Log in

I forgot my password

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


My story so far!

View previous topic View next topic Go down

My story so far!

Post  tinkerbelle2 on Sat Sep 28, 2013 10:20 pm


Hey everyone Smile 

I'm so pleased that I have stumbled upon this site, I now already feel more hopeful and know that at least I am not alone. People seem so kind and supportive.

Will give you the background info of my own experience with vulvodynia:

I first started having what can best be described as a burning feeling just inside my vaginal opening and the vestibule at 17, back in 2009. To my memory it came on randomly. I think one day I just woke up and it was just really sore and remained sore, but I can't really remember.

I don't remember any obvious trigger, maybe there wasn't one,  but over the course of a few months before the pain started, I went on the Pill (yasmin i think?) I hadn't had sex yet but requested to try the pill due to acne and very painful periods. In 2009 I also had a urine infection, went on antibiotics for the uti and had a thrush infection (not caused by the antibiotics as it was a few months after)

I'm thinking maybe one of those things or a combination of them set up sensitivity and disrupted the flora and fauna of the vagina...who knows. All I know is I was perfectly fine before and wasn't aware of my vagina every second of the day. Luckily I have been fortunate health wise and have never had any serious conditions. I am of a healthy weight and eat a balanced diet.

When I was treated for the thrush and urine infections, any irritation cleared up temporarily. I was fine for a few months after which is why it's so puzzling! scratch 

After the soreness started, I did go back to my doctor and she suggested trying a different form of birth control. I went on a different kind of pill. No change. About 2 months later, in early 2010, I had my first sexual relationship. Sex with this burning feeling wasn't extremely pleasant but i had never known any different, and it wasn't always extreme pain. I then went on the contraceptive injection, and had 3 bouts of that.

Across 2010, 2011 and 2012 I just got on with it! Sometimes the pain was unbearable, sometimes it wasn't so bad. I had got tested for every STD under the sun several times, had blood tests etc. Everything was fine. When the sexual health nurses and my G.P examined me they always thought everything looked normal and health except ocasionally they said it looked a little red and 'angry'. cherry 

Finally at the beginning of this year my G.P referred me to a gynecologist. I had to wait 2 months for the appointment and when I finally did have it, she was also confused! She did the cotton bud test which didn't cause me excruciating pain. My pain isn't really provoked, it's just always there. I know some of you have the pain upon physical contact.

I was prescribed Gabapentin but it did little or nothing to alleviate the pain. I took it for about 6 weeks but had to stop as it was giving me severe headaches and slightly blurred vision (it is a major drug used to treat epilepsy! ) I had been told that it was brilliant for some and didn't work so well for others. Am now awaiting my follow up appointment to see what other options I can try.  

Also, sex is sometimes okay or even good, and other times I am not in the mood at all. I have been with my boyfriend for nearly 2 years. Luckily he is understanding and lovely. He has also recently developed epididymitis (inflammation of the testes and epidymus) , so we are kind of going through a similar thing. I wondered if it could be related but GP says that's unlikely..

Throughout the day my pain can vary at random.

I am finding this whole thing very debilitating and it is worrying that doctors seem to know so little about it. It is just so confusing to sometimes be in such pain and not know the cause. I have tried many creams to no avail. Some days I just want to scream and cut the whole area off! Sometimes I can't get off to sleep because of it.

Has anyone had any relief from biofeedback, botox or acupuncture? I am concerned that because my pain is slightly INSIDE the vagina that they would have to insert needles and things IN me. pale The idea of a vestibulectomy is also frightening but not something I would rule out if it would help!

So glad to hear that some of you have got cured. That is brilliant! cheers 


Last edited by tinkerbelle2 on Thu Nov 21, 2013 9:20 am; edited 6 times in total
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: My story so far!

Post  tinkerbelle2 on Sat Sep 28, 2013 10:41 pm


Things I do/have tried: - Cotton undies only, none at night - No tampons -, using condoms, not using condoms - No shower products only aqueous cream - Canesten,Vagisil - Lidocaine - rePhresh - e45 - cetraben cream - sylk gel - baking soda bath (I read it somewhere?!) - I have even tried inserting yoghurt and garlic cloves (crazy or what?!..it didn't help..) I am quite desperate! Feel free to post any ideas or questions. I am happy to give anything a go!


Last edited by tinkerbelle2 on Mon Sep 30, 2013 2:42 pm; edited 2 times in total
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: My story so far!

Post  tinkerbelle2 on Sat Sep 28, 2013 10:46 pm


Crying or Very sad 


Last edited by tinkerbelle2 on Mon Sep 30, 2013 2:42 pm; edited 1 time in total
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: My story so far!

Post  tinkerbelle2 on Sat Sep 28, 2013 10:53 pm

I am half asleep as I write this via my mobile and the battery is about to die so will edit this post tomorrow ! Night all X


Last edited by tinkerbelle2 on Mon Sep 30, 2013 2:45 pm; edited 1 time in total
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Miserable with my burning vagina

Post  Sunflower82 on Mon Sep 30, 2013 5:47 am

Hi,
Your story sounds very familiar! However when they did the q tip test on me I think I nearly jumped off the bed! I have provoked and unprovoked pain, which can be just inside the vagina. It's normally extremely painful around the entertance and just inside. I was prescribed trimocate cream which u can't really use inside but I was told I could use it just inside, and the time it was a little red a sore it didn't bring down the inflamation but didn't really help with the pain and I was a little concerned about using it as it a steroid cream. I would suggest you see a women's health Physio therapist, they seem to know more about this kind of thing than any gynochologist I have seen and I must have seen 3 by now, the other option is to research gynochologist in your area who have skills in vulvar pain.

Where are u based ?

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

View user profile

Back to top Go down

Re: My story so far!

Post  tinkerbelle2 on Mon Sep 30, 2013 10:08 am

Hi,  thank you so much for replying! Very Happy  I am in Brighton,  England (about 50 minutes from London).

I have also tried steroid creams like hydrocortisone cream and put a little inside but I didn't notice an improvement! :/

Ah thanks! I will research a local women's health physio! Have you found the pain more manageable since starting or is it still early days?
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: My story so far!

Post  tinkerbelle2 on Mon Feb 01, 2016 9:02 pm

bumping up my original post as still in pretty much the same position like 3 years on, and in case anyone else's in the same boat. Xxx
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: My story so far!

Post  meelie on Tue Feb 02, 2016 6:19 pm

Warm soaks in epsom salts (magnesium) help me when I have time to do it.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: My story so far!

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum