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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

A day in the life of this shit

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A day in the life of this shit

Post  meaganmayes on Sat Sep 28, 2013 1:51 am

It is nearly October now. I was diagnosed with vulvodynia in may. Can I just say MY LIFE FREAKIN SUCKS! not only does sex feel like knives stabbing me, but its getting worse. Now I am starting to get the burning sensations during the day. I cry a lot when I am alone. Is my life really going to end up like this? How am I supposed to lead a healthy relationship if I can't have sex with my partner? If anyone has advice, I welcome it!


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Re: A day in the life of this shit

Post  Elc88 on Sat Sep 28, 2013 5:49 pm

I still have days like this. It's frustrating, and I can sympathise with how you must be feeling. It's not impossible to maintain a healthy relationship without sex, and there are so many people on here doing just that! It takes patience and understanding on both sides, and sometimes just an extra-special sort of guy.


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Re: A day in the life of this shit

Post  EviE°Bee on Sun Oct 06, 2013 5:07 am

I feel ya, litterally. I try and have sex on "okay" days but its hard to enjoy because im gonna end up paying for it after. It sucks going from anytime sex to 1-2 times per month.

I have days where i try and stay positive, do the research, maintain mental stability, pray for the good and bad things. Other days i curse my life, i think im gonna go crazy, i think im doomed to spend my life in pain, i dont pray, i cry and get anxious.

I agree with Elc, its taxing on both parties but it can be done.


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Re: A day in the life of this shit

Post  mary jane on Sun Oct 06, 2013 1:35 pm

Have you tired giving yourself a break from dating until you explore more options to get better?
I know it sounds like pointless advice, but having to deal with the pressure of an illness PLUS the pressure of having to maintain a relationship is too much to handle when there are other things like school/work on the line !!

Try everything there is, you have the general symptoms, I for one have throbbing and my entire bartholin gland hurts. As in every RAMIFICATION of it (it's like an octopus). So i have discomfort walking and have to hide it at uni.

Save some money to go to acupuncture, buy magnesium, vit C, it won't hurt.
some ladies have said they gave up all SLS-containing products and it worked for them.
Buy organic Dr Bronner's soap and something super-mild for the vulva, with zero alchohol or perfume.
mary jane
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Re: A day in the life of this shit

Post  mary jane on Sun Oct 06, 2013 1:37 pm

change your laundry detergent,shampoo and shower gel as well.
mary jane
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Re: A day in the life of this shit

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