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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


A day in the life of this shit

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A day in the life of this shit

Post  meaganmayes on Sat Sep 28, 2013 1:51 am

It is nearly October now. I was diagnosed with vulvodynia in may. Can I just say MY LIFE FREAKIN SUCKS! not only does sex feel like knives stabbing me, but its getting worse. Now I am starting to get the burning sensations during the day. I cry a lot when I am alone. Is my life really going to end up like this? How am I supposed to lead a healthy relationship if I can't have sex with my partner? If anyone has advice, I welcome it!

meaganmayes

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Re: A day in the life of this shit

Post  Elc88 on Sat Sep 28, 2013 5:49 pm

I still have days like this. It's frustrating, and I can sympathise with how you must be feeling. It's not impossible to maintain a healthy relationship without sex, and there are so many people on here doing just that! It takes patience and understanding on both sides, and sometimes just an extra-special sort of guy.

Elc88

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Re: A day in the life of this shit

Post  EviE°Bee on Sun Oct 06, 2013 5:07 am

I feel ya, litterally. I try and have sex on "okay" days but its hard to enjoy because im gonna end up paying for it after. It sucks going from anytime sex to 1-2 times per month.

I have days where i try and stay positive, do the research, maintain mental stability, pray for the good and bad things. Other days i curse my life, i think im gonna go crazy, i think im doomed to spend my life in pain, i dont pray, i cry and get anxious.

I agree with Elc, its taxing on both parties but it can be done.

EviE°Bee

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Re: A day in the life of this shit

Post  mary jane on Sun Oct 06, 2013 1:35 pm

Have you tired giving yourself a break from dating until you explore more options to get better?
I know it sounds like pointless advice, but having to deal with the pressure of an illness PLUS the pressure of having to maintain a relationship is too much to handle when there are other things like school/work on the line !!

Try everything there is, you have the general symptoms, I for one have throbbing and my entire bartholin gland hurts. As in every RAMIFICATION of it (it's like an octopus). So i have discomfort walking and have to hide it at uni.

Save some money to go to acupuncture, buy magnesium, vit C, it won't hurt.
some ladies have said they gave up all SLS-containing products and it worked for them.
Buy organic Dr Bronner's soap and something super-mild for the vulva, with zero alchohol or perfume.
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mary jane

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Re: A day in the life of this shit

Post  mary jane on Sun Oct 06, 2013 1:37 pm

change your laundry detergent,shampoo and shower gel as well.
AND GET RID OF TAMPONS, CHOOSE NON-CHLORINATED PADS LIKE NATRACARE
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mary jane

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Re: A day in the life of this shit

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