkerbelle2 on Sat Sep 28, 2013 10:59 pm

Hey, congratulations on getting cured!

It's heart warming to read stories like that as there is hope for us all!

Well done for your perseverance, determination and research! I am currently at the stage you were. Getting serious and getting crazy. I am constantly doing research and have just signed up to about 10 forums!

I am going to get my old vagina back whatever it takes!
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tinkerbelle2

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Re: Cured..my story

Post  quell183 on Sun Sep 29, 2013 5:44 am

Hey congrats on finding something that works for you! I think maybe some of the women who read this will have more hope. I don't really know if this would work for me because i dont even think ive ever had a yeast infection? Are you able to have pain free sex now and did all the burning fiery feeling go away?

quell183

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Re: Cured..my story

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