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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


My story so far!

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My story so far!

Post  tinkerbelle2 on Sat Sep 28, 2013 10:20 pm


Hey everyone Smile 

I'm so pleased that I have stumbled upon this site, I now already feel more hopeful and know that at least I am not alone. People seem so kind and supportive.

Will give you the background info of my own experience with vulvodynia:

I first started having what can best be described as a burning feeling just inside my vaginal opening and the vestibule at 17, back in 2009. To my memory it came on randomly. I think one day I just woke up and it was just really sore and remained sore, but I can't really remember.

I don't remember any obvious trigger, maybe there wasn't one,  but over the course of a few months before the pain started, I went on the Pill (yasmin i think?) I hadn't had sex yet but requested to try the pill due to acne and very painful periods. In 2009 I also had a urine infection, went on antibiotics for the uti and had a thrush infection (not caused by the antibiotics as it was a few months after)

I'm thinking maybe one of those things or a combination of them set up sensitivity and disrupted the flora and fauna of the vagina...who knows. All I know is I was perfectly fine before and wasn't aware of my vagina every second of the day. Luckily I have been fortunate health wise and have never had any serious conditions. I am of a healthy weight and eat a balanced diet.

When I was treated for the thrush and urine infections, any irritation cleared up temporarily. I was fine for a few months after which is why it's so puzzling! scratch 

After the soreness started, I did go back to my doctor and she suggested trying a different form of birth control. I went on a different kind of pill. No change. About 2 months later, in early 2010, I had my first sexual relationship. Sex with this burning feeling wasn't extremely pleasant but i had never known any different, and it wasn't always extreme pain. I then went on the contraceptive injection, and had 3 bouts of that.

Across 2010, 2011 and 2012 I just got on with it! Sometimes the pain was unbearable, sometimes it wasn't so bad. I had got tested for every STD under the sun several times, had blood tests etc. Everything was fine. When the sexual health nurses and my G.P examined me they always thought everything looked normal and health except ocasionally they said it looked a little red and 'angry'. cherry 

Finally at the beginning of this year my G.P referred me to a gynecologist. I had to wait 2 months for the appointment and when I finally did have it, she was also confused! She did the cotton bud test which didn't cause me excruciating pain. My pain isn't really provoked, it's just always there. I know some of you have the pain upon physical contact.

I was prescribed Gabapentin but it did little or nothing to alleviate the pain. I took it for about 6 weeks but had to stop as it was giving me severe headaches and slightly blurred vision (it is a major drug used to treat epilepsy! ) I had been told that it was brilliant for some and didn't work so well for others. Am now awaiting my follow up appointment to see what other options I can try.  

Also, sex is sometimes okay or even good, and other times I am not in the mood at all. I have been with my boyfriend for nearly 2 years. Luckily he is understanding and lovely. He has also recently developed epididymitis (inflammation of the testes and epidymus) , so we are kind of going through a similar thing. I wondered if it could be related but GP says that's unlikely..

Throughout the day my pain can vary at random.

I am finding this whole thing very debilitating and it is worrying that doctors seem to know so little about it. It is just so confusing to sometimes be in such pain and not know the cause. I have tried many creams to no avail. Some days I just want to scream and cut the whole area off! Sometimes I can't get off to sleep because of it.

Has anyone had any relief from biofeedback, botox or acupuncture? I am concerned that because my pain is slightly INSIDE the vagina that they would have to insert needles and things IN me. pale The idea of a vestibulectomy is also frightening but not something I would rule out if it would help!

So glad to hear that some of you have got cured. That is brilliant! cheers 


Last edited by tinkerbelle2 on Thu Nov 21, 2013 9:20 am; edited 6 times in total
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Re: My story so far!

Post  tinkerbelle2 on Sat Sep 28, 2013 10:41 pm


Things I do/have tried: - Cotton undies only, none at night - No tampons -, using condoms, not using condoms - No shower products only aqueous cream - Canesten,Vagisil - Lidocaine - rePhresh - e45 - cetraben cream - sylk gel - baking soda bath (I read it somewhere?!) - I have even tried inserting yoghurt and garlic cloves (crazy or what?!..it didn't help..) I am quite desperate! Feel free to post any ideas or questions. I am happy to give anything a go!


Last edited by tinkerbelle2 on Mon Sep 30, 2013 2:42 pm; edited 2 times in total
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Re: My story so far!

Post  tinkerbelle2 on Sat Sep 28, 2013 10:46 pm


Crying or Very sad 


Last edited by tinkerbelle2 on Mon Sep 30, 2013 2:42 pm; edited 1 time in total
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Re: My story so far!

Post  tinkerbelle2 on Sat Sep 28, 2013 10:53 pm

I am half asleep as I write this via my mobile and the battery is about to die so will edit this post tomorrow ! Night all X


Last edited by tinkerbelle2 on Mon Sep 30, 2013 2:45 pm; edited 1 time in total
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Miserable with my burning vagina

Post  Sunflower82 on Mon Sep 30, 2013 5:47 am

Hi,
Your story sounds very familiar! However when they did the q tip test on me I think I nearly jumped off the bed! I have provoked and unprovoked pain, which can be just inside the vagina. It's normally extremely painful around the entertance and just inside. I was prescribed trimocate cream which u can't really use inside but I was told I could use it just inside, and the time it was a little red a sore it didn't bring down the inflamation but didn't really help with the pain and I was a little concerned about using it as it a steroid cream. I would suggest you see a women's health Physio therapist, they seem to know more about this kind of thing than any gynochologist I have seen and I must have seen 3 by now, the other option is to research gynochologist in your area who have skills in vulvar pain.

Where are u based ?

Kt

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Re: My story so far!

Post  tinkerbelle2 on Mon Sep 30, 2013 10:08 am

Hi,  thank you so much for replying! Very Happy  I am in Brighton,  England (about 50 minutes from London).

I have also tried steroid creams like hydrocortisone cream and put a little inside but I didn't notice an improvement! :/

Ah thanks! I will research a local women's health physio! Have you found the pain more manageable since starting or is it still early days?
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Re: My story so far!

Post  tinkerbelle2 on Mon Feb 01, 2016 9:02 pm

bumping up my original post as still in pretty much the same position like 3 years on, and in case anyone else's in the same boat. Xxx
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Re: My story so far!

Post  meelie on Tue Feb 02, 2016 6:19 pm

Warm soaks in epsom salts (magnesium) help me when I have time to do it.

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Re: My story so far!

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