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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Cured..my story

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Cured..my story

Post  mushroomvisionlala on Fri Sep 27, 2013 10:31 pm

Hello. Just wanted to share my story with everyone here, since Ive been haunting these boards for a couple years now.
My Vulvodynia (itching, burning, swollen, extreme pain with intercourse, pain would not go away, keep me up all night every night for the rest of my life) turned out to be a very stubborn, very long standing case of both BV, and yeast. Had chronic yeast infections my whole life, but I eventually got BV aswell from all the douching and different things I was doing over the years to cure it. I always had pain and irritation, but nothing that prevented me from having sex, or having children (--not all the time, usually once a week or more, but then long breaks in between as I would get cracks, and fissures around the labia and anal area-from yeast), but in the last four years or so, things got really bad, to wear I could barely function as a human being, let alone as a wife.

OTC meds never worked (monistat, canesteen, etc) Diflucan-flucon- one or two pills) LAUGHS, never even touched my infections, Flagyl..never worked, Clindesse. and Metrogel, altho making things feel a whole lot better and soothed, never cured anything as the infection (and pain and misery that comes with it)would come right back after a few days of stopping the medicine. Azithromycin..Did 2 weeks of Metro and Clinda cream..still not gone..feel better, come right back..Tried all the natural things, even BV essentials and stuff you can get now, homeopathinc things at the pharmacy, didint work to eradicate the problem.

So finally I got serious. I got CRAZY..I did tons of research, like all of you here..I started doctor shopping. I knew this was an infection, i decided I needed larger doses of available treatments, which many doctors are hesitant to prescribe. I have insurance, so all was good. I made several appointments with several different Doctors, sum over an hour away. Saw both GYNs, and family general practice physicians.

I had pelvic, and lab cultures done over a dozen times in a three month period. Sometimes Id culture out clue cells for BV or yeast cells, sometimes I wouldnt, either way, I knew how to talk to them to get the medication I wanted. i always walked outta there with something.
Was put on a 14 days course of Metronizidol (Flagyl)..I had just done 14 days of Clindesse and felt better, but didnt feel cured. He said I had copious clue cells on the wet mount. frustrated, knowing Flagyl never worked for me, I got online. This is the biggest script id ever gotten so I was hopeful, maybe it would do something.

I started researching max dosages..I found several posts of women who were given 4 (2 grams, 2000 mg) 4 500mg tablets of metro to take AT ONCE on the first day of treatment, then continue with the usual dose of 500mg twice a day for a week to two weeks after. This is the dosage to cure Trich..a sexually transmitted organism..but i did find some postings of women who also did it for BV. That means the levels of metro in the body are very high, high enough to maybe work???, and kill whatever ive got going on ??? who knows..I did it.

I started with 4 of the 500mg(2000mg) tabs in the morning with a bagel and cream cheese, mild nausea..a metallic taste all day, but all was good..then the 500mg dose that night, then continued to finish my medication for the 13 days whatever I have left. For brain abscess and other serious infections, flagyl can be taken at pretty high dosages for up to a month, so I knew I was safe. The max dosage per day is 2500mg, i looked up all the different dosages for different infections it can be prescribed, and I tried to go high..because I think the reason why metro doesnt work for so many women to cure their problems(and theres tons of women on line who complain about this) is they dont prescribe you enough medicine to fully eradicate the infection.

Anyway BV was cured after that, but then I had massive yeast overgrowth, so i was prescribed one diflucan and a pack pf terezol yeast cream 7 day and was sent on my way.

Ofcourse I was back to square one again in this misery..incurable yeast infection 10 times worse now. So, I started researching Diflucan and other antifungals. I visited the candida diet site and other related sites like Curezone, etc, what people do for chronic candida, as I know this is my problem. Nifty antifungals i learned about, commonly prescribed for systematic and severe yeast and candida fungal infections.

1 – Itraconazole (Sporanox) appears to be at least as potent as ketoconazole and some say may be as good as fluconazole, but not in my opinion. It needs stomach acid to be absorbed, so it should be taken with food. The dose is 200 mg per day. If not enough drug is being absorbed, blood levels may need to be checked so the dose can be increased. An Itraconazole oral solution is more effective and puts higher levels of the drug in the blood than the capsule.

2 – Ketoconazole (Nizoral) is taken at 200 or 400 mg once per day. It also needs stomach acid to be absorbed, so it should be taken with food. Antacids should be avoided. It may not be well absorbed in people with digestive problems or who cannot eat very much.

3 – Fluconazole (Diflucan) is taken at 200 mg the first day, then 100 mg once a day thereafter. Treatment typically lasts from ten days up to two weeks for oral or skin candidiasis and three weeks for esophageal infection (or two weeks after symptoms clear up, whichever is longer). The dose may be increased to 400 mg per day if the lower dose does not work. I have found this drug to be quite hard on the digestive system, particularly the stomach and liver and can make some who take it quite nauseous indeed.

and Nystatin. You can get it in powder form, but it is expensive.

I realized none of these medicines are available without a prescription, and trying to convince any one of my doctors to prescribe them for me would be like pulling teeth, I realized I had to pull a gangster move.

I booked a few more appointments with a few more doctors.
haunting all the health boards I saw several women stating that it often took more than one diflucan to cure up a yeast infection, sumtimes up to 6 for six consecutive nights, at 150mg per night, to clear an infection..

i could not understand why so many women said this little worthless pink pill cleared up yeast infections for them..I knew even 3 maybe even 6 would not be enough for me.
Many times if your lucky) a Doctor will prescribe, 3 Diflucan to clear up a severe yeast infection, to be taken 72 hours apart. It works for many women.
I ended up doing it, and ofcourse, it didnt work for me, But I felt a whole lot better.

The key is, I felt improvement, i felt a difference, so I knew the Diflucan had some power, I knew I was on to something, but did I need more?? More research..Safe dosages. Some people are even prescribed Diflucan for months (HIV or LYME related illneses) for severe fungus..One person was prescribed Diflucan at 150mg to be taken every night for 2 weeks..
I still had a few doctor appointments ahead of me, so I managed to Hustle 3 Diflucan out of each visit, even when I did not culture out for yeast.
I ended up taking it for 5 more days at 150mg a day and it cleared everything up for me.
Now, you guys Im not recommending you guys do this, as you have to be careful of allergies, and also your liver, etc, you should prolly monitor your liver, etc, drink lots of water, etc, this is just what I do. and my system handled everything without any problems. what Im trying to say is, if you have a really bad, really stubborn infection, its gonna require stronger treatment, and as we all know, Doctors are very hesitant about this, and downplay and just dont understand what it is you need and whats going on, and what your going thru.

anyway, kefir and Ultimate flora vaginal support capsules are a must,a nd I still do insert them on occasional to correct balance and irritation, etc. Will post sum links about things i found on candida and BV, thank you

mushroomvisionlala

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Re: Cured..my story

Post  tinkerbelle2 on Sat Sep 28, 2013 10:59 pm

Hey, congratulations on getting cured!

It's heart warming to read stories like that as there is hope for us all!

Well done for your perseverance, determination and research! I am currently at the stage you were. Getting serious and getting crazy. I am constantly doing research and have just signed up to about 10 forums!

I am going to get my old vagina back whatever it takes!
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tinkerbelle2

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Re: Cured..my story

Post  quell183 on Sun Sep 29, 2013 5:44 am

Hey congrats on finding something that works for you! I think maybe some of the women who read this will have more hope. I don't really know if this would work for me because i dont even think ive ever had a yeast infection? Are you able to have pain free sex now and did all the burning fiery feeling go away?

quell183

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Re: Cured..my story

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