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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

A day in the life of this shit

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A day in the life of this shit

Post  meaganmayes on Sat Sep 28, 2013 1:51 am

It is nearly October now. I was diagnosed with vulvodynia in may. Can I just say MY LIFE FREAKIN SUCKS! not only does sex feel like knives stabbing me, but its getting worse. Now I am starting to get the burning sensations during the day. I cry a lot when I am alone. Is my life really going to end up like this? How am I supposed to lead a healthy relationship if I can't have sex with my partner? If anyone has advice, I welcome it!


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Re: A day in the life of this shit

Post  Elc88 on Sat Sep 28, 2013 5:49 pm

I still have days like this. It's frustrating, and I can sympathise with how you must be feeling. It's not impossible to maintain a healthy relationship without sex, and there are so many people on here doing just that! It takes patience and understanding on both sides, and sometimes just an extra-special sort of guy.


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Re: A day in the life of this shit

Post  EviE°Bee on Sun Oct 06, 2013 5:07 am

I feel ya, litterally. I try and have sex on "okay" days but its hard to enjoy because im gonna end up paying for it after. It sucks going from anytime sex to 1-2 times per month.

I have days where i try and stay positive, do the research, maintain mental stability, pray for the good and bad things. Other days i curse my life, i think im gonna go crazy, i think im doomed to spend my life in pain, i dont pray, i cry and get anxious.

I agree with Elc, its taxing on both parties but it can be done.


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Re: A day in the life of this shit

Post  mary jane on Sun Oct 06, 2013 1:35 pm

Have you tired giving yourself a break from dating until you explore more options to get better?
I know it sounds like pointless advice, but having to deal with the pressure of an illness PLUS the pressure of having to maintain a relationship is too much to handle when there are other things like school/work on the line !!

Try everything there is, you have the general symptoms, I for one have throbbing and my entire bartholin gland hurts. As in every RAMIFICATION of it (it's like an octopus). So i have discomfort walking and have to hide it at uni.

Save some money to go to acupuncture, buy magnesium, vit C, it won't hurt.
some ladies have said they gave up all SLS-containing products and it worked for them.
Buy organic Dr Bronner's soap and something super-mild for the vulva, with zero alchohol or perfume.
mary jane

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Re: A day in the life of this shit

Post  mary jane on Sun Oct 06, 2013 1:37 pm

change your laundry detergent,shampoo and shower gel as well.
mary jane

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Re: A day in the life of this shit

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